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The Filter Cart provides a way to query and access data for which you may be interested.  There are multiple places to go query and Add to Filter Cart (Sometimes called Download).  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you add subjects, sometimes it may take a few minutes to populate.  You can continue to do other things during this time. 

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data available for the subjects selected will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be available.  However, if you want to see all of the clinical and phenotype, then select, "Find All Subject Data" to see all the data avaialble for those subjects.  

when a secord or third filter is applied, an AND condition is used to determine the subjects that are exist in all filters.  If the subject does not appear in any filter, that subjects data will be excluded from your filter cart. Given the sparcity of data in the NDA, it is possible for no subjects to appear across filters.  If that happens, clear your filter cart, and start over.  

The NDA is looking to enhance query/filtering.  Until additional tools become available, it is best to package more data than you need and then package and download the data and use other tools to further restrict and analyze the data.  If you have any questions on data access, are interested in using avaialble web services or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
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Data Structures with shared data
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Eating Disorder Demographics

eatdisdemo

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age, edds23
genderString20RequiredSex of the subject
M;F
M = Male; F = Femaleedds22
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
visitString50RecommendedVisit nameCharacter description of each type of visitassessment
demo_birth_townString100RecommendedWhere were you born? Town/city
rhandedIntegerRecommendedAre you right handed?0;10=No; 1=Yes
fspgodString20RecommendedSubject's gender OTHER describe
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
otherraceString100Recommendedspecify other raceThe following questions are about you or the child's family.
ethnicityString30RecommendedEthnicity of participantHispanic or Latino; Not Hispanic or Latino; Unknown
ethnic_groupString255RecommendedEthnic group
edutotFloatRecommendedTotal years of education
medication1_nameString100RecommendedName first medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication1_dosageString50RecommendedFirst medication dosage0 = No medication; 999 = Missing
months1IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication2_nameString200RecommendedName second medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication2_dosageString50RecommendedSecond medication dosage0 = No medication; 999 = Missing
months2IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication3_nameString150RecommendedName third medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication3_dosageString50RecommendedThird medication dosage0 = No medication; 999 = Missing
months3IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication4_nameString100RecommendedName fourth medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication4_dosageString50RecommendedFourth medication dosage0 = No medication; 999 = Missing
months4IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication5_nameString100RecommendedName fifth medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication5_dosageString50RecommendedFifth medication dosage0 = No medication; 999 = Missing
months5IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
visualacuityIntegerRecommendedVisual acuity (both eyes)
edi3_99IntegerRecommendedLowest weight as an adult (or lowest weight as an adolescent if not yet age 18): pounds
height_lowest_weightFloatRecommendedHeight at time of lowest weight as an adult (or as an adolescent if under 18) in inchesinches
bmi_lowest_weightFloatRecommendedBMI at time of lowest weight as an adult (or as an adolescent if under 18)
sum2_glassString50RecommendedDoes the examinee have glasses or corrective lenses?Yes;No; NA
edi3_96FloatRecommendedHighest past weight (excluding pregnancy): pounds
height_highest_weightFloatRecommendedHeight at time of highest weight as an adult (or as an adolescent if under 18) in inchesinches
bmi_highest_weightFloatRecommendedBMI at time of highest weight as an adult (or as an adolescent if under 18)
