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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Family Demographics



Family Demographics, defined by Dr. Tilford's group, University of Arkansas for Medical Sciences

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldcg_interview_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Femalecg_gender, chi_gen, t_gender
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datacg_finalcomments_misc
cg1_genderString10RecommendedCaregiver/Parent 1's GenderMale;Femalep_gender, q4
cg1_raceString100RecommendedRace of the Caregiver/Parent 1American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcg_race, dmg_mthrrace, p_ethni, q5
cg_relationshipIntegerRecommendedRelationship with Child1::81 = Biological parent; 2 = Stepparent; 3 = Foster parent; 4 = Adoptive parent; 5 = Guardian; 6 = Other; 8=Grandparentp_relation, q6
cg_relationship_cmtString255RecommendedRelationship with Child CommentIf 6 above, then what is caregiver's relationship?other1
cg_educationIntegerRecommendedLevel of School Completed1; 2; 3; 4; 5; 6; 71 = Less than 9th grade; 2 = Some of high school; 3 = GED or high school graduate; 4 = Some college or trade school; 5 = College graduate; 6 = Some professional or graduate training; 7 = Completed professional or graduate trainingdmg_q60a, q7
cg1_relation_statusString100RecommendedCaregiver/Parent 1's Relationship Status
Married;Never married;Widowed;Divorced and remarried;Separated;Divorced;Widowed and remarried;Other; Living with Partner
cg_rstatus, dmg_q56a, p_marriage, q8
household_number_in_houseIntegerRecommendedNumber of people living in primary residence for subject (proband)household_number, p_fammemb, q9
num_in_house_adultsIntegerRecommendedNumber of Individuals in Household Adultsq10
household_18adlIntegerRecommendedNumber of Residents over 18 who require ADL Assistance0::99 = 9 or morehousehold_18_over, q11
household_0_5IntegerRecommendedResidents between 0 and 50::5q12_a
household_6_17IntegerRecommendedResidents between 6 and 170::7q12_b
household_cadlIntegerRecommendedChildren in household who require ADL Assistance0::99 = 9 or moreq13
household_cneedsIntegerRecommendedChildren in household with special healthcare needs0::99 = 9 or moreq14
cg_sleepIntegerRecommendedCaregiver's Hours of Sleep per Night0::90 = 4 or less hours, 1 = 5 hours; 2 = 6 hours; 3 = 7 hours; 4 = 8 hours; 5 = 9 hours; 6 = 10 or more hoursq15
cg_srbIntegerRecommendedmark on scale how burdensome you feel caring is at the moment0; 5; 10; 15; 20; 25; 30; 35; 40; 45; 50; 55; 60; 65; 70; 75; 80; 85; 90; 95; 100Scale from 0 to 100: 0 = Not at all straining; 100 = Much too strainingself_1
cg_nohelpIntegerRecommendedIdentify those who help you care for children - no help0; 10 = No; 1 = Yesq90_a
cg_spousehelpIntegerRecommendedIdentify those who help you care for children - spouse0; 10 = No; 1 = Yesq90_b
cg_otherfamhelpIntegerRecommendedIdentify those who help you care for children - other fam0; 10 = No; 1 = Yesq90_c
cg_homehealthhelpIntegerRecommendedIdentify those who help you care for children - home health0; 10 = No; 1 = Yesq90_d
cg_friendshelpIntegerRecommendedIdentify those who help you care for children - Friends0; 10 = No; 1 = Yesq90_e
cg_workIntegerRecommendedPart or Full Time work for pay in the last year0; 10 = No; 1 = Yesq91
cg_work_weeksIntegerRecommendedWeeks of work for pay in last year1; 21 = The whole year (52 weeks); 2 = Less than 52 weeksq92
cg_work_weeks_cmtString255Recommendedweeks of work for pay commentIf less than 52 weeks, the number of weeks a cargiver worked in the last yearweeks1
cg_work_hoursString255RecommendedNumber of hours worked per week for Payhours1
cg_occupString255Recommendedq94 - OccupationOccupation of caregiverdmg_q62adesc, occup1
cg_wageString255Recommendedwage/salary amountWage before taxesp_income_1_2_yearly, wage_1
cg_wage_periodIntegerRecommendedactual 1-7 total1; 2; 3; 4; 5; 6; 71 = Per hour; 2 = Per day; 3 = Per week; 4 = Per 2 week period; 5 = Per month; 6 = Per year; 7 = Otherq95
cg_wage_otherString255Recommendedwage/salary other (comment)If paid on other scale, list what it is hereother2, p_income_1_1_monthly
cg_takehomeString255Recommendedtake home pay (after deduction) - if knowntakeh1
cg_totalincomeIntegerRecommendedtotal combined family income1::71 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000q96
commentsString4,000RecommendedComments about assessmentcg_finalcomment
numchildIntegerRecommendednumber of childrennum_children
current_caregiverIntegerRecommendedFor how many children are you currently the main caregiver?
