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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Value Range
Data Structures with shared data
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Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Site
weekFloatRecommendedWeek in level/study99=week 10-week 14
rand_numIntegerRecommendedRandomization Number0::2
daysrzIntegerRecommendeddays since randomization
version_formString100RecommendedForm used/assessment name
pgr_overallIntegerRecommendedOverall Functionality1::77 = very much worse; 4 = no change; 1 = very much improved
pgr_sevillIntegerRecommendedSeverity of Illness1::77 = worst possible; 4 = average; 1 = Not Ill at All
pgr_complyIntegerRecommendedPrescription Compliance1::41= Almost always; 4=Almost never
pgr_sevsideIntegerRecommendedSeverity of Side Effects1::77 = worst possible; 4 = average; 1 = None
pgr_pp_noneIntegerRecommendedPhysical Problem: None0;11=yes; 0=no
pgr_stiffIntegerRecommendedPGRS 6b Physical Problem: Stiffness0;11=yes; 0=no
pgr_restIntegerRecommendedPhysical: Effect of Restlessness0;11=yes; 0=no
weigIntegerRecommendedWeight gain0;10=No,1=Yes
pgr_sleepIntegerRecommendedPhysical Prob: Sleepiness0;11=yes; 0=no
pgr_br_sizeIntegerRecommendedPhysical: P. Change in Breast Size/S.Swelling or Tender breasts0;11=yes; 0=no
pgr_mn_cyclIntegerRecommendedPhysical: Change in Menstrual period0::30= No; 1=Yes; 2 = Just Started; 3 = Doesn't apply to me
pgr_sexualIntegerRecommendedPhysical: P. Change in Sex Interest/ S.Sex Drive or Sex Life Problems0::21=yes; 0=no; 2=doesn't apply to me
pgr_otherString20RecommendedPhysical Problem: Other
pgr_helpIntegerRecommendedMed Helps Child Feel Better1::31= No; 2 = A Little; 3 = A lot
pgr_sympIntegerRecommendedMed Diminishes Symptoms1::31= No; 2 = A Little; 3 = A lot
pgr_goodIntegerRecommendedGood Things Outweigh Bad1::31= No; 2 = A Little; 3 = A lot
pgr_stopIntegerRecommendedStop Med due to Side Effects0;11=yes; 0=no
pgr_chwantIntegerRecommendedWhy Take Med? Child Wants0;11=yes; 0=no
pgr_prwantIntegerRecommendedWhy Take Med? Parent Wants0;11=yes; 0=no
pgr_drsaysIntegerRecommendedWhy Take Med? Doctor Says0;11=yes; 0=no
pgr_upsetIntegerRecommendedBad or Upsetting Event0;11=yes; 0=no
pgr_worryIntegerRecommendedWorried about safety0;11=yes; 0=no
pgr_drugsIntegerRecommendedUsed illegal drugs or alcohol0;11=yes; 0=no
pgr_drugssString20RecommendedUsed illegal drugs or alcohol, specify
pgr_othmedIntegerRecommendedTaken other medications0;11=yes; 0=no
othmed1String50Recommendedother medication 1
sgr_hurttIntegerRecommendedThought about hurting self/others0;11=yes; 0=no
sgr_hurttsString20RecommendedThought about hurting self/others, specify
sgr_hurtdIntegerRecommendedDone anything to hurt self/others0;11=yes; 0=no
sgr_hurtdsString100RecommendedDone anything to hurt self/others, specify
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: glob01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.