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Description
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Early Intervention Services Interview

eisi

01

Early Intervention Services Interview

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
eisi_cogn_aepsIntegerRecommendedChild Development - Cognition - AEPS score
eisi_cogn_ssIntegerRecommendedChild Development - Cognition - Specialized services are needed0; 10 = No; 1 = Yes
eisi_phys_aeps_fineIntegerRecommendedChild Development - Physical Development - Fine AEPS score
eisi_phys_aeps_grossIntegerRecommendedChild Development - Physical Development - Gross AEPS score
eisi_phys_ssIntegerRecommendedChild Development - Physical Development - Specialized services are needed0; 10 = No; 1 = Yes
eisi_comm_aepsIntegerRecommendedChild Development - Communication - AEPS score
eisi_comm_ssIntegerRecommendedChild Development - Communication - Specialized services are needed0; 10 = No; 1 = Yes
eisi_social_aepsIntegerRecommendedChild Development - Social - AEPS score
eisi_social_ssIntegerRecommendedChild Development - Social - Specialized services are needed0; 10 = No; 1 = Yes
eisi_adapt_aepsIntegerRecommendedChild Development - Adaptive - AEPS score
eisi_adapt_ssIntegerRecommendedChild Development - Adaptive - Specialized services are needed0; 10 = No; 1 = Yes
eisi01IntegerRecommended1. How well do you understand your child's development?1; 2; 3; 4; 5; 6; 71 = We are just beginning to understand our child's development; 2 = Between 1 and 3; 3 = We have a basic understanding of our child's development, but still have a lot to learn; 4 = Between 3 and 5; 5 = We have a pretty good understanding of our child's development; 6 = Between 5 and 7; 7 = We understand our child's development very well
eisi01_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi02IntegerRecommended2. How much do you know about your child's special needs?1; 2; 3; 4; 5; 6; 71 = Right now we do not know very much; 2 = Between 1 and 3; 3 = We have learned some things, but still have a lot of unanswered questions; 4 = Between 3 and 5; 5 = We know a lot, but still need or want to know more; 6 = Between 5 and 7; 7 = We are confident that we know most of what we need to know right now
eisi02_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi03IntegerRecommended3. Do you know what is available for your child and family?1; 2; 3; 4; 5; 6; 71 = We are just beginning to learn about the programs and service that are available; 2 = Between 1 and 3; 3 = We know abuot some programs and services, but still have a lot to learn; 4 = Between 3 and 5; 5 = We think we are aware of most available programs and services; 6 = Between 5 and 7; 7 = We are very aware of the programs and services that are available
eisi03_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi04IntegerRecommended4. How comfortable are you participating in these meetings?1; 2; 3; 4; 5; 6; 71 = Right now we are very uncomfortable participating in meetings; 2 = Between 1 and 3; 3 = We are not very comfortable participating in meetings, but we do it anyway; 4 = Between 3 and 5; 5 = We are pretty comfortable participating in meetings; 6 = Between 5 and 7; 7 = We are very comfortable participating in meetings.
eisi04_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi05IntegerRecommended5. How well do you feel you can share your child's needs with professionals?1; 2; 3; 4; 5; 6; 71 = We need to feel a lot more comfortable before sharing our child's needs, including asking questions or asking them for help; 2 = Between 1 and 3; 3 = We are beginning to feel more comfortable sharing our child's needs and requesting help from professionals; 4 = Between 3 and 5; 5 = We can usually share our child's needs and ask our providers for help to meet his or her needs; 6 = Between 5 and 7; 7 = We feel very comfortable sharing our child's needs and requesting help from professionals
eisi05_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi06IntegerRecommended6. How well do you know your rights and what to do if you are not satisfied?1; 2; 3; 4; 5; 6; 71 = We are not sure about our rights or what to do if we are not satisfied; 2 = Between 1 and 3; 3 = We understand our basic rights but are not sure about all of our options if we are not satisfied; 4 = Between 3 and 5; 5 = We think we know most of our rights and what to do if we are not satisfied; 6 = Between 5 and 7; 7 = We are very aware of our rights and know exactly what to do if we are not satisfied
eisi06_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi07IntegerRecommended7. How would you describe your ability to help your child develop and learn1; 2; 3; 4; 5; 6; 71 = We need to know a lot more about how to help our child develop and learn; 2 = Between 1 and 3; 3 = We know the basics ofhelping our child develop and learn, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child develop and learn; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child develop and learn
eisi07_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi08IntegerRecommended8. How would you describe your ability to help your child learn to behave the way you would like?1; 2; 3; 4; 5; 6; 71 = We need to know a lot more about how to help our child behave like we want; 2 = Between 1 and 3; 3 = We know the basics of helping our child behave, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child behave; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child behave
eisi08_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi09IntegerRecommended9. Does your family have someone you trust to listen and talk with you?1; 2; 3; 4; 5; 6; 71 = Right now, we don't have anyone we can talk with about the things that are happening in our lives; 2 = Between 1 and 3; 3 = We can probably find at least one person we could talk with, but are not very satisfied with the situation; 4 = Between 3 and 5; 5 = We usually have other people that we can talk with about thigns; 6 = Between 5 and 7; 7 = There are definitely people in our lives we can talk with whenever we need to
