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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Description
Value Range
Notes
Data Structures with shared data
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Family Medical History

fmhx

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
mother_anxietyString50RecommendedDoes (did) the Child's Mother have an Anxiety Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
father_anxietyString50RecommendedDoes (did) the Child's Father have an Anxiety Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
anx_sib1String10RecommendedAnxiety disorder, sibling 1Yes; Nosiblings_anxiety
anx_sib2String10RecommendedAnxiety disorder, sibling 2Yes; No
anx_sib3String10RecommendedAnxiety disorder, sibling 3Yes; No
mgm_anxietyString10RecommendedAnxiety Disorder, maternal grandmotherYes; No
mgf_anxietyString10RecommendedAnxiety Disorder, maternal grandfatherYes; No
pgm_anxietyString10RecommendedAnxiety Disorder, paternal grandmotherYes; No
pgf_anxietyString10RecommendedAnxiety Disorder, paternal grandfatherYes; No
mother_ocdString50RecommendedDoes (did) the Child's Mother have Obsessive Compulsive Disorder?
Yes;No
father_ocdString50RecommendedDoes (did) the Child's Father have Obsessive Compulsive Disorder?
Yes;No
ocd_sib1String10RecommendedObsessive compulsive disorder, sibling 1Yes; Nosiblings_ocd
ocd_sib2String10RecommendedObsessive compulsive disorder, sibling 2Yes; No
ocd_sib3String10RecommendedObsessive compulsive disorder, sibling 3Yes; No
mgm_ocdString10RecommendedObessive Compulsive Disorder, maternal grandmotherYes; No
mgf_ocdString10RecommendedObessive Compulsive Disorder, maternal grandfatherYes; No
pgm_ocdString10RecommendedObessive Compulsive Disorder, paternal grandmotherYes; No
pgf_ocdString10RecommendedObessive Compulsive Disorder, paternal grandfatherYes; No
mother_adhdString50RecommendedDoes (did) the Child's Mother have Attention Deficit Hyperactivity Disorder (ADHD)?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
father_adhdString50RecommendedDoes (did) the Child's Father have Attention Deficit Hyperactivity Disorder (ADHD)?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
adhd_sib1String10RecommendedAttention deficit hyperactivity disorder (ADHD), sibling 1Yes; Nosiblings_adhd
adhd_sib2String10RecommendedAttention deficit hyperactivity disorder (ADHD), sibling 2Yes; No
adhd_sib3String10RecommendedAttention deficit hyperactivity disorder (ADHD), sibling 3Yes; No
mgm_adhdString10RecommendedAttention-Deficit/Hyp-eractivity Disorder (ADHD), maternal grandmotherYes; No
mgf_adhdString10RecommendedAttention-Deficit/Hyp-eractivity Disorder (ADHD), maternal grandfatherYes; No
pgm_adhdString10RecommendedAttention-Deficit/Hyp-eractivity Disorder (ADHD), paternal grandmotherYes; No
pgf_adhdString10RecommendedAttention-Deficit/Hyp-eractivity Disorder (ADHD), paternal grandfatherYes; No
asd_mothString10RecommendedAutism Spectrum Disorder, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingmother_asd
asd_fathString10RecommendedAutism Spectrum Disorder, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfather_asd
asd_sib1String10RecommendedAutism Spectrum Disorder, sibling 1Yes; Nosibling_asd
asd_sib2String10RecommendedAutism Spectrum Disorder, sibling 2Yes; No
asd_sib3String10RecommendedAutism Spectrum Disorder, sibling 3Yes; No
mgm_asdString10RecommendedAutism Spectrum Disorder, maternal grandmotherYes; No
mgf_asdString10RecommendedAutism Spectrum Disorder, maternal grandfatherYes; No
pgm_asdString10RecommendedAutism Spectrum Disorder, paternal grandmotherYes; No
pgf_asdString10RecommendedAutism Spectrum Disorder, paternal grandfatherYes; No
mother_depressionString50RecommendedDoes (did) the Child's Mother have Depression?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
father_depressionString50RecommendedDoes (did) the Child's Father have Depression?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
depr_sib1String10RecommendedDepression, sibling 1Yes; Nosibling_depression
depr_sib2String10RecommendedDepression, sibling 2Yes; No
depr_sib3String10RecommendedDepression, sibling 3Yes; No
mgm_depressionString10RecommendedDepression, maternal grandmotherYes; No
mgf_depressionString10RecommendedDepression, maternal grandfatherYes; No
pgm_depressionString10RecommendedDepression, paternal grandmotherYes; No
pgf_depressionString10RecommendedDepression, paternal grandfatherYes; No
mother_bipolarString50RecommendedDoes (did) the Child's Mother have a Bipolar Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
father_bipolarString50RecommendedDoes (did) the Child's Father have a Bipolar Disorder?
