Loading...

Login
Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Autism Observation Scale for Infants

earli_aosi

01

Abstract The Autism Observation Scale for Infants (AOSI) was developed to detect and monitor early signs of autism as they emerge in high-risk infants (all with an older sibling with an autistic spectrum disorder).

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*CandidateGUID, GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/projectIBISID
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.Candidate_Age_in_Months, Candidate_Age_in_Months, aosi_ageassessment
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldDate_taken, aosi_dateexam
genderString20RequiredSex of the subjectM;FM = Male; F = Female
aosi_assessmenttypeIntegerRecommendedAssessment Type
0;1;2;3;9
0 = Examiner; 1 = In-room observer; 2 = Behind mirror; 3 = Videotape; 9 = Not answeredexaminer_location
aosi_totalscoreIntegerRequiredTotal Score (items 1-18)total_score_1_18_override
aosi_numbermarkersIntegerRecommendedNumber of Markers (non-zero items, 1-18)number_of_markers_override
aosi_q1_press1IntegerRecommendedVisual Tracking: Press #10;1;2;80 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
aosi_q1_press2IntegerRecommendedVisual Tracking: Press #20;1;2;80 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
aosi_q1_press3IntegerRecommendedVisual Tracking: Press #30;1;2;80 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
aosi_q1_visualinstructionsIntegerRecommendedVisual Tracking Score
0;1;2;8
0 = Smoothly tracks a silent object; 1 = Delayed or interrupted eye movements; 2 = Partial; 8 = Not applicableq1_visual_tracking_score_override
aosi_q1_visualnotesString1,000RecommendedVisual Tracking Score Notesq1_visual_tracking_notes
aosi_q2_disengagementpress1IntegerRecommendedDisengagement of attention: Press #1, L: rattle R: squeaky0;1;2;80 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
aosi_q2_disengagementpress2IntegerRecommendedDisengagement of attention: Press #2, R: squeaky L: bell0;1;2;80 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
aosi_q2_disengagementpress3IntegerRecommendedDisengagement of attention: Press #3, L: bell R: rattle0;1;2;80 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
aosi_q2_disengagementscoreIntegerRecommendedDisengagement of attention score0;1;2;80 = Immediately moves attention from first object to second; 1 = Demonstrates delayed movement of attention on at least 2 trials; 2 = Fails to move attention to a second object; 8 = Not applicableAOSI_q2_DisengagementInstructions, q2_disengagement_of_attention_score_override
aosi_q2_disengagementnotesString1,000RecommendedDisengagement of attention score Notesq2_disengagement_of_attention_notes
aosi_q3_orientsnamep1t1IntegerRecommendedOrients to name, Press #1, Trial #10;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnamep1t2IntegerRecommendedOrients to name, Press #1, Trial #20;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnamep2t2IntegerRecommendedOrients to name, Press #2, Trial #10;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnamep3t1IntegerRecommendedOrients to name, Press #2, Trial #20;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnamep4t1nIntegerRecommendedOrients to name, Press #3, Trial #10;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnamep4t2nIntegerRecommendedOrients to name, Press #3, Trial #20;1;2;80 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
aosi_q3_orientsnameinstructIntegerRecommendedOrients to name score0;1;2;80 = Orients (with eye contact) to name being called on both presses; 1 = Inconsistent orienting to name; 2 = Does not orient with eye contact; 8 = Not applicableq3_orients_to_name_score_override
aosi_q3_orientsnamenotesString1,000RecommendedOrients to name score NotesNote whether the child did respondq3_orients_to_name_notes
