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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Family History

famhist

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*pseudo_guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjectid, subjectnumber
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fielddatacollecteddate, date_interview_ses, datecollecteddate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Femalesex
study_idIntegerRecommendedStudy ID number46=Acute Phase; 47=Stabilization Phase
groupIntegerRecommendedStudy group1;21= Attention shaping; 2 = Control
ques_learndisbmString50RecommendedHad or has a learning disability -Biological Mother
Y;N;NA; 99; -999
Y = Yes; N = No; NA = Not answered; 99= DK; -999=missingfamilylearningmother, learningdisabilitymother
ques_learndisbfString50RecommendedHad or has a learning disability -Biological Father
Y;N;NA; 99; -999
Y = Yes; N = No; NA = Not answered; 99= DK; -999=missingfamilylearningfather, learningdisabilityfather
familylearningsisterIntegerRecommendedLearning problems-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
familylearningbrotherIntegerRecommendedLearning problems-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
familylearninggrandparentsIntegerRecommendedLearning problems-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
familylearningauntIntegerRecommendedLearning problems-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
familylearningcousinIntegerRecommendedLearning problems-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
familylearningnieceIntegerRecommendedLearning problems-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_speechdelayString50RecommendedDoes (did) the Child's Mother have a Speech/Language Delay?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_speechmother, speechlanguagedelaymother
father_speechdelayString50RecommendedDoes (did) the Child's Father have a Speech/Language Delay?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_speechfather, speechlanguagedelayfather
family_speechsisterIntegerRecommendedSpeech problems or difficulty speaking-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_speechbrotherIntegerRecommendedSpeech problems or difficulty speaking-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_speechgrandparentIntegerRecommendedSpeech problems or difficulty speaking-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_speechauntIntegerRecommendedSpeech problems or difficulty speaking-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_speechcousinIntegerRecommendedSpeech problems or difficulty speaking-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_speechnieceIntegerRecommendedSpeech problems or difficulty speaking-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivemotherIntegerRecommendedBehavior or disruptive problems at school-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivefatherIntegerRecommendedBehavior or disruptive problems at school-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivesisterIntegerRecommendedBehavior or disruptive problems at school-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivebrotherIntegerRecommendedBehavior or disruptive problems at school-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivegrandparentsIntegerRecommendedBehavior or disruptive problems at school-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptiveauntIntegerRecommendedBehavior or disruptive problems at school-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptivecousinIntegerRecommendedBehavior or disruptive problems at school-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_disruptiveniecesIntegerRecommendedBehavior or disruptive problems at school-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingmotherIntegerRecommendedDifficulties interacting with other people-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingfatherIntegerRecommendedDifficulties interacting with other people-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingsisterIntegerRecommendedDifficulties interacting with other people-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingbrotherIntegerRecommendedDifficulties interacting with other people-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interggrparentsIntegerRecommendedDifficulties interacting with other people-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_interactinggrandparents
family_interactingauntIntegerRecommendedDifficulties interacting with other people-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingcousinIntegerRecommendedDifficulties interacting with other people-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_interactingnieceIntegerRecommendedDifficulties interacting with other people-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
idmr_mothString10RecommendedIntellectual Disability/Mental Retardation, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_mentalretardmother, intellectualdisabilityautismmo
idmr_fathString10RecommendedIntellectual Disability/Mental Retardation, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_mentalretardedfather, intellectualdisabilityautismfa
family_mentretsisterIntegerRecommendedIntellectual disability (Mental retardation)-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedsister
family_mentretbrotherIntegerRecommendedIntellectual disability (Mental retardation)-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedbrother
family_mentretgranparentsIntegerRecommendedIntellectual disability (Mental retardation)-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedgranparents
family_mentretauntIntegerRecommendedIntellectual disability (Mental retardation)-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedaunt
family_mentretcousinIntegerRecommendedIntellectual disability (Mental retardation)-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedcousin
family_mentretnieceIntegerRecommendedIntellectual disability (Mental retardation)-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_mentallyretardedniece
family_muscleweakmomIntegerRecommendedMuscle weakness or poor coordination-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_muscleweakfatherIntegerRecommendedMuscle weakness or poor coordination-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_muscleweaksisIntegerRecommendedMuscle weakness or poor coordination-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_muscleweakbroIntegerRecommendedMuscle weakness or poor coordination-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_musclewkgrparentsIntegerRecommendedMuscle weakness or poor coordination-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_muscleweakgrandparents
family_muscleweakauntIntegerRecommendedMuscle weakness or poor coordination-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_muscleweakcousinIntegerRecommendedMuscle weakness or poor coordination-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_muscleweaknieceIntegerRecommendedMuscle weakness or poor coordination-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
heard_mothString10RecommendedHearing impairment/deafness, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_hearingmom, hearingimpairmentdeafnessmothe
heard_fathString10RecommendedHearing impairment/deafness, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_hearingfather, hearingimpairmentdeafnessfathe
family_hearingsisIntegerRecommendedHearing problems-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hearingbroIntegerRecommendedHearing problems-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hearinggrandparentsIntegerRecommendedHearing problems-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hearingauntIntegerRecommendedHearing problems-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hearingcousinIntegerRecommendedHearing problems-Cousin-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hearingnieceIntegerRecommendedHearing problems1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
