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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
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Notes
Data Structures with shared data
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Family Focused Intervention Scale

ffis

01

Family Focused Intervention Scale

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
ffi01IntegerRecommendedDiscuss the philosophy of the program1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi02IntegerRecommendedAsk what you want for your family1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi03IntegerRecommendedAsk what you need for your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi04IntegerRecommendedTalk to you about the health of your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi05IntegerRecommendedTalk to you about the developmental growth of your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi06IntegerRecommendedExplain why tests are being used1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi07IntegerRecommendedWant you to be there while your child is being tested1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi08IntegerRecommendedExplain the results of tests1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi09IntegerRecommendedHelp to prepare you for the future of your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi10IntegerRecommendedShow you how to help your child develop1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi11IntegerRecommendedShow you how to play with your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi12IntegerRecommendedProvide you with toys for your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi13IntegerRecommendedGive you a plan to carry out during the month1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi14IntegerRecommendedProvide books and pamphlets for you to use1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi15IntegerRecommendedShow interest in hearing about your family1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi16IntegerRecommendedHelp you to be an informed advocate for your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi17IntegerRecommendedWant you to choose what you do in the program1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi18IntegerRecommendedHelp you prepare for the next educational setting1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi19IntegerRecommendedAsk how you are coping with your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi20IntegerRecommendedProvide opportunities to share your feelings with the program staff1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi21IntegerRecommendedProvide opportunities to share your feelings with other parents1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi22IntegerRecommendedAssist you in getting help from friends and neighbors1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi23IntegerRecommendedProvide family counseling1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi24IntegerRecommendedProvide information on stress management strategies1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi25IntegerRecommendedHelp you to take time for yourself1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi26IntegerRecommendedAssist you in getting your spouse or other relatives to help you with your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi27IntegerRecommendedHelp you get medical care for your child1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi28IntegerRecommendedMake referrals to professionals such as social workers or family counselors1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi29IntegerRecommendedMake referrals to other Early Intervention Programs1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi30IntegerRecommendedProvide opportunities for you to participate in parent groups1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi31IntegerRecommendedHelp you fill out forms1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi32IntegerRecommendedHelp you obtain services for your child from other agencies1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi33IntegerRecommendedHelp you obtain funding that you are qualified to receive1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi34IntegerRecommendedHelp you find transportation for services or meetings if needed1::6; -91 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
ffi35IntegerRecommendedEncourage you to be the major decision maker about the care and education of your child-9 = Missing value
ffi36IntegerRecommendedHelp you to find babysitting or childcare-9 = Missing value
ffi37IntegerRecommendedHelp you with personal problems-9 = Missing value
ffi38IntegerRecommendedHelp you learn how to deal with the system-9 = Missing value
ffi39IntegerRecommendedAssess how you play or interact with your child-9 = Missing value
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form dataFFINotes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ffis01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.