Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Early Development Questionnaire

edq

01

The Modified Checklist for Autism in Toddlers

Download Definition as
Download Submission Template as
Files
PDF file iconEarly_Development_Questionnaire_reformatted.pdf
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
regression_ageIntegerRecommendedIf your child experienced a regression before 18 months of age only rate his or her behavior up to the point of the regression. Specify age in months.0 :: 18
rel_child_spfyString250RecommendedIf other please specify
look_socialIntegerRecommendedMy child looked at others during social interactions0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_1
repetitive_behaviorIntegerRecommendedMy child engaged in repetitive motor behavior0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_2
choice_answerIntegerRecommendedWhen given a choice between two items my child clearly let me know which one he or she wanted.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't remember
smile_backIntegerRecommendedMy child smiled back at me when I smiled at him or her.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_4
child_non_interestsIntegerRecommendedMy child rarely noticed or seemed interested in new objects or toys in his or her environment.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_5
attention_bookIntegerRecommendedMy child could listen and pay attention to a book for at least 5 minutes.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_6
arms_upIntegerRecommendedMy child put his/her arms up when he or she wanted to be picked up.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_7
part_toyIntegerRecommendedMy child was more interested in playing with a certain part of a toy (e.g. spinning the wheels of a car) than playing with the whole toy.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_8
understandable_speechIntegerRecommendedMy child's speech at whatever level acquired was easy to understand.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_9
brought_interestedIntegerRecommendedMy child showed or brought me things that interested him or her.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_10
routine_changeIntegerRecommendedMy child became upset if there was a minor change in his or her routine or environment.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_11
meaningful_phrasesIntegerRecommendedMy child put 2 or 3 words together into meaningful phrases.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_12
name_lookIntegerRecommendedWhen I called my child's name he or she looked at me right away.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_13
stare_objectsIntegerRecommendedMy child stared at lights or visually inspected objects at close range for extended periods of time.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_14
baby_talkIntegerRecommendedBefore my child used words his or her babbling or baby talk was clearly directed toward me.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_15
request_thingsIntegerRecommendedIf my child wanted something he or she would point to request it.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_16
ear_coverIntegerRecommendedMy child covered his or her ears in response to certain sounds (e.g. vacuum cleaner traffic).0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_17
follow_commandIntegerRecommendedMy child followed simple verbal instructions0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_18
point_lookIntegerRecommendedIf I pointed or looked toward something my child would look at it too.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_19
child_heldIntegerRecommendedWhen held my child cuddled or molded into my body.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_20
child_push_handIntegerRecommendedWhen my child wanted something he or she used my hand as a tool or pushed my body or arm to get help from me.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_21
initiated_gameIntegerRecommendedMy child initiated interactive games such as peek-a-boo or hide-andseek with me.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_22
lined_toysIntegerRecommendedMy child enjoyed lining up toys or other objects.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_23
spontaneous_five_wordIntegerRecommendedMy child spontaneously used 5 or more words other than mama or dada on a daily basis.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_24
imitated_actionsIntegerRecommendedMy child imitated things I did such as clapping waving goodbye or blowing a kiss.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_25
unusual_objectIntegerRecommendedMy child was attached to an unusual object and insisted on carrying it around with him or her.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_26
understand_meIntegerRecommendedMy child seemed to understand what I said to him or her even if he or she couldn't respond back verbally.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_27
