Loading...

Login
Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Family Outcomes in Autism Spectrum Disorder

foasd

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
ch_anxiety_repString25RecommendedHas child been diagnosed with or experiencing symptoms of anxiety disorder?No; Experiencing Symptoms; DiagnosedParent reportchild_anxiety
ch_ocd_repString25RecommendedHas child been diagnosed with or experiencing symptoms of obsessive compulsive disorder?No; Experiencing Symptoms; DiagnosedParent reportchild_ocd
ch_bipolar_repString25RecommendedHas child been diagnosed with or experiencing symptoms of Bipolar disorder?No; Experiencing Symptoms; DiagnosedParent reportchild_bipolar
child_cpString25RecommendedHas child been diagnosed with or experiencing symptoms of cerebral palsy?No; Experiencing Symptoms; DiagnosedParent report
child_cddString25RecommendedHas child been diagnosed with or experiencing symptoms of childhood disintegrative disorder?No; Experiencing Symptoms; DiagnosedParent report
ch_depr_repString25RecommendedHas child been diagnosed with or experiencing symptoms of depression?No; Experiencing Symptoms; DiagnosedParent reportchild_depression
child_dsString25RecommendedHas child been diagnosed with or experiencing symptoms of Down syndrome?No; Experiencing Symptoms; DiagnosedParent report
child_fxsString25RecommendedHas child been diagnosed with or experiencing symptoms of fragile x syndrome?No; Experiencing Symptoms; DiagnosedParent report
child_addadhdString25RecommendedHas child been diagnosed with or experiencing symptoms of attention deficit disorder, with or without hyperactivity?No; Experiencing Symptoms; DiagnosedParent report
child_oddString25RecommendedHas child been diagnosed with or experiencing symptoms of oppositional defiant disorder?No; Experiencing Symptoms; DiagnosedParent report
child_ldString25RecommendedHas child been diagnosed with or experiencing symptoms of a learning disability?No; Experiencing Symptoms; DiagnosedParent report
child_schizoString25RecommendedHas child been diagnosed with or experiencing symptoms of schizophrenia?No; Experiencing Symptoms; DiagnosedParent report
child_mutismString25RecommendedHas child been diagnosed with or experiencing symptoms of selective or elective mutism?No; Experiencing Symptoms; DiagnosedParent report
child_touretteString25RecommendedHas child been diagnosed with or experiencing symptoms of Tourette syndrome?No; Experiencing Symptoms; DiagnosedParent report
child_sensoryString25RecommendedHas child been diagnosed with or experiencing symptoms of sensory issues?No; Experiencing Symptoms; DiagnosedParent report
child_speechString25RecommendedHas child been diagnosed with or experiencing symptoms of speech problems?No; Experiencing Symptoms; DiagnosedParent report
child_dysgraphiaString25RecommendedHas child been diagnosed with or experiencing symptoms of dysgraphia?No; Experiencing Symptoms; DiagnosedParent report
child_theoryofmindString25RecommendedHas child been diagnosed with or experiencing symptoms of theory of mind issues?No; Experiencing Symptoms; DiagnosedParent report
child_epilepsyString25RecommendedHas child been diagnosed with or experiencing symptoms of epilepsy?No; Experiencing Symptoms; DiagnosedParent report
child_ptsdString25RecommendedHas child been diagnosed with or experiencing symptoms of post-traumatic stress disorder?No; Experiencing Symptoms; DiagnosedParent report
child_gddString25RecommendedHas child been diagnosed with or experiencing symptoms of global developmental delay?No; Experiencing Symptoms; DiagnosedParent report
child_hypotoniaString25RecommendedHas child been diagnosed with or experiencing symptoms of hypotonia?No; Experiencing Symptoms; DiagnosedParent report
child_otherconditionsString25RecommendedHas child been diagnosed with or experiencing symptoms of another medical, mental, or physical condition?No; Experiencing Symptoms; DiagnosedParent report
relationshipIntegerRecommendedRelationship of respondent to individual1::84; -9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny
family_idString20RecommendedFamily User-Defined ID
subjectkey_motherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological motherNDAR*
mother_ageIntegerRecommendedMother's age0 :: 1200
mom_respiratoryString1RecommendedIn the past 12 months, has mother experienced respiratory problems?N; YN = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
mom_musculoskeletalString1RecommendedIn the past 12 months, has mother experienced musculoskeletal problems?N; YN = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
mom_skinString1RecommendedIn the past 12 months, has mother experienced skin problems?N; YN = No; Y = Yes; persistent skin trouble
mom_thyroidString1RecommendedIn the past 12 months, has mother experienced thyroid problems?N; YN = No; Y = Yes; thyroid disease
mom_allergiesString1RecommendedIn the past 12 months, has mother experienced allergies?N; YN = No; Y = Yes; hay fever or other allergies
mom_gastrointestinalString1RecommendedIn the past 12 months, has mother experienced gastrointestinal problems?N; YN = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
mom_urinaryString1RecommendedIn the past 12 months, has mother experienced urinary problems?N; YN = No; Y = Yes; urinary or bladder problems
mom_footString1RecommendedIn the past 12 months, has mother experienced foot problems?N; YN = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