seiz_mothString10RecommendedSeizure disorder/Epilepsy, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_seizuremom, seizuredisorderepilepsymother
seiz_fathString10RecommendedSeizure disorder/Epilepsy, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_seizuredad, seizuredisorderepilepsyfather
family_seizuresisIntegerRecommendedSeizures-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_seizurebroIntegerRecommendedSeizures-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_seizuregrandparentsIntegerRecommendedSeizures-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_seizureauntIntegerRecommendedSeizures-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_seizurecousinIntegerRecommendedSeizures-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_seizurenieceIntegerRecommendedSeizures-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_depressionString50RecommendedDoes (did) the Child's Mother have Depression?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbmotherdps, depressionmother, family_depressionmom
father_depressionString50RecommendedDoes (did) the Child's Father have Depression?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbfatherdps, depressionfather, family_depressiondad
family_depressionsisIntegerRecommendedDepression-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingsister1dps
family_depressionbroIntegerRecommendedDepression-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingbrother1dps
family_depressiongrparentsIntegerRecommendedDepression-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_depressiongrandparents
family_depressionauntIntegerRecommendedDepression-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_depressioncousinIntegerRecommendedDepression-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_depressionnieceIntegerRecommendedDepression-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_bipolarString50RecommendedDoes (did) the Child's Mother have a Bipolar Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbipolardisordermanicdepression, family_bipolarmom
father_bipolarString50RecommendedDoes (did) the Child's Father have a Bipolar Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbipolardisordermanicdepression2, family_bipolardad
family_bipolarsisIntegerRecommendedBipolar-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_bipolarbroIntegerRecommendedBipolar-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_bipolargrandparentsIntegerRecommendedBipolar-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_bipolarauntIntegerRecommendedBipolar-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_bipolarcousinIntegerRecommendedBipolar-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_bipolarnieceIntegerRecommendedBipolar-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_anxietyString50RecommendedDoes (did) the Child's Mother have an Anxiety Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missinganxietydisordermother, bmotheraxy, family_anxietymom
father_anxietyString50RecommendedDoes (did) the Child's Father have an Anxiety Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missinganxietydisorderfather, bfatheraxy, family_anxietydad
family_anxietysisIntegerRecommendedAnxiety-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingsister1axy
family_anxietybroIntegerRecommendedAnxiety-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingbrother1axy
family_anxietygrandparentsIntegerRecommendedAnxiety-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_anxietyauntIntegerRecommendedAnxiety-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_anxietycousinIntegerRecommendedAnxiety-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_anxietynieceIntegerRecommendedAnxiety-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_schizophreniaString50RecommendedDoes (did) the Child's Mother have Schizophrenia?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbmotherscz, family_schizophreniamom, schizophreniaorotherpsychosism
father_schizophreniaString50RecommendedDoes (did) the Child's Father have Schizophrenia?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingbfatherscz, family_schizophreniadad, schizophreniaorotherpsychosisf
family_schizophreniasisIntegerRecommendedSchizophrenia-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingsister1scz
family_schizophreniabroIntegerRecommendedSchizophrenia-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingbrother1scz
family_schizgrandparentsIntegerRecommendedSchizophrenia-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_schizophreniagrandparents
family_schizophreniaauntIntegerRecommendedSchizophrenia-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_schizophreniacousinIntegerRecommendedSchizophrenia-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_schizophrenianieceIntegerRecommendedSchizophrenia-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_adhdString50RecommendedDoes (did) the Child's Mother have Attention Deficit Hyperactivity Disorder (ADHD)?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingattentiondeficitmother, family_adhdmmom
father_adhdString50RecommendedDoes (did) the Child's Father have Attention Deficit Hyperactivity Disorder (ADHD)?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingattentiondeficitfather, family_adhddad
family_adhdsisIntegerRecommendedAttention deficit/Hyperactivity-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_adhdbroIntegerRecommendedAttention deficit/Hyperactivity-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_adhdgrandparentsIntegerRecommendedAttention deficit/Hyperactivity-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_adhdauntIntegerRecommendedAttention deficit/Hyperactivity-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_adhdcousinIntegerRecommendedAttention deficit/Hyperactivity-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_adhdneicesIntegerRecommendedAttention deficit/Hyperactivity1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
rts_mothString10RecommendedRett Syndrome, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_rettsyndromemom, rettsyndromemother
rts_fathString10RecommendedRett Syndrome, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_rettsyndromedad, rettsyndromefather
family_rettsyndromesisIntegerRecommendedRett Syndrome-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_rettsyndromebroIntegerRecommendedRett Syndrome-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_rettgrandparentsIntegerRecommendedRett Syndrome-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_rettsyndromegrandparents
family_rettsyndromeauntIntegerRecommendedRett Syndrome-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_rettsyndromecousinIntegerRecommendedRett Syndrome-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_rettsyndromeneicesIntegerRecommendedRett Syndrome-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitalmomIntegerRecommendedBirth Defects= specify-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitaldadIntegerRecommendedBirth Defects= specify-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitalsisIntegerRecommendedBirth Defects= specify-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitalbrotherIntegerRecommendedBirth Defects= specify-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_conggrandparentsIntegerRecommendedBirth Defects= specify-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_congentialgrandparents
family_congenitalauntIntegerRecommendedBirth Defects= specify-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitalcousinIntegerRecommendedBirth Defects= specify-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_congenitalneiceIntegerRecommendedBirth Defects= specify-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
mother_fragilexString50RecommendedDoes (did) the Child's Mother have Fragile X?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_fragilexmom, fragilexsyndromemother
