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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Family Assessment Scale

famburd

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visit
monthsblFloatRecommendedActual number of months from Baseline
days_baselineIntegerRecommendedDays since baseline
fas001IntegerRecommendedHad financial problems1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas002IntegerRecommendedMissed days at work/school1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas003IntegerRecommendedDifficulty concentrating on activities1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas004IntegerRecommendedHad to change personal plans, e.g., new job or vacation1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas005IntegerRecommendedCut back on leisure time1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas006IntegerRecommendedHousehold routine was upset1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas007IntegerRecommendedHad less time to spend with friends1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas008IntegerRecommendedNeglected needs of family members1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas009IntegerRecommendedExperienced family frictions or arguments1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas010IntegerRecommendedExperiened frictions with neighbors/friends/other relatives1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas011IntegerRecommendedEmbarrassed by behavior of relative1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas012IntegerRecommendedFelt guilty about failure to help someone1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas013IntegerRecommendedFelt guilty about causing a problem for relative1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas014IntegerRecommendedResented relative for making demands1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas015IntegerRecommendedFelt trapped by caregiver rols1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas016IntegerRecommendedWas upset by change in behavior of relative1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas017IntegerRecommendedWorried that behavior with relative might make illness worse1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas018IntegerRecommendedWorried about what future holds for relative1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas019IntegerRecommendedUpset by the stigma of the illness1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas020IntegerRecommendedHas relative provided help with chores, meals, shopping, transportation?1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas021IntegerRecommendedHas relative provided financial assistance?1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas022IntegerRecommendedHas relative given companionship and emotional support?1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
fas023IntegerRecommendedHas relative provided other kinds of help?1::4; 91=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
f1distsFloatRecommendedDisrupted Activities Total Score
f1distsxFloatRecommendedDisrupted Activities Mean Score
f2pertsFloatRecommendedPersonal Distress Total Score
f2pertsxFloatRecommendedPersonal Distress Mean Score
f3glttsIntegerRecommendedGuilt Total Score
f3glttsxFloatRecommendedGuilt Mean Score
f4timtsIntegerRecommendedTime Perspective Total Score
f4timtsxFloatRecommendedTime Perspective Mean Score
f5wortsIntegerRecommendedWorry Total Score
f5wortsxFloatRecommendedWorry Mean Score
fburdtsFloatRecommendedFull-Scale Total Score
fburdtsxFloatRecommendedFull-Scale Mean Score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: famburd01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.