NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

NDA Help Center

Filter Cart

The Filter Cart provides a way to query and access data for which you may be interested.  There are multiple places to go query and Add to Filter Cart (Sometimes called Download).  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you add subjects, sometimes it may take a few minutes to populate.  You can continue to do other things during this time. 

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data available for the subjects selected will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be available.  However, if you want to see all of the clinical and phenotype, then select, "Find All Subject Data" to see all the data avaialble for those subjects.  

when a secord or third filter is applied, an AND condition is used to determine the subjects that are exist in all filters.  If the subject does not appear in any filter, that subjects data will be excluded from your filter cart. Given the sparcity of data in the NDA, it is possible for no subjects to appear across filters.  If that happens, clear your filter cart, and start over.  

The NDA is looking to enhance query/filtering.  Until additional tools become available, it is best to package more data than you need and then package and download the data and use other tools to further restrict and analyze the data.  If you have any questions on data access, are interested in using avaialble web services or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

Loading...

Login
Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Family Demographics

fam_dem

01

Family Demographics, defined by Dr. Tilford's group, University of Arkansas for Medical Sciences

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldcg_interview_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Femalecg_gender, chi_gen, t_gender
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datacg_finalcomments_misc
cg1_genderString10RecommendedCaregiver/Parent 1's GenderMale;Femalep_gender, q4
cg1_raceString100RecommendedRace of the Caregiver/Parent 1American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcg_race, dmg_mthrrace, p_ethni, q5
cg_relationshipIntegerRecommendedRelationship with Child1::81 = Biological parent; 2 = Stepparent; 3 = Foster parent; 4 = Adoptive parent; 5 = Guardian; 6 = Other; 8=Grandparentp_relation, q6
cg_relationship_cmtString255RecommendedRelationship with Child CommentIf 6 above, then what is caregiver's relationship?other1
cg_educationIntegerRecommendedLevel of School Completed1; 2; 3; 4; 5; 6; 71 = Less than 9th grade; 2 = Some of high school; 3 = GED or high school graduate; 4 = Some college or trade school; 5 = College graduate; 6 = Some professional or graduate training; 7 = Completed professional or graduate trainingdmg_q60a, q7
cg1_relation_statusString100RecommendedCaregiver/Parent 1's Relationship Status
Married;Never married;Widowed;Divorced and remarried;Separated;Divorced;Widowed and remarried;Other; Living with Partner
cg_rstatus, dmg_q56a, p_marriage, q8
household_number_in_houseIntegerRecommendedNumber of people living in primary residence for subject (proband)household_number, p_fammemb, q9
num_in_house_adultsIntegerRecommendedNumber of Individuals in Household Adultsq10
household_18adlIntegerRecommendedNumber of Residents over 18 who require ADL Assistance0::99 = 9 or morehousehold_18_over, q11
household_0_5IntegerRecommendedResidents between 0 and 50::5q12_a
household_6_17IntegerRecommendedResidents between 6 and 170::7q12_b
household_cadlIntegerRecommendedChildren in household who require ADL Assistance0::99 = 9 or moreq13
household_cneedsIntegerRecommendedChildren in household with special healthcare needs0::99 = 9 or moreq14
cg_sleepIntegerRecommendedCaregiver's Hours of Sleep per Night0::90 = 4 or less hours, 1 = 5 hours; 2 = 6 hours; 3 = 7 hours; 4 = 8 hours; 5 = 9 hours; 6 = 10 or more hoursq15
cg_srbIntegerRecommendedmark on scale how burdensome you feel caring is at the moment0; 5; 10; 15; 20; 25; 30; 35; 40; 45; 50; 55; 60; 65; 70; 75; 80; 85; 90; 95; 100Scale from 0 to 100: 0 = Not at all straining; 100 = Much too strainingself_1
cg_nohelpIntegerRecommendedIdentify those who help you care for children - no help0; 10 = No; 1 = Yesq90_a
cg_spousehelpIntegerRecommendedIdentify those who help you care for children - spouse0; 10 = No; 1 = Yesq90_b
cg_otherfamhelpIntegerRecommendedIdentify those who help you care for children - other fam0; 10 = No; 1 = Yesq90_c
cg_homehealthhelpIntegerRecommendedIdentify those who help you care for children - home health0; 10 = No; 1 = Yesq90_d
