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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
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Notes
Data Structures with shared data
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Family Outcomes Survey

fos

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldfos_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
fos_sec_a_1IntegerRecommendedWe know the next steps for our child's growth and learning.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_2IntegerRecommendedWe understand our child's strengths and abilities.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_3IntegerRecommendedWe understand our child's delays and/or needs.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_4IntegerRecommendedWe are able to tell when our child is making progress.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_5IntegerRecommendedWe are able to find and use the services and programs available to us.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_6IntegerRecommendedWe know our rights related to our child's special needs.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_7IntegerRecommendedWe know who to contact and what to do when we have questions or concerns.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_8IntegerRecommendedWe know what options are available when our child leaves the program.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_9IntegerRecommendedWe are comfortable asking for services & supports that our child and family need.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_10IntegerRecommendedWe are able to help our child get along with others.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_11IntegerRecommendedWe are able to help our child learn new skills.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_12IntegerRecommendedWe are able to help our child take care of his/her needs.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_13IntegerRecommendedWe are able to work on our child's goals during everyday routines.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_14IntegerRecommendedWe are comfortable talking to family and friends about our child's needs.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_15IntegerRecommendedWe have friends or family members who listen and care.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_16IntegerRecommendedWe are able to talk with other families who have a child with similar needs.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_17IntegerRecommendedWe have friends or family members we can rely on when we need help.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_18IntegerRecommendedI am able to take care of my own needs and do things that I enjoy.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_19IntegerRecommendedOur child participates in social, recreational, or religious activities that we want.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_20IntegerRecommendedWe are able to do things we enjoy together as a family.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_21IntegerRecommendedOur medical and dental needs are met.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_22IntegerRecommendedOur child care needs are met.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_23IntegerRecommendedOur transportation needs are met.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_sec_a_24IntegerRecommendedOur food, clothing, housing, needs are met.0::40=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_eiString5RecommendedIs your child current receiving Early Intervention (EI) services?Yes;No
fos_sec_b_1IntegerRecommendedHow helpful has early intervention been in giving you useful information about the services and supports for you and your child?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_2IntegerRecommendedHow helpful has early intervention been in giving you useful information about your rights related to your child's special needs?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_3IntegerRecommendedHow helpful has early intervention been in giving you useful information about who to contact when you have questions or concerns?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_4IntegerRecommendedHow helpful has early intervention been in giving you useful information about available options when your child leaves the program?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_5IntegerRecommendedHow helpful has early intervention been in explaining your rights in ways that are easy to understand?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_6IntegerRecommendedHow helpful has early intervention been in giving you useful information about your child's delays or needs?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_7IntegerRecommendedHow helpful has early intervention been in listening to you and respecting your choices?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_8IntegerRecommendedHow helpful has early intervention been in connecting you with other services or people who can help your child and family?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_9IntegerRecommendedHow helpful has early intervention been in talking with you about your child and family's strengths and needs?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_10IntegerRecommendedHow helpful has early intervention been in talking with you about what you think is important for your child and your family?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_11IntegerRecommendedHow helpful has early intervention been in developing a good relationship with you and your family?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_12IntegerRecommendedHow helpful has early intervention been in giving you useful information about how to help your child get along with others?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_13IntegerRecommendedHow helpful has early intervention been in giving you useful information about how to help your child learn new skills?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_14IntegerRecommendedHow helpful has early intervention been in giving you useful information about how to help your child take care of his/her needs?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_15IntegerRecommendedHow helpful has early intervention been in identifying things you do that help your child learn and grow?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_16IntegerRecommendedHow helpful has early intervention been in sharing ideas on how to include your child in daily activities?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
fos_sec_b_17IntegerRecommendedHow helpful has early intervention been in working with you to know when your child is making progress?0::40=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fos01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.