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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Data Structures with shared data
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Inventory of Depressive Symptomatology



Clinician and Self Report

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
crcidString40RecommendedCRC ID/ROA IDroaid
levelString10RecommendedTreatment level
monthIntegerRecommendedMonth in Follow-Up
days_baselineIntegerRecommendedDays since baselinedate
time_pointIntegerRecommendedAssessment time point5= Screening; 10= Baseline; 21, 22, 23 = Mid-point 1, 2, 3; 30= End-of-treatment; 41, 42, 43= Follow-up1, 2, 3 etc.timept
updateIntegerRecommendedUpdated form0;11=Updated
lang_visitIntegerRecommendedLanguage during visit0;11=Spanish; 0=Englishspanish
isoinIntegerRecommendedSleep onset insomnia0::3; -990=Never takes longer than 30 minutes to fall asleep; 1=Takes at least 30 minutes to fall asleep less than half the time; 2=Takes at least 30 minutes to fall asleep more than half the time; 3=Takes more than 60 minutes to fall asleep more than half the time; -99=missingfallslp, onsetinsom_ids, sleepo
imninIntegerRecommendedMid-Nocturnal insomnia0::3; -990=Does not wake up at night; 1=Restless light sleep with few awakenings; 2=Wakes up at least once a night but goes back to sleep easily; 3=Awakens more than once a night and stays awake for 20 minutes or more more than half the time; -99=missingmidinsom_ids, nocturn, slpnight
ieminIntegerRecommendedEarly morning insomnia0::3; -990=Less than half the time awakens no more than 30 minutes before necessary; 1=More than half the time awakens more than 30 minutes before need be; 2=Awakens at least one hour before need be more than half the time; 3=Awakens at least two hours before need be more than half the time; -99=missingearlyinsom_ids, earlywak, morning
ihysmIntegerRecommendedHypersomnia0::3; -990=Sleeps no longer than 7-8 hours per night without naps; 1=Sleeps no longer than 10 hours in a 24 hour period including naps; 2=Sleeps no longer than 12 hours in a 24 hour period including naps; 3=Sleeps longer than 12 hours in a 24 hour period including naps; -99=missinghyperinsom_ids, hyperso, slp2much
imdsdIntegerRecommendedMood (sad)0::3; -990=Does not feel sad; 1=Feels sad less than half the time; 2=Feels sad more than half the time; 3=Feels intensely sad virtually all of the time; -99=missingfeelsad, moods, sad_ids
ianxIntegerRecommendedMood (anxious)0::3; -990=Does not feel anxious or tense; 1=Feels anxious or tense less than half the time; 2=Feels anxious or tense more than half the time; 3=Feels extremely anxious or tense virtually all of the time; -99=missinganxious, anxious_ids, mooda
ipancIntegerRecommendedPanic/phobic symptoms0::3; -990=Has neither panic episodes nor phobic symptoms; 1=Has mild panic episodes or phobias that do not usually alter behavior or incapacitate; 2=Has significant panic episodes or phobias that modify behavior but do not incapacitate; 3=Has incapacitating panic episodes at least once a week or severe phobias that lead to complete and regular avoidance behavior; -99=missingpanic, panic_ids
iirtbIntegerRecommendedMood (irritable)0::3; -990=Does not feel irritable; 1=Feels irritable less than half the time; 2=Feels irritable more than half the time; 3=Feels extremely irritable virtually all of the time; -99=missingirritabl, irritable_ids, moodi
irctIntegerRecommendedReactivity of mood0::3; -990=Mood brightens to normal level and lasts several hours when good events occur; 1=Mood brightens but does not feel like normal self when good events occur; 2=Mood brightend only somewhat with few selected and extremely desired events; 3=Mood does not brighten at all even when very good or desired events occur; -99=missingevents, react_ids, rmood
ivrtnIntegerRecommendedMood variation0::3; -990=Notes no regular relationship between mood and time of day; 1=Mood often relates to time of day due to environmental circumstances; 2=For most of the week mood appears more related to time of day than to events; 3=Mood is clearly predictably better or worse at a fixed time each day; -99=missingmoodv, moodvari_ids, timeofday