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missing
bipd_sib1String10RecommendedBipolar disorder (Manic/depression), sibling 1Yes; No; Probable; Refusedsiblings_bipolar
bipd_sib2String10RecommendedBipolar disorder (Manic/depression), sibling 2Yes; No
bipd_sib3String10RecommendedBipolar disorder (Manic/depression), sibling 3Yes; No
mgm_bipolarString10RecommendedBipolar disorder, maternal grandmotherYes; No
mgf_bipolarString10RecommendedBipolar disorder, maternal grandfatherYes; No
pgm_bipolarString10RecommendedBipolar disorder, paternal grandmotherYes; No
pgf_bipolarString10RecommendedBipolar disorder, paternal grandfatherYes; No
father_persondisString50RecommendedDoes (did) the Child's Father have a Personality Disorder?
Yes;No
father_personality
mother_persondisString50RecommendedDoes (did) the Child's Mother have a Personality Disorder?
Yes;No
mother_personality
persond_sib1String10RecommendedPersonality Disorder, sibling 1Yes;Nosiblings_personality
persond_sib2String10RecommendedPersonality Disorder, sibling 2Yes;No
persond_sib3String10RecommendedPersonality Disorder, sibling 3Yes;No
mgm_personalityString10RecommendedPersonality disorder, maternal grandmotherYes; No
mgf_personalityString10RecommendedPersonality disorder, maternal grandfatherYes; No
pgm_personalityString10RecommendedPersonality disorder, paternal grandmotherYes; No
pgf_personalityString10RecommendedPersonality disorder, paternal grandfatherYes; No
idmr_mothString10RecommendedIntellectual Disability/Mental Retardation, mother
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingmother_id
idmr_fathString10RecommendedIntellectual Disability/Mental Retardation, father
Yes; No; 77; 99; -999
77=N/A; 99= DK; -999 =missingfather_id
idmr_sib1String10RecommendedIntellectual Disability/Mental Retardation, sibling 1Yes; Nosiblings_id
idmr_sib2String10RecommendedIntellectual Disability/Mental Retardation, sibling 2Yes; No
idmr_sib3String10RecommendedIntellectual Disability/Mental Retardation, sibling 3Yes; No
mgm_idString10RecommendedIntellectual Disability/Mental Retardation, maternal grandmotherYes; No
mgf_idString10RecommendedIntellectual Disability/Mental Retardation, maternal grandfatherYes; No
pgm_idString10RecommendedIntellectual Disability/Mental Retardation, paternal grandmotherYes; No
pgf_idString10RecommendedIntellectual Disability/Mental Retardation, paternal grandfatherYes; No
mother_learndisString50RecommendedDoes (did) the Child's Mother have a Learning Disability?
Yes;No
mother_ld
father_learndisString50RecommendedDoes (did) the Child's Father have a Learning Disability?