cg_friendshelpIntegerRecommendedIdentify those who help you care for children - Friends0; 10 = No; 1 = Yesq90_e
cg_workIntegerRecommendedPart or Full Time work for pay in the last year0; 10 = No; 1 = Yesq91
cg_work_weeksIntegerRecommendedWeeks of work for pay in last year1; 21 = The whole year (52 weeks); 2 = Less than 52 weeksq92
cg_work_weeks_cmtString255Recommendedweeks of work for pay commentIf less than 52 weeks, the number of weeks a cargiver worked in the last yearweeks1
cg_work_hoursString255RecommendedNumber of hours worked per week for Payhours1
cg_occupString255Recommendedq94 - OccupationOccupation of caregiverdmg_q62adesc, occup1
cg_wageString255Recommendedwage/salary amountWage before taxesp_income_1_2_yearly, wage_1
cg_wage_periodIntegerRecommendedactual 1-7 total1; 2; 3; 4; 5; 6; 71 = Per hour; 2 = Per day; 3 = Per week; 4 = Per 2 week period; 5 = Per month; 6 = Per year; 7 = Otherq95
cg_wage_otherString255Recommendedwage/salary other (comment)If paid on other scale, list what it is hereother2, p_income_1_1_monthly
cg_takehomeString255Recommendedtake home pay (after deduction) - if knowntakeh1
cg_totalincomeIntegerRecommendedtotal combined family income1::71 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000q96
commentsString4,000RecommendedComments about assessmentcg_finalcomment
numchildIntegerRecommendednumber of childrennum_children
current_caregiverIntegerRecommendedFor how many children are you currently the main caregiver?
child1_genderString10RecommendedOther Child in Household 1 GenderMale;Femalegender1
child2_genderString10RecommendedOther Child in Household 2 GenderMale;Femalegender2
child3_genderString10RecommendedOther Child in Household 3 GenderMale;Femalegender3
child4_genderString10RecommendedOther Child in Household 4 GenderMale;Femalegender4
child5_genderString10RecommendedOther Child in Household 5 GenderMale;Femalegender5
child1_ageString100RecommendedOther Child in Household 1 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage1
child2_ageString100RecommendedOther Child in Household 2 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage2
child3_ageString100RecommendedOther Child in Household 3 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage3
child4_ageString100RecommendedOther Child in Household 4 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage4
child5_ageString100RecommendedOther Child in Household 5 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage5
index1IntegerRecommendedChild index 1
index2IntegerRecommendedChild index 2
index3IntegerRecommendedChild index 3
index4IntegerRecommendedChild index 4
index5IntegerRecommendedChild index 5
chi_healthIntegerRecommendedWould you say your child's health is1::51 = Excellent; 2 = Very good; 3 = Good; 4 = Fair; 5 = Poorhealth1
chi_health2IntegerRecommendedChild health 21::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth2
chi_health3IntegerRecommendedChild health 31::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth3
chi_health4IntegerRecommendedChild health 41::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth4
chi_health5IntegerRecommendedChild health 51::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth5
dmg_fthbthplIntegerRecommendedPlace of birth1::12;991=USA (mainland) 2=Puerto Rico 3=Dominican Republic 4=Spanish speaking Caribbean (Other than Puerto Rico or Dominican Republic) 5=English speaking Caribbean 6=French speaking Caribbean (Haiti) 7=Mexico, Central/South America 8=Asia, South Pacific 9=Africa 10=Europe 11=Canada 12=Other 99=DKdmg_mthbthpl
dmg_othfthbpString80RecommendedOther place of birthdmg_othmthbp
dmg_q62bIntegerRecommendedOccupation category1::9;77;88;991 = Farm Laborers/Menial Service Workers 2 = Unskilled Workers 3 = Machine Operators and Semiskilled Workers 4 = Skilled Manual Workers, Craftsmen, Owner of Small Business or Farm* 5 = Clerical and Sales Workers, Owner of Small Business or Farm* 6 = Technician, Semiprofessional, Owner of Small Business 7 = Manager, Minor Professional, Owner of Independent Business or Farm* 8 = Administrator, Lesser Professional, Owner of Medium-sized Business 9 = Higher executive, Owner of large Business, Major Professional 77 = Other (never employed for six months, homemaker, student, physically disabled) 88 = NA 99 = DKdmg_q62a
dmg_q63bIntegerRecommendedmother receiving public assistance0;10 = No; 1 = Yes;Between 0 And 1 Or Is Null;Answer must be 0 or 1dmg_q63a
briefscreen_respondent_age_yrsIntegerRecommendedage of Respondent in yearsdmg_mtherage
otherraceString100Recommendedspecify other raceThe following questions are about you or the child's family.dmg_othmrace
