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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
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Notes
Data Structures with shared data
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Household Demographic Information

hdemo

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectrandid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitdayIntegerRecommendedday of visitdmg_visitdat_x, interval, studyday
studyString100RecommendedStudydmg_birthdat_x, studyid
visitString50RecommendedVisit nameCharacter description of each type of visitdmg_studyid
completedIntegerRecommendedChecks if completed0::20=No; 1=Yes; 2=Yes, lostdmg_interval, frmcomp
dmg_referralIntegerRecommendedreferral source1::11;991=School ; 2=Hospital - Pediatric Psychiatry ; 3=Hospital - Emergency Room ; 4=Hospital - Other Clinic; 5=Other Treatment Center; 6=Friend ; 7=Radio ; 8=Ad in Paper ; 9=Other ;10= poster/flyer; 11=Internet; 99=DK
refothersString50RecommendedReferral source: specifydmg_otherref
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reporteddmg_race
otherraceString50Recommendedspecify other racedmg_othrrace
birthlocationspString50RecommendedBirth location specifydmg_brthplce
ustimeIntegerRecommendedHow long you lived in US, yearsdmg_yrsinusa
dem_07IntegerRecommendedType of educational activity1::171=Regular public school grade; 2=Regular private/parochial school grade 3=Regular public nursery; 4=Regular public kindergarten; 5=Regular private/parochial nursery; 6=Regular private/parochial kindergarten; 7=Special school for preschoolers with emotional/behavioral or learning problems; 8=Day Care; 9=Play group; 10=Pre-nursery; 11=Pre-kindergarten; 12=Not in school, not in play group, not in day care; 13=Special Class within regular school; 14=Special school for school-age children with emotional/behavioral or learning problems; 15=Other (Specify);16=Special school; 17=Home schooldmg_school, eduplace
currgradelevelString50RecommendedCurrent grade leveldmg_curgrade, edulevel
ged2IntegerRecommendedType of school placement - Dropped out -working on GED; current1;21=no; 2=yesdmg_ged
dmg_remedialIntegerRecommendedattends resource or remedial classes0;1;8;90=No 1=Yes 8=NA - not in regular school 9=DK
religionString50RecommendedReligiondmg_religion
dmg_curlvcirIntegerRecommendedchild current living circumstances1::81=Parental home (at least one parent) 2=Relatives (other than parents) 3=With (child's) boyfriend/girlfriend or spouse (includes common law arrangement) 4=With unrelated adults 5=Foster home 6=Group home 7=Institution 8=Otherlivarrg
dmg_yrscurlvIntegerRecommendedtime in current living situationyears
dmg_guardianString30Recommendedchild's guardian
dmg_guardageIntegerRecommendedguardian age
sum2_langString50RecommendedDominant languagedmg_langengl
dmg_q53IntegerRecommendedcurrent household composition
demo3IntegerRecommendedMother figure0::90=none in home; 1= one in home; 2= two in home; 9=9 in homedmg_q53a
demo4IntegerRecommendedFather figure0::90=none in home; 1= one in home; 2= two in home; 9=9 in homedmg_q53b
dmg_q53cIntegerRecommendedstepmother0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53dIntegerRecommendedstepfather0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53eIntegerRecommendedcommon law or cohabiting male0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53fIntegerRecommendedcommon law or cohabiting female0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53gIntegerRecommendedfoster mother0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53hIntegerRecommendedfoster father0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53iIntegerRecommendedcomon law spouse of child0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53jIntegerRecommendedbiological grandmother0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53kIntegerRecommendedbiological grandfather0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53lIntegerRecommendedaunt0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53mIntegerRecommendeduncle0::90=none in home; 1= one in home; 2= two in home; 9=9 in home
