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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Family Routines Inventory

fri

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
respondentString20RecommendedRespondentMother;Father;Both; Child; Other; Parent
fri1IntegerRecommendedParent(s) have some time each day for just talking with the children0;10=False; 1=True
fri2IntegerRecommendedParent(s) have certain things they do every morning while getting ready to start the day0;10=False; 1=True
fri3IntegerRecommendedWorking parent has a regular play time with the children after coming home from work0;10=False; 1=True
fri4IntegerRecommendedWorking parent takes care of the children sometime almost every day0;10=False; 1=True
fri5IntegerRecommendedChildren do the same things each morning as soon as they wake up0;10=False; 1=True
fri6IntegerRecommendedParent(s) and children play together some time each day0;10=False; 1=True
fri7IntegerRecommendedNon-working parent and children do something together outside the home almost every day (e.g. shopping, walking, etc.)0;10=False; 1=True
fri8IntegerRecommendedFamily has a "quiet time" each evening when everyone talks or plays quietly0;10=False; 1=True
fri9IntegerRecommendedFamily goes some place special together each week0;10=False; 1=True
fri10IntegerRecommendedFamily has a certain "family time" each week when they do things together at home0;10=False; 1=True
fri11IntegerRecommendedParent(s) read or tell stories to the children almost every day0;10=False; 1=True
fri12IntegerRecommendedEach child has some time each day for playing alone0;10=False; 1=True
fri13IntegerRecommendedChildren take part in regular activities after school0;10=False; 1=True
fri14IntegerRecommendedYoung children go to daycare or school the same days each week0;10=False; 1=True
fri15IntegerRecommendedChildren do their homework at the same time each day or night during the week0;10=False; 1=True
fri16IntegerRecommendedParents have a certain hobby or sport they do together regularly0;10=False; 1=True
fri17IntegerRecommendedChildren have special things they do or ask for each night at bedtime (e.g. a story, a good-night kiss, a drink of water)0;10=False; 1=True
fri18IntegerRecommendedChildren go to bed at the same time almost every night0;10=False; 1=True
fri19IntegerRecommendedFamily eats at the same time each night0;10=False; 1=True
fri20IntegerRecommendedAt least some of the family eats breakfast together almost every morning0;10=False; 1=True
fri21IntegerRecommendedWhole family eats dinner together almost every night0;10=False; 1=True
fri22IntegerRecommendedAt least one parent talks to his or her parents regularly0;10=False; 1=True
fri23IntegerRecommendedFamily regularly visits with the relatives0;10=False; 1=True
fri24IntegerRecommendedFamily checks in or out with each other when someone leaves or comes home0;10=False; 1=True
fri25IntegerRecommendedWorking parent(s) comes home from work at the same time each day0;10=False; 1=True
fri26IntegerRecommendedFamily has certain things they almost always do to greet the working parent(s) at the end of the day0;10=False; 1=True
fri27IntegerRecommendedParent(s) have certain things they almost always do each time the children get out of line0;10=False; 1=True
fri28IntegerRecommendedChildren do regular household chores0;10=False; 1=True
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fri01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.