play_othersIntegerRecommendedMy child preferred to play with others than to play alone.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_28
smell_textureIntegerRecommendedMy child seemed particularly interested in the smell or texture of things.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_29
babble_speechIntegerRecommendedMy child babbled or used word approximations to get my attention.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_30
child_pointIntegerRecommendedIf my child saw something that interested him or her he or she would point to it and then look at me to see if I was looking at it too.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_31
child_rockedIntegerRecommendedMy child rocked in his or her crib or play pen for extended periods of time.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_32
head_shakeIntegerRecommendedMy child shook his or her head to mean No.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_33
pretend_activitiesIntegerRecommendedMy child engaged in simple pretend play activities0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_34
one_toyIntegerRecommendedMy child played with one toy or object over and over again to an unusual degree.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_35
head_nodIntegerRecommendedMy child nodded his or her head to mean Yes.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_36
interested_childrenIntegerRecommendedMy child seemed interested in other children.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_37
child_mouthedIntegerRecommendedMy child mouthed objects to an unusual degree.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_38
like_smileIntegerRecommendedWhen my child really liked something he or she would let me know by smiling or making noises that were clearly directed toward me.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_39
hurt_selfIntegerRecommendedMy child injured him/herself deliberately (biting self or banging head).0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_40
imitated_wordsIntegerRecommendedMy child imitated sounds I made or words I said after hearing them.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_41
people_preferenceIntegerRecommendedMy child showed a clear preference for me over less familiar people.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_42
body_partIntegerRecommendedMy child accurately indicated one or more body parts when asked.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_43
spontaneous_ten_wordIntegerRecommendedMy child spontaneously and regularly used 10 or more meaningful words.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_44
interupt_activityIntegerRecommendedMy child became upset if his or her activity was interrupted and would insist on starting it over again from the beginning.0 :: 40 = Never; 1 = Rarely; 2 = Occasionally; 3 = Often; 4 = Don't know or can't rememberEDQ_45
roll_overIntegerRecommendedAt what age (in months) did your child first learn to roll overEDQ_RO
crawlIntegerRecommendedAt what age (in months) did your child first learn to crawlEDQ_CL
sit_aloneIntegerRecommendedAt what age (in months) did your child first learn to sit alone unsupportedEDQ_SA
single_words_useIntegerRecommendedAt what age (in months) did your child use single wordsEDQ_SW
single_word_use_ltString250RecommendedPlease list a few of his/her first wordsEDQ_FW
speak_phrasesIntegerRecommendedAt what age (in months) did your child speak in phrasesEDQ_SP
speak_phrases_ltString250RecommendedPlease list some of the first phrases your child usedEDQ_FP
phrase_lostIntegerRecommendedDid your child lose all words or phrases (e.g. requesting food or other needs addressing parents greeting replying when called by name or labeling familiar objects or animals)0 :: 10 = No; 1 = YesEDQ_3A1
phrase_lost_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3A1_L
meaning_phrase_lostIntegerRecommendedDid your child lose most meaningful words or phrases although may have retained a few0 :: 10 = No; 1 = YesEDQ_3A2
meaning_phrase_lost_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3A2_L
gesture_lostIntegerRecommendedDid your child lose gestures or imitative behaviors such as pointing clapping waving goodbye0 :: 10 = No; 1 = YesEDQ_3A3
gesture_lost_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3A3_L
understand_lang_lostIntegerRecommendedDid your child lose ability to understand language spoken by others0 :: 10 = No; 1 = YesEDQ_3A4
understand_lang_lost_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3A4_L
fam_interest_lossIntegerRecommendedDid your child lose interest in parents siblings relative or peers0 :: 10 = No; 1 = YesEDQ_3B1
fam_interest_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B1_L
smile_response_lossIntegerRecommendedDid your child lose smiling in response to another person's smile0 :: 10 = No; 1 = YesEDQ_3B2
smile_response_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B2_L
reach_parent_lossIntegerRecommendedDid your child lose reaching for caregiver (e.g. putting arms up to be lifted)0 :: 10 = No; 1 = YesEDQ_3B3
reach_parent_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B3_L
eye_contact_lossIntegerRecommendedDid your child lose direct eye contact during communication0 :: 10 = No; 1 = YesEDQ_3B4
eye_contact_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B4_L
game_interest_lossIntegerRecommendedDid your child lose interest in interactive games such as Peek-a-boo0 :: 10 = No; 1 = YesEDQ_3B5
game_interest_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B5_L
pretend_play_lossIntegerRecommendedDid your child lose pretend or imaginative play0 :: 10 = No; 1 = YesEDQ_3B6
pretend_play_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3B6_L
feed_self_lossIntegerRecommendedDid your child lose ability to feed self at whatever level acquired0 :: 10 = No; 1 = YesEDQ_3C1
feed_self_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3C1_L
dress_self_lossIntegerRecommendedDid your child lose ability to dress oneself at whatever level acquired0 :: 10 = No; 1 = YesEDQ_3C2
dress_self_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3C2_L
toilet_skills_lossIntegerRecommendedDid your child lose toileting skills at whatever level acquired0 :: 10 = No; 1 = YesEDQ_3C3
toilet_skills_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3C3_L
motor_small_obj_lossIntegerRecommendedDid your child lose ability to manipulate small objects such as legos or stack blocks0 :: 10 = No; 1 = YesEDQ_3D1
motor_small_obj_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3D1_L
carry_ball_lossIntegerRecommendedDid your child lose ability to carry throw or kick a ball or climb onto furniture0 :: 10 = No; 1 = YesEDQ_3D2
carry_ball_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3D2_L
able_phys_lossIntegerRecommendedDid your child lose ability to physically move about independently0 :: 10 = No; 1 = YesEDQ_3D3
able_phys_loss_lgthIntegerRecommendedLength of loss in months1 :: 41 = <3 months; 2 = 3-6 months; 3 = >6 months; 4 = Don't knowEDQ_3D3_L
skill_loss_ageIntegerRecommendedAt what age (in months) did your child begin to lose any of the skillsEDQ_4_1
skill_loss_stop_ageIntegerRecommendedAt what age (in months) did the loss of skills appear to stop?EDQ_4_2
concern_developmentIntegerRecommendedDid you have any concerns about your child development before the regression?0 :: 10 = No; 1 = Yes
concern_development_ltString250RecommendedPlease describe your concerns (and your child age at the time).EDQ_4_3
skills_lossIntegerRequiredWas your child's loss of skills gradual or sudden?1;2;91 = Gradual; 2 = Sudden; 9 = Don't know/NAEDQ_4_4
lost_languageIntegerRecommendedIf your child lost language skills. did he/she lose some or all words?1 :: 21 = Some words; 2 = All wordsEDQ_4_5
before_loss_wordsIntegerRecommendedAbout how many words (maximum) did your child use before the loss?EDQ_4_6
after_loss_wordsIntegerRecommendedAbout how many words (maximum) does he/she use now?EDQ_4_7
illness_spfyIntegerRecommendedWas there any suggestion that the loss of skills was associated with a physical illness such as a high fever encephalitis or seizure activity or with an immunization?0 :: 10 = No; 1 = YesEDQ_4_8
illness_spfy_ltString250RecommendedIf there was any suggestion that the loss of skills was associated with a physical illness please describeEDQ_4_8B
loss_skills_stressorsIntegerRecommendedWas there any suggestion that the loss of skills was associated with other stressors such as birth of a sibling death in the family moving or other environmental events/factors?0 :: 10 = No; 1 = YesEDQ_4_9
loss_skills_stressors_ltString250RecommendedIf there was any suggestion that the loss of skills was associated with other stressors please describeEDQ_4_9B
adaptive_lossesIntegerRecommendedThe number of yes responses between the elements feed_self_loss, dress_self_loss and toilets_kills_loss0::3
communication_lossesIntegerRecommendedThe number of yes responses between the elements phrase_lost, meaning_phrase_lost, gesture_lost and understand_lang_lost0::4
communications_scaleIntegerRecommendedCommunications Scale for EDQ
early_develop_summ_scoreIntegerRecommendedSocial Total + Communication Total0 :: 90
motor_lossesIntegerRecommendedThe number of yes responses between the elements motor_small_obj_loss, carry_ball_loss and able_phys_loss0 ;1;2;3
regression_summ_scoreIntegerRecommendedTotal losses in Social and Communication losses1 :: 10
repetitive_behavior_scaleIntegerRecommendedRepetitive Behavior Scale for EDQ
social_lossesIntegerRecommendedThe number of yes responses between the elements fam_interest_loss, smile_response_loss, reach_parent_loss, eye_contact_loss, game_interest_loss and pretend_play_loss0::6
social_scaleIntegerRecommendedSocial Scale for EDQ
ethnicityString30RequiredEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
respondentString20RequiredRespondent
Mother;Father;Both; Child; Other; Parent
phenotypeString200RequiredPhenotype/diagnosis for the subject
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: edq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.