aosi_q4_diffrespIntegerRecommendedDifferential response to facial emotion score
0;1;2;3;8;9
0 = Clear change in facial expression; 1 = Questionable change; 3 = Does not show change; 8 = Not applicableq4_differential_response_to_facial_emotion
aosi_q4_diffrespnotesString1,000RecommendedDifferential response to facial emotion NotesIndicate number of presses requiredq4_differential_response_to_facial_emotion_notes
aosi_q5_antirespIntegerRecommendedAnticipatory responses score
0;1;2;3;8
0 = Clear anticipatory response; 1 = The change in behavior is subtle; 2 = Anticipatory response only during physical; 3 = Does not show; 8 = Not applicableq5_anticipatory_response
aosi_q5_antirespnotesString1,000RecommendedAnticipatory responses NotesIndicate game(s) played and type of anticipatory response displayedq5_anticipatory_response_notes
aosi_q5_antirespaffectString1,000RecommendedNote child's affect during peek-a-boo
aosi_q6_activity1itemString50RecommendedImitation of Actions: Activity #1: Item/ActivitySUGGESTED ACTIVITIES: Ages 6-11 mos: Tongue protrusion, raspberries, "O" mouth movement. Ages 12-24 mos: Bang table, pat squeaky toy, hop bunny, tap rod. For any questionable responses, persist up to third press to obtain the best score up to a maximum of 3 actions. 6-11 months: Maximum 3 trials (e.g., 3 opportunities for the child to copy the model) for each action. 12-18 months: Maximum 3 trials (e.g., 3 opportunities for the child to copy the model) for each object/action.
aosi_q6_activity1attempt1String50RecommendedImitation of Actions: Activity #1: Attempt #1
aosi_q6_activity1attempt2String50RecommendedImitation of Actions: Activity #1: Attempt #2
aosi_q6_activity1attempt3String50RecommendedImitation of Actions: Activity #1: Attempt #3
aosi_q6_activity2itemString50RecommendedImitation of Actions: Activity #2: Item/Activity
aosi_q6_activity2attempt1String50RecommendedImitation of Actions: Activity #2: Attempt #1
aosi_q6_activity2attempt2String50RecommendedImitation of Actions: Activity #2: Attempt #2
aosi_q6_activity2attempt3String50RecommendedImitation of Actions: Activity #2: Attempt #3
aosi_q6_activity3itemString50RecommendedImitation of Actions: Activity #3: Item/Activity
aosi_q6_activity3attempt1String50RecommendedImitation of Actions: Activity #3: Attempt #1
aosi_q6_activity3attempt2String50RecommendedImitation of Actions: Activity #3: Attempt #2
aosi_q6_activity3attempt3String50RecommendedImitation of Actions: Activity #3: Attempt #3
aosi_q6_activitiesinstructionIntegerRecommendedImitation of Actions score
0;1;2;8
0 = Clear imitation; 1 = Equivocal imitation; 2 = Does not imitate even if same; 8 = Not applicableq6_imitation_of_actions_score_override
aosi_q6_activitiesnotesString1,000RecommendedImitation of Actions Notesq6_imitation_of_actions_notes
aosi_q7_socialbabblingIntegerRecommendedSocial babbling score
0;1;2;3;8
0 = Engages in to-and-fro vocalizations; 1 = Infant engages only in equivocal; 2 = Vocalizations are not in response to others' vocalizations; 3 = Little or no directed vocalization; 8 = Not applicableq7_social_babbling
aosi_q7_socialbabblingnotesString1,000RecommendedSocial babbling score Notes: Indicate vocalizations made by childq7_social_babbling_notes
aosi_q8_eyecontactIntegerRecommendedEye contact score
0;2;8
0 = Consistent and sustained; 2 = Eye contact is limited; 8 = Not applicableq8_eye_contact
aosi_q8_eyecontactnotesString1,000RecommendedEye contact Notesq8_eye_contact_notes
aosi_q9_reciprocalIntegerRecommendedReciprocal social smile score
0;1;2;3;8
0 = Smiles in response; 1 = Delayed, partial; 2 = Smiles at an adult only after being tickled; 3 = Does not smile; 8 = Not applicableq9_reciprocal_social_smile
aosi_q9_reciprocalnotesString1,000RecommendedReciprocal social smile. Notes: Specify whether infant smilesq9_reciprocal_social_smile_notes
