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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Enrollment Information

enrollment

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Site
studyString100RecommendedStudy
visitString50RecommendedVisit nameCharacter description of each type of visit
version_formString100RecommendedForm used
consent_numIntegerRecommendedConsecutive Number of Consents Signed
consent_totIntegerRecommendedTotal Number of Consents Signed
db_codeIntegerRecommendedDouble-Blind Code
status_descripString250RecommendedDescription of subjects course in study
cnsntdtDateRecommendedConsent Date - consent for the next Phase was obtained at the last visit of the previous Phase
hbst_refspString150RecommendedWho referred you to this program. Specify
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
pre_5IntegerRecommendedHas the child lived with the primary caregiver for the last 6 months?0;1;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
ec13IntegerRecommendedExclusion criteria EC13: Is the primary caretaker non-English speaking?0::2; -7; -90 = No; 1 = Yes; 2 = Not Assessed;-7=refused;-9=unknownpre_6
pre_7IntegerRecommendedIs the child currently attending school or organized group daycare?0;1;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
pre_8IntegerRecommendedHow many days a week does the child attend school/organized daycare?
pre_9FloatRecommendedHow many hours a day does that child after school/organizeddaycare?
csi3IntegerRecommendedHow many children are in this class?
currgradelevelString50RecommendedCurrent grade level
pre_12IntegerRecommendedHow many teachers are in the child's current class?-8=No school
p45a2aIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often fidgets with hands or feet or squirms in seat1;2; -7;-91=no;2=yes;-7=refused;-9=unknown
p45a2bIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often leaves seat in classroom or in other situations in which remaining seated is expected1;2; -7; -91=no;2=yes; -7=Refused; -9=Unknown
p45a2cIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often runs about or climbs excessively in situations in which it is inappropriate1;2; -7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2dIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often has difficulty playing or engaging in leisure activities quietly1;2; -7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2eIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Is often "on the go" or often acts as if "driven by a motor1;2; -7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2fIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often talks excessively1;2; -7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2gIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often blurts out answers before questions have been completed1;2;-7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2hIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often has difficulty awaiting turn1;2;-7;-91=no;2=yes; -7=Refused; -9=Unknown
p45a2iIntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Often interrupts or intrudes on others1;2;-7;-91=no;2=yes; -7=Refused; -9=Unknown
strconheartdisString5RecommendedDoes the child/patient have heart disease?Yes; No;999;RefRef=refused; 999=NA/NK/missing
lhq_hypIntegerRecommendedHypertension0;1; -7;-90=No; 1=Yes; -7=Refused; -9=Unknown
pre_14cIntegerRecommendedDoes the child have any of the following medical conditions? Glaucoma0;1;-7;-90=no; 1=Yes; -7=Refused; -9=Unknown
baseline_k_005IntegerRecommendedDiabetes0;1; -888; -999;-70=No; 1=Yes; -888=Not Applicable; -999=Missing/NK; -7=Refused
cfmh_chd_thyroiddisIntegerRecommendedDoes the Child have Thyroid Disease?1;0;999; -70 = No; 1 = Yes; -7=Refused; 999=NA/NK
cfmh_chd_seizureIntegerRecommendedDoes (did) the Child have Seizure Disorder/Epilepsy?1;0;999; -70 = No; 1 = Yes; ; -7=Refused; 999=NA/NK
cfmh_chd_othpsydisIntegerRecommendedDoes (did) the Child have a Psychiatric Disorder?1;0; -7;-90 = No; 1 = Yes; -7=Refused; -9=Unknown
cfmh_chd_othpsydis_cmtString255RecommendedSpecify Child's Psychiatric Disorder
dph00a1IntegerRecommendedDoes the individual have a developmental disorder?0;1; -7;-90=No; 1=Yes; -7=Refused; -9=Unknown
hup2ddxString250RecommendedOther developmental disorder - problemsiteid
demo_chronicString5RecommendedDoes the child have any chronic medical conditions?Yes;No;NK; RefRef=refused
tts_13String60RecommendedDo you have any current chronic medical problems? If yes, please describe:
hi_24IntegerRecommendedHave you ever taken ADHD medication?1;2; -7;-91=No; 2=Yes; -7=Refused; -9=Unknown
medinfo_adhdString300RecommendedChild currently taking ADHD medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.
