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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Family Empowerment Form

famempow

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
pr_fam_empo1IntegerRecommended1. I feel that I can approve all the services my son/daughter receives1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo2IntegerRecommended2. When problems arise with my son/daughter, I handle them pretty well1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo3IntegerRecommended3. I feel I have a part in improving services for adults in my community1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo4IntegerRecommended4. I feel confident in my ability to help my son/daughter grow and develop1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo5IntegerRecommended5. I know the steps to take when I am concerned my son/daughter is receiving poor service1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo6IntegerRecommended6. I make sure that professionals understand my opinions about what services my son/daughter needs1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo7IntegerRecommended7. I know what to do when problems arise with my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo8IntegerRecommended8. I get in touch with my legislators when important bills or issues concerning adults are pending1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo9IntegerRecommended9. I feel my family life is under control1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo10IntegerRecommended10. I understand how the service system for adults is organized1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo11IntegerRecommended11. I am able to make good decisions about what services my son/daughter needs1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo12IntegerRecommended12.I am able to work with agencies and professionals to decide what services my son/daughter needs1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo13IntegerRecommended13. I make sure I stay in regular contact with professionals/agencies who are providing services to my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo14IntegerRecommended14.I have ideas about the ideal service system for adults1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo15IntegerRecommended15. I help other families and adults get the services they need1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo16IntegerRecommended16. I am able to get the information to help me better understand my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo17IntegerRecommended17. I believe that other parents and I can have an influence on services for adults1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo18IntegerRecommended18. My opinion is just as important as professionals opinions in deciding what services my son/daughter needs1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo19IntegerRecommended19. I tell professionals what I think about services being provided to my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo20IntegerRecommended20. I tell people in agencies and government how services for adults can be improved1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo21IntegerRecommended21 .I believe I can solve problems with my son/daughter when they happen1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo22IntegerRecommended22. I know how to get agency administrators or legislators to listen to me1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo23IntegerRecommended23. I know what services my son/daughter needs1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo24IntegerRecommended24. I know what the rights of adults are under the laws1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo25IntegerRecommended25. I feel that my knowledge and experiences as a parent can be used to improve services for adults and other families1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo26IntegerRecommended26. When I need help with problems in my family, I am able to ask for help from others1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo27IntegerRecommended27. I make efforts to learn new ways to help my son/daughter grow and develop1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo28IntegerRecommended28. When necessary, I take the initiative in looking for adult services for my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo29IntegerRecommended29. When dealing with my son/daughter, I focus on the good things as well as the problems1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo30IntegerRecommended30. I have a good understanding of the service system that my son/daughter is involved in1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo31IntegerRecommended31. When faced with problems involving my son/daughter, I decide what to do and then do it1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo32IntegerRecommended32. Professionals should ask me what services I want for my son/daughter1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo33IntegerRecommended33. I have a good understanding of my son/daughter's disorders1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
pr_fam_empo34IntegerRecommended34. I feel I am a good parent1::51=1 Not True at all; 2=2 Mostly Not True; 3=3 Somewhat True; 4=4 Mostly True; 5=5 Very True
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datapr_fam_empo35
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: famempow01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.