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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Data Structures with shared data
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Farrant Adaptation Questionnaire

fadq

01

Farrant Adaptation Questionnaire. Farrant, B. M., Maybery, M. T., & Fletcher, J. (2011). Socio-emotional engagement, joint attention, imitation, and conversation skill: Analysis in typical development and specific language impairment. First Language, 31(1), 23-46. doi: 10.1177/0142723710365431

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
css_1IntegerRecommendedConversation Skill Scale. My child's answers are connected to what I asked0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_2IntegerRecommendedConversation Skill Scale. My child's responses follow what I am talking about0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_3IntegerRecommendedConversation Skill Scale. When I ask my child a question to check what s/he means, s/he answers me0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_4IntegerRecommendedConversation Skill Scale. If I ask my child to repeat something I haven't understood, s/he does0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_5IntegerRecommendedConversation Skill Scale. My child's sounds/gestures/words match my topic of conversation with him/her0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_6IntegerRecommendedConversation Skill Scale. In a conversation, my child stays on the same topic for two or more turns0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
css_7IntegerRecommendedConversation Skill Scale. My child's answers are appropriate (e.g., does not give too much or too little information).0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
sees_1IntegerRecommendedSocio-Emotional Engagement Scale. In early childhood, how often did your child enjoy being hugged and cuddled by familiar people?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
sees_2IntegerRecommendedSocio-Emotional Engagement Scale. In early childhood, how often did your child raise her/his arms to request being picked up?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
sees_3IntegerRecommendedSocio-Emotional Engagement Scale. In early childhood, how often did your child show affection toward familiar people?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
sees_4IntegerRecommendedSocio-Emotional Engagement Scale. In early childhood, how often did your child enjoy simple interaction games like peekaboo?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
jas_1IntegerRecommendedJoint Attention Scale. In early childhood, how often did your child look at things that you were looking at?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
jas_2IntegerRecommendedJoint Attention Scale. In early childhood, how often did your child show you things to engage your attention?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
jas_3IntegerRecommendedJoint Attention Scale. In early childhood, how often did your child follow other people's points when they pointed at objects? (e.g., you pointed at a toy across the room and your child looked at it)0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
jas_4IntegerRecommendedJoint Attention Scale. Children often direct other people's attention by switching their eye contact between the person and an object and back again. How often did your child engage in this type of behavior?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
is_1IntegerRecommendedImitation Scale. In early childhood, how often did your child imitate people's facial expressions? (e.g., you made a face and your child imitated it)0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
is_2IntegerRecommendedImitation Scale. Before s/he could talk, how often did your child imitate/copy the preverbal noises (vocal noises other than words) made by adults?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
is_3IntegerRecommendedImitation Scale. Before s/he could talk, how often did your child imitate/copy the words made by adults?0::40 = Almost never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Almost always
conv_totalIntegerRequiredConversation total
imit_totalIntegerRequiredImitation total
joint_at_totalIntegerRequiredJoint attention total
soc_em_totalIntegerRequiredSocio-Emotional total
overall_totalIntegerRequiredOverall total
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fadq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.