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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Fear Questionnaire

fq

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectstepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
fq_1IntegerRecommendedmain phobia own words0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedphobia
fq_2IntegerRecommendedinjections minor surgery0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedminsur
fq_3IntegerRecommendedeating drinking other people0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedeatdrink
fq_4IntegerRecommendedhospitals0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedhospital
fq_5IntegerRecommendedtravel alone or bus coach0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedbus
fq_6IntegerRecommendedwalking alone in busy streets0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedbusystrt
fq_7IntegerRecommendedbeing watched stared at0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedbewatch
fq_8IntegerRecommendedgoing crowded shops0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedcshops
fq_9IntegerRecommendedpeople in authority0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedtalkauth
fq_10IntegerRecommendedsight of blood0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedsightbld
fq_11IntegerRecommendedbeing criticized0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedcritic
fq_12IntegerRecommendedalone far from home0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedfarhome
fq_13IntegerRecommendedthought of injury or illness0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedinjury
fq_14IntegerRecommendedwatched by an audience0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedwatchaud
fq_15IntegerRecommendedlarge open spaces0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedopspace
fq_16IntegerRecommendedgoing to the dentist0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refuseddentist
fq_17IntegerRecommendedother situations describe0::8;-70=Would not avoid it; 1=Would not avoid it; 2=Slightly avoid it; 3=Slightly avoid it; 4=Definitely avoid it; 5=Definitely avoid it; 6=Markedly avoid it; 7=Markedly avoid it; 8=Always avoid it; -7=Refusedosit
fq_18IntegerRecommendedfeeling miserable or depressed0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesomemisdepr
fq_19IntegerRecommendedfeeling irritable or angry0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesomeirritang
fq_20IntegerRecommendedfeeling tense or panicky0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesometense
fq_21IntegerRecommendedupsetting thoughts in mind0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesomeupsethou
fq_22IntegerRecommendedfeeling strange or unreal0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesomestrange
fq_23IntegerRecommendedother feelings describe:0::80=Hardly at all; 1=Hardly at all; 2=Slightly troublesome; 3=Slightly troublesome; 4=Definitely troublesome; 5=Definitely troublesome; 6=Markedly troublesome; 7=Markedly troublesome; 8=Very severely troublesomeofeel
fq_24IntegerRecommendedrate present state of symptons0::8;-70=No phobias present; 1=No phobias present; 2=Slightly disturbing/not really; 3=Slightly disturbing/not really; 4=Definitely disturbing/disabling; 5=Definitely disturbing/disabling; 6=Markedly disturbing/disabling; 7=Markedly disturbing/disabling; 8=Very severely disturbing/disabling; -7=Refusedratephob
fqagIntegerRecommendedAgoraphobiaSum of questions 5,6,8,12,and 15
fqblIntegerRecommendedBloodSum of questions 2,4,10,13,16
fqsocIntegerRecommendedSocialSum of questions 3,7,9,11,14
fqtotIntegerRecommendedTotalAG plus BL plus SOC
fqtpIntegerRecommendedTroubled by problems
visitString50RecommendedVisit nameCharacter description of each type of visit
daysconsIntegerRecommendeddays since consent
siteString100RecommendedSiteStudy Sitesite_id, siteid
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.