aosi_q10_coordinationeyeIntegerRecommendedCoordination of eye gaze and action score
0;1;2;3;8
0 = Effectively coordinates; 1 = Brief/fleeting; 2 = Coordinates eye gaze only when an object is being moved; 3 = Does not coordinate eye gaze; 8 = Not applicableq10_coordination_of_eye_gaze_and_action
aosi_q10_coordinationeyenotesString1,000RecommendedCoordination of eye gaze and action. Notesq10_coordination_of_eye_gaze_and_action_notes
aosi_q11_reactivityIntegerRecommendedReactivity score
0;1;2;3;8
0 = Clear and consistent; 1 = Somewhat under- and/or over-reactive; 2 = Clearly under- and/or over-reactive; 3 = Either intolerant of; 8 = Not applicableq11_reactivity
aosi_q11_reactivitynotesString1,000RecommendedReactivity Notes: Specify whether under or over reactiveq11_reactivity_notes
aosi_q14_socialinterestIntegerRecommendedSocial interest and shared affect score
0;1;2;3;8
0 = Shows sustained interest; 1 = Inconsistent interest; 2 = Interest or pleasure only in response; 3 = Does not show any interest; 8 = Not applicableq14_social_interest
aosi_q14_socialinterestnotesString1,000RecommendedSocial interest and shared affect Notesq14_social_interest_notes
aosi_q15_transitionsIntegerRecommendedTransitions score
0;1;2;8
0 = Consistently and easily moves; 1 = Some difficulty; 2 = Repeated and marked difficulty; 8 = Not applicableq15_transitions
aosi_q15_transitionsnotesString1,000RecommendedTransitions Notesq15_transitions_notes
aosi_q16_motorcontrolIntegerRecommendedMotor control and behavior score
0;1;2;8
0 = Clear and consistent; 1 = Partial or inconsistent; 2 = Marked difficulty; 8 = Not applicableq16_motor_control_and_behaviour
aosi_q16_motorcontrolnotesString1,000RecommendedMotor control and behavior Notesq16_motor_control_and_behaviour_notes
aosi_q17_atypicalmotorbehaviorIntegerRecommendedAtypical motor behaviors score
0;2;8
0 = Not atypical; 2 = Presence of atypical gait; 8 = Not applicableq17_atypical_motor
aosi_q17_atypmotorbehavnotesString1,000RecommendedAtypical motor behaviors NotesAOSI_q17_atypicalmotorbehaviorNotes, q17_atypical_motor_notes
aosi_q18_atypsensorybehavIntegerRecommendedAtypical sensory behaviors score
0;2;8
0 = Not atypical; 2 = Presence of atypical sensory behaviors; 8 = Not applicableAOSI_q18_AtypicalSensoryBehaviors, q18_atypical_sensory
aosi_q18_atypsensorybehavnotesString1,000RecommendedAtypical sensory behaviors NotesAOSI_q18_AtypicalSensoryBehaviorsNotes, q18_atypical_sensory_notes
aosi_q18e_scoringString50RecommendedTOTAL SCORE (items 1-18)
aosi_q18e_scoring1String50RecommendedNUMBER OF MARKERS (items 1-18)
aosi_q19_engagementIntegerRecommendedEngagement of Attention score
0;1;2;8
0 = Sustained engagement; 1 = Only fleeting; 2 = Tends not to engage; 8 = Not applicableq19_engagement_of_attention
aosi_q19_engagementnotesString1,000RecommendedEngagement of Attention Notesq19_engagement_of_attention_notes
aosi_q20_insistenceIntegerRecommendedInsistence on having or playing Score
0;1;2;8
0 = No insistence; 1 = Excessive interest, but able to redirect; 2 = Excessive interest with persistent seeking; 8 = Not applicableq20_insistence_on_particular_objects
aosi_q20_insistencenotesString1,000RecommendedInsistence on having or playing. Notes: Provide specific examplesq20_insistence_on_particular_objects_notes
aosi_q21_socialrefIntegerRecommendedSocial Referencing score
0;1;2;8
0 = Infant spontaneously shifts gaze; 1 = Questionable social referencing; 2 = No clear example; 8 = Not applicableq21_social_referencing
aosi_q21_socialrefnotesString1,000RecommendedSocial Referencing Notesq21_social_referencing_notes
validity_of_dataIntegerRecommendedValidity of data
0::4; 999
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: earli_aosi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.