Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Emotion Dysregulation Inventory (EDI)

emdi

01

Emotion Dysregulation Inventory

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RecommendedSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldINTERVIEW_DATE_EDI
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.INTERVIEW_AGE_EDI
genderString20RequiredSex of the subjectM;FM = Male; F = Female
ssrespondIntegerRecommendedRespondent relation to child0::4; -90 = Mother; 1 = Father; 2 = Guardian; 3 = Other (specify); 4=Clinician; -9 = Missing valueREL_EDI
angry_cIntegerRecommendedCurrent Behavior. 1. Appears angry or irritable1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
nervous_cIntegerRecommendedCurrent Behavior. 2. Becomes so nervous that he/she freezes like he/she doesnt know what to do1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
outbursts_cIntegerRecommendedCurrent Behavior. 3. Has explosive outbursts1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
cries5_cIntegerRecommendedCurrent Behavior. 4. Cries or stays angry for 5 minutes or longer1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
sleeps_cIntegerRecommendedCurrent Behavior. 5. Sleeps too much1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
cannotcalm_cIntegerRecommendedCurrent Behavior. 6. Cannot calm down without help from someone else1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
oppemotion_cIntegerRecommendedCurrent Behavior. 7. Suddenly switches to an opposite emotion (e.g. from sad to happy)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
frusteasily_cIntegerRecommendedCurrent Behavior. 8. Frustrates easily1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
reassurance_cIntegerRecommendedCurrent Behavior. 9. Requires reassurance (comfort/support)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
destprop_cIntegerRecommendedCurrent Behavior. 10. Destroys property on purpose1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
reactions_cIntegerRecommendedCurrent Behavior. 11. Has strong emotional reactions1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
panics_cIntegerRecommendedCurrent Behavior. 12. Suddenly panics1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
breaksdown_cIntegerRecommendedCurrent Behavior. 13. Breaks down (crying, screaming) if told he/she cant do something1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
noappetite_cIntegerRecommendedCurrent Behavior. 14. Does not each much, little appetite1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
injself_cIntegerRecommendedCurrent Behavior. 15. Injures him/herself (hits, bites, slaps self)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
unwillwatch_cIntegerRecommendedCurrent Behavior. 16. Unwilling to do things when being watched1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
energetic_cIntegerRecommendedCurrent Behavior. 17. Very energetic despite sleeping very little1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
criesalot_cIntegerRecommendedCurrent Behavior. 18. Cries a lot1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
extremot_cIntegerRecommendedCurrent Behavior. 19. Has extreme or intense emotional reactions1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
startles_cIntegerRecommendedCurrent Behavior. 20. Startles easily1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
hardcalm_cIntegerRecommendedCurrent Behavior. 21. Hard to calm him/her down when she is mad or upset1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
lacksemot_cIntegerRecommendedCurrent Behavior. 22. Lacks emotion1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
chewsnails_cIntegerRecommendedCurrent Behavior. 23. Chews fingernails or picks cuticles1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
reactremove_cIntegerRecommendedCurrent Behavior. 24. Reactions are so intense that he/she has had to be removed from an activity or place1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
miserable_cIntegerRecommendedCurrent Behavior. 25. Is miserable or grumpy1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
attacks_cIntegerRecommendedCurrent Behavior. 26. Physically attacks people1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
onedge_cIntegerRecommendedCurrent Behavior. 27. Seems on edge1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
upsetlong_cIntegerRecommendedCurrent Behavior. 28. When upset or angry, he/she stays that way for a long time1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
awakeafraid_cIntegerRecommendedCurrent Behavior. 29. Awakens during the night appearing afraid1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
