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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Duke Social Support Index

dssi

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
duk1IntegerRecommendedOther than persons living with you, how many of your family members live in this area, that is, within one hour's travel (of your home/ from here)? [include any related person subject wants to include as part of family]0 = none
duk2IntegerRecommendedHow many of your family members that live within one hour's travel (of your home/from here) do you feel you can depend on or feel very close to?0 = none; 99 = NA
duk3IntegerRecommendedOther than members of your family, how many persons in this area within one hour's travel (of your home/from here) do you feel you can depend on or feel very close to?0 = none
duk4IntegerRecommended(Other than at work) How many times during the past week did you spend some time with someone who does not live with you, that is, you went to see them or they came to visit you, or you went out together? IF INSTITUTIONAL: DO NOT COUNT STAFF OR OTHER INSTITUTIONAL RESIDENTS.0::70 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times
duk5IntegerRecommended(Other than at work) How many times did you talk to someone -friends, relatives or others-- on the telephone in the past week (either they called you, or you called them)?0::70 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times
duk6IntegerRecommended(Other than at work) About how often did you go to meetings of clubs, religious meetings, or other groups that you belong to in the past week?0::70 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times
duk7IntegerRecommendedDoes it seem that your family and friends understand you most of the time, some of the time, or hardly ever?1::31 = Hardly ever; 2 = Some; 3 = Most
fi105IntegerRecommended105. Do you feel useful to your family and friends most of the time, some of the time, or hardly ever?1::3; 97::991 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NAduk8
fi106IntegerRecommended106. Do you know what is going on with your family and friends most of the time, some of the time, or hardly ever?1::3; 97::991 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NAduk9
fi107IntegerRecommended107. When you are talking with your family and friends, do you feel you are being listened to most of the time, some of the time, or hardly ever?1::3; 97::991 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NAduk10
fi108IntegerRecommended108. Do you feel you have a definite role (place) in your family and among your friends most of the time, some of the time, or hardly ever?1::3; 97::991 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NAduk11
fi109IntegerRecommended109. Can you talk about your deepest problems with at least some of your family and friends most of the time, some of the time, or hardly ever?1::3; 97::991 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NAduk12
fi110IntegerRecommended110. How satisfied are you with the kinds of relationships you have with your family and friends--very dissatisfied, somewhat dissatisfied, or satisfied?1::3; 97::991 = Very dissatisfied; 2 = Somewhat dissatisfied; 3 = Satisfied; 97 = Refused; 98 = Don't know; 99 = NAduk13
duk14IntegerRecommendedDo your family and friends help out when you are sick?0;10 = No; 1 = Yes
duk15IntegerRecommendedDo your family and friends shop or run errands for you?0;10 = No; 1 = Yes
duk16IntegerRecommendedDo your family and friendsgive you gifts (presents)?0;10 = No; 1 = Yes
duk17IntegerRecommendedDo your family and friends help you out with money?0;10 = No; 1 = Yes
duk18IntegerRecommendedDo your family and friends fix things around your house?0;10 = No; 1 = Yes
duk19IntegerRecommendedDo your family and friends keep house for you, or do household chores?0;10 = No; 1 = Yes
duk20IntegerRecommendedDo your family and friends give you advice on business or financial matter?0;10 = No; 1 = Yes
duk21IntegerRecommendedDo your family and friends provide companionship to you?0;10 = No; 1 = Yes
duk22IntegerRecommendedDo your family and friends listen to your problems?0;10 = No; 1 = Yes
duk23IntegerRecommendedDo your family and friends give you advice on dealing with life's problems?0;10 = No; 1 = Yes
duk24IntegerRecommendedDo your family and friends provide transportation for you?0;10 = No; 1 = Yes
duk25IntegerRecommendedDo your family and friends prepare or provide meals for you?0;10 = No; 1 = Yes
duk26IntegerRecommendedDo you wish your family and friends would give you (more) help with these kinds of things?0;10 = No; 1 = Yes
visitString50RecommendedVisit nameCharacter description of each type of visit
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
days_baselineIntegerRecommendedDays since baseline
siteString100RecommendedSiteStudy Site
duk2_3IntegerRecommendedSum of Item 2 and Item 30::130
duke_snIntegerRecommendedSocial Network Size0::14number of relatives and friends with whom the subject has significant interaction.(four items: number of family members, coworkers, and friends, household size; possible
duke_siFloatRecommendedSocial interaction (SI) scorenumber of relatives and friends with whom the subject has significant interaction.
duke_isFloatRecommendedInstrumental social support (IS) scoretype of assistance a subject has with day-to-day activities. Must have 10 items present to score.
duke_ssIntegerRecommendedSubjective social support (SS) scoremeasures items that refer to frequency of feeling understood. Must have 6 items present to score.
duke_fnIntegerRecommendedFamily network size (FN)number of relatives in the patient's household. FN was calculated from the number of family members that the subject identified living with him or her, as well as the number of family members that lived within a 1 hour distance with whom the subject had significant interaction
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: dssi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.