dmg_q53nIntegerRecommendednumber of related sibs0::990 - 99
dmg_q53oIntegerRecommendednumber of step siblings0::990 - 99
dmg_q53pIntegerRecommendednumber of other relatives (<18years)0::990 - 99
dmg_q53qIntegerRecommendednumber of other relatives (>18years)0::990 - 99
dmg_q53rIntegerRecommendednumber of unrelated children (<18years)0::990 - 99
dmg_q53sIntegerRecommendednumber of unrelated adults (>18years)0::990 - 99
dmg_q53tIntegerRecommendedTotal children in household (>18years)0::990 - 99
dmg_q53uIntegerRecommendedTotal children in household (<18years)0::990 - 99
roomsIntegerRecommendedNumber Roomsdmg_q53v
dmg_q54IntegerRecommendedtotal number of full siblings0::990 - 99
dmg_q55IntegerRecommendedtotal number of half siblings0::990 - 99
dmg_q57IntegerRecommendedyears parents were married to each other0::99;88;990 - 99, 88 =NA, 99= DK
fh07IntegerRecommended7. Subject adopted0;1;9dmg_adopted
dmg_adptyrsIntegerRecommendedage (years) at adoption
dmg_adptmthsIntegerRecommendedage (months) at adoption
item43IntegerRecommendedPlaced in foster/residential care1;21=no;2=yesdmg_fostcare
dmg_fctotalIntegerRecommendedtotal number of foster placements
dmg_fcfstageIntegerRecommendedchild age at first placement (in years)
dmg_fctotyrsIntegerRecommendedtotal number of years in foster care
dmg_othrcareIntegerRecommendedchild ever had other,informal placements0;1;90 = No;1 = Yes;9 = DK;Between 0 And 1 Or 9 Or Is Null;Answer must be 0,1 or 9
dmg_octotalIntegerRecommendedtotal number of informal placements
dmg_ocfstageIntegerRecommendedchild age at first placement (in years)
dmg_octotyrsIntegerRecommendedtotal number of years in informal care
demo60IntegerRecommendedAnnual household income before taxes, including income from all jobs, child support, public assistance, or Social Security payments. (include income from all working members of the household in item 2 who contribute financially)1::101=less than $5,000; 2 = Less than $10,000; 3 = $10,001 to $20,000; 4 = $20,001 to $30,000; 5 = $30,001 to $40,000; 6 = $40,001 to $50,000; 7 = $50,001 to $60,000; 8 = $60,001 to $70,000; 9 = $70,001 to $80,000; 10 = $80,001 or moredmg_income, income
ci_enrolledIntegerRecommendedParticipant enrolled0;10=No; 1=Yesenrolled
siteString100RecommendedSiteStudy Site
dmg_curlvcir_specString25Recommendedcurrent living circumstances specified
dem_07_specString30RecommendedType of educational activity (Specified)
resp_ethnicityString30RecommendedRespondent's ethnicityHispanic or Latino;Not Hispanic or Latino;Unknown or not reportedethnicit
adults_householdIntegerRecommendedNumber adults in householdnumadult
children_householdIntegerRecommendedNumber children householdnumchild
sitedatasource_1IntegerRecommendedSource of Data: Site0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infosrcr
sitedatasource_phoneIntegerRecommendedSource of Data: Telephone0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infoscrct
sitedatasource_physicianIntegerRecommendedSource of Data: Physician0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infoscrp
das1msString75RecommendedMarital status
educateIntegerRecommendedyears of education completed1::8;-71=Less than seventh grade; 2=Seventh grade-ninth grade; 3=Partial high school; 4=High school diploma or GED; 5=Some college (at least one year); 6=Technical school or associates degree; 7=College diploma (Bachelor's degree); 8=Graduate or professional degree; -7=Refused
emplsubIntegerRecommendedSubject's Employment1::111=Employment full time for pay; 2=Employed part-time for pay (less than 30 hours/week); 3=Homemaker; 4= Full time student; 5= Part time student; 6=Temporary out of work; 7=Unemployed for more than 6 month; 8=Retired; 09=Receiving public assistance; 10=Disabled; 11= Other:
psysoc_214String160RecommendedEmployment: Other1:
edutotFloatRecommendedTotal years of education
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: hdemo01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.