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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Home Visit Assessment

hv

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Site
daysrzIntegerRecommendeddays since randomization
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
form_completedIntegerRecommendedWas the form completed?1;21=Yes; 2=No
s1q1IntegerRecommended1. Is the household safety proofed for the child (unsafe materials out of reach, no obvious hazards present)?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q2IntegerRecommended2. Is the household organized to promote play in certain areas of the home?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q3IntegerRecommended3. Does the child have easy access to preferred play activities?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q4IntegerRecommended4. Does the child have developmentally appropriate toys/activities available?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q5IntegerRecommended5. Does the layout of the home allow for a safe play area?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q6IntegerRecommended6. Does the layout of the home allow parent supervision of the child while completing other household tasks?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q7IntegerRecommended7. Are there toys and materials to teach and stimulate learning (i.e. books, computer with learning software, or other learning materials)?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s1q8IntegerRecommended8. Are there materials/toys to promote gross motor skills (playground area, bikes, trampoline)?0; 1; 2; 90=Not observed or not present; 1=Somewhat, but not consistent; 2=Observed where or when appropriate; 9=N/A (Not applicable)
s2q1aIntegerRecommended1.Does the parent spontaneously communicate with the child (excluding making requests or reprimanding)?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s2q2aIntegerRecommended2. Does the parent spontaneously verbally reinforce the child for appropriate behavior?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s2q3aIntegerRecommended3. Does the parent attend to and reinforce the child's communication attempts?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s2q4aIntegerRecommended4. Does the parent use antecedent or prevent approaches to manage the child?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s2q5aIntegerRecommended5. Does the parent use minimal physical guidance?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s2q6aIntegerRecommended6. Does the parent provide the child with appropriate activities?0::8;-90=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
s3q1aIntegerRecommended1.Daily Schedule Followed0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q2aIntegerRecommended2.Visual Schedule for Child Used0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q3aIntegerRecommended3.Other Visual Prompts/Cues Used0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q4aIntegerRecommended4.Contingent Verbal Reinforcement Used0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q5aIntegerRecommended5.Verbal Reinforcement paired with Tangible Reinforcer0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q6aIntegerRecommended6.Use of Token Economy Used0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q7aIntegerRecommended7.Parent reinforces compliance0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q8aIntegerRecommended8.Parent appropriately addresses noncompliance0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q9aIntegerRecommended9.Parent encourages functional communication behavior and reinforces child for using0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q10aIntegerRecommended10. Parent uses appropriate teaching skills to promote new skill0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q11aIntegerRecommended11. Parent uses planned ignoring as intended0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q12aIntegerRecommended12. Parent uses timeout as intended0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q13dtlString200Recommended13. Other parenting strategies observed(1) - specify:
s3q13aIntegerRecommended13. Other strategy in place(1) (specify)0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s3q14dtlString200Recommended14. Other parenting strategies observed(2) - specify:
s3q14aIntegerRecommended14. Other strategy in place(2) (specify)0::8;-90= Not observed or not present; 1 = Not observed or not present (Parent used independently); 2 = Not observed or not present (Parent used, but was prompted by clinician); 3=Observed, but not used consistently; 4 = Observed, but not used consistently (Parent used independently); 5 = Observed, but not used consistently (Parent used, but was prompted by clinician); 6= Observed where or when appropriate; 7 = Observed where or when appropriate (Parent used independently); 8 = Observed where or when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
s4q1IntegerRecommended1. Observations relevant for Prevention Strategies0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q2IntegerRecommended2. Observations relevant for Reinforcement Strategies0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q3IntegerRecommended3. Observations relevant for Compliance Training0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q4IntegerRecommended4. Observations relevant for Use of Planned Ignoring0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q5IntegerRecommended5. Observations relevant for Functional Communication Training0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q6IntegerRecommended6. Observations relevant for Teaching Skills0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q7IntegerRecommended7. Observations relevant for Generalization and Maintenance0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q8IntegerRecommended8. Observations relevant for Time Out0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q9IntegerRecommended9. Observations relevant for Token Economy or Contingency Contracting0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
s4q10dtlString200Recommended10. Observations relevant for Other (specify):
s4q10IntegerRecommended10. Observations relevant for Other (specify)0; 1; 2; -90=No; 1=Partial; 2=Yes; -9=N/A
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: hv01 and Element:
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