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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Description
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Data Structures with shared data
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Health of Nation Outcomes Scales

hon

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectpatid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmenthont0
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other malehonrel1
respond_detail_oth_specString255RecommendedRespondent detailshonrelo
hon1rtuIntegerRecommendedScale 1: Problems with disruptive, antisocial or aggressive behavior0::40 = No problems of this kind during the past month 1 = Minor quarrelling, demanding behavior, undueirritability, lying to avoid getting into trouble, etc.2 = Mild but definitely disruptive or antisocial behavior, lesser damage to property or aggression, or defiant behavior. Behavior occurs more than a typical child his/her age3 = Moderately severe aggressive or antisocial behavior such as fighting or persistently threatening or very oppositional or more serious destruction to property or moderate delinquent acts.4 = Disruptive in almost all activities, or at least one serious physical attack on others or animals, or serious destruction to property.hon_q1
hon2rtuIntegerRecommendedScale 2: Problems with overactivity, attention or concentration0::40 = No problems of this kind during the past month 1 = Slight overactivity or minor restlessness, etc.2 = Mild but definite overactivity and/or attentional problems, but these can usually be controlled3 = Moderately severe overactivity and/or attentional problems that are sometimes uncontrollable4 = Severe overactivity and/or attentional problems that are present in most activities and almost never controllablehon_q2
hon3rtuIntegerRecommendedScale 3: Non-accidental self-injury0::40 = No problem of this kind during the past month 1 = Occasional thoughts about death, or of self-harm not leading to injury. No self-harm or suicidal thoughts.2 = Non-hazardous self-harm, such as wrist scratching, whether or not associated with suicidal thoughts.3 = Moderately severe suicidal intent or moderate non-hazardous self-harm4 = Serious suicidal attempt or serious deliberate self-injuryhon_q3
hon4rtuIntegerRecommendedScale 4: Problems with alcohol, substance/solvent misuse0::40 = No problems of this kind during the past month 1 = Minor alcohol or drug use, within age norms2 = Mildly excessive alcohol or drug use3 = Moderately severe drug or alcohol problems significantly out of keeping with age norms4 = Severe drug or alcohol problems leading to dependency or incapacityhon_q4
hon5rtuIntegerRecommendedScale 5: Problems with scholastic or language skills0::40 = No problems of this kind during the past month 1 = Minor impairment within the normal range ofvariation2 = Mild but definite impairment of clinical significance3 = Moderately severe problems, below the level expected on the basis of mental age, past performance or physical disability4 = Severe impairment much below the level expected on the basis of mental age, past performance or physical disabilityhon_q5
hon6rtuIntegerRecommendedScale 6: Physical illness or disability problems0::40 = No incapacity as a result of physical health problem during the past month1 = Slight incapacity as a result of a health problem during the period2 = Physical health problem imposes mild but definite functional restriction3 = Moderate degree of restriction on activity due to a physical health problem4 = Complete or severe incapacity due to physical health problemshon_q6
hon7rtuIntegerRecommendedScale 7: Problems associated with hallucination, delusions or abnormal perceptions0::40 = No evidence of abnormal thought or perceptions during the past month1 = Somewhat odd or eccentric beliefs not in keeping with cultural norms2 = Abnormal thoughts or perceptions are present, but there is little distress or manifestation in bizarre behavior, i.e., clinically present but mild3 = Moderate preoccupation with abnormal thoughts or perceptions or delusions, hallucinations, causing much distress and/or manifested in obviously bizarre behavior.4 = Mental state and behavior is seriously and adversely affected by delusions or hallucinations or abnormal perceptions, with severe impact on child/adolescent or othershon_q7
hon8rtuIntegerRecommendedScale 8: Problems with non-organic somatic symptoms0::40 = No problems of this kind during the past month 1 = Slight problems only; such as occasionalenuresis, minor sleep problems, headaches or stomach aches without organic basis2 = Mild but definite problem with non-organic somatic symptoms3 = Moderately severe, symptoms produce a moderate degree of restriction in some activities4 = Very severe or symptoms persist into most activities. The child is seriously or adversely affectedhon_q8
hon9rtuIntegerRecommendedScale 9: Problems with emotional and related symptoms0::40 = No evidence of depression, anxieties, fears or phobias during the past month1 = Mildly anxious; gloomy; or transient mood changes2 = A mild but definite emotional symptom is clinically present, but is not preoccupying3 = Moderately severe emotional symptoms, which are preoccupying, intrude into some activities and are uncontrollable at least sometimes4 = Severe emotional symptoms which intrude into all activities and are nearly always uncontrollablehon_q9