father_fragilexString50RecommendedDoes (did) the Child's Father have Fragile X?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfamily_fragilexdad, fragilexsyndromefather
family_fragilexsisIntegerRecommendedFragile X Syndrome-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_fragilexbroIntegerRecommendedFragile X Syndrome-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_fragilexgrandparentsIntegerRecommendedFragile X Syndrome-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_fragilexauntIntegerRecommendedFragile X Syndrome-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_fragilexcousinIntegerRecommendedFragile X Syndrome-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_fragilexneicesIntegerRecommendedFragile X Syndrome-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromosmalmomIntegerRecommendedChromosomal disorders= specify-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromosomaldadIntegerRecommendedChromosomal disorders= specify-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromosomalsisIntegerRecommendedChromosomal disorders= specify-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromsomalbroIntegerRecommendedChromosomal disorders= specify-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromgrandparentsIntegerRecommendedChromosomal disorders= specify-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_chromosomalgrandparents
family_chromosomalauntIntegerRecommendedChromosomal disorders= specify-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromosomalcousinIntegerRecommendedChromosomal disorders= specify-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_chromosomalneiceIntegerRecommendedChromosomal disorders= specify-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
cerpal_mothString10RecommendedCerebral Palsy, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingcerebralpalsymother, family_palsymom
cerpal_fathString10RecommendedCerebral Palsy, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingcerebralpalsyfather, family_palsydad
family_palasysisterIntegerRecommendedCerebral palsy-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_palsybrotherIntegerRecommendedCerebral palsy-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_palsygrandparentsIntegerRecommendedCerebral palsy-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_palsyauntIntegerRecommendedCerebral palsy-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_palsycousinIntegerRecommendedCerebral palsy-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_palsyneiceIntegerRecommendedCerebral palsy-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
asd_mothString10RecommendedAutism Spectrum Disorder, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingautismspectrumdisordermother, family_autismmom
asd_fathString10RecommendedAutism Spectrum Disorder, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingautismspectrumdisorderfather, family_autismdad
family_autismsisterIntegerRecommendedAutism Spectrum Disorder-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_autismbrotherIntegerRecommendedAutism Spectrum Disorder-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_autismgrandparentsIntegerRecommendedAutism Spectrum Disorder-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_autismauntIntegerRecommendedAutism Spectrum Disorder-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_autismcousinIntegerRecommendedAutism Spectrum Disorder-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_autismneiceIntegerRecommendedAutism Spectrum Disorder-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesmomIntegerRecommendedDiabetes-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesdadIntegerRecommendedDiabetes-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetessisterIntegerRecommendedDiabetes-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesbrotherIntegerRecommendedDiabetes-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesgrandparentsIntegerRecommendedDiabetes-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesauntIntegerRecommendedDiabetes-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetescousinIntegerRecommendedDiabetes-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_diabetesneiceIntegerRecommendedDiabetes-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseasemomIntegerRecommendedHeart Disease-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseasedadIntegerRecommendedHeart Disease-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseasesisIntegerRecommendedHeart Disease-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseasebrotherIntegerRecommendedHeart Disease-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdisgrandparentsIntegerRecommendedHeart Disease-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_heartdiseasegrandparents
family_heartdiseaseauntIntegerRecommendedHeart Disease-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseasecousinIntegerRecommendedHeart Disease-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_heartdiseaseneiceIntegerRecommendedHeart Disease-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensionmomIntegerRecommendedHypertension (High blood pressure)-Mother1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensiondadIntegerRecommendedHypertension (High blood pressure)-Father1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensionsisIntegerRecommendedHypertension (High blood pressure)-Sister(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensionbrotherIntegerRecommendedHypertension (High blood pressure)-Brother(s)1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensgrparentsIntegerRecommendedHypertension (High blood pressure)-Grandparents1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missingfamily_hypertensiongrandparents
family_hypertensionauntIntegerRecommendedHypertension (High blood pressure)-Aunt, Uncle1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensioncousinIntegerRecommendedHypertension (High blood pressure)-Cousin1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_hypertensionneiceIntegerRecommendedHypertension (High blood pressure)-Niece or/Nephew1;2;77;99;-9991= Yes ;2= No ; 99= D/K ; 77= N/A; -999= Missing
family_other_specifyString75RecommendedOther specify
record_ses_fIntegerRecommendedRecord Status1::71= Done ; 2= Not Done ; 3= Withdrawn ; 4= Skipped/Missing ; 5= Deceased ; 6= Site could not reach subject ; 7= Refusedrecord_ses_e_part1
figs_idIntegerRecommendedFirst degree relatives ID1::61=Mother;2=Father; 3=Brother; 4=Sister; 5=Son; 6=Daughterfigs_relation
relsexIntegerRecommendedrelative sex1::31=Male; 2=Female; 3=Transgenderfigs_sex
relage_currIntegerRecommendedCurrent age or age at death of relativefigs_age
figs_psychosisIntegerRecommendedRelative-any psychosis1::51=Unknown;2=No; 3=Possibly; 4=Probably; 5=Definitefigs_psychotic
figs_organicIntegerRecommendedRelative-Organic cause of psychosis1::41=Unknown; 2=No; 3=Possible; 4=Probable/definitefigs_cause
figs_schizIntegerRecommendedRelative-Schizophrenia, schizoaffective, schizophreniform1::51=Unknown;2=No; 3=Possibly; 4=Probably; 5=Definitefigs_schizophrenia
figs_man_biIntegerRecommendedRelative-Mania or Bipolar1::51=Unknown;2=No; 3=Possibly; 4=Probably; 5=Definitefigs_mania
figs_mdeIntegerRecommendedRelative-Major Depression1::51=Unknown;2=No; 3=Possibly; 4=Probably; 5=Definitefigs_majordepression
siteString100RecommendedSiteStudy Sitesitenumber
visitString50RecommendedVisit nameCharacter description of each type of visitvisitlabel
visit_nameString20Recommendedsession ID/screening IDvisitnumber
subjecttypeString20RecommendedSubject TypeControl;Prodromal; Enhanced; Non-Enhanced
dataqualityIntegerRecommendedData quality0::50=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
elig_inclusion_checkIntegerRecommendedChecks for a pass/fail on Elig for Inclusion0::30=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
instanceIntegerRecommendedInstance0::100The number of instance of the first degree relative.
