Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Health Utilitities Index

healthui

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectcatieid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
hui01IntegerRecommendedDuring the past two weeks, has subject been able to see well enough to read ordinary newsprint without glasses or contact lenses?0::40 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui02IntegerRecommendedHas subject been able to see well enough to read ordinary newsprint with glasses or contact lenses?0::30 = No; 1 = Yes; 2 = Don't Know/Didn't wear glasses or contac; 3 = Refused
hui03IntegerRecommendedDuring the past two weeks, has subject been able to see at all?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui04IntegerRecommendedDuring the past two weeks, has subject been able to see well enough to recognize a friend on the other side of the street without glasses or contact lenses?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui05IntegerRecommendedHas subject been able to see well enough to recognize a friend on the other side of the street with glasses or contact lenses?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui06IntegerRecommendedDuring the past two weeks, has subject been able to hear what is said in a group conversation with at least three other people without a hearing aid?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui07IntegerRecommendedHas subject been able to hear what is said in a group conversation with at least three other people without a hearing aid?0::30 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
hui08IntegerRecommendedDuring the past two weeks, has subject been able to hear at all?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui09IntegerRecommendedDuring the past two weeks, has subject been able to hear what is said in a group conversation with one other person in a quiet room without a hearing aid?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui10IntegerRecommendedHas the subject been able to hear what is said in a conversion with one other person in a quiet room with a hearing aid?0::30 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
hui11IntegerRecommendedDuring the past two weeks, has the subject been able to be understood completely when speaking his/her own language with people who do not know the subject?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui12IntegerRecommendedHas the subject been able to be understood partially when speaking with people who do not know the subject?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui13IntegerRecommendedDuring the past two weeks, has the suubject been able to be understood completely when speaking with people who know the subject?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui14IntegerRecommendedHas the subject been able to be understood partially when speaking with people the subject well?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui15IntegerRecommendedDuring the past two weeks, has the subject been able to speak at all?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui16IntegerRecommendedDuring the past two weeks, has the subject been able to bend, lift, jump and run without difficulty and without help or equipment of any kind?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui17IntegerRecommendedHas the subject been able to walk around the neighborhood without difficulty and without help or equipment of any kind?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui18IntegerRecommendedHas the subject been able to walk around the neighborhood with difficulty but without help or equipment of any kind?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui19IntegerRecommendedDuring the past two weeks, has the subject been able to walk at all?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui20IntegerRecommendedHas the subject needed mechanical support, such as braces or a cane or crutches, to be able to walk around the neighborhood?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui21IntegerRecommendedHas the subject needed the help of another person to walk?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui22IntegerRecommendedHas the subject needed a cheelchair to get around the neighborhood?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui23IntegerRecommendedHas the subject needed the help of another person to get around in the wheelchair?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui24IntegerRecommendedDuring the past two weeks, has the subject had the full use of both hands and ten fingers?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui25IntegerRecommendedHas the subject needed the help of another person because of limitations in the use of his/her hands or fingers?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui26IntegerRecommendedHas the subject needed the help of another person with some tasks, most tasks, or all tasks?1::51 = Some tasks; 2 = Don't Know; 3 = Refused; 4 = Most tasks; 5 = All tasks
hui27IntegerRecommendedHas the subject needed special equipment, for example special tools to help with dressing or eating, because of limitations in the use of his/her hands or fingers?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui28IntegerRecommendedDuring the past two weeks, has the subject been able to eat, bathe, dress and use the toilet without difficulty?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui29IntegerRecommendedhas the subject needed the help of another person to eat, bathe, dress, and use the toilet?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui30IntegerRecommendedHas the subject needed special equipment or tools to eat, bathe, dress or use the toilet?0::30 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
hui31IntegerRecommendedDuring the past two weeks, has the subject been feeling happy or unhappy?0::30 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
hui32IntegerRecommendedWould you describe subject as having felt:1::41 = Happy interested in life, or; 2 = Don't Know; 3 = Refused; 4 = Somewhat happy
hui33IntegerRecommendedWould you describe subject as having felt:1::51 = Somewhat unhappy; 2 = Don't Know; 3 = Refused; 4 = Very unhappy; 5 = So unhappy that life is not worthwhile
hui34IntegerRecommendedDuring the past two weeks, did subject ever feel fretful, angry, irritable, anxious, or depressed?0::30 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
hui35IntegerRecommendedHow often did the subject feel fretful, angry, irritable, anxious or depressed?1::61=Rarely; 2= Don't Know; 3=Refused; 4=Occasionally; 5=Often; 6=Almost always
hui36IntegerRecommendedDuring the past two weeks did the subject feel extremely fretful, angry, irritable, anxious or depressed, to the point of needing professional help?0::30 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
hui37IntegerRecommendedHow would you describe the subject's ability to remember things, during the past two weeks:1::61=Able to remember most things; 2=Don't Know; 3=Refused; 4=Somewhat forgetful; 5=Very forgetful; 6=Unable to remember anything at all
hui38IntegerRecommendedHow would you describe the subject's ability to think and solve day-to-day problems, during the past two weeks:1::71 = Able to think clearly and solve problems; 2 = Don't Know; 3 = Refused; 4 = Had a little difficulty; 5 = Had some difficulty; 6 = Had a great deal of difficulty; 7 =Unable to think or solve problems
hui39IntegerRecommendedHas the subject had any trouble with pain or discomfort, during the past two weeks?0::30 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
hui40IntegerRecommendedHow many of the subject's activities, during the past two weeks, were limited by pain or discomfort?1::71 = None; 2 = Don't Know; 3 = Refused; 4 = A few; 5 = Some; 6 = Most; 7 = All
hui41IntegerRecommendedOverall, how would you rate the subject's health during the past two weeks?1::71 = Excellent; 2 = Don't Know; 3 = Refused; 4 = Very good; 5 = Good; 6 = Fair; 7 = Poor
visionIntegerRecommendedVision LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_visionFloatRecommendedVision Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_vision_sFloatRecommendedHearling LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_hearingFloatRecommendedHearing Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_hear_sFloatRecommendedSpeech LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_speechFloatRecommendedSpeech Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_speech_sFloatRecommendedAmbulation LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_ambulFloatRecommendedAmbulation Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_ambul_sFloatRecommendedDexterity LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_dexterFloatRecommendedDexterity Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_dexter_sFloatRecommendedEmotion LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_emotionFloatRecommendedEmotional Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_emotn_sFloatRecommendedCognition LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_cognitFloatRecommendedCognition Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_cognit_sFloatRecommendedPain LevelRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_painFloatRecommendedPain Utility ScoreRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_pain_sFloatRecommendedHUI Comprehensive Health StatusRefer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
hui_tsFloatRecommendedTotal score
visitString50RecommendedVisit nameCharacter description of each type of visit
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: healthui01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.