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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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General Life Functioning

glf

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
days_baselineIntegerRecommendedDays since baselinedayglfa, dayglfp
assbdicString5RecommendedAssessment PointD;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; CD=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)assglfa, assglfp
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other malerelglfa, relglfp
actbdicIntegerRecommendedActive status0::50=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Activeactglfa, actglfp
siteString100RecommendedSiteStudy Sitesitenum
sjtypIntegerRecommendedSubject type1;21=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
version_formString100RecommendedForm used
glfa_1aIntegerRecommendedCompared to other people your age/your child age, where do you/your child think you/your child are at this stage of your/their life, with regard to finances or supporting yourself/themselves financially1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_1a
glfa_1bIntegerRecommendedHas there been a significant change in the past year, with regard to finances or supporting yourself/themselves financially0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_1b
glfa_2aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to employment1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_2a
glfa_2bIntegerRecommendedHas there been a significant change in the past year, with regard to employment0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_2b
glfa_3aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to education1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_3a
glfa_3bIntegerRecommendedHas there been a significant change in the past year, with regard to education0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_3b
glfa_4aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to forming friendships1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_4a
glfa_4bIntegerRecommendedHas there been a significant change in the past year, with regard to forming friendships0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_4b
glfa_5aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to maintaining friendships1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_5a
glfa_5bIntegerRecommendedHas there been a significant change in the past year, with regard to maintaining friendships0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_5b
glfa_6aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to forming romantic friendships1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_6a
glfa_6bIntegerRecommendedHas there been a significant change in the past year, with regard to forming romantic friendships0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_6b
glfa_7aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to maintaining romantic friendships1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_7a
glfa_7bIntegerRecommendedHas there been a significant change in the past year, with regard to maintaining romantic friendships0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_7b
glfa_8aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to maintaining relationships with family members1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_8a
glfa_8bIntegerRecommendedHas there been a significant change in the past year, with regard to maintaining relationships with family members0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_8b
glfa_9aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to maintaining relationships with coworkers1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_9a
glfa_9bIntegerRecommendedHas there been a significant change in the past year, with regard to maintaining relationships with coworkers0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_9b
glfa_10aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to constructive or healthy use of free time1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_10a
glfa_10bIntegerRecommendedHas there been a significant change in the past year, with regard to constructive or healthy use of free time0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_10b
glfa_11aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to limiting or controlling use of alcohol or drugs1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_11a
glfa_11bIntegerRecommendedHas there been a significant change in the past year, with regard to limiting or controlling use of alcohol or drugs0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_11b
glfa_12aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to family responsibilities with regard to marriage or children1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_12a
glfa_12bIntegerRecommendedHas there been a significant change in the past year, with regard to family responsibilities with regard to marriage or children0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_12b
glfa_13aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to managing and completing household tasks1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_13a
glfa_13bIntegerRecommendedHas there been a significant change in the past year, with regard to managing and completing household tasks0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_13b
glfa_14aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to family responsibilities with regard to parents and siblings1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_14a
glfa_14bIntegerRecommendedHas there been a significant change in the past year, with regard to family responsibilities with regard to parents and siblings0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_14b
glfa_15aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to community or societal responsibilities1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_15a
glfa_15bIntegerRecommendedHas there been a significant change in the past year, with regard to community or societal responsibilities0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_15b
glfa_16aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to character or moral development1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_16a
glfa_16bIntegerRecommendedHas there been a significant change in the past year, with regard to character or moral development0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_16b
glfa_17aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to having meaningful personal goals and a sense of purpose in life1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_17a
glfa_17bIntegerRecommendedHas there been a significant change in the past year, with regard to having meaningful personal goals and a sense of purpose in life0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_17b
glfa_18aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to having a sense of humor or taking things in stride1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_18a
glfa_18bIntegerRecommendedHas there been a significant change in the past year, with regard to having a sense of humor or taking things in stride0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_18b
glfa_19aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to happiness1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_19a
glfa_19bIntegerRecommendedHas there been a significant change in the past year, with regard to happiness0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_19b
glfa_20aIntegerRecommendedCompared to other people your age/your child age, where do you think you/your child are at this stage of your/their life, with regard to general life satisfaction1::51=A good bit behind; 2=Somewhat behind; 3=About where I should be; 4=Somewhat further ahead; 5=A good deal further aheadglfp_20a
glfa_20bIntegerRecommendedHas there been a significant change in the past year, with regard to general life satisfaction0::20=No change; 1=Yes for the worse; 2=Yes for the betterglfp_20b
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: glf01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.