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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Health Utilities Index Mark 3

health_ui

01

Health Utilities Index Mark 3

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*GUID
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Femalechi_gen
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
chi_3d_visionIntegerRecommendedWhich statement describes your child's VISION over past 3 days1::61 = Can read and recognize a friend on the other side of the street without glasses or contacts; 2 = Can read and recognize a friend on the other side of the street, with glasses; 3 = Can read (with or without glasses), but unable to recognize a friend on the other side of the street, even with glasses; 4 = Able to recognize a friend on the other side of the street with/without glasses, but unable to read even with glasses; 5 = Unable to read or recognize a friend on the other side of the street, even with glasses; 6 = Unable to see at allChild_q22_vision
chi_3d_hearIntegerRecommendedWhich statement describes your child's HEARING over past 3 days1::61 = Able to hear what is said in a group conversation without a hearing aid; 2 = Able to hear what is said in a conversation with one other person in a quiet room without a hearing aid, but require a hearing aid for a group conversation; 3 = Able to hear what is said in an individual conversation in a quiet room, and able to hear what is said in a group conversation, with a hearing aid; 4 = Able to hear what is said in a conversation with one other person (with a hearing aid), but unable to hear what is said in a group conversation, even with a hearing aid; 5 = Unable to hear at allChild_q23_hearing
chi_3d_speechIntegerRecommendedWhich statement describes your child's SPEECH over past 3 days1::61 = Able to be understood completely; 2 = Able to be understood partially with strangers, but completely with friends; 3 = Able to be understood partially by strangers or friends; 4 = Unable to be understood when speaking with strangers, but able to be partially understood when speaking with friends; 5 = Unable to understood when speaking to other people at all (or unable to speak at all)Child_q24_speech
chi_3d_ambIntegerRecommendedWhich statement describes your child's AMBULATIOn over past 3 days1::61 = Able to walk around neighborhood without difficulty and walking equipment; 2 = Able to walk around neighborhood with difficulty, but without equipment or help; 3 = Able to walk around neighborhood with equipment, but without help of another person; 4 = Able to only walk short distances with walking equipment, and require a wheelchair to get around neighborhood; 5 = Unable to walk alone, even with walking equipment, able to walk short distances with the help of another person, requires a wheelchair to get around neighborhood; 6 = Cannot walk at allChild_q25_ambulation
chi_3d_dexIntegerRecommendedWhich statement describes your child's DEXTERITY over past 3 days1::61 = Full use of 2 hands and 10 fingers; 2 = Limitations in use of hands/fingers but does not require special tools or help; 3 = Limitation in uses of hands/fingers, is independent with use of special tools, does not require help of another person; 4 = Limitations in use of hands/fingers, requires help of another person for some tasks (not independent even with special tools); 5 = Limitations in use of hands/fingers, requires help of another person for most tasks (not independent even with special tools); 6 = Limitations in use of hands/fingers, requires help of person for all tasks ((not independent even with special tools)Child_q26_dexterity
chi_3d_emoIntegerRecommendedWhich statement describes your child's EMOTION over past 3 days1::51 = Happy and interested in life; 2 = Somewhat happy; 3 = Somewhat unhappy; 4 = Very unhappy; 5 = So unhappy life is not worthwhileChild_q27_emotion
chi_3d_cogIntegerRecommendedWhich statement describes your child's COGNITION over past 3 days1::61 = Able to remember most things, think clearly and solve day to day problems; 2 = Able to remember most things, but has a little difficulty when solving day to day problem; 3 = Somewhat forgetful, but can think clearly and solve day to day problems; 4 = Somewhat forgetful, and have a little difficulty when trying to think/solve day to day problems; 5 = Very forgetful, has great difficulty when trying to thin/solve day to day problems; 6 = Unable to remember anything at al, unable to think or solve day to day problemsChild_q28_cognition
chi_3d_painIntegerRecommendedWhich statement describes your child's PAIN over past 3 days1::51 = Free of pain and discomfort; 2 = Mild to moderate pain that prevents no activities; 3= Moderate pain that prevents few activities; 4 = Moderate to severe pain that prevents some activities; 5 = Severe pain that prevents most activitiesChild_q29_pain
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: health_ui01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.