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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Guess of Treatment Condition

gsstc

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/projectPID, randid
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visitTIMEPT, eti_interval, etpt_interval, etsu_interval, interval
visdayIntegerRecommendedNumber of days from study baseline to date of visitDAYGUESE, studyday
pt1IntegerRecommendedPlease indicate your best guess about the study treatment this subject has received1::71 = Sertraline;2 = Placebo;3 = Completely Uncertain; 4=Setraline plus CBT; 5=CBT only; 6= Active Medication; 7= Medication+CBTIE1
pt2IntegerRecommendedIf you selected Sertraline OR Placebo, please indicate the level of certainty of your choice0::40 = Not at all certain;1 = Somewhat uncertain;2 = Neither certain nor uncertain;3 = Somewhat certain;4 = Completely certainIE2, eti_q02, q02
ptleffIntegerRecommendedIs Lack of Efficacy the type of information on which your guess is based0;10 = Not indicated;1 = YesIELEFF, eti_q03a, etpt_q02a, etsu_q02a, q02a, q03a
ptpeffIntegerRecommendedIs Presence of efficacy the type of information on which your guess is based0;10 = Not indicated;1 = YesIEPEFF, eti_q03b, etpt_q02b, etsu_q02b, q02b, q03b
ptaseIntegerRecommendedIs Absence of side effects the type of information on which your guess is based0;10 = Not indicated;1 = YesIEASE, eti_q03c, etpt_q02c, etsu_q02c, q02c, q03c
ptpseIntegerRecommendedIs Presence of side effects the type of information on which your guess is based0;10 = Not indicated;1 = YesIEPSE, eti_q03d, etpt_q02d, etsu_q02d, q02d, q03d
ptothIntegerRecommendedIs Other Types of Information the type of information on which your guess is based0;10 = Not indicated;1 = YesIEOTH, eti_q03e, etpt_q02e, etsu_q02e, q02e, q03e
pt3othString60RecommendedIf Other Types of Information the type of information on which your guess is based, explaineti_q03exp, etpt_q02exp, etsu_q02exp_x
ptcomb_dIntegerRecommendedCombination Treatment (no blind)0;10 = No;1 = Yes
ie1bIntegerRecommendedBest Guess Recoded to Match TX1::51 = Medication + Cognitive Behavioral Therapy;2 = Active Medication;3 = Cognitive Behavioral Therapy Alone;4 = Placebo;5 = Completely Uncertaineti_q01, etpt_q01, etsu_q01, q01
ie3oth_dIntegerRecommendedOther Type of Information Coded1::41 = Blind Broken;2 = Insufficient Information;3 = Rate of Improvement;4 = Other
truncvisIntegerRecommendedTruncated Visit NumberCreated variable: provides a numeric visit number for all visits, including unscheduled and end of phase
studyString100RecommendedStudyeti_studyid, studyid
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, losteti_frmcomp, frmcomp
visitdayIntegerRecommendedday of visiteti_visitdat_x
version_formString100RecommendedForm used
ci_enrolledIntegerRecommendedParticipant enrolled0;10=No; 1=Yesenrolled
siteString100RecommendedSiteStudy Site
weekFloatRecommendedWeek in level/study99=week 10-week 14
days_baselineIntegerRecommendedDays since baseline
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
bgp1String5RecommendedI think I receivedD;L;7;9Best Guess Patient items (select one). D = DVP; L = Lithium; 7 = Unknown; 9 = Not Answered
confidenceIntegerRecommendedConfidence rating for treatment guess1::3; 7;81=Low; 2=Medium; 3=High; 7=Unknown; 8=Refused
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: gsstc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.