autisticdisorderfatherString10RecommendedAutistic Disorder fatherYes; No; Unknown
autisticdisordermotherString10RecommendedAutistic Disorder motherYes; No; Unknown
breastcancerddatefatherDateRecommendedBreast cancer date father MM/DD/YYYY
breastcancerddatemotherDateRecommendedBreast cancer date mother MM/DD/YYYY
breastcancerfatherString10RecommendedBreast cancer fatherYes; No; Unknown
breastcancermotherString10RecommendedBreast cancer motherYes; No; Unknown
colonpddatefatherDateRecommendedColon polyps date father MM/DD/YYYY
colonpddatemotherDateRecommendedColon polyps date mother MM/DD/YYYY
colonrddatefatherDateRecommendedColorectal cancer date father MM/DD/YYYY
colonrddatemotherDateRecommendedColorectal cancer date mother MM/DD/YYYY
colorectalcancerfatherString10RecommendedColorectal cancer fatherYes; No; Unknown
colorectalcancermotherString10RecommendedColorectal cancer motherYes; No; Unknown
tobacco_moString15RecommendedCurrent tobacco use motherNone; Daily; Less then daily; Unknowncurrenttobaccousemother
tobacco_fathString15RecommendedCurrent tobacco use fatherNone; Daily; Less then daily; Unknowncurrenttobaccousemother2
druguseattimefatherString15RecommendedDrug use at time of conception prescription fatherNone; Daily; Less then daily; Unknown
druguseattimefatherotherString100RecommendedDrug use at time of conception prescription father other
druguseattimemotherString15RecommendedDrug use at time of conception prescription motherNone; Daily; Less then daily; Unknown
druguseattimemotherotherString100RecommendedDrug use at time of conception prescription mother other
endocancerddatefatherDateRecommendedEndometrial cancer date father MM/DD/YYYY
endocancerddatemotherDateRecommendedEndometrial cancer date mother MM/DD/YYYY
endometrialcancerfatherString10RecommendedEndometrial cancer fatherYes; No; Unknown
endometrialcancermotherString10RecommendedEndometrial cancer motherYes; No; Unknown
hashimoddatefatherDateRecommendedHashimo thyroiditis date father MM/DD/YYYY
hashimoddatemotherDateRecommendedHashimo thyroiditis date mother MM/DD/YYYY
hashimothyroiditisfatherString10RecommendedHashimo thyroiditis fatherYes; No; Unknown
hashimothyroiditismotherString10RecommendedHashimo thyroiditis motherYes; No; Unknown
heard_fath_otrString100RecommendedHearing impairmentdeafness father otherhearingimpairmentdeafnessfathe2
heard_moth_otrString100RecommendedHearing impairmentdeafness mother otherhearingimpairmentdeafnessmothe2
kidneycancerddatefatherDateRecommendedKidney cancer date father MM/DD/YYYY
kidneycancerddatemotherDateRecommendedKidney cancer date mother MM/DD/YYYY
kidneycancerfatherString10RecommendedKidney cancer fatherYes; No; Unknown
kidneycancermotherString10RecommendedKidney cancer motherYes; No; Unknown
occ_expofatherString10RecommendedOccupational exposure FatherNone; Radiation (ionizing); Heavy metals; Unknown; Otheroccupationalexpofather
occ_expofatherotherString10RecommendedOccupational exposure Father otheroccupationalexpofatherother
occ_expomoString10RecommendedOccupational exposureNone; Radiation (ionizing); Heavy metals; Unknown; Otheroccupationalexpomother
occ_expomootherString10RecommendedOccupational exposure otheroccupationalexpomotherother
pten_fathString10RecommendedPTEN Hamartoma Tumor Syndrome fatherYes; No; Unknownptenhamartomatumorsyndromefath
pten_mothString10RecommendedPTEN Hamartoma Tumor Syndrome motherYes; No; Unknownptenhamartomatumorsyndromemoth
past_tobacco_fatherString15RecommendedPast tobacco use fatherNone; Daily; Less then daily; Unknownpasttobaccousefather
past_tobacco_motherString15RecommendedPast tobacco use motherNone; Daily; Less then daily; Unknownpasttobaccousemother
phelan_fatherString10RecommendedPhelanMcDermid Syndrome fatherYes; No; Unknownphelanmcdermidsyndromefather
phelan_motherString10RecommendedPhelanMcDermid Syndrome motherYes; No; Unknownphelanmcdermidsyndromemother
smok_home_fString15RecommendedSmoking in home current fatherNone; Daily; Less then daily; Unknownsmokinginhomefather
smok_home_mString15RecommendedSmoking in home current motherNone; Daily; Less then daily; Unknownsmokinginhomemother
thyroidcddatefatherDateRecommendedThyroid cancer date father MM/DD/YYYY
thyroidcddatemotherDateRecommendedThyroid cancer date mother MM/DD/YYYY
thyroidcancerfatherString10RecommendedThyroid cancer fatherYes; No; Unknown
thyroidcancermotherString10RecommendedThyroid cancer motherYes; No; Unknown
ticdisorderfatherString10RecommendedTic Disorder eg Tourette fatherYes; No; Unknown
ticdisordermotherString10RecommendedTic Disorder eg Tourette motherYes; No; Unknown
nonprescriptionfatherString15RecommendedDrug use at time of conception nonprescription including recreational fatherNone; Daily; Less then daily; Unknown
nonprescriptionfatherotherString100RecommendedDrug use at time of conception nonprescription including recreational father other
nonprescriptionmotherString15RecommendedDrug use at time of conception nonprescription including recreational motherNone; Daily; Less then daily; Unknown
nonprescriptionmotherotherString100RecommendedDrug use at time of conception nonprescription including recreational mother other
smoke_tcon_fatherString15RecommendedSmoking in home at time of conception fatherNone; Daily; Less then daily; Unknowntimeofconceptionfather
smoke_tcon_motherString15RecommendedSmoking in home at time of conception motherNone; Daily; Less then daily; Unknowntimeofconceptionmother
father_aspergersString50RecommendedDoes the Child's Father have Asperger's Syndrome?
