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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Hair Questionnaire

hairquest

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.asiagemos
genderString20RequiredSex of the subjectM;FM = Male; F = Female
p_color_curIntegerRecommendedHair color: current1::5;-99;77;881=Brown; 2=Black; 3=Blonde; 4=Red; 5=Other ; 99=N/A 88=Missing; 77= Refusedc_color_cur
p_col_cur_oString65RecommendedDescribe other current hair colorc_col_cur_o
p_color_natIntegerRecommendedHair color: natural1::5;-99;77;881=Brown; 2=Black; 3=Blonde; 4=Red; 5=Other ; 99=N/A 88=Missing; 77= Refusedc_color_nat
p_col_nat_oString65RecommendedDescribe other natural hair colorc_col_nat_o
p_structureIntegerRecommendedCurrent hair texture1::8;-99;77;881= Very Straight ; 2= Straight ; 3= Wavy ; 4= Loose Curls ; 5= Curly ; 6= Very Curly ; 7= Kinky Curls ; 8= Tight Curls ; -99=N/A ; 88= Missing ; 77= Refusedc_structure
p_hairtextnatIntegerRecommendedNatural hair texture1::8;-99;77;881= Very Straight ; 2= Straight ; 3= Wavy ; 4= Loose Curls ; 5= Curly ; 6= Very Curly ; 7= Kinky Curls ; 8= Tight Curls ; -99=N/A ; 88= Missing ; 77= Refusedc_hairtextnat
p_washString65RecommendedHair washing frequency per weeka= a Less than once a week ; b= b 1 or 2 times a week ; c= c= 3 or 4 times a week ; e= e 5 or 6 times a week ; f= f 7 or more times a week ; -99= -99 N/A ; 88= 88 Missing ; 77= 77 Refusedc_wash
p_treatString15RecommendedHair treatment0::5;77;88;-990=None ; 1=Gel/hairspray ; 2= Highlights ; 3= Hair coloring ; 4= Hair dying ; 5= Other ;-99= N/A ; 88= Missing ; 77= Refusedc_treat
p_treat_oString65RecommendedDescribe other hair treatmentc_treat_o
p_exerString15RecommendedWhat kind of exercise do you do regularly?0::8;-99;77;880= None ; 1=Running ; 2= Weight lifting ; 3= Aerobic/cardio ; 4= Biking ; 5= Swimming ; 6= Team or ball sports: ____ ; 7= Hiking ; 8= Other ; -99= N/A ; 88= Missing ; 77=Refusedc_exer
p_ex_teamString65RecommendedDescribe team or ball sportsc_ex_team
p_ex_otherString65RecommendedDescribe other form of exercisec_ex_other
p_ex_hoursIntegerRecommendedHow many total hours of exercise do you get on average per week?c_ex_hours
p_totalworkIntegerRecommendedHow many total workouts do you usually do per week?c_totalwork
p_sleepFloatRecommendedHow many total hours of sleep do you usually get on average?c_sleep
p_medString15RecommendedRecent medications0::3;-99;77;880=None ; 1=Multivitamin ; 2= Birth control (OCPs= IUD); 3 Other;-99=N/A ; 88= 88 Missing ; 77= Refusedc_med
p_med_bcString65RecommendedDescribe type of birth controlc_med_bc
current_meds_describedString200RecommendedDescribe subject's current medicationsc_med_o, p_med_o
p_illIntegerRecommendedRecent Illness0;1;-99;77;880= None ; 1=Yes ;-99= N/A ; 88= Missing ; 77=Refusedc_ill
illnesses_describedString200Recommendeddescribe the illnessc_ill_type, p_ill_type
p_ill_whenString65RecommendedWhen illness occurredc_ill_when
ftnd_7IntegerRecommendedDo you currently smoke any cigarettes? Y/N
0::2; -99; 77; 88
0=No; 1=Yes; 2=No, but used to; -99=NA; 77=refused; 88=missingc_cig, p_cig
quantity_currentuseFloatRecommendedNumber of cigarettes smoked per day0 :: 500c_smoke, p_smoke
quitmonthsIntegerRecommendedLongest number of months quit0 :: 1200c_quit, p_quit
height_stdFloatRecommendedHeight - Standard Unit-1 = Not knownc_hheight, p_hheight
weight_stdFloatRecommendedWeight - Standard Unit-1 = Not knownc_hweight, p_hweight
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
respondent_other_specifyString50RecommendedRespondent: Other (specify)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: hairquest01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.