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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Description
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Notes
Data Structures with shared data
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First Year Inventory

fyi

01

First Year Inventory

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*CandidateGUID, GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/projectIBISID
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldDate_taken
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.Candidate_Age_in_Months
genderString20RequiredSex of the subjectM;FM = Male; F = Female
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
person_filling_out
respondent_otherString50RecommendedFIGS Y1: Respondent other than mother or fatherperson_filling_out_specify
risk_scoreString255RecommendedFYI: Risk Score
percentileString255RecommendedFYI: Percentile
soc_com_riskString255RecommendedFYI: Social-Communication domain
sen_reg_riskString255RecommendedFYI: Sensory-Regulatory domain
orientrecString255RecommendedFYI: Social Orienting and Receptive
affengString255RecommendedFYI: Social Affective Engagement
imitateString255RecommendedFYI: Imitation
expressString255RecommendedFYI: Expressive Communication
senprocString255RecommendedFYI: Sensory Processing
regpatString255RecommendedFYI: Regulatory Patterns
reactString255RecommendedFYI: Reactivity
repplayString255RecommendedFYI: Repetitive Play and Behavior
q_1IntegerRecommendedFYI: 1. Does your baby turn to look at you when you call your baby's name?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_2IntegerRecommendedFYI: 2. Does your baby seem bothered by loud sounds?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_3IntegerRecommendedFYI: 3. Does your baby seem overly sensitive to your touch (for xampl, fuss or pull away when you touch him or her)?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_4IntegerRecommendedFYI: 4. During familiar games like ''I'm gonna get you',?? does your baby get excited because he or she knows what will happen next?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_5IntegerRecommendedFYI: 5. Does your baby seem to have trouble hearing?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_6IntegerRecommendedFYI: 6. When you and your baby are facing each other, does your baby turn his or her eyes to avoid looking at you?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_7IntegerRecommendedFYI: 7. In new or strange situations, does your baby look at your face for comfort?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_8IntegerRecommendedFYI: 8, Does your baby ignore loud or startling sounds?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_9IntegerRecommendedFYI: 9. Does your baby spit out certain textures of foods, such as lumpy or chunky pieces?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_10IntegerRecommendedFYI: 10. When you point to something interesting, does your baby turn to look at it?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_11IntegerRecommendedFYI: 11. Is your baby content to play alone for an hour or more at a time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_12IntegerRecommendedFYI: 12. Does your baby look at people when they begin talking, even when they are not talking directly to your baby?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_13IntegerRecommendedFYI: 13. Does your baby rock his or her body back and forth over and over?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_14IntegerRecommendedFYI: 14. Does your baby look up from playing with a favorite toy if you show him or her a different toy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_15IntegerRecommendedFYI: 15. Does your baby get upset when you need to switch your baby from one activity to another one?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_16IntegerRecommendedFYI: 16. Is it easy to understand your baby's facial expressions?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_17IntegerRecommendedFYI: 17. Does your baby forcefully press his or her face, head, or body against people or furniture?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_18IntegerRecommendedFYI: 18. Does your baby smile while looking at you?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_19IntegerRecommendedFYI: 19. Does your baby try to get your attention to show you something interesting?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_20IntegerRecommendedFYI: 20. Does your baby try to get your attention to play games like peek-a-boo?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_21IntegerRecommendedFYI: 21. Does your baby try to get your attention to obtain a favorite toy or food?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_22IntegerRecommendedFYI: 22. Does your baby try to get your attention to play physical games, like swinging, tickling, or being tossed in the air?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_23IntegerRecommendedFYI: 23. When your baby is awake and you pick him or her up, does your baby's body feel loose or floppy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_24IntegerRecommendedFYI: 24. Does your baby copy or imitate you when you make sounds or noises with your mouth?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_25IntegerRecommendedFYI: 25. Does your baby copy or imitate your actions, like sticking out your tongue, clapping your hands, or shaking your head?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_26IntegerRecommendedFYI: 26. Does your baby copy or imitate you when you do something with a toy or object, like shaking a rattle or banging a spoon on the table?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_27IntegerRecommendedFYI: 27. Is it difficult to calm your baby once he or she becomes upset?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_28IntegerRecommendedFYI: 28. Are your baby's sleeping and waking patterns regular from day to day?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_29IntegerRecommendedFYI: 29. Does your baby try to get your attention by making sounds and looking at you at the same time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_30IntegerRecommendedFYI: 30. Does your baby get stuck doing a simple activity over and over?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_31IntegerRecommendedFYI: 31. Does your baby seem interested in other babies his or her age?