Yes;No
aspergersyndromefather
mother_aspergersString50RecommendedDoes the Child's Mother have Asperger's Syndrome?
Yes;No
aspergersyndromemother
cblind_fathString10RecommendedCongenital Blindness, fatherYes; Nocongenitalblindnessfather
cblind_mothString10RecommendedCongenital Blindness, motherYes; Nocongenitalblindnessmother
father_ageIntegerRecommendedFather's age0 :: 1200currentagefather
mother_ageIntegerRecommendedMother's age0 :: 1200currentagemother
cfmh_dad_devdelayIntegerRecommendedDoes (did) the Child's Father have a Developmental Delay?1;00 = No; 1 = Yesdevelopmentaldelayfather
cfmh_mom_devdelayIntegerRecommendedDoes (did) the Child's Mother have a Developmental Delay?1;00 = No; 1 = Yesdevelopmentaldelaymother
dsp_fathString10RecommendedDisrupted sleep patterns, fatherYes; Nodisruptedsleeppatterns
dsp_mothString10RecommendedDisrupted sleep patterns, motherYes; Nodisruptedsleeppatternsfather
downs_fathString10RecommendedDown Syndrome, fatherYes; Nodownsyndromefather
downs_mothString10RecommendedDown Syndrome, motherYes; Nodownsyndromemother
father_eatingdisString50RecommendedDoes (did) the Child's Father have an Eating Disorder?
Yes;No
eatingdisordermother2
father_eatingdis_cmtString255RecommendedSpecify father's Eating Disordereatingdisorderfatherother
mother_eatingdisString50RecommendedDoes (did) the Child's Mother have an Eating Disorder?
Yes;No
eatingdisordermother
mother_eatingdis_cmtString255RecommendedSpecify mother's Eating Disordereatingdisordermotherother
father_geneticdisString50RecommendedDoes (did) the Child's Father have a Genetic Disorder?
Yes;No
knowngeneticdisorderfather
father_geneticdis_cmtString255RecommendedSpecify Father's Genetic Disorderknowngeneticdisorderfatherothe
mother_geneticdisString50RecommendedDoes (did) the Child's Mother have a Genetic Disorder?
Yes;No
knowngeneticdisordermother
mother_geneticdis_cmtString255RecommendedSpecify mother's Genetic Disorderknowngeneticdisordermotherothe
ques_gradalbfString255RecommendedLast grade completed -Biological Fatherlastgradeevercompletedfather
ques_gradalbmString255RecommendedLast grade completed -Biological Motherlastgradeevercompletedmother
bio_father_marital_statusString50RecommendedBiological Father Marital StatusSingle;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Othermaritalstatusfather
bio_mother_marital_statusString50RecommendedBiological Mother Marital StatusSingle;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Othermaritalstatusmother
father_ocdString50RecommendedDoes (did) the Child's Father have Obsessive Compulsive Disorder?
Yes;No
obsessivecompulsivedisorderfat
mother_ocdString50RecommendedDoes (did) the Child's Mother have Obsessive Compulsive Disorder?
Yes;No
obsessivecompulsivedisordermot
pddn_fathString10RecommendedPDD-NOS, fatherYes; Nopddnosfather
pddn_mothString10RecommendedPDD-NOS, motherYes; Nopddnosmother
father_selfinjString50RecommendedDoes (did) the Child's Father have Self-Injuring Behavior?
Yes;No
selfinjuringbehaviorfather
mother_selfinjString50RecommendedDoes (did) the Child's Mother have Self-Injuring Behavior?
Yes;No
selfinjuringbehaviormother
father_tubersclString50RecommendedDoes (did) the Child's Father have Tuberous Sclerosis?
Yes;No
tuberoussclerosiscomplexfather
mother_tubersclString50RecommendedDoes (did) the Child's Mother have Tuberous Sclerosis?