Yes;No
father_ld
ques_learndis1String50RecommendedHad or has a learning disability -Sibling 1
Y;N;NA
Y = Yes; N = No; NA = Not answeredsiblings_ld
ques_learndis2String50RecommendedHad or has a learning disability -Sibling 2
Y;N;NA
Y = Yes; N = No; NA = Not answered
ques_learndis3String50RecommendedHad or has a learning disability -Sibling 3
Y;N;NA
Y = Yes; N = No; NA = Not answered
mgm_ldString10RecommendedLearning disability, maternal grandmotherYes; No
mgf_ldString10RecommendedLearning disability, maternal grandfatherYes; No
pgm_ldString10RecommendedLearning disability, paternal grandmotherYes; No
pgf_ldString10RecommendedLearning disability, paternal grandfatherYes; No
fammedhx_other_specifyString255RecommendedIf any other disorder/illness: specify
father_otherString10RecommendedOther disorder, fatherYes; No
mother_otherString10RecommendedOther disorder, motherYes; No
mgm_otherString10RecommendedOther disorder, maternal grandmotherYes; No
mgf_otherString10RecommendedOther disorder, maternal grandfatherYes; No
pgm_otherString10RecommendedOther disorder, paternal grandmotherYes; No
pgf_otherString10RecommendedOther disorder, paternal grandfatherYes; No
sib1_otherString10RecommendedOther disorder, sibling 1Yes; Nosiblings_other
sib2_otherString10RecommendedOther disorder, sibling 2Yes; No
sib3_otherString10RecommendedOther disorder, sibling 3Yes; No
pdiag_anxIntegerRecommendedChild past diagnosis: Anxiety Disorder0;10=No; 1=Yespast_diagnoses_anxiety
pdiag_ocdIntegerRecommendedChild past diagnosis: OCD0;10=No; 1=Yespast_diagnoses_ocd
pdiag_adhdIntegerRecommendedChild past diagnosis: ADHD0;10=No; 1=Yespast_diagnoses_adhd
pdiag_asdIntegerRecommendedChild past diagnosis: Autism Spectrum Disorder0;10=No; 1=Yespast_diagnoses_asd
pdiag_depIntegerRecommendedChild past diagnosis: Depression0;10=No; 1=Yespast_diagnoses_depression
pdiag_bipolarIntegerRecommendedChild past diagnosis: Bipolar Disorder0;10=No; 1=Yespast_diagnoses_bipolar
pdiag_personalityIntegerRecommendedChild past diagnosis: Personality Disorder0;10=No; 1=Yespast_diagnoses_personality
pdiag_idIntegerRecommendedChild past diagnosis: Intellectual Disability/Mental Retardation0;10=No; 1=Yespast_diagnoses_id
pdiag_ldIntegerRecommendedChild past diagnosis: Learning Disorder0;10=No; 1=Yespast_diagnoses_ld
pdiag_noneIntegerRecommendedChild past diagnosis: none0;10=No; 1=Yespast_diagnoses_none
cdiag_anxIntegerRecommendedChild current diagnosis: Anxiety Disorder0;10=No; 1=Yescurrent_diagnoses_anxiety
cdiag_ocdIntegerRecommendedChild current diagnosis: OCD0;10=No; 1=Yescurrent_diagnoses_ocd
cdiag_adhdIntegerRecommendedChild current diagnosis: ADHD0;10=No; 1=Yescurrent_diagnoses_adhd
cdiag_asdIntegerRecommendedChild current diagnosis: Autism Spectrum Disorder0;10=No; 1=Yescurrent_diagnoses_asd
cdiag_depIntegerRecommendedChild current diagnosis: Depression0;10=No; 1=Yescurrent_diagnoses_depression
cdiag_bipolarIntegerRecommendedChild current diagnosis: Bipolar Disorder0;10=No; 1=Yescurrent_diagnoses_bipolar
cdiag_personalityIntegerRecommendedChild current diagnosis: Personality Disorder0;10=No; 1=Yescurrent_diagnoses_personality
cdiag_idIntegerRecommendedChild current diagnosis: Intellectual Disability/Mental Retardation0;10=No; 1=Yescurrent_diagnoses_id
cdiag_ldIntegerRecommendedChild current diagnosis: Learning Disorder0;10=No; 1=Yescurrent_diagnoses_ld
cdiag_noneIntegerRecommendedChild current diagnosis: none0;10=No; 1=Yescurrent_diagnoses_none
received_servicesIntegerRecommendedHas your child ever been treated or received services for social skills or emotional problems?0;10=No; 1=Yes
child_services1IntegerRecommendedHas your child ever participated in Behavioral Therapy0;10=No; 1=YesBehavioral_therapy
child_services1spString100RecommendedHas your child ever participated in Behavioral Therapy: specifyBT_comment
child_services2IntegerRecommendedHas your child ever participated/taken in pharmacological/medication0;10=No; 1=YesPharmacological
child_services2spString100RecommendedHas your child ever participated/taken in pharmacological/medication: specifyPharma_comment
child_services3IntegerRecommendedHas your child ever participated in Augmentative services (ex: equine therapy, special diets, vitamins)0;10=No; 1=YesAugmentative
child_services3spString100RecommendedHas your child ever participated in Augmentative services: specifyAug_comment
child_services4IntegerRecommendedHas your child ever participated in Therapy0;10=No; 1=YesTherapy