mom_migraineString1RecommendedIn the past 12 months, has mother experienced migraines?N; YN = No; Y = Yes; migraine headaches
mom_sleepString1RecommendedIn the past 12 months, has mother experienced sleep problems?N; YN = No; Y = Yes; chronic sleeping problems
mom_diabetesString1RecommendedIn the past 12 months, has mother experienced diabetes?N; YN = No; Y = Yes; diabetes or high blood sugar
mom_neurologicalString1RecommendedIn the past 12 months, has mother experienced neurological issues?N; YN = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
mom_ulcerString1RecommendedIn the past 12 months, has mother experienced ulcers?N; YN = No; Y = Yes; ulcer
mom_herniaString1RecommendedIn the past 12 months, has mother experienced hernia?N; YN = No; Y = Yes; hernia or rupture
mom_cancerString1RecommendedIn the past 12 months, has mother experienced cancer?N; YN = No; Y = Yes; cancer
mom_autoimmuneString1RecommendedIn the past 12 months, has mother experienced autoimmune disorders?N; YN = No; Y = Yes; lupus or other autoimmune disorders
mom_mouthString1RecommendedIn the past 12 months, has mother experienced mouth problems?N; YN = No; Y = Yes; persistent trouble with gums, mouth, or teeth
mom_mentalhealthString1RecommendedIn the past 12 months, has mother experienced mental health issues?N; YN = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
mom_overweightString1RecommendedIn the past 12 months, has mother experienced being overweight or obese?N; YN = No; Y = Yes; trouble with being overweight or obese
mom_ldString1RecommendedIn the past 12 months, has mother experienced a learning disability?N; YN = No; Y = Yes; learning disability
mom_liverString1RecommendedIn the past 12 months, has mother experienced liver problems?N; YN = No; Y = Yes; chronic liver problems
mom_cardioString1RecommendedIn the past 12 months, has mother experienced cardiovascular problems?N; YN = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
mom_reproductiveString1RecommendedIn the past 12 months, has mother experienced problems with the reproductive system?N; YN = No; Y = Yes; endometriosis or pelvic inflammatory disease
subjectkey_fatherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological fatherNDAR*
father_ageIntegerRecommendedFather's age0 :: 1200
dad_respiratoryString1RecommendedIn the past 12 months, has father experienced respiratory problems?N; YN = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
dad_musculoskeletalString1RecommendedIn the past 12 months, has father experienced musculoskeletal problems?N; YN = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
dad_skinString1RecommendedIn the past 12 months, has father experienced skin problems?N; YN = No; Y = Yes; persistent skin trouble
dad_thyroidString1RecommendedIn the past 12 months, has father experienced thyroid problems?N; YN = No; Y = Yes; thyroid disease
dad_allergiesString1RecommendedIn the past 12 months, has father experienced allergies?N; YN = No; Y = Yes; hay fever or other allergies
dad_gastrointestinalString1RecommendedIn the past 12 months, has father experienced gastrointestinal problems?N; YN = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
dad_urinaryString1RecommendedIn the past 12 months, has father experienced urinary problems?N; YN = No; Y = Yes; urinary or bladder problems
dad_footString1RecommendedIn the past 12 months, has father experienced foot problems?N; YN = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
dad_migraineString1RecommendedIn the past 12 months, has father experienced migraines?N; YN = No; Y = Yes; migraine headaches
dad_sleepString1RecommendedIn the past 12 months, has father experienced sleep problems?N; YN = No; Y = Yes; chronic sleeping problems
dad_diabetesString1RecommendedIn the past 12 months, has father experienced diabetes?N; YN = No; Y = Yes; diabetes or high blood sugar
dad_neurologicalString1RecommendedIn the past 12 months, has father experienced neurological issues?N; YN = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
dad_ulcerString1RecommendedIn the past 12 months, has father experienced ulcers?N; YN = No; Y = Yes; ulcer
dad_herniaString1RecommendedIn the past 12 months, has father experienced hernia?N; YN = No; Y = Yes; hernia or rupture
dad_cancerString1RecommendedIn the past 12 months, has father experienced cancer?N; YN = No; Y = Yes; cancer
dad_autoimmuneString1RecommendedIn the past 12 months, has father experienced autoimmune disorders?N; YN = No; Y = Yes; lupus or other autoimmune disorders
dad_mouthString1RecommendedIn the past 12 months, has father experienced mouth problems?N; YN = No; Y = Yes; persistent trouble with gums, mouth, or teeth
dad_mentalhealthString1RecommendedIn the past 12 months, has father experienced mental health issues?N; YN = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
dad_overweightString1RecommendedIn the past 12 months, has father experienced being overweight or obese?N; YN = No; Y = Yes; trouble with being overweight or obese
dad_ldString1RecommendedIn the past 12 months, has father experienced a learning disability?N; YN = No; Y = Yes; learning disability
dad_liverString1RecommendedIn the past 12 months, has father experienced liver problems?N; YN = No; Y = Yes; chronic liver problems
dad_cardioString1RecommendedIn the past 12 months, has father experienced cardiovascular problems?N; YN = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: foasd01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.