dem_13IntegerRecommendedNumber of years married / living togetherdmg_q58a
fh20IntegerRecommended20. Number of marriages0::9dmg_q59a
fi07IntegerRecommended7. Are you currently employed?1::6; 97::991 = Yes - employed full-time; 2 = Yes - employed part-time - or irregular; 3 = Not employed - able but cannot find work; 4 = Not employed - homemaker or caretaker; 5 = Not employed - disabled; 6 = Not employed - retired; 97 = Refused; 98 = Don't know; 99 = NAdmg_q61a
t_lgbtqIntegerRecommended(Child) Do you identify as part of the LGBTQ+ community?0;10=No; 1=Yes
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedt_ethni
usbornIntegerRecommendedUS born0;10=No; 1=Yest_born_us
liveswithString100Recommendedchild lives withBoth biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Othert_livewith
liveswithotherString50RecommendedChild lives with other, specify
cg1_usbornIntegerRecommendedCaregiver/Parent 1 US born0;10=No; 1=Yesp_born_us
p_siblings_oldbroIntegerRecommendednumber of older brothersoldbro
p_siblings_oldsisIntegerRecommendednumber of older sistersoldsis
p_siblings_youngbroIntegerRecommendednumber of younger brothersyoungbro
p_siblings_youngsisIntegerRecommendednumber of younger sistersyoungsis
siblingsIntegerRecommendedDoes the child have any brothers and sisters with whom she/he does not live with?0;10=No; 1=Yes
birthcountry_momString100RecommendedWhat is the country of birth of the child's mother?
age_immigrate_momIntegerRecommendedIf applicable, age of the child's mother when immigrated to the U.S
birthcountry_dadString100RecommendedWhat is the country of birth of the child's father?
age_immigrate_dadIntegerRecommendedIf applicable, age of the child's father when immigrated to the U.S
dadparentliveusIntegerRecommendedDo the child's father's parents live in the U.S.?0;1;70=No; 1=Yes; 7=Deceased
dadparentliveusdescString250RecommendedIf the child's father's parents live in the U.S., Where do they live?Country
momparentliveusIntegerRecommendedDo the child's mother's parents live in the U.S.?0;1;70=No; 1=Yes; 7=Deceased
momparentliveusdescString250RecommendedIf the child's mother's parents live in the U.S., Where do they live?Country
relationshipIntegerRecommendedRelationship of respondent to individual1::88; 90;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing
bio_mother_marital_statusString50RecommendedBiological Mother Marital Status
Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
bio_father_marital_statusString50RecommendedBiological Father Marital Status
Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
momincomeIntegerRecommendedWhat is the child's mother's income in this job?
momincomeperString25Recommendedper hour, week, bi-weekly, month, or yearhour; week; bi-weekly; month; year
mommaritalIntegerRecommendedWhat is the child's mother's relationship with the child's father?1::61=married; 2=separated; 3=divorced; 4=widowed; 5=never married; 6=other;
mommarital_othString250RecommendedMom Marital Status: Other, Specify
mommarryhowlongIntegerRecommendedHow long has this been the child's mother's marital status?years
mommaritalcurr_othString250RecommendedMom Marital Status: Other, Specify
mommarrycurrhowlongIntegerRecommendedHow long has this been the child's mother's marital status?years
dadincomeIntegerRecommendedWhat is the child's father's income in this job?
dadincomeperString25Recommendedper hour, week, bi-weekly, month, or yearhour; week; bi-weekly; month; year
momeduIntegerRecommendedmother's education1::12; 9991=some elementary school; 2=completed elementary school; 3=some junior-high school; 4=completed junior-high school; 5=some high school; 6=high school diploma; 7=trade or vocational school; 8=some college; 9=college degree; 10=some graduate school; 11=graduate school degree;other; 999=missing/NA; 12=less than 8th grade
momhasjobIntegerRecommendedDoes the child's mother have a job right now?0;10=No; 1=Yesmomjob
momjobdescString250RecommendedIf yes, what is the child's mother's job?
dadeduIntegerRecommendedHow far has the child's father ever gone in school?1::12; 9991=some elementary school; 2=completed elementary school; 3=some junior-high school; 4=completed junior-high school; 5=some high school; 6=high school diploma; 7=trade or vocational school; 8=some college; 9=college degree; 10=some graduate school; 11=graduate school degree;other; 999=missing/NA; 12=less than 8th grade
dadhasjobIntegerRecommendedDoes the child's father have a job right now?0;10=No; 1=Yesdadjob
dadjobdescString250RecommendedIf yes, what is the child's father's job?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fam_dem01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.