iwrseString20RecommendedMood worse inmdworse, mworse
ienvString10RecommendedMood attributed to environmentmdenvir, mvariat
iqtyIntegerRecommendedQuality of mood0::3; -7; -990=Mood is virtually identical to feelings associated with bereavement or is undisturbed; 1=Mood is largely like sadness in bereavement although it may lack explanation or be associated with more anxiety or be much more intense; 2=Less than half the time mood is qualitatively distinct from grief and therefore difficult to explain to others; 3=Mood is qualitatively distinct from grief nearly all of the time; -7=refused; -99=missingmdqual, moodqual_ids, qmood
iapdcIntegerRecommendedAppetite (decreased)0::3; -990=No change from usual appetite; 1=Eats somewhat less often and/or lesser amounts than usual; 2=Eats much less than usual and only with personal effort; 3=Eats rarely within a 24 hour period and only with extreme personal effort or with persuasion by others; -99=missingappdec, appdec_ids, appetd
iapinIntegerRecommendedAppetite (increased)0::3; -990=No change from usual appetite; 1=More frequently feels a need to eat than usual; 2=Regularly eats more often and/or greater amounts than usual; 3=Feels driven to overeat at and between meals; -99=missingappeti, appinc_ids, apptinc
iwtdcIntegerRecommendedWeight (decrease) last 2 weeks0::3; -7; -990=Has experienced no weight change; 1=Feels as if some slight weight loss has occurred; 2=Has lost 2 pounds or more; 3=Has lost 5 pounds or more; -7= refused; -99=missingweighd, wghtdec_ids, wgtdec
iwtinIntegerRecommendedWeight (increase) last 2 weeks0::3; -990=Has experienced no weight change; 1=Feels as if some slight weight gain has occurred; 2=Has gained 2 pounds or more; 3=Has gained 5 pounds or more; -99=missingweighi, wghtinc_ids, wgtinc
icntrIntegerRecommendedConcentration/decision making0::3; -990=No change in usual capacity to concentrate and decide; 1=Occasionally feels indecicive or notes that affection often wanders; 2=Most of the time struggles to focus attention or make decisions; 3=Cannot concentrate well enough to read or cannot make even minor decisions; -99=missingconcent, decide_ids, decision
ivwsfIntegerRecommendedOutlook (self)0::3; -7; -990=Sees self as equally worthwhile and deserving as others; 1=Is more self blaming than usual; 2=Largely believes that he/she causes problems for others; 3=Ruminates over major and minor defects in self; -7=refused; -99=missingoutlooks, selfview_ids, vwself
ivwfrIntegerRecommendedOutlook (future)0::3; -990=Views future with usual optimism; 1=Occasionally has pessimistic outlook that can be displaced by others or events; 2=Largely pessimistic for the near future; 3=Sees no hope for self or situation anytime in the future; -99=missingoutlook_ids, outlookf, vwfuture
isuicIntegerRecommendedSuicidal Ideation0::3; -990=Does not think of suicide or death; 1=Feels life is empty or is not worth living; 2=Thinks of suicide/death several times a week for several minutes; 3=Thinks of suicide/death several times a day in depth or has made specific plans or attempted suicide; -99=missingsuicid, suicidal_ids, thoughts
iintrIntegerRecommendedInvolvement0::3; -990=No change from usual level of interest in other people and activities; 1=Notices a reduction in former interests/activities; 2=Finds only one or two former interests remain; 3=Has virtually no interest in formerly pursued activities; -99=missinginterest, interests_ids, involve
iplsrIntegerRecommendedPleasure/enjoyment0::3; -990=Participates in and derives usual sense of enjoyment from pleasurable activities; 1=Does not feel usual enjoyment from pleasurable activities; 2=Rarely derives pleasure from any activities; 3=Is unable to register any sense of pleasure or enjoyment from anything; -99=missingenjoymt, pleasure, pleasure_ids
iengyIntegerRecommendedEnergy/fatigability0::3; -990=No change in usual level of energy; 1=Tires more easily than usual; 2=Makes significant personal effort to maintain usual daily activities; 3=Unable to carry out most of usual daily activities due to lack of energy; -99=missingenergy_ids, energyf, enerlvl