pre004IntegerRecommendedPregnancy Test Result1;2;9;-91=Positive; 2=Negative; 9=Equivocal; -9=Unknown
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
weight_stdFloatRecommendedWeight - Standard Unit-1 = Not known
baseline_a_002String100RecommendedInterview Start Time:
heightFloatRecommendedMedical history and physical development - Height (inches)inches
meal_numberFloatRecommendedNumber of/how many meals on interview day?
v1_lab_mealtimeString15RecommendedTime of last meal (24hr clock)hh:mm
ftnd_7IntegerRecommendedDo you currently smoke any cigarettes? Y/N0::2; -99; 77; 880=No; 1=Yes; 2=No, but used to; -99=NA; 77=refused; 88=missing
eeg_s_05FloatRecommendedIn the past 24 hours, how many drinks containing alcohol (i.e. beer, wine, mixed drinks) did you have?
photo_ratingString100RecommendedPhoto Ratings
treatment_nameString200Recommendedtreatment name
otherpasttreatmentintervent1_1String100RecommendedOther Past Treatment 1 Intervention
cmstrtdtDateRecommendedStart Date
txenddtIntegerRecommendedPsychotherapy treatment end date
scid5_dis1_type_anorexiaIntegerRecommendedAnorexia Nervosa Subtype1;21=Bingeeating/purging type; 2=Restricting type
ameno_durationIntegerRecommendedDuration of Amenorrhea (months)in months
bmiFloatRecommendedbody mass index of subject
diagnosis_other_specifyString500RecommendedWhat other diagnoses has the participant had?
bmi_restoredIntegerRecommendedWeight restored greater than or equal to 18.5 corrected BMI0;10 = No; 1 = Yes
restored_monthsIntegerRecommendedMonths weight restored
underweight_durationIntegerRecommendedIf weight restored, duration at a weight less than 85% of ideal body weight (months)in months
weight_loss_rateString300RecommendedRate of weight loss
lti_doiFloatRecommendedDuration of Illness, years
future_interventionString100RecommendedPlan to continue following interventions
mri_screenIntegerRecommendedMRI screened0;10 = No; 1 = Yes
sesscoreFloatRecommendedHollingshead SES Score8.0 :: 66.0
testgrpString50RecommendedLaboratory Test Group
behaviorString250RecommendedBehavior Observations
behavobs_referralreasonString255RecommendedReason for Referral/Presenting Complaint(s)
historyrecString4,000RecommendedBrief Medical History
psyhxdscString250RecommendedPsychiatric History Item Description
strtxreceivedpsycdisString255RecommendedWhat treatment was/is received?
namepsycmedString150RecommendedName-psychotropic med
personal_notesString255RecommendedComments
family_historyString500RecommendedNotes/Comments on family history
bkgrnd_diagString255RecommendedDiagnosis
surm046aIntegerRecommendedindividual sessions with a mental health provider. Number of outpatient visits of this type
medication6_nameString100RecommendedName sixth medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication6_dosageString50RecommendedSixth medication dosage0 = No medication; 999 = Missing
months6IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication7_nameString100RecommendedName seventh medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication7_dosageString50RecommendedSeventh medication dosage0 = No medication; 999 = Missing
months7IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication8_nameString100RecommendedName eighth medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication8_dosageString50RecommendedEighth medication dosage0 = No medication; 999 = Missing
months8IntegerRecommendedNumber of months on this medication0 = No medication; 9999=NK
medication9_nameString100RecommendedName ninth medication that the participant has taken
medication9_dosageString50RecommendedNinth medication dosage
months9IntegerRecommendedNumber of months on this medication9999=NK
medication_10_nameString50Recommendedspecify med 10
medication10_dosageString50RecommendedTenth medication dosage
months10IntegerRecommendedNumber of months on this medication9999=NK
fsprelsIntegerRecommendedWhich category best describes your current relationship status?1::91= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Other
marital_status_specifyString255RecommendedOther marital status - Please describe:
edi3_101FloatRecommendedHow long did you weigh this weight? months
dawba_p2_dString10RecommendedDiet/Weight/Body - What was your highest weight ever?
past_wtString50RecommendedHow long ago were you at your highest weight?
current_wtString50RecommendedHow long have you been at your current weight?
phcmString30RecommendedModule B: Miscellaneous Disorders - Eating Disorders (EAT). Height in centimetersedds20, eddsheight
weightString50Recommendedweightedds19, eddsweight