child_services4spString100RecommendedHas your child ever participated in Therapy: specifyTherapy_comment
child_services5IntegerRecommendedHas your child ever participated in Social Interventions0;10=No; 1=YesSocial_Intervention
child_services5spString100RecommendedHas your child ever participated in Social Interventions: specifySocial_comment
cfmh_chd_visionimpIntegerRecommendedDoes the Child have a vision impairment?1;00 = No; 1 = YesVision_problems
chd_visionimp_spString100RecommendedChild vision impairment, specify
weareyeglassesIntegerRecommendedDoes (did) the Child wear Glasses/lenses?0;1;20 = No; 1 = Yes; 2 = UnknownWear_glasses
wear_contactsIntegerRecommendedDoes you child wear contacts?0;10=No; 1=Yes
eye_surgeryIntegerRecommendedHas your child ever had any eye surgery?0;10=No; 1=Yes
facial_expressionsIntegerRecommendedIn your opinion, does your child show a normal range of facial expressions?0;10=No; 1=Yes
facial_exp_spString100RecommendedChild doesn't show a normal range of facial expressions? Describedescribe
facial_exp1IntegerRecommendedCan s/he look guilty or surprised or amused?0;10=No; 1=YesGuilt_Surprise_Amusement
facial_exp2IntegerRecommendedCan you tell by her/his face when s/he is afraid or disgusted?0;10=No; 1=YesAfraid_disgusted
facial_exp3IntegerRecommendedDoes s/he have the same range of facial expressions as other children?0;10=No; 1=YesRange_Expressions
facial_exp_appIntegerRecommendedDoes your child's facial expression usually seem appropriate to the particular situation as far as you can tell?0;10=No; 1=YesAppropriate_expressions
facial_exp_app_spString100RecommendedDoes your child's facial expression usually seem appropriate to the particular situation as far as you can tell? DescribeApp_describe
facial_exp_authIntegerRecommendedDo you think your child's facial expressions seem authentic or genuine?0;10=No; 1=YesAuthentic_expressions
facial_exp_auth_spString100RecommendedDo you think your child's facial expressions seem authentic or genuine? DescribeAuth_describe
medinfo_adhdString300RecommendedChild currently taking ADHD medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medications_ADHD
medinfo_depString300RecommendedChild currently taking Anti-depressant medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medication_AntiDepressant
medinfo_anxString300RecommendedChild currently taking Anti-anxiety medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medicaiton_AntiAnxiety
medinfo_seizureString300RecommendedChild currently taking Anti-seizure medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medication_AntiSeizure
medinfo_allergyString300RecommendedChild currently taking Allergy/Asthma medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medications_Allergy_Asthma
medinfo_other1String300RecommendedChild currently taking Other medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medications_other
medinfo_other2String300RecommendedChild currently taking Other medication, specifyRecord dosage, time of day the medicine is taken, and reason for medication.Medications_other2
medinfo_noneIntegerRecommendedChild currently is not taking any medication0;10=Unchecked; 1=CheckedMedications_none
time_tvString10RecommendedHow time does your child spend watching televison during a typical day
time_computerString10RecommendedHow time does your child spend working/playing on computer or tablet during a typical day
time_gamingString10RecommendedHow time does your child spend with a gaming system of any kind during a typical day
time_cellphoneString10RecommendedHow time does your child spend on a cell phone during a typical day
game_playIntegerRecommendedWhich of the following systems is your child familiar with: PlaystationPlaystation
game_ninIntegerRecommendedWhich of the following systems is your child familiar with: NintendoNintendo
game_wiiIntegerRecommendedWhich of the following systems is your child familiar with: Wii (Nintendo)Wii
game_xboxIntegerRecommendedWhich of the following systems is your child familiar with: XboxXbox
game_kinectIntegerRecommendedWhich of the following systems is your child familiar with: Kinect (Xbox 360)Kinect
game_otherString50RecommendedWhich of the following systems is your child familiar with: Other, specifyOther
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fmhx01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.