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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Interval History Form

ihf

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
ihf_1IntegerRecommendedMy childs ability to pay attention has been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worseability2payattention
ihf_2IntegerRecommendedMy childs ability to understand and make choices has been1::51=Much better; 2=Better; 3=Same; 4=Worse; 5=Much worseability2understand
ihf_3IntegerRecommendedMy childs ability to get around has been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worseabilitytogetaround
ihf_4IntegerRecommendedMy child has demonstrated the ability to sit1::41=With some help; 2=Without help; 3=My child cannot sit alone; 4=My child cannot stand aloneabilitytosit
ihf_5IntegerRecommendedMy child has demonstrated the ability to stand1::41=With some help; 2=Without help; 3=My child cannot sit alone; 4=My child cannot stand aloneabilitytostand
ihf_6IntegerRecommendedMy child has been able to walk1::31=Independently; 2=Only with support; 3=My child cannot walk alone or with helpabilitytowalk
ihf_7IntegerRecommendedMy child has been aggressive and abusive to others hitting biting spitting1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neveraggressivechild
ihf_8IntegerRecommendedMy child has been anxious or nervous1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neveranxiousornervous
ihf_9IntegerRecommendedApplied Behavioral ABA1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthappliedbehavioral
ihf_10IntegerRecommendedAugmentative Communication for the visually impaired1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthaugmentativecommunication
ihf_11IntegerRecommendedAugmentative Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthaugmentativetherapy
ihf_12IntegerRecommendedBiggest Problem1::191=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-abbiggestproblem
ihf_13IntegerRecommendedFor the past 6 months the following single statement best describes my childs feeding abilities CHOOSE ONLY 1 ANSWER If 2 answers apply choose the most severe category Answers are ranked from less to more severe1::51=H.9.a. No difficulties with chewing or swallowing; 2=H.9.b. Occasional choking and/or gagging; 3=H.9.c. Largest meal of the day by mouth takes greater than 30 minutes; 4=H.9.d. Both eats by mouth and by gastrostomy; 5=H.9.e. Is fed by gastrostomy onlychildfeedingabilities
ihf_14IntegerRecommendedWhat type of school or day program does your child currently attend1::41=Attends a day-program or vocational program; 2=Does not attend school or day program; 3=Attends school full-time; 4=Attends school part-timechildschool
ihf_15IntegerRecommendedHow often has your child turned blue lips toes fingers1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverchildturnedblue
ihf_16IntegerRecommendedOver the past 6 months my childs hand use has been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worsechildshanduse
ihf_17IntegerRecommendedRegarding my childs mood on an average day shehe has been1::51=Very content; 2=Calm and/or content most of the day; 3=Calm and/or content about half the day; 4=Calm and/or content less than half the day; 5=Rarely calm or contentchildsmood
ihf_18IntegerRecommendedHow would you describe your childs overall function1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worsechildsoverallfunction
ihf_19IntegerRecommendedMy child has demonstrated choosing between objects presented1::51=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Neverchoosingbtwobjects
schoolotr_classroomString100RecommendedOther specify Type of classroomInclusion Classroom; Special Ed Classroom; Mixed Inclusion and Special Ed Classroom; Home schooled; Not applicable; Regular ESE; Gifted/Advanced; Otherclassroom
ihf_21IntegerRecommendedCombined Household Income0::80=Declined; 1=Less than $20,000; 2=$20,000 - $39,999; 3=$40,000 - $59,999; 4=$60,000 - $79,999; 5=$80,000 - $99,999; 6=$100,000 or more; 7=$60,000 - $99,000; 8=Refusedcombinedhouseholdincome
ihf_22IntegerRecommendedMy child has communicated using waving pointing or body gestures1::41=Normally; 2=With difficulty; 3=With great difficulty; 4=Not at allcommwthbodygestures
ihf_23IntegerRecommendedMy child has communicated using eye gaze1::41=Normally; 2=With difficulty; 3=With great difficulty; 4=Not at allcommwtheyegaze
ihf_24IntegerRecommendedMy childs ability to communicate with spoken language or sounds has been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worsecommwthspokenlangsounds
ihf_25IntegerRecommendedIn the past 6 months my childs ability to communicate without spoken language or sounds has been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worsecommwthoutspokenlangsounds
ihf_26IntegerRecommendedMy child has had cool hands or feet1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Nevercoolhandsorfeet
ihf_27IntegerRecommendedHow cool or cold1::51=Warm hands or feet; 2=Cool hands or feet; 3=Cold hands and feet;4= Cold, blue hands or feet; 5=Cold, blue hands and feetcoolorcold
ihf_28IntegerRecommendedWhat is the degree of your childs scoliosisdegreeofscoliosis
ihf_29IntegerRecommendedWhat is the degree of your childs scoliosis Unknown0; 10 = unchecked box; 1 = checked boxdegreeofscoliosisunknown
ihf_30IntegerRecommendedHas your childs teeth grinding led to dental work in the past 6 months0::20=No; 1=Minor dental work; 2=Major dental workdentalwork
ihf_31IntegerRecommendedIn the past 6 months my childs difficult behaviors have been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worsedifficultbehaviors