hon10rtuIntegerRecommendedScale 10: Problems with peer relationships0::40 = No significant problems during the past month 1 = Either transient or slight problems, occasionalsocial withdrawal2 = Mild but definite problems in making or sustaining peer relationships. Problems causing distress due to social withdrawal3 = Moderate problems due to active or passive withdrawal from social relationships,over-intrusiveness and/or to relationships that provide little or no comfort or support: e.g., as a result of being severely bullied4 = Severe social isolation with no friends due to inability to communicate socially and/or withdrawal from social relationshipshon_q10
hon11rtuIntegerRecommendedScale 11: Problems with self-care and independence0::40 = No problems during the past month; good ability to function in all areas1 = Minor problems only; e.g., untidy, disorganized 2 = Self-care adequate, but definite inability toperform one or more complex skills3 = Major problems in one or more areas of self- care or inability to perform several complex skills4 = Severe disability in all or nearly all areas of self-care and/or complex skillshon_q11
hon12rtuIntegerRecommendedScale 12: Problems with family life and relationships0::40 = No problems during the past month 1 = Slight or transient problems2 = Mild but definite problem, e.g., some episode of neglect or hostility or enmeshment or overprotection3 = Moderate problems, e.g., neglect, abuse, hostility. Problems associated with family/carer breakdown or reorganization4 = Serious problems with child feeling or being victimized, abused or seriously neglected by family or carerhon_q12
hon13rtuIntegerRecommendedScale 13: Poor school attendance0::40 = No problems of this kind during the past month 1 = Slight problems, e.g., late for two or morelessons2 = Definite but mild problems, e.g., missed several lessons because of truancy or refusal to go to school3 = Marked problems, absent several days during the period rated4 = Severe problems, absent most or all days. Any school suspension, exclusion or expulsion for any cause during the period ratedhon_q13
hon1rtIntegerRecommendedScale 1: Problems with disruptive, antisocial or aggressive behavior (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON1RT missing then HON1RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Minor quarrelling, demanding behavior, undueirritability, lying to avoid getting into trouble, etc.2 = Mild but definitely disruptive or antisocial behavior, lesser damage to property or aggression, or defiant behavior. Behavior occurs more than a typical child his/her age3 = Moderately severe aggressive or antisocial behavior such as fighting or persistently threatening or very oppositional or more serious destruction to property or moderate delinquent acts.4 = Disruptive in almost all activities, or at least one serious physical attack on others or animals, or serious destruction to property.hon1
hon2rtIntegerRecommendedScale 2: Problems with overactivity, attention or concentration (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON2RT missing then HON2RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Slight overactivity or minor restlessness, etc.2 = Mild but definite overactivity and/or attentional problems, but these can usually be controlled3 = Moderately severe overactivity and/or attentional problems that are sometimes uncontrollable4 = Severe overactivity and/or attentional problems that are present in most activities and almost never controllablehon2
hon3rtIntegerRecommendedScale 3: Non-accidental self-injury (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON3RT missing then HON3RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problem of this kind during the past month 1 = Occasional thoughts about death, or of self-harm not leading to injury. No self-harm or suicidal thoughts.2 = Non-hazardous self-harm, such as wrist scratching, whether or not associated with suicidal thoughts.3 = Moderately severe suicidal intent or moderate non-hazardous self-harm4 = Serious suicidal attempt or serious deliberate self-injuryhon3
hon4rtIntegerRecommendedScale 4: Problems with alcohol, substance/solvent misuse (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON4RT missing then HON4RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Minor alcohol or drug use, within age norms2 = Mildly excessive alcohol or drug use3 = Moderately severe drug or alcohol problems significantly out of keeping with age norms4 = Severe drug or alcohol problems leading to dependency or incapacityhon4
hon5rtIntegerRecommendedScale 5: Problems with scholastic or language skills (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON5RT missing then HON5RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Minor impairment within the normal range ofvariation2 = Mild but definite impairment of clinical significance3 = Moderately severe problems, below the level expected on the basis of mental age, past performance or physical disability4 = Severe impairment much below the level expected on the basis of mental age, past performance or physical disabilityhon5
hon6rtIntegerRecommendedScale 6: Physical illness or disability problems (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON6RT missing then HON6RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No incapacity as a result of physical health problem during the past month1 = Slight incapacity as a result of a health problem during the period2 = Physical health problem imposes mild but definite functional restriction3 = Moderate degree of restriction on activity due to a physical health problem4 = Complete or severe incapacity due to physical health problemshon6