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_32IntegerRecommendedFYI: 32. Does your baby babble by putting sounds together, such as 'ba-ba', 'ga-ga-ga', or 'ba-dee'?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_33IntegerRecommendedFYI: 33. Does your baby enjoy staring at a bright light for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_34IntegerRecommendedFYI: 34. Does your baby use gestures such as raising arms to be picked up, shaking head, or waving bye-bye?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_35IntegerRecommendedFYI: 35. When you say 'Where's (a familiar person or object)?? without pointing or showing, will your baby look at the person or object named?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_36IntegerRecommendedFYI: 36. Does your baby use the first finger and tip of the thumb to pick up a very small object like a raisin or a Cheerio?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_37IntegerRecommendedFYI: 37. Does your baby seem to get stuck on playing with a part of a toy (such as an eyeball, label, wheel or tag), instead of the whole toy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_38IntegerRecommendedFYI: 38. Dues your baby communicate with you by using his or her finger to point at objects or picturesf
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_39IntegerRecommendedFYI: 39. Do you get the feeling that your baby plays or communicates with you less now than in the past?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_40IntegerRecommendedFYI: 40. Do your baby's eyes line up together when looking at an object?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_41IntegerRecommendedFYI: 41. Are your baby's feeding patterns regular from day to dayf
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_42IntegerRecommendedFYI: 42. Does your baby enjoy rubbing or scratching toys or objects for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_43IntegerRecommendedFYI: 43. Does your baby seem to get his or her body stuck in a position or posture that is hard to move out of?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_44IntegerRecommendedFYI: 44. Does your baby enjoy making objects spin over and over in the same way?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_45IntegerRecommendedFYI: 45. While lying down, does your baby enjoy kicking his or her feet over and over for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_46IntegerRecommendedFYI: 46. Does your baby stare at his or her fingers while in front of his or her eyes?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
q_47String5RecommendedFYI: 47. Which of the following best describes your baby's typical play..?
a; b; c; -9
a = Same way; b = New way; c = Often explores; -9 = Not answered
q_48String5RecommendedFYI: 48. Which of the following describes your baby's interest in toys..?
a; b; c; -9
a = One or two; b = Small number; c = Large number; -9 = Not answered
q_49String5RecommendedFYI: 49. When you introduce your baby to a new game..?
a; b; c;d; -9
a = Joins in immediately; b = Usually joins in; c = Joins in only with a lot; d = Doesn't seem interested; -9 = Not answered
q_50String5RecommendedFYI: 50. What do you typically have to do to get your baby to look..?
a; b; c; -9
a = Show different toy; b = Move, shake, make noise; c = Take favourite; -9 = Not answered
q_51String5RecommendedFYI: 51. What is your baby's usual reaction..?
a; b; c; -9
a = Doesn't notice; b = Reacts a little; c = Sensitive or cries; -9 = Not answered
q_52String5RecommendedFYI: 52. What do you typically have to do to get your baby to turn..?
a; b; c;d; -9
a = Say name; b = Say name several times; c = Say name loudly; d = Doesn't do; -9 = Not answered
q_53String5RecommendedFYI: 53. What do you typically have to do to get your baby to smile..?
a; b; c;d; -9
a = Smiling, laughing; b = Touch, tickle; c = Swing, bounce; d = Doesn't do; -9 = Not answered
q_54String5RecommendedFYI: 54. On a typical night, how many hours does your baby sleep?
a; b; c;d; -9
a = 12 or more; b = 10 to 11; c = 8 to 9; d = 7 or fewer; -9 = Not answered
q_55String5RecommendedFYI: 55. On a typical night, how many times does your baby wake up?
a; b; c; -9
a = 0; b = 1 to 2; c = 3 or more; -9 = Not answered
q_56String5RecommendedFYI: 56. Which of the following best describes your baby's skill level?
a; b; c;d; -9
a = Walks independently; b = Walks with hands; c = Pulls up to stand; d = Does not pull; -9 = Not answered
q_57String5RecommendedFYI: 57. Which of the following best describes your baby's typical day?
a; b; c;d; -9
a = Never gets upset; b = Upset, calmed 1 to 3 times; c = Upset, calmed 4 to 6 times; d = Upset, calmed 6 or more times; -9 = Not answered
q_58String5RecommendedFYI: 58. If you start a game by copying or imitating a sound..?
a; b; c;d; -9
a = Doesn't notice sound; b = Looks but doesn't make; c = Looks and makes; d = Plays making; -9 = Not answered
q_59String5RecommendedFYI: 59. When your baby is awake and not eating?
a; b; c;d; -9
a = Almost never; b = Sometimes; c = Often; d = Almost always; -9 = Not answered
q_60String5RecommendedFYI: 60. Which of the following best describes the way your baby coordinates?
a; b; c;d; -9
a = Almost always; b = Sometimes; c = Rarely; d = Almost never; -9 = Not answered
sounds_pString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - p
sounds_bString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - b
sounds_tString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - Total Symptoms
sounds_dString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - d
sounds_kString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - k
sounds_gString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - g
sounds_mString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - m
sounds_nString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - n
sounds_wString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - w
sounds_yString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - y
sounds_hString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - h
sounds_sString255RecommendedFYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - s
q_62String500RecommendedFYI: 62. Do you or others have any concerns..? If yes, please describe.
q_63String255RecommendedFYI: 63. Does your baby have any unusual physical or medical characteristics? If yes, please describe.
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fyi01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.