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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Davidson Trauma Scale

dts

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectstepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visit
daysconsIntegerRecommendeddays since consent
memfrqIntegerRecommendedHave you had painful images, memories, or thoughts of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
memsevIntegerRecommendedHave you had painful images, memories, or thoughts of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
dreamfrqIntegerRecommendedHave you had distressing dreams of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
dreamsevIntegerRecommendedHave you had distressing dreams of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
relivfrqIntegerRecommendedHave you felt as though the event was recurring? Was it as if you were reliving it? Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
relivsevIntegerRecommendedHave you felt as though the event was recurring? Was it as if you were reliving it? Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
upsetfrqIntegerRecommendedHave you been upset by something that reminded you of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
upsetsevIntegerRecommendedHave you been upset by something that reminded you of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
physfrqIntegerRecommendedHave you been physically upset by reminders of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
physsevIntegerRecommendedHave you been physically upset by reminders of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
feelfrqIntegerRecommendedHave you been avoiding any thoughts or feelings about the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
feelsevIntegerRecommendedHave you been avoiding any thoughts or feelings about the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
doingfrqIntegerRecommendedHave you been avoiding doing things or going into situations that remind you of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
doingsevIntegerRecommendedHave you been avoiding doing things or going into situations that remind you of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
recalfrqIntegerRecommendedHave you found yourself unable to recall important parts of the event. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
recalsevIntegerRecommendedHave you found yourself unable to recall important parts of the event. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
enjoyfrqIntegerRecommendedHave you had difficulty enjoying things. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
enjoysevIntegerRecommendedHave you had difficulty enjoying things. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
distfrqIntegerRecommendedHave you felt distant or cut off from other people. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
distsevIntegerRecommendedHave you felt distant or cut off from other people. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
sadfrqIntegerRecommendedHave you been unable to have sad or loving feelings. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
sadsevIntegerRecommendedHave you been unable to have sad or loving feelings. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
goalfrqIntegerRecommendedHave you found it hard to imagine having a long life span and fulfilling your goals. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
goalsevIntegerRecommendedHave you found it hard to imagine having a long life span and fulfilling your goals. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
sleepfrqIntegerRecommendedHave you had trouble falling asleep or staying asleep. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
sleepsevIntegerRecommendedHave you had trouble falling asleep or staying asleep. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
angerfrqIntegerRecommendedHave you been irritable or had outbursts of anger. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
angersevIntegerRecommendedHave you been irritable or had outbursts of anger. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
dconcfrqIntegerRecommendedHave you had difficulty concentrating. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
dconcsevIntegerRecommendedHave you had difficulty concentrating. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
edgefrqIntegerRecommendedHave you felt on edge, been easily distracted, or had to stay on guard. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
edgesevIntegerRecommendedHave you felt on edge, been easily distracted, or had to stay on guard. Severity
0::4;-7
0=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
jumpyfrqIntegerRecommendedHave you been jumpy or easily startled. Frequency0::4;-70=Not at all; 1=Only once; 2=2-3 times; 3=4-6 times; 4=Every day; -7=Refused
jumpysevIntegerRecommendedHave you been jumpy or easily startled. Severity0::4;-70=Not at all distressing; 1=Minimally distressing; 2=Moderately distressing; 3=Markedly distressing; 4=Extremely distressing
siteString100RecommendedSiteStudy Sitesite_id, siteid
dtsftotFloatRecommendedFrequency total
dtsstotFloatRecommendedSeverity total
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: dts01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.