child1_genderString10RecommendedOther Child in Household 1 GenderMale;Femalegender1
child2_genderString10RecommendedOther Child in Household 2 GenderMale;Femalegender2
child3_genderString10RecommendedOther Child in Household 3 GenderMale;Femalegender3
child4_genderString10RecommendedOther Child in Household 4 GenderMale;Femalegender4
child5_genderString10RecommendedOther Child in Household 5 GenderMale;Femalegender5
child1_ageString100RecommendedOther Child in Household 1 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage1
child2_ageString100RecommendedOther Child in Household 2 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage2
child3_ageString100RecommendedOther Child in Household 3 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage3
child4_ageString100RecommendedOther Child in Household 4 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage4
child5_ageString100RecommendedOther Child in Household 5 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage5
index1IntegerRecommendedChild index 1
index2IntegerRecommendedChild index 2
index3IntegerRecommendedChild index 3
index4IntegerRecommendedChild index 4
index5IntegerRecommendedChild index 5
chi_healthIntegerRecommendedWould you say your child's health is1::51 = Excellent; 2 = Very good; 3 = Good; 4 = Fair; 5 = Poorhealth1
chi_health2IntegerRecommendedChild health 21::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth2
chi_health3IntegerRecommendedChild health 31::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth3
chi_health4IntegerRecommendedChild health 41::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth4
chi_health5IntegerRecommendedChild health 51::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth5
dmg_fthbthplIntegerRecommendedPlace of birth1::12;991=USA (mainland) 2=Puerto Rico 3=Dominican Republic 4=Spanish speaking Caribbean (Other than Puerto Rico or Dominican Republic) 5=English speaking Caribbean 6=French speaking Caribbean (Haiti) 7=Mexico, Central/South America 8=Asia, South Pacific 9=Africa 10=Europe 11=Canada 12=Other 99=DKdmg_mthbthpl
dmg_othfthbpString80RecommendedOther place of birthdmg_othmthbp
dmg_q62bIntegerRecommendedOccupation category1::9;77;88;991 = Farm Laborers/Menial Service Workers 2 = Unskilled Workers 3 = Machine Operators and Semiskilled Workers 4 = Skilled Manual Workers, Craftsmen, Owner of Small Business or Farm* 5 = Clerical and Sales Workers, Owner of Small Business or Farm* 6 = Technician, Semiprofessional, Owner of Small Business 7 = Manager, Minor Professional, Owner of Independent Business or Farm* 8 = Administrator, Lesser Professional, Owner of Medium-sized Business 9 = Higher executive, Owner of large Business, Major Professional 77 = Other (never employed for six months, homemaker, student, physically disabled) 88 = NA 99 = DKdmg_q62a
dmg_q63bIntegerRecommendedmother receiving public assistance0;10 = No; 1 = Yes;Between 0 And 1 Or Is Null;Answer must be 0 or 1dmg_q63a
briefscreen_respondent_age_yrsIntegerRecommendedage of Respondent in yearsdmg_mtherage
otherraceString100Recommendedspecify other raceThe following questions are about you or the child's family.dmg_othmrace
dem_13IntegerRecommendedNumber of years married / living togetherdmg_q58a
fh20IntegerRecommended20. Number of marriages0::9dmg_q59a
fi07IntegerRecommended7. Are you currently employed?1::6; 97::991 = Yes - employed full-time; 2 = Yes - employed part-time - or irregular; 3 = Not employed - able but cannot find work; 4 = Not employed - homemaker or caretaker; 5 = Not employed - disabled; 6 = Not employed - retired; 97 = Refused; 98 = Don't know; 99 = NAdmg_q61a
t_lgbtqIntegerRecommended(Child) Do you identify as part of the LGBTQ+ community?0;10=No; 1=Yes
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedt_ethni
usbornIntegerRecommendedUS born0;10=No; 1=Yest_born_us
liveswithString100Recommendedchild lives withBoth biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Othert_livewith
liveswithotherString50Recommendedchild lives with other, specify
cg1_usbornIntegerRecommendedCaregiver/Parent 1 US born0;10=No; 1=Yesp_born_us
p_siblings_oldbroIntegerRecommendednumber of older brothers
p_siblings_oldsisIntegerRecommendednumber of older sisters
p_siblings_youngbroIntegerRecommendednumber of younger brothers
p_siblings_youngsisIntegerRecommendednumber of younger sisters
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fam_dem01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.