ihf_32IntegerRecommendedMy child has had difficulty falling asleep in the past 6 months1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverdifficultysleeping
ihf_33IntegerRecommendedIn the past 6 months has your child been treated for difficulty falling asleep0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlleddifficultysleepingtremt
ihf_34IntegerRecommendedMy child has difficulty staying asleep in the past 6 months1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverdifficultystayingasleep
ihf_35IntegerRecommendedIn the past 6 months has your child been treated for difficulty staying asleep0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlleddifficultystayingasleeptremt
ihf_36IntegerRecommendedMy child has had difficulty staying awake and alert during the day1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverdifficultystayingawaking
ihf_37IntegerRecommendedMy child has had difficulty waking up in the morning in the past 6 months1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverdifficultywakingup
ihf_38IntegerRecommendedMy child has been drooling1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverdrooling
ihf_39IntegerRecommendedFather Employment1::71=Employed; 2=Homemaker; 3=Student; 4=Retired; 5=Disabled; 6=Unemployed; 7=Unknownfatheremploymentstatus
ihf_40IntegerRecommendedFather Highest education1::81=No high school diploma or GED; 2=High school diploma or GED; 3=Some college, no bachelor's degree; 4=Bachelor's degree; 5=Advanced degree; 6=Unknown; 7=Declined; 8=Not applicablefatherhighesteducation
ihf_41IntegerRecommendedFather Occupation1::171=Never employed; 2=Management; 3=Business and Financial Operation; 4=Computer and Mathematical; 5=Architectural and Engineering; 6=Life, Physical and Social Science; Community and Social Service; 7=Legal; 8=Education, Training and Library; 9=Arts, Design, Entertainment, Sports, and Media; 10=Healthcare Practioners and Technical; 11=Healthcare Support; 12=Protective Service; 13=Food Preparation and Service Related; 14=Building and Grounds Cleaning and Maintenance;15= Personal Care and Service; 16=Sales and Related Occupations; 17=Officefatheroccupation
ihf_42IntegerRecommendedFeed themself1;21=alone; 2=hand-over-hand onlyfeedthemself
ihf_43IntegerRecommendedMy child has followed a spoken command when I use a gesture1::51=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Neverfollowwthgesture
ihf_44IntegerRecommendedMy child has followed a spoken command when I do not use a gesture1::51=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Neverfollowwthoutgesture
ihf_45IntegerRecommendedPoint or gesture with their finger1;21=alone; 2=hand-over-hand onlygesturewithfinger
ihf_46IntegerRecommendedPoint or gesture with their hand1;21=alone; 2=hand-over-hand onlygesturewithhand
ihf_47IntegerRecommendedGet Around Without Walk: Crawls0; 10 = unchecked box; 1 = checked boxgetaroundwithoutwalk_crawls
ihf_48IntegerRecommendedGet Around Without Walk: Creeps on belly (pulls self)0; 10 = unchecked box; 1 = checked boxgetaroundwithoutwalk_creepsonbel
ihf_49IntegerRecommendedGet Around Without Walk: Rolls0; 10 = unchecked box; 1 = checked boxgetaroundwithoutwalk_rolls
ihf_50IntegerRecommendedGet Around Without Walk: Scoots on bottom0; 10 = unchecked box; 1 = checked boxgetaroundwithoutwalk_scootsonbot
ihf_51IntegerRecommendedGet Around Without Walk: Unable to do any of these0; 10 = unchecked box; 1 = checked boxgetaroundwithoutwalk_unabletodoa
ihf_52IntegerRecommendedHand Movements:0; 10 = unchecked box; 1 = checked boxhandmovements
ihf_53IntegerRecommendedHand Movements: Chewing/licking0; 10 = unchecked box; 1 = checked boxhandmovements_chewinglicking
ihf_54IntegerRecommendedHand Movements: Clapping0; 10 = unchecked box; 1 = checked boxhandmovements_clapping
ihf_55IntegerRecommendedHand Movements: Finger rubbing0; 10 = unchecked box; 1 = checked boxhandmovements_fingerrubbing
ihf_56IntegerRecommendedHand Movements: Flapping in front of body0; 10 = unchecked box; 1 = checked boxhandmovements_flappinginfrontofb
ihf_57IntegerRecommendedHand Movements: Flapping next to body0; 10 = unchecked box; 1 = checked boxhandmovements_flappingnexttobody
ihf_58IntegerRecommendedHand Movements: Flicking (fingers, lips, etc.)0; 10 = unchecked box; 1 = checked boxhandmovements_flickingfingerslip
ihf_59IntegerRecommendedHand Movements: Flipping (pages)0; 10 = unchecked box; 1 = checked boxhandmovements_flippingpages
ihf_60IntegerRecommendedHand Movements: Hair twirling0; 10 = unchecked box; 1 = checked boxhandmovements_hairtwirling
ihf_61IntegerRecommendedHand Movements: Hand mouthing0; 10 = unchecked box; 1 = checked boxhandmovements_handmouthing
ihf_62IntegerRecommendedHand Movements: Hand wringing/washing0; 10 = unchecked box; 1 = checked boxhandmovements_handwringingwashin
ihf_63IntegerRecommendedHand Movements: Knitting fingers0; 10 = unchecked box; 1 = checked boxhandmovements_knittingfingers
ihf_64IntegerRecommendedHand Movements: None0; 10 = unchecked box; 1 = checked boxhandmovements_none
ihf_65IntegerRecommendedHand Movements: Picking (clothes, body, arms, etc.)0; 10 = unchecked box; 1 = checked boxhandmovements_pickingclothesbody
ihf_66IntegerRecommendedHand Movements: Posturing feet or legs0; 10 = unchecked box; 1 = checked boxhandmovements_posturingfeetorleg
ihf_67IntegerRecommendedHand Movements: Posturing hands or arms0; 10 = unchecked box; 1 = checked boxhandmovements_posturinghandsorar
ihf_68IntegerRecommendedHand Movements: Pulling hair0; 10 = unchecked box; 1 = checked boxhandmovements_pullinghair
ihf_