excessenthus_cIntegerRecommendedCurrent Behavior. 30. Has extended periods (>30 minutes) of excessive enthusiasm and excitement that do not fit the situatio1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
go0to100_cIntegerRecommendedCurrent Behavior. 34. Emotions go from 0 to 100 instantly1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
seemstired_cIntegerRecommendedCurrent Behavior. 35. Seems tired throughout the day1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
troubcalm_cIntegerRecommendedCurrent Behavior. 36. Has trouble calming him/herself down1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
echangequick_cIntegerRecommendedCurrent Behavior. 37. Emotions change quickly1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
tense_cIntegerRecommendedCurrent Behavior. 38. Tense or agitated and unable to relax1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
morbidint_cIntegerRecommendedCurrent Behavior. 39. Primary interests are morbid (death, violence)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
stomprobs_cIntegerRecommendedCurrent Behavior. 40. Stomach problems (pain/nausea/vomiting) without an identifiable medical cause1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
rockstosoothe_cIntegerRecommendedCurrent Behavior. 41. Rocks back and forth to soothe self1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
rage_cIntegerRecommendedCurrent Behavior. 42. Seems to be in a rage1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
littlehappy_cIntegerRecommendedCurrent Behavior. 43. Very little makes him/her happy1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
cautious_cIntegerRecommendedCurrent Behavior. 44. Cautious or timid1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
notaware_cIntegerRecommendedCurrent Behavior. 45. Does not seem aware when he/she is beginning to get upset1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
moresevere_cIntegerRecommendedCurrent Behavior. 46. Reactions usually are more severe than the situation calls for1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
trbfallasleep_cIntegerRecommendedCurrent Behavior. 47. Trouble falling asleep1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
dangthings_cIntegerRecommendedCurrent Behavior. 48. Does dangerous things (walks into street; leans out window)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
eatstoomuch_cIntegerRecommendedCurrent Behavior. 49. Eats too much1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
upsetnoreas_cIntegerRecommendedCurrent Behavior. 50. Becomes upset without a clear reason1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
leaveforced_cIntegerRecommendedCurrent Behavior. 51. Refuses to leave the house or go to school or activities unless forced1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
moodswgs_cIntegerRecommendedCurrent Behavior. 52. Has mood swings1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
diffdistr_cIntegerRecommendedCurrent Behavior. 53. Difficult to distract if he/she is frustrated or upset1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
physagit_cIntegerRecommendedCurrent Behavior. 54. Physically agitated (paces, fidgits, or rocks body in distress)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
moveslowly_cIntegerRecommendedCurrent Behavior. 55. Moving or talking more slowly than usual1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
hesitant_cIntegerRecommendedCurrent Behavior. 56. Hesitant in groups of people1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
notresptopraise_cIntegerRecommendedCurrent Behavior. 57. Not responsive to praise or good things happening1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
cannotchgmood_cIntegerRecommendedCurrent Behavior. 58. Cannot change his/her mood even with your best efforts1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
easilytrigger_cIntegerRecommendedCurrent Behavior. 59. Easily triggered/upset (you have to walk on eggshells around him/her)1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
poorhyg_cIntegerRecommendedCurrent Behavior. 60. Poor self-care or hygiene1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
slamsbody_cIntegerRecommendedCurrent Behavior. 61. Slams body into walls or bangs self on objects1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
chgemot_cIntegerRecommendedCurrent Behavior. 62. Changes in emotion come out of nowhere1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
seemssad_cIntegerRecommendedCurrent Behavior. 63. Seems sad or unhappy1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