childmedsIntegerRecommendedIs your child currently taking any medications?0;1;-99;88;770= No ; 1= Yes ; -99= N/A ; 88= Missing ; 77= Refused
medinfo_other1String300RecommendedChild currently taking Other medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.
primaryIntegerRecommendedPrimary Care Doctor0;1; -7;-90=Not checked; 1=Checked; -7=Refused; -9=Unknown
pre_18aString200RecommendedHow long ago was the child's last routine physical/check-up
iq_testString10RecommendedThis individual has had an IQ testTRUE;FALSE;UNKNOWN; REFUSED
pre_20IntegerRecommendedAre the parent/guardian(s) willing to attend a meeting with a member of the research team to learn more about the study?0;1;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
appointment_sIntegerRecommendedAppointment scheduled0;1;-90=No;1=Yes;-9=Unknown
pre_21bString200RecommendedAppointment scheduled; Date and Time
pcc001IntegerRecommendedWas follow-up phone call conducted0;1;-90=No; 1=Yes; -9=Unknown
flwup1String250RecommendedFollowup 1
pre_23IntegerRecommendedAre the parent/guardian(s) willing to have their child participate in other pharmacological studies?0::2;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
pre_24IntegerRecommendedAre the parent/guardian(s) willing to have their child participate in other non-pharmacological studies?0::2;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
pre_25IntegerRecommendedHas the child passed prescreen and eligible for a screening visit?0::2;-7;-90=No; 1=Yes; -7=Refused; -9=Unknown
pre_25aIntegerRecommendedIf No, Child is too old for the study1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25bIntegerRecommendedIf No, Child is too young for the study1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25cIntegerRecommendedIf No, Child has not lived with the primary caregiver for the last 6 months1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25dIntegerRecommendedIf No, Child is not currently attending school or organized group daycare1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25eIntegerRecommendedIf No, Child does not attend school/organized daycare a sufficient number of days a week1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25fIntegerRecommendedIf No, Child does not attend school/organized daycare a sufficient number of hours a day1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25gIntegerRecommendedIf No, Not enough children are in the child's current class1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25hIntegerRecommendedIf No, Child not experiencing a sufficient number of ADHD symptoms1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25iIntegerRecommendedIf No, Child has medical diagnosis that precludes inclusion1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25jIntegerRecommendedIf No, Child has psychiatric diagnosis that precludes inclusion1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25kIntegerRecommendedIf No, Child's caretaker does not speak and read English, or, Spanish.1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25lIntegerRecommendedIf No, Prior History of Stimulant Medication in excess of level allowed1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25mIntegerRecommendedIf No, Child currently taking an excluded medication1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25nIntegerRecommendedIf No, Medical reason unrelated to study medication1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25oIntegerRecommendedIf No, Lost to follow-up1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25pIntegerRecommendedIf No, Declined study participation1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25qIntegerRecommendedIf No, Moved from area (current or pending)1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pre_25rIntegerRecommendedIf No, School unable or not willing to participate1;2;-91=Apply; 2=Does Not Apply; -9=Unknown
pte_q1DateRecommendedDate of first class
enr_d1IntegerRecommendedDid Subj. meet Inclu./Exclu.?0;10=No; 1=Yes
age_groupIntegerRecommendedAge Group0 :: 50=Infants; 1=Toddlers; 2=Preschool; 3=School Age; 4=Young; 5=Old
lie_q03DateRecommendedDate of first dose of Open Lead in Medication
lie_q04IntegerRecommendedIs this subject being enrolled as a result of ASAP rules0;10=No; 1=Yes
lie_q05DateRecommendedDate of ASAP Panel
cre_q03IntegerRecommendedIs the subject on a modified crossover dosing schedule?0;10=No; 1=Yes
cre_q04DateRecommendedDate of first dose of Crossover Medication
enrldtDateRecommendedDate of first dose of Parallel medication
smd005DateRecommendedDate of first dose of study medication (mm/dd/yyyy)
enroll_notesString200RecommendedNotes about enrollment status
scrflincString1,250RecommendedFailed these inclusion criteria:
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: enrollment01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.