Yes;No
tuberoussclerosiscomplexmother
ques_genderbfString50RecommendedGender -Biological Father
M;F
M = Male; F = Femalesexoffather
ques_genderbmString50RecommendedGender -Biological Mother
M;F
M = Male; F = Femalesexofmother
aliveIntegerRecommendedAlive?0;10= No; 1= Yes
age_at_death_monthsIntegerRecommendedAge at death in months
relationshipIntegerRecommendedRelationship of respondent to individual1::88; 90;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missingothrltx
resspecString50RecommendedSpecify other relationship
maniaIntegerRecommendedcurrent diagnosis of mania.0 :: 50 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite; 5=Possible
ranxpIntegerRecommendedPast anxiety0::30 = no disorder;1 = possible;2 = probable;3 = definite
ranxcIntegerRecommendedCurrent anxiety0::30 = no disorder;1 = possible;2 = probable;3 = definite
rsapIntegerRecommendedPast substance abuse0::30 = no disorder;1 = possible;2 = probable;3 = definite
rsacIntegerRecommendedCurrent substance abuse0::30 = no disorder;1 = possible;2 = probable;3 = definite
substance_dependenceIntegerRecommendedcurrent diagnosis of substance dependence.0 :: 50 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite; 5=Possible
fhs_sIntegerRecommendedFHS: Family member - Suicide1::41 = None; 2 = Ideation / no attempt; 3 = Behavior / attempt; 4 = Completed
rsuibcIntegerRecommendedCurrent suicidal behavior0::30 = no disorder;1 = possible;2 = probable;3 = definite
rsuibpIntegerRecommendedPast suicidal behavior0::30 = no disorder;1 = possible;2 = probable;3 = definite
rdeppIntegerRecommendedPast depression0::30 = no disorder;1 = possible;2 = probable;3 = definite
rdepcIntegerRecommendedCurrent depression0::30 = no disorder;1 = possible;2 = probable;3 = definite
version_formString100RecommendedForm used/assessment name
weekFloatRecommendedWeek in level/study99=week 10-week 14
medprob_psyocdString50RecommendedIf Yes, Was Diagnosed with OCDYes;Noocdisorder
axocageIntegerRecommendedAge at onset of Obsessive Compulsive Disorder99 = Unknownocdisorderage
ocdisordertrtIntegerRecommendedObsessive Compulsive Disorder (OCD) Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
ocd_treatString100RecommendedOCD: treatmentocdisordertrtx
dem_18jIntegerRecommendedMuscle twitches or motor tics0;11=Yes 0=Nomotortics
w1_m_c_ttonString25Recommendedtourettes/tics - parent report age of onsetmvtage
omvttrtIntegerRecommendedMotor Tics, Vocal Tics, Tourette's Disorder Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
tic21IntegerRecommendedOther simple phonic tics1;21=No; 2=Yesvocaltics
mvttrtxString100RecommendedMotor Tics, Vocal Tics, Tourette's Disorder Treatment Describe
dem_18kIntegerRecommendedTourettes Syndrome0::41=Yes; 0=No; 2=Current;3=In partial remission; 4=Pasttourette
scared_sad_resString3RecommendedSeparation Anxiety disorderyes;nosptanxiety
p23i3IntegerRecommendedSeparation Anxiety - Age at onset of first episode (months)sptanxietyage
sptanxietytrtIntegerRecommendedSeparation Anxiety Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
par_dxIntegerRecommendedphobia - diagnosis0;10 = does not meet; 1 = meets full criteria
phobiaString50RecommendedSpecific phobia
sptanxietyxString100RecommendedSeparation Anxiety Treatment Describe
scrn09fIntegerRecommendedOther anxiety disorder0;10=No; 1=Yesothanxiety
car_q50spec1String150RecommendedOther Anxiety Symptoms Specify 1othanxietyx
trichotillomaniaIntegerRecommendedTrichotillomania0;10=No; 1=Yestrich
trichageIntegerRecommendedTrichotillomania (hairpulling) Onset Agemonths
trichtrtIntegerRecommendedTrichotillomania (hairpulling) Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
trichtrtxString100RecommendedTrichotillomania (hairpulling) Treatment Describe
ec29IntegerRecommendedExclusion criteria EC29: Does the patient have a history of violent or criminal behavior resulting in current legal sanctions?0::20 = No; 1 = Yes; 2 = Not Assessedviolent
violentageIntegerRecommendedViolent Behavior Onset Agemonths
violenttrtIntegerRecommendedViolent Behavior Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
violentxString100RecommendedViolent Behavior Describe
violenttrtxString100RecommendedViolent Behavior Treatment Describe
othmem_adhdString50RecommendedAttention deficit hyperactivity disorder (ADHD)Yes;No; NKNK = Not knownadhd
p46i3IntegerRecommendedAttention-Deficit/Hyperactivity Disorder - Age at onset of first episode (months)adhdage
adhdtrtIntegerRecommendedAttention Deficit/ Hyperactivity Disorder (ADD or ADHD) Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
adhdtrtxString100RecommendedAttention Deficit/ Hyperactivity Disorder (ADD or ADHD) Treatment Describe
cfmh_othr_learndisIntegerRecommendedLearning Disability1;00 = No; 1 = Yeslearning
medhx_learndisability_ageIntegerRecommendedLearning Disabilities: Age diagnosed (in months)learningage
learningtrtIntegerRecommendedLearning Disability Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
phne_sc_44String100RecommendedHealth/Medical. If yes (do you have any learning disabilites), please describelearningx
learningtrtxString100RecommendedLearning Disability Treatment Describe