appearsuneasy_cIntegerRecommendedCurrent Behavior. 64. Appears uneasy through the day
1::5
1= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
doesnotmove_cIntegerRecommendedCurrent Behavior. 65. Does not move without a prompt1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
sweatatrest_cIntegerRecommendedCurrent Behavior. 66. Sweating or flushing at rest1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
angry_pIntegerRecommendedPast Behavior. 1. Appears angry or irritable1::41=Same; 2=Worse; 3=Better; 4=New
nervous_pIntegerRecommendedPast Behavior. 2. Becomes so nervous that he/she freezes like he/she doesnt know what to do1::41=Same; 2=Worse; 3=Better; 4=New
outbursts_pIntegerRecommendedPast Behavior. 3. Has explosive outbursts1::41=Same; 2=Worse; 3=Better; 4=New
cries5_pIntegerRecommendedPast Behavior. 4. Cries or stays angry for 5 minutes or longer1::41=Same; 2=Worse; 3=Better; 4=New
sleeps_pIntegerRecommendedPast Behavior. 5. Sleeps too much1::41=Same; 2=Worse; 3=Better; 4=New
cannotcalm_pIntegerRecommendedPast Behavior. 6. Cannot calm down without help from someone else1::41=Same; 2=Worse; 3=Better; 4=New
oppemotion_pIntegerRecommendedPast Behavior. 7. Suddenly switches to an opposite emotion (e.g. from sad to happy)1::41=Same; 2=Worse; 3=Better; 4=New
frusteasily_pIntegerRecommendedPast Behavior. 8. Frustrates easily1::41=Same; 2=Worse; 3=Better; 4=New
reassurance_pIntegerRecommendedPast Behavior. 9. Requires reassurance (comfort/support)1::41=Same; 2=Worse; 3=Better; 4=New
destprop_pIntegerRecommendedPast Behavior. 10. Destroys property on purpose1::41=Same; 2=Worse; 3=Better; 4=New
reactions_pIntegerRecommendedPast Behavior. 11. Has strong emotional reactions1::41=Same; 2=Worse; 3=Better; 4=New
panics_pIntegerRecommendedPast Behavior. 12. Suddenly panics1::41=Same; 2=Worse; 3=Better; 4=New
breaksdown_pIntegerRecommendedPast Behavior. 13. Breaks down (crying, screaming) if told he/she cant do something1::41=Same; 2=Worse; 3=Better; 4=New
noappetite_pIntegerRecommendedPast Behavior. 14. Does not each much, little appetite1::41=Same; 2=Worse; 3=Better; 4=New
injself_pIntegerRecommendedPast Behavior. 15. Injures him/herself (hits, bites, slaps self)1::41=Same; 2=Worse; 3=Better; 4=New
unwillwatch_pIntegerRecommendedPast Behavior. 16. Unwilling to do things when being watched1::41=Same; 2=Worse; 3=Better; 4=New
energetic_pIntegerRecommendedPast Behavior. 17. Very energetic despite sleeping very little1::41=Same; 2=Worse; 3=Better; 4=New
criesalot_pIntegerRecommendedPast Behavior. 18. Cries a lot1::41=Same; 2=Worse; 3=Better; 4=New
extremot_pIntegerRecommendedPast Behavior. 19. Has extreme or intense emotional reactions1::41=Same; 2=Worse; 3=Better; 4=New
startles_pIntegerRecommendedPast Behavior. 20. Startles easily1::41=Same; 2=Worse; 3=Better; 4=New
hardcalm_pIntegerRecommendedPast Behavior. 21. Hard to calm him/her down when she is mad or upset1::41=Same; 2=Worse; 3=Better; 4=New
lacksemot_pIntegerRecommendedPast Behavior. 22. Lacks emotion1::41=Same; 2=Worse; 3=Better; 4=New
chewsnails_pIntegerRecommendedPast Behavior. 23. Chews fingernails or picks cuticles1::41=Same; 2=Worse; 3=Better; 4=New
reactremove_pIntegerRecommendedPast Behavior. 24. Reactions are so intense that he/she has had to be removed from an activity or place1::41=Same; 2=Worse; 3=Better; 4=New
miserable_pIntegerRecommendedPast Behavior. 25. Is miserable or grumpy1::41=Same; 2=Worse; 3=Better; 4=New
attacks_pIntegerRecommendedPast Behavior. 26. Physically attacks people1::41=Same; 2=Worse; 3=Better; 4=New
onedge_pIntegerRecommendedPast Behavior. 27. Seems on edge1::41=Same; 2=Worse; 3=Better; 4=New
upsetlong_pIntegerRecommendedPast Behavior. 28. When upset or angry, he/she stays that way for a long time1::41=Same; 2=Worse; 3=Better; 4=New
awakeafraid_pIntegerRecommendedPast Behavior. 29. Awakens during the night appearing afraid1::41=Same; 2=Worse; 3=Better; 4=New
excessenthus_pIntegerRecommendedPast Behavior. 30. Has extended periods (>30 minutes) of excessive enthusiasm and excitement that do not fit the situatio1::41=Same; 2=Worse; 3=Better; 4=New
go0to100_pIntegerRecommendedPast Behavior. 34. Emotions go from 0 to 100 instantly1::41=Same; 2=Worse; 3=Better; 4=New
seemstired_pIntegerRecommendedPast Behavior. 35. Seems tired throughout the day1::41=Same; 2=Worse; 3=Better; 4=New
troubcalm_pIntegerRecommendedPast Behavior. 36. Has trouble calming him/herself down1::41=Same; 2=Worse; 3=Better; 4=New
echangequick_pIntegerRecommendedPast Behavior. 37. Emotions change quickly1::41=Same; 2=Worse; 3=Better; 4=New