isexIntegerRecommendedSexual interest0::3; -7; -990=Has usual interest in or derives usual pleasure from sex; 1=Has near usual interest in or derives some pleasure from sex; 2=Has little desire for or rarely derives pleasure from sex; 3=Has absolutely no interest in or derives no pleasure from sex; -7=refused; -99=missingintsex, sexual, sexual_ids
islowIntegerRecommendedPsychomotor slowing0::3; -990=Normal speed of thinking/gesturing/speaking; 1=Patient notes slowed thinking and voice modulation is reduced; 2=Takes several seconds to respond to most questions and reports slowed thinking; 3=Is largely unresponsive to most questions without strong encouragement; -99=missingpmslow_ids, psycslow, slowdown
iagitIntegerRecommendedPsychomotor agitation0::3; -990=No increased speed or disorganization in thinking or gesturing; 1=Fidgets and wrings hands and shifts positions often; 2=Describes impulse to move about and displays motor restlessness; 3=Unable to stay seated and paces about with or without permission; -99=missingpmrestless_ids, psycagit, restless
ismtcIntegerRecommendedSomatic complaints0::3; -7; -990=States there is no feeling of limb heaviness or pains; 1=Complains of headaches/abdominal/back/joint pains that are intermittent and not disabling; 2=Complains that the above pains are present most of the time; 3=Functional impairment results from above; -7=refused; -99=missingachepain, pains_ids, somatic
isympIntegerRecommendedSympathetic arousal0::3; -7; -990=Reports no palpitations/tremors/blurred vision/tinnitus/increased sweating/dyspnea/hot and cold flashes/chest pain; 1=The above are mild and only intermittently present; 2=The above are moderate and present more than half the time; 3=The above result in functional impairment; -7=refused; -99=missingothersx, sympath, symptoms_ids
igasIntegerRecommendedGastrointestinal0::3; -990=Has no change in usual bowel habits; 1=Has intermittent constipation and/or diarrhea that is mild; 2=Has diarrhea and/or constipation most of the time that does not impair functioning; 3=Has intermittent presence of constipation and/or diarrhea that requires treatment or causes functional impairment; -99=missingconstip, gastro, gastro_ids
iintpIntegerRecommendedInterpersonal sensitivity0::3; -990=Has not felt easily rejected/slighted/criticized/hurt by others at all; 1=Occasionally feels rejected/slighted/criticized/hurt by others; 2=Often feels rejected/slighted/criticized/hurt by others but with only slight effects on social/occupational functioning; 3=Often feels rejected/slighted/criticized/hurt by others that results in impaired social/occupational functioning; -99=missingsensit, sensitive, sensitive_ids
ildnIntegerRecommendedLeaden paralysis/physical energy0::3; -990=Does not experience the physical sensation of feeling weighted down without physical energy; 1=Occasionally experiences periods of feeling physically weighted down and without physical energy but without a negative effect on work/school/activity level; 2=Feels physically weighted down without physical energy more than half the time; 3=Feels physically weighted down without physical energy most of the time for several hours per day for several days per week; -99=missingparal, paralysis_ids, phenergy
ictotIntegerRecommendedIDS total scoreids30, score_ids
qstotIntegerRecommendedQIDS total scoreids16, qidssrtot
phaseIntegerRecommendedPhase9 =follow up
weekFloatRecommendedWeek in level/study99=week 10-week 14week1
siteString100RecommendedSiteStudy Sitesiteid
version_formString100RecommendedForm used
sleepsumIntegerRecommendedSleep variable summaryThere are times when I feel "empty" inside.
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interviewphone
visitString50RecommendedVisit nameCharacter description of each type of visit
easy_itemString10RecommendedWhich 3 items (questions) were the easiest to understand
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: idsc01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.