binge_lifetimeIntegerRecommendedLifetime occurrence of binge episodes0;10 = No; 1 = Yes
binge_recentString25RecommendedDate of the most recent binge episode
binge_pastweekIntegerRecommendedNumber of binge episodes in the past week
purgeIntegerRecommendedLifetime use of purging0;10 = No; 1 = Yes
purge_recentString25RecommendedDate of the most recent purge episode
purge_pastweekIntegerRecommendednumber of purge episodes in the past week
laxativeIntegerRecommendedlifetime use of laxatives0 :: 11 = yes, 0 = no
lax_pastweekIntegerRecommendednumber of times participant used laxatives in the past week
diureticIntegerRecommendedlifetime use of diuretics0 :: 11 = yes, 0 = no
diur_pastweekIntegerRecommendednumber of times participant used diuretics in the past week
bodyfatFloatRecommendedParticipant's percentage body fat
date_menst_psychhxString25RecommendedFirst date of the last menstrual cycle (females only)menstrual
fastIntegerRecommendedlifetime use of fasting (8+ hours)0 :: 11 = yes; 0 = no
fast_pastweekIntegerRecommendednumber of times participant fasted in the past week
mealpatternIntegerRecommendedhave your meal patterns been stable?0 :: 11 = yes, stable, 0 = no, unstablemealpattern_stable
meals_describeString300Recommendedif your meal patterns have not been stable, describe
meals_yesterdayString300Recommendedwhat was your meal pattern yesterday?
condition_nameString250RecommendedExperimental condition namecondition
dawba_m1_p_loss_controlIntegerRecommendedAreas of Difficulty - Loss of Control0; 10 = No; 1 = Yesedds5
ebflIntegerRecommendedEB Eat so much uncomfortably full
0;1;999
0=No; 1=Yes; 999 = N/Aedds8
ebalnIntegerRecommendedEB Eat alone because embarrassed
0;1;999
0=No; 1=Yes; 999 = N/Aedds10
ebdsgIntegerRecommendedEB Feel disgusted after overeating
0;1;999
0=No; 1=Yes; 999 = N/Aedds11
edds1IntegerRecommendedOver the past TWO WEEKS have you felt fat?0::6; 9990 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
edds2IntegerRecommendedOver the past TWO WEEKS have you had a definite fear that you might gain weight or become fat?0::6; 9990 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
edds3IntegerRecommendedOver the past TWO WEEKS has your weight or shape influenced how you judge yourself as a person?0::6; 9990 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
edds4IntegerRecommendedDuring the past 2 weeks have there been times when you felt you have eaten what other people would regard as an unusually large amount of food (e.g., a pint of ice cream) given the circumstances?0::10 = No; 1 = Yes
edds6IntegerRecommendedHow many times per week on average over the past 2 weeks have you eaten an unusually large amount of food and experienced a loss of control?0::16; 888; 999888 = Behavior has not happened; 999 = Missing
edds7IntegerRecommendedDuring episodes of overeating with a loss of control, did you eat much more rapidly than normal?
0;1;999
0=No; 1=Yes; 999 = N/A
edds9IntegerRecommendedDuring episodes of overeating with a loss of control, did you eat large amounts of food when you didn't feel physically hungry?
0;1;999
0=No; 1=Yes; 999 = N/A
edds12IntegerRecommendedIf you have episodes of uncontrollable overeating, does it make you very upset?
0;1;999
0=No; 1=Yes; 999 = N/A
edds13IntegerRecommendedIn order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you made yourself vomit?0::16; 999999 = Missing
edds14IntegerRecommendedIn order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you used laxatives or diuretics?0::16; 999999 = Missing
edds15IntegerRecommendedIn order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you fasted (skipped at least 2 meals in a row)?0::16; 999999 = Missing
edds16IntegerRecommendedIn order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you engaged in more intense exercise specifically to counteract the effects of overeating?0::16; 999999 = Missing
edds17IntegerRecommendedHow many times per week on average over the past 2 weeks have you eaten after awakening from sleep or eaten an unusually large amount of food after your evening meal and felt distressed by the night eating?0::16; 999999 = Missing
edds18IntegerRecommendedHow much do eating or body image problems impact your relationships with friends and family, work performance, and school performance?0::6; 9990 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
edds21FloatRecommendedWhat is your highest weight at your current height?Weight in kg.
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: eatdisdemo01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.