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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Fidelity Assessment

fidel

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldfa_2
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.fa_6
genderString20RequiredSex of the subjectM;FM = Male; F = Femalefa_5
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, lostfidelity_assessment_complete
sitenumIntegerRecommendedSite Number900=Marlborough Hospital; 200=Maricopa Medical Center; 300=Memorial Hospital of Rhode Island; 400=Ohio State University Medical Center; 500=University of Arkansas Medical Center; 600=Beth Israel Deaconess Medical Center; 700=University of Nebraska Medical Center; 800=University of Colorado Hospital; 100=University of Massachusetts Memorial Hospital; -888=Not Applicable; -999=Missing;
studyphaseIntegerRecommendedStudy Phase1::3; -888; -9991=Phase 1: Treatment as Usual(TAU); 2=Phase 2: Screening Only; 3=Phase 3: Intervention; -888=Not Applicable; -999=Missing;
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yesfa_7
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
ethnic_groupString255RecommendedEthnic groupfa_8a
fa_0_cIntegerRecommendedWas any suicide screening documented on the ED chart?0;1; -888; -9990=No; 1=Yes; -888=NotApplicable; -999=Missing;
fa_0_d_1IntegerRecommendedPlease indicate what was documented on the ED chart: Suicide ideation documented as negative0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_0_d_2IntegerRecommendedPlease indicate what was documented on the ED chart: Suicide attempt documented as negative0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_1IntegerRecommendedAre you willing to answer some questions?0;1; -888; -9990=No; 1=Yes; -888=Not Applicable; -999=Missing;
fa_3IntegerRecommendedInterview start time
fa_9IntegerRecommendedWhat is the highest grade you completed in school?0::5; -888; -9990=Less than high school graduate; 1=High school graduate; 2=Vocational/tech training graduate; 3=Some college; 4=College graduate; 5=Any post-graduate work(masters=doctorate); -888=Not Applicable; -999=Missing;
fa_10String100RecommendedNow I would like to ask you a few questions about your experience in the ED today. What was the main reason you came to the ED today?
fa_11IntegerRecommendedDuring your ED visit today, did someone ask you if you had been feeling depressed?1;2; -888; -9991=Yes; 2=No; -888=Not Applicable; -999=Missing;
fa_11_5a_1IntegerRecommendedwho asked you? Triage nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_11_5a_2IntegerRecommendedwho asked you? Primary nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_11_5a_3IntegerRecommendedwho asked you? Physician0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_11_5a_4IntegerRecommendedwho asked you? Other ED staff0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_11_5a_5IntegerRecommendedwho asked you? Dont know0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_12IntegerRecommendeddid anyone ask you if you were having thoughts of suicide?1;2; -888; -9991=Yes; 2=No; -888=Not Applicable; -999=Missing;
fa_12_6a_1IntegerRecommendedwho asked you? Triage nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_12_6a_2IntegerRecommendedwho asked you? Primary nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_12_6a_3IntegerRecommendedwho asked you? Physician0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_12_6a_4IntegerRecommendedwho asked you? Other ED staff0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_12_6a_5IntegerRecommendedwho asked you? Dont know0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_13IntegerRecommendeddid anyone ask you if you had ever attempted to kill yourself?1;2; -888; -9991=Yes; 2=No; -888=Not Applicable; -999=Missing;
fa_13_7a_1IntegerRecommendedwho asked you? Triage nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_13_7a_2IntegerRecommendedwho asked you? Primary nurse0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_13_7a_3IntegerRecommendedwho asked you? Physician0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_13_7a_4IntegerRecommendedwho asked you? Other ED staff0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
fa_13_7a_5IntegerRecommendedwho asked you? Dont know0;1; -888; -9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fidel01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.