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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Goldberg Anxiety and Depression Scale

gads

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Siteasite
clinicidIntegerRecommendedClinic IDaclinic
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitwave
days_baselineIntegerRecommendedDays since baselinelof
gads1IntegerRecommendedFrequency of worries. During the past week, on average, how much of each day was occupied with excessive, unrealistic worries (about the future, your health, other's health, family well-being, finances, social relationships, intimate relationships, work, school, or routine daily activities)?0::40 = no worries; 1 = slight - worry occupies less than 1 hour per day; 2 = moderate - worries for one to three hours per day; 3 = severe - worries occur three to eight hours per day; 4 = very severe - more than eight hours of worry per day
gads2IntegerRecommendedDistress due to worrying. During the past week, how upset or uncomfortable did you feel when you were worrying0::40 = none; 1 = mild, not too disturbing; 2 = moderate, definitely disturbing but still manageable; 3 = severe, very intense and disturbing; 4 = very severe, incapacitating
gads3IntegerRecommendedFrequency of associated symptoms. Over the past week, how often did you experience symptoms such as restlessness, feeling keyed up or on edge, irritability, muscle tension, difficulty concentrating, mind going blank, fatigue, or sleep disturbance?0::40 = not at all; 1 = slight - symptoms present less than 1 hour per day; 2 = moderate - symptoms for one to three hours per day; 3 = severe - symptoms occurred three to eight hours per day; 4 = very severe - symptoms were present more than eight hours per day
gads4IntegerRecommendedSeverity and Distress due to associated symptoms. During the past week, on average, when you had these symptoms, how intense were they and how upset or uncomfortable did you feel when you had them?0::40 = none; 1 = mild, noticeable but not too intense or disturbing; 2 = moderate, definitely disturbing but still manageable; 3 = severe, very intense and disturbing; 4 = very severe, incapacitating
gads5IntegerRecommendedImpairment/interference in work functioning? During the past week, how much did the symptoms we have been discussing interfere with your ability to work and/or carry out responsibilities at home? For example, have your symptoms interfered with your ability to get things done as quickly and effectively? Have you noticed there are things you are not doing because of your anxiety? Does anxiety ever cause you to take short cuts or request assistance to get things done?0::40 = none; 1 = mild, slight interference, but overall performance not affected; 2 = moderate, definite interference but still manageable; 3 = severe, causes substantial impairment; 4 = very severe, incapacitating
gads6IntegerRecommendedImpairment/interference in social functioning? During the past week, how much did the symptoms we have been discussing interfere with your social life? For example, are you spending less time with friends and relatives than you used to? Do you turn down requests of opportunities to socialize? Are there certain restrictions in your social life about where or how long you will socialize?0::40 = none; 1 = mild, slight interference, but overall performance not affected; 2 = moderate, definite interference but still manageable; 3 = severe, causes substantial impairment; 4 = very severe, incapacitating
gadsIntegerRecommendedSum of Goldberg Anxiety and Depression Scale
igadsIntegerRecommendedImputed Goldberg Anxiety and Depression Scale
rmtmgadsIntegerRecommendedChange Score GADS0;11: less than 6
r40mgadsIntegerRecommended40 percent or more reduction from GADS0;1(IF (MOSTDISTRESSING_AD=4) THEN DO; IF (GADSt2 >.) THEN RMTMGADSt2=0; IF (. < GADSt2 <= 6) THEN RMTMGADSt2=1; IF (GADSt1>=0 & GADSt2>=0) THEN DO; R40MGADSt2=0; IF (RMTMGADSt2=1) THEN R40MGADSt2=1; ELSE IF (GADSt2 <=(0.60 * GADSt1)) THEN R40MGADSt2=1; END; END;)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: gads01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.