hon7rtIntegerRecommendedScale 7: Problems associated with hallucination, delusions or abnormal perceptions (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON7RT missing then HON7RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No evidence of abnormal thought or perceptions during the past month1 = Somewhat odd or eccentric beliefs not in keeping with cultural norms2 = Abnormal thoughts or perceptions are present, but there is little distress or manifestation in bizarre behavior, i.e., clinically present but mild3 = Moderate preoccupation with abnormal thoughts or perceptions or delusions, hallucinations, causing much distress and/or manifested in obviously bizarre behavior.4 = Mental state and behavior is seriously and adversely affected by delusions or hallucinations or abnormal perceptions, with severe impact on child/adolescent or othershon7
hon8rtIntegerRecommendedScale 8: Problems with non-organic somatic symptoms (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON8RT missing then HON8RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Slight problems only; such as occasionalenuresis, minor sleep problems, headaches or stomach aches without organic basis2 = Mild but definite problem with non-organic somatic symptoms3 = Moderately severe, symptoms produce a moderate degree of restriction in some activities4 = Very severe or symptoms persist into most activities. The child is seriously or adversely affectedhon8
hon9rtIntegerRecommendedScale 9: Problems with emotional and related symptoms (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON9RT missing then HON9RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No evidence of depression, anxieties, fears or phobias during the past month1 = Mildly anxious; gloomy; or transient mood changes2 = A mild but definite emotional symptom is clinically present, but is not preoccupying3 = Moderately severe emotional symptoms, which are preoccupying, intrude into some activities and are uncontrollable at least sometimes4 = Severe emotional symptoms which intrude into all activities and are nearly always uncontrollablehon9
hon10rtIntegerRecommendedScale 10: Problems with peer relationships (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON10RT missing then HON10RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No significant problems during the past month 1 = Either transient or slight problems, occasionalsocial withdrawal2 = Mild but definite problems in making or sustaining peer relationships. Problems causing distress due to social withdrawal3 = Moderate problems due to active or passive withdrawal from social relationships,over-intrusiveness and/or to relationships that provide little or no comfort or support: e.g., as a result of being severely bullied4 = Severe social isolation with no friends due to inability to communicate socially and/or withdrawal from social relationshipshon10
hon11rtIntegerRecommendedScale 11: Problems with self-care and independence (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON11RT missing then HON11RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems during the past month; good ability to function in all areas1 = Minor problems only; e.g., untidy, disorganized 2 = Self-care adequate, but definite inability toperform one or more complex skills3 = Major problems in one or more areas of self- care or inability to perform several complex skills4 = Severe disability in all or nearly all areas of self-care and/or complex skillshon11
hon12rtIntegerRecommendedScale 12: Problems with family life and relationships (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON12RT missing then HON12RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems during the past month 1 = Slight or transient problems2 = Mild but definite problem, e.g., some episode of neglect or hostility or enmeshment or overprotection3 = Moderate problems, e.g., neglect, abuse, hostility. Problems associated with family/carer breakdown or reorganization4 = Serious problems with child feeling or being victimized, abused or seriously neglected by family or carerhon12
hon13rtIntegerRecommendedScale 13: Poor school attendance (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON13RT missing then HON13RT = integer(median of non-missing HON1RTU through HON13RTU)0::40 = No problems of this kind during the past month 1 = Slight problems, e.g., late for two or morelessons2 = Definite but mild problems, e.g., missed several lessons because of truancy or refusal to go to school3 = Marked problems, absent several days during the period rated4 = Severe problems, absent most or all days. Any school suspension, exclusion or expulsion for any cause during the period ratedhon13
hontotIntegerRecommendedHoNOSCA Total Score using imputed values0::52Items included in score: HON1RT through HON13RT
bsimoFloatRecommendedMonths from Time 0 to assessmenthonmo
bsistmFloatRecommendedMonths from SOFTAD enrollment date to assessmenthonstm
visitString50RecommendedVisit nameCharacter description of each type of visit
hon13refIntegerRecommendedSchool/work reference1;21=School; 2=work
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: hon01 and Element:
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