tense_pIntegerRecommendedPast Behavior. 38. Tense or agitated and unable to relax1::41=Same; 2=Worse; 3=Better; 4=New
morbidint_pIntegerRecommendedPast Behavior. 39. Primary interests are morbid (death, violence)1::41=Same; 2=Worse; 3=Better; 4=New
stomprobs_pIntegerRecommendedPast Behavior. 40. Stomach problems (pain/nausea/vomiting) without an identifiable medical cause1::41=Same; 2=Worse; 3=Better; 4=New
rockstosoothe_pIntegerRecommendedPast Behavior. 41. Rocks back and forth to soothe self1::41=Same; 2=Worse; 3=Better; 4=New
rage_pIntegerRecommendedPast Behavior. 42. Seems to be in a rage1::41=Same; 2=Worse; 3=Better; 4=New
littlehappy_pIntegerRecommendedPast Behavior. 43. Very little makes him/her happy1::41=Same; 2=Worse; 3=Better; 4=New
cautious_pIntegerRecommendedPast Behavior. 44. Cautious or timid1::41=Same; 2=Worse; 3=Better; 4=New
notaware_pIntegerRecommendedPast Behavior. 45. Does not seem aware when he/she is beginning to get upset1::41=Same; 2=Worse; 3=Better; 4=New
moresevere_pIntegerRecommendedPast Behavior. 46. Reactions usually are more severe than the situation calls for1::41=Same; 2=Worse; 3=Better; 4=New
trbfallasleep_pIntegerRecommendedPast Behavior. 47. Trouble falling asleep1::41=Same; 2=Worse; 3=Better; 4=New
dangthings_pIntegerRecommendedPast Behavior. 48. Does dangerous things (walks into street; leans out window)1::41=Same; 2=Worse; 3=Better; 4=New
eatstoomuch_pIntegerRecommendedPast Behavior. 49. Eats too much1::41=Same; 2=Worse; 3=Better; 4=New
upsetnoreas_pIntegerRecommendedPast Behavior. 50. Becomes upset without a clear reason1::41=Same; 2=Worse; 3=Better; 4=New
leaveforced_pIntegerRecommendedPast Behavior. 51. Refuses to leave the house or go to school or activities unless forced1::41=Same; 2=Worse; 3=Better; 4=New
moodswgs_pIntegerRecommendedPast Behavior. 52. Has mood swings1::41=Same; 2=Worse; 3=Better; 4=New
diffdistr_pIntegerRecommendedPast Behavior. 53. Difficult to distract if he/she is frustrated or upset1::41=Same; 2=Worse; 3=Better; 4=New
physagit_pIntegerRecommendedPast Behavior. 54. Physically agitated (paces, fidgits, or rocks body in distress)1::41=Same; 2=Worse; 3=Better; 4=New
moveslowly_pIntegerRecommendedPast Behavior. 55. Moving or talking more slowly than usual1::41=Same; 2=Worse; 3=Better; 4=New
hesitant_pIntegerRecommendedPast Behavior. 56. Hesitant in groups of people1::41=Same; 2=Worse; 3=Better; 4=New
notresptopraise_pIntegerRecommendedPast Behavior. 57. Not responsive to praise or good things happening1::41=Same; 2=Worse; 3=Better; 4=New
cannotchgmood_pIntegerRecommendedPast Behavior. 58. Cannot change his/her mood even with your best efforts1::41=Same; 2=Worse; 3=Better; 4=New
easilytrigger_pIntegerRecommendedPast Behavior. 59. Easily triggered/upset (you have to walk on eggshells around him/her)1::41=Same; 2=Worse; 3=Better; 4=New
poorhyg_pIntegerRecommendedPast Behavior. 60. Poor self-care or hygiene1::41=Same; 2=Worse; 3=Better; 4=New
slamsbody_pIntegerRecommendedPast Behavior. 61. Slams body into walls or bangs self on objects1::41=Same; 2=Worse; 3=Better; 4=New
chgemot_pIntegerRecommendedPast Behavior. 62. Changes in emotion come out of nowhere1::41=Same; 2=Worse; 3=Better; 4=New
seemssad_pIntegerRecommendedPast Behavior. 63. Seems sad or unhappy1::41=Same; 2=Worse; 3=Better; 4=New
appearsuneasy_pIntegerRecommendedPast Behavior. 64. Appears uneasy through the day1::41=Same; 2=Worse; 3=Better; 4=New
doesnotmove_pIntegerRecommendedPast Behavior. 65. Does not move without a prompt1::41=Same; 2=Worse; 3=Better; 4=New
sweatatrest_pIntegerRecommendedPast Behavior. 66. Sweating or flushing at rest1::41=Same; 2=Worse; 3=Better; 4=New
enj_cIntegerRecommendedCurrent Behavior 31. Does not seem to enjoy anything1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
enj_pIntegerRecommendedPast Behavior 31. Does not seem to enjoy anything1::41=Same; 2=Worse; 3=Better; 4=New
yells_cIntegerRecommendedCurrent Behavior 32. Yells or makes loud noises in an unsettled/distressed manner1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
yells_pIntegerRecommendedPast Behavior 32. Yells or makes loud noises in an unsettled/distressed manner1::41=Same; 2=Worse; 3=Better; 4=New
avoids_cIntegerRecommendedCurrent Behavior 33. If not pushed, avoids new or unfamiliar activities1::51= Not at all; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
avoids_pIntegerRecommendedPast Behavior 33. If not pushed, avoids new or unfamiliar activities1::41=Same; 2=Worse; 3=Better; 4=New
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: emdi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.