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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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IAN Treatment Start

ian_treatment_start

02

Treatment start measures as defined by the Interactive Autism Network (IAN)

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*null
iantreatmentcomponentidIntegerRecommendedtreatment_component_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#treatment_component_idtreatment_component_id
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.influenced_decision
ianinfluenceddecisionIntegerRecommendedinfluenced_decision, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#influenced_decisionage_in_years
ianrequireprescriptionIntegerRecommendedrequire_prescription, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#require_prescriptionrequire_prescription
ianwhoprescribedIntegerRecommendedwho_prescribed, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#who_prescribedwho_prescribed
ianfundingsourceIntegerRecommendedfunding_source, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#funding_sourcefunding_source
ianobtainingtherapies1IntegerRecommendedobtaining_therapies_1, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_1obtaining_therapies_1
ianobtainingtherapies2IntegerRecommendedobtaining_therapies_2, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_2obtaining_therapies_2
ianobtainingtherapies3IntegerRecommendedobtaining_therapies_3, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_3obtaining_therapies_3
ianobtainingtherapies4IntegerRecommendedobtaining_therapies_4, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_4obtaining_therapies_4
ianobtainingtherapies5IntegerRecommendedobtaining_therapies_5, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_5obtaining_therapies_5
ianobtainingtherapies6IntegerRecommendedobtaining_therapies_6, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_6obtaining_therapies_6
ianobtainingtherapies7IntegerRecommendedobtaining_therapies_7, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_7obtaining_therapies_7
ianobtainingtherapies8IntegerRecommendedobtaining_therapies_8, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_8obtaining_therapies_8
ianobtainingtherapiesotherIntegerRecommendedobtaining_therapies_other, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#obtaining_therapies_otherobtaining_therapies_other
ianworkupsatisfactionIntegerRecommendedwork_up_satisfaction, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#work_up_satisfactionwork_up_satisfaction
iantargetsymptoms1IntegerRecommendedtarget_symptoms_1, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_1target_symptoms_1
iantargetsymptoms2IntegerRecommendedtarget_symptoms_2, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_2target_symptoms_2
iantargetsymptoms3IntegerRecommendedtarget_symptoms_3, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_3target_symptoms_3
iantargetsymptoms4IntegerRecommendedtarget_symptoms_4, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_4target_symptoms_4
iantargetsymptoms5IntegerRecommendedtarget_symptoms_5, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_5target_symptoms_5
iantargetsymptoms6IntegerRecommendedtarget_symptoms_6, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_6target_symptoms_6
iantargetsymptoms7IntegerRecommendedtarget_symptoms_7, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_7target_symptoms_7
iantargetsymptoms8IntegerRecommendedtarget_symptoms_8, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_8target_symptoms_8
iantargetsymptomsotherIntegerRecommendedtarget_symptoms_other, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#target_symptoms_othertarget_symptoms_other
ianexpectedimprovementIntegerRecommendedexpected_improvement, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#expected_improvementexpected_improvement
ianpotentialriskIntegerRecommendedpotential_risk, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#potential_riskpotential_risk
ianexpectedburdenIntegerRecommendedexpected_burden, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#expected_burdenexpected_burden
ianexperiencetodateIntegerRecommendedexperience_to_date, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#experience_to_dateexperience_to_date
ianimprovementIntegerRecommendedimprovement, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#improvementimprovement
ianworseningIntegerRecommendedworsening, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#worseningworsening
ianinsurancecoverageIntegerRecommendedinsurance_coverage, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#insurance_coverageinsurance_coverage
iancostpermonthFloatRecommendedcost_per_month, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=59#cost_per_monthcost_per_month
ianianresearchidString10RecommendedIAN_Research_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#IAN_Research_idIAN_Research_id
ianrecordnumberIntegerRecommendedrecord_number, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#record_numberrecord_number
iandonotdeleteFloatRecommendedDO_NOT_DELETE, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#DO_NOT_DELETEDO_NOT_DELETE
ianformcompletedIntegerRecommendedform_completed, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#form_completedform_completed
ianscientificversionString20Recommendedscientific_version, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#scientific_versionscientific_version
ianyearofassessmentIntegerRecommendedyear_of_assessment, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#year_of_assessmentyear_of_assessment
ianinformantidString10Recommendedinformant_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#informant_idinformant_id
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ian_treatment_start02 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.