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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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HOME Interview

home_scale

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
respondentString20RecommendedRespondentMother;Father;Both; Child; Other; Parent
home_scale1IntegerRecommendedHow many times does your child get out of the house per week for activities other than school (e.g., sports, extracurricular activities, activities with the family)?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale2IntegerRecommendedAbout how many books does your child have?0::30=0-5; 1=6-10; 2=11-20; 3=21+
home_scale3IntegerRecommendedWhen your child was under the age of five, about how many times per week did you read to them?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale4IntegerRecommendedHow many times per month do you take your child on errands with you outside the house?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale5IntegerRecommendedDo you believe that parents should usually or always spend time teaching their kids?0;10=No; 1=Yes
home_scale6IntegerRecommendedHow many meals do you eat with your child each day?
home_scale7IntegerRecommendedHow many times has your child been spanked in the past week?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale8IntegerRecommendedDoes your family subscribe to at least one magazine?0;10=No; 1=Yes
home_scale9IntegerRecommendedDoes your child have access to music?0;10=No; 1=Yes
home_scale10IntegerRecommendedDid you and/or your partner teach your child numbers at home?0;10=No; 1=Yes
home_scale11IntegerRecommendedDid you and/or your partner teach your child the alphabet at home?0;10=No; 1=Yes
home_scale12IntegerRecommendedDid you and/or your partner teach your child colors at home?0;10=No; 1=Yes
home_scale13IntegerRecommendedDid you and/or your partner teach your child shapes and sizes at home?0;10=No; 1=Yes
home_scale14IntegerRecommendedDoes your child have a choice about the foods they eat for breakfast and lunch?0;10=No; 1=Yes
home_scale15IntegerRecommendedIs the TV on less than 5 hours per day in your home?0;10=No; 1=Yes
home_scale16IntegerRecommendedHave you taken your child to a museum in the past year?0;10=No; 1=Yes
home_scale17IntegerRecommendedIs your child expected to make his/her bed?0;10=No; 1=Yes
home_scale18IntegerRecommendedIs your child expected to clean his/her own room?0;10=No; 1=Yes
home_scale19IntegerRecommendedIs your child expected to clean up after they spill something?0;10=No; 1=Yes
home_scale20IntegerRecommendedIs your child expected to pick up after themselves?0;10=No; 1=Yes
home_scale21IntegerRecommendedIs your child expected to keep shared living areas clean?0;10=No; 1=Yes
home_scale22IntegerRecommendedIs your child expected to do chores such as mow the lawn, help with dinner, or do the dishes?0;10=No; 1=Yes
home_scale23IntegerRecommendedIs your child expected to help manage his or her own time?0;10=No; 1=Yes
home_scale24IntegerRecommendedIs there a musical instrument in your home that your child can use?0;10=No; 1=Yes
home_scale25IntegerRecommendedDoes your family receive a daily newspaper?0;10=No; 1=Yes
home_scale26IntegerRecommendedHow many times a week does your child read for enjoyment?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale27IntegerRecommendedDo you and your partner encourage your child to have hobbies?0;10=No; 1=Yes
home_scale28IntegerRecommendedIs your child involved with any sports, music, art, dance, or drama organizations?0;10=No; 1=Yes
home_scale29IntegerRecommendedHas your child been taken to a musical or drama performance in the past year?0;10=No; 1=Yes
home_scale30IntegerRecommendedDoes your family visit with other family or friends at least 2-3 times per month?0;10=No; 1=Yes
home_scale31IntegerRecommendedHow many times per week does your child spend time with their father?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale32IntegerRecommendedHow often does your child participate in outdoor activities with their father (per week)?0::30=0; 1=1-3; 2=4-6; 3=7+
home_scale33IntegerRecommendedDo you discuss television programs with your child when watching TV?0;10=No; 1=Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: home_scale01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.