eisi09_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi10IntegerRecommended10. Do you know how to get help if you need or want it?1; 2; 3; 4; 5; 6; 71 = We usually handle things by ourselves, but would like to know more about other resources; 2 = Between 1 and 3; 3 = We know about some community resources we could use, but wouldn't mind more information; 4 = Between 3 and 5; 5 = We usually have resources we can use when we need to; 6 = Between 5 and 7; 7 = We have access to a variety of friends and community resources, and use them whenever we need to
eisi10_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi11IntegerRecommended11. How much is your famiyl able to do the things you enjoy?1; 2; 3; 4; 5; 6; 71 = Right now it is really difficult to do any of the things we enjoy; 2 = Between 1 and 3; 3 = We are able to participate in some of the things we enjoy, but not nearly as much as we would like; 4 = Between 3 and 5; 5 = We are able to participate in many of the activities we enjoy; 6 = Between 5 and 7; 7 = We are able to participate in almost all of the activities we enjoy
eisi11_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi12IntegerRecommended12. Do you have the medical care you want for your child right now?1; 2; 3; 4; 5; 6; 71 = We do not have the medical care we want for our child; 2 = Between 1 and 3; 3 = We have some medical care, but still have a long way to go before it is what we want; 4 = Between 3 and 5; 5 = We have good medical care for our child; 6 = Between 5 and 7; 7 = We have excellent medical care for our child
eisi12_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi13IntegerRecommended13. How safe do you feel your home is for your child?1; 2; 3; 4; 5; 6; 71 = We are just beginning to learn about things like lead paint, safely storing dangerous items, car seats, smoke detectors and safe sleeping that will make our home safe; 2 = Between 1 and 3; 3 = We are making changes in our home to make it safer, but still need information and assistance; 4 = Between 3 and 5; 5 = We fell our home is safe, but we are not sure if we have done all of the things we could do; 6 = Between 5 and 7; 7 = We feel we have done everything to make our home a very safe place for our child
eisi13_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi14IntegerRecommended14. How well do you feel your provide your child with nutritious meals?1; 2; 3; 4; 5; 6; 71 = We're not sure that our child is receiving the healthy, nutritious meals he or she needs; 2 = Between 1 and 3; 3 = We are learning more about healthy and nutritious foods, but still need information; 4 = Between 3 and 5; 5 = We are pretty sure we are providing our child with nutritious meals to keep him/her healthy. 6 = Between 5 and 7; 7 = We feel very comfortable that we know what to feed our child, and that his meals are very nutritious
eisi14_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi15IntegerRecommended15. How well do you feel your child is able to independently participate in these daily routines at home?1; 2; 3; 4; 5; 6; 71 = Our child is an infant and is just learning how to do these things OR our child needs total assistance; 2 = Between 1 and 3; 3 = Our child is becoming more nidependent, but due to his or her age or special needs, still needs a lot of help; 4 = Between 3 and 5; 5 = Our child's independece is growing, but he or she still needs some help with things other children the same age are doing; 6 = Between 5 and 7; 7 = Our child is doing all the things a child his or her age should be doing
eisi15_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi16IntegerRecommended16. How would you describe the childcare you have for your child right now?1; 2; 3; 4; 5; 6; 71 = We don't have the childcare we want OR because of our child's special needs we have decided not to look for it; 2 = Between 1 and 3; 3 = We have adequate childcare, but still have a way to go before it is what we want; 4 = Between 3 and 5; 5 = We are satisfied with our childcare, but would like to explore other possibilities; 6 = Between 5 and 7; 7 = We ahve excellent childcare for our child
eisi16_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi17IntegerRecommended17. How would you describe your child's participation in these activities right now?1; 2; 3; 4; 5; 6; 71 = Right now our child does not participate in activities we want OR because of our child's special needs, we have decided not to look into it; 2 = Between 1 and 3; 3 = Our child participates in some social or community activities, but we have a way to go before it is what we want; 4 = Between 3 and 5; 5 = Our child participates in many social or community activities, but we would like to do more; 6 = Between 5 and 7; 7 = Our child has excellent participation in social or community activities
eisi17_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
eisi18IntegerRecommended18. How well is your family able to do these things?1; 2; 3; 4; 5; 6; 71 = We would like to be able to take our child with us when we go out, but right now it is difficult; 2 = Between 1 and 3; 3 = We are able to do some things as a family, but we would like to find ways to make it easier for all of us; 4 = Between 3 and 5; 5 = We are able to do most of the things we would like to do, but occasionally find it difficult to take our child with us; 6 = Between 5 and 7; 7 = We take our child with us wherever we need to go
eisi18_ifspIntegerRecommendedSomething you would like written into your IFSP as an outcome for your family0; 10 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: eisi01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.