cfmh_othr_depressionIntegerRecommendedDepression1;00 = No; 1 = Yesdepression
depr_onsetIntegerRecommendedDepression age of onsetdepressionage
depressiontrtIntegerRecommendedDepression Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
ciao_depsxString255RecommendedFor depression symptoms; Please describe:depressionx
depressiontrtxString100RecommendedDepression Treatment Describe
rrecsuibIntegerRecommendedRecurrent suicidal behavior0;10 = not indicated;1 = yessuicidal
hup7yr1FloatRecommendedSuicidal ideas - age when noticed or diagnosed 1stsuicidalage
suicidaltrtIntegerRecommendedSuicidal Behavior Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
hup8dx1String250RecommendedSuicidal behavior - details 1stsuicidalx
suicidaltrtxString100RecommendedSuicidal Behavior Treatment Describe
pre_psych10aIntegerRecommendedPresent Eating Disorder0;10=No; 1=Yeseating
eatingdisorder_age_onsetIntegerRecommendedAge of family member at onset of disordereatingage
eatingtrtIntegerRecommendedEating Disorder Treatment Describe0::33= Medication, 2=Therapy, 1=Other, 0=None
child_eatingdis_cmtString255RecommendedSpecify Child's Eating Disordereatingx
eatingtrtxString100RecommendedEating Disorder Treatment Describe
alcoholIntegerRecommendedFamily history alcohol abuse0;1; -90=Yes; 1=No; -9 =Unknown
w1_m_c_aaonString25Recommendedalcohol abuse - parent report age of onsetalcoholage
alcoholtrtIntegerRecommendedAlcohol Abuse Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
scrn09dIntegerRecommendedDrug abuse0;10=No; 1=Yesdrug
figs_128String50RecommendedDrug abuse/dep. Medication. Describedrugx
alcdep_treatString100RecommendedAlcohol Dependence: Treatmentalcoholtrtx
dem_18sIntegerRecommendedOther psych / behavior problems0;11=Yes 0=Nootherpb
otherpbageIntegerRecommendedOther behavioral or emotional problem Onset Agemonths
otherpbtrtIntegerRecommendedOther behavioral or emotional problem Treatment Received0::33= Medication, 2=Therapy, 1=Other, 0=None
otherdes_tlfbString50RecommendedOther behavior descriptionotherpbx
otherpbtrtxString100RecommendedOther behavioral or emotional problem Treatment Describe
hospitalizedIntegerRecommendedHave you been hospitalized as a result of your diagnosis?0;10 = No; 1 =Yes
hspageIntegerRecommendedHas your child ever been hospitalized because of a behavioral, emotional, or psychiatric problem? If yes, Child's age:months
phne_sc_31String200RecommendedHealth/Medical. If yes (have you ever been hospitalized for a psychiatric illness), please describehspreason
fmlpbIntegerRecommendedHave any other family members had psychiatric / emotional problems?0;1; 77; 88; 990=No, 1=Yes; 77 = Refused ; 88 = Don't know ; 99 = Missing
ocdmomIntegerRecommendedobsessive disorder mother0;1;-70=No; 1=Yes; -7=Refusedbmotherocd
tours_mothString10RecommendedTourette Syndrome, motherYes; Nobmothertics
drugmomIntegerRecommendedillicit drug abuse mother0;1;-70=No; 1=Yes; -7=Refusedbmotherdrugs
bmotherothIntegerRecommendedBiological Mother: Other Problems0;10=Not Checked; 1=Checked
ocddadIntegerRecommendedobsessive disorder father0;1;-70=No; 1=Yes; -7=Refusedbfatherocd
tours_fathString10RecommendedTourette Syndrome, fatherYes; Nobfathertics
drugdadIntegerRecommendedillicit drug abuse father0;1;-70=No; 1=Yes; -7=Refusedbfatherdrugs
bfatherothIntegerRecommendedVarious behavioral problems. Biological father0 ; 1 ; 9990 = No ; 1 = Yes; 999 = Don't know
ocdsisIntegerRecommendedobsessive disorder sister0;1;-70=No; 1=Yes; -7=Refusedsister1ocd
sister1ticsIntegerRecommendedSister: Tics/Tourette's0;10=Not Checked; 1=Checked
drugsisIntegerRecommendedillicit drug abuse sister0;1;-70=No; 1=Yes; -7=Refusedsister1drugs
sister1othIntegerRecommendedSister: Other Problems0;10=Not Checked; 1=Checked
ocdbroIntegerRecommendedobsessive disorder brother0;1;-70=No; 1=Yes; -7=Refusedbrother1ocd
brother1ticsIntegerRecommendedBrother: Tics/Tourette's0;10=Not Checked; 1=Checked
drugbroIntegerRecommendedillicit drug abuse brother0;1;-70=No; 1=Yes; -7=Refusedbrother1drugs
brother1othIntegerRecommendedBrother: Other Problems0;10=Not Checked; 1=Checked
pgm_ocdString10RecommendedObessive Compulsive Disorder, paternal grandmotherYes; Nopatgmtherocd
patgmtherticsIntegerRecommendedPat. Grandmother: Tics/Tourette's0;10=Not Checked; 1=Checked
pgm_anxietyString10RecommendedAnxiety Disorder, paternal grandmotherYes; Nopatgmtheraxy
pgm_depressionString10RecommendedDepression, paternal grandmotherYes; Nopatgmtherdps
fam_history_q5c_drugs___8IntegerRecommendedProblems due drugs. Paternal grandmother Abuela paterna ( 6, Isolated self)0 ; 10 = No; 1 = Yespatgmtherdrugs
fdh_40o_schizo_p_grmoIntegerRecommendeddoes participant have a paternal grandmother with a history of schizophrenia?1;21=Yes; 2=Nopatgmtherscz
mgm_otherString10RecommendedOther disorder, maternal grandmotherYes; Nomatgmotheroth
pgf_ocdString10RecommendedObessive Compulsive Disorder, paternal grandfatherYes; Nopgfatherocd
pgfatherticsIntegerRecommendedPat. Grandfather: Tics/Tourette's0;10=Not Checked; 1=Checked
pgf_anxietyString10RecommendedAnxiety Disorder, paternal grandfatherYes; Nopgfatheraxy
pgf_depressionString10RecommendedDepression, paternal grandfatherYes; Nopgfatherdps
fdh_40c_drug_prb_p_grfaIntegerRecommendeddoes participant have a paternal grandfather with a history of drug addiction?1;21=Yes; 2=Nopgfatherdrugs
fdh_40o_schizo_p_grfaIntegerRecommendeddoes participant have a paternal grandfather with a history of schizophrenia?1;21=Yes; 2=Nopgfatherscz
pgf_otherString10RecommendedOther disorder, paternal grandfatherYes; Nopgfatheroth
mgm_ocdString10RecommendedObessive Compulsive Disorder, maternal grandmotherYes; Nomatgmotherocd
matgmotherticsIntegerRecommendedMat. Grandmother: Tics/Tourette's0;10=Not Checked; 1=Checked
mgm_anxietyString10RecommendedAnxiety Disorder, maternal grandmotherYes; Nomatgmotheraxy
mgm_depressionString10RecommendedDepression, maternal grandmotherYes; Nomatgmotherdps
fam_history_q5f_drugs___8IntegerRecommendedProblems due drugs. Maternal grandmother Abuela materna ( 6, Isolated self)0 ; 10 = No; 1 = Yesmatgmotherdrugs
fdh_40o_schizo_m_grmoIntegerRecommendeddoes participant have a maternal grandmother with a history of schizophrenia?1;21=Yes; 2=Nomatgmotherscz
mgf_ocdString10RecommendedObessive Compulsive Disorder, maternal grandfatherYes; Nomatgfatherocd
matgfatherticsIntegerRecommendedMat. Grandfather: Tics/Tourette's0;10=Not Checked; 1=Checked
mgf_anxietyString10RecommendedAnxiety Disorder, maternal grandfatherYes; Nomatgfatheraxy
mgf_depressionString10RecommendedDepression, maternal grandfatherYes; Nomatgfatherdps
fam_history_q5e_drugs___8IntegerRecommendedProblems due drugs. Maternal grandfather Abuelo materno ( 6, Isolated self)0 ; 10 = No; 1 = Yesmatgfatherdrugs
fdh_40o_schizo_m_grfaIntegerRecommendeddoes participant have a maternal grandfather with a history of schizophrenia?1;21=Yes; 2=Nomatgfatherscz
mgf_otherString10RecommendedOther disorder, maternal grandfatherYes; Nomatgfatheroth
othrltocdIntegerRecommendedOther Relative OCD Diagnosis0;10=Not Checked; 1=Checked
othrltticsIntegerRecommendedOther Relative Tics/Tourette's Diagnosis0;10=Not Checked; 1=Checked
othrltaxyIntegerRecommendedOther Relative Anxiety Diagnosis0;10=Not Checked; 1=Checked
othrltdpsIntegerRecommendedOther Relative Depression Diagnosis0;10=Not Checked; 1=Checked
othrltdrugsIntegerRecommendedOther Relative Drugs/Alcohol Diagnosis0;10=Not Checked; 1=Checked
othrltsczIntegerRecommendedOther Relative Schizophrenia Diagnosis0;10=Not Checked; 1=Checked
othrltothIntegerRecommendedOther Relative Other Disorder Diagnosis0;10=Not Checked; 1=Checked
additioninfoString50RecommendedAdditional family psychiatric information (if necessary):
quesmoth_probinfectString50RecommendedInfection (e.g., Strep Throat or Urinary Tract) requiring antibioticsNo;Yes;Don't Knowthroatsym
medhx_strep_ageIntegerRecommendedStrep Throat: Age of last occurrence (in months)throatage
throattrtString50RecommendedStrep Throat (Treatment)
throatcptString50RecommendedStrep Throat (Complications)
feversymIntegerRecommendedRheumatic or Scarlet fever0;11=Yes, 0=No
feverageIntegerRecommendedRheumatic or Scarlet fever (Age)months
fevertrtString50RecommendedRheumatic or Scarlet fever (Treatment)
fevercptString50RecommendedRheumatic or Scarlet fever (Complications)
coordinationproblemIntegerRecommendedDoes (did) the Child have Coordination problem/clumsy?0;1;20 = No; 1 = Yes; 2 = Unknowncpbsym
cpbageIntegerRecommendedCoordination problems (Age)months
cpbtrtString50RecommendedCoordination problems (Treatment)
cpbcptString50RecommendedCoordination problems (Complications)
cmedhx25IntegerRecommendedIs there asthma, recurrent cough or any lung problems?0;10 = No;1 = Yesasthmasym
asthmaageIntegerRecommendedAsthma (Age)months
asthmatrtString50RecommendedAsthma (Treatment)
asthmacptString50RecommendedAsthma (Complications)
seizuressymIntegerRecommendedSeizures/Epilepsy0;11=Yes, 0=No
seizuresageIntegerRecommendedSeizures/Epilepsy (Age)months
seizurestrtString50RecommendedSeizures/Epilepsy (Treatment)
seizurescptString50RecommendedSeizures/Epilepsy (Complications)
cfmh_chd_othalrgyIntegerRecommendedDoes the Child have any other allergies?1;00 = No; 1 = Yesallergiessym
medhx_medallergies_ageIntegerRecommendedAllergies or reactions to medications: Age diagnosed/onset (in months)allergiesage
allergiestrtString50RecommendedAllergies (Treatment)
allergiescptString50RecommendedAllergies (Complications)
cbcl56fIntegerRecommendedStomachaches / Dolores de estómago0;1;2;999;77;880 = Not True/ No es cierto (que sepa usted); 1 = Somewhat or Sometimes True/ En cierta manera; 2 = Very True orOften True/ Muy cierto o cierto con frecuencia; ; 999=NA; 77=Refused; 88=Missingstomachachessym
stomachachesageIntegerRecommendedRecurrent stomachaches (Age)months
stomachachestrtString50RecommendedRecurrent stomachaches (Treatment)
stomachachescptString50RecommendedRecurrent stomachaches (Complications)
dc_headacheString2RecommendedDevelopmental complications: Recurrent HeadachesY; N; UY = Yes; N = No; U = Unknownheadachescpt
headachesageIntegerRecommendedRecurrent headaches (Age)months
headachestrtString50RecommendedRecurrent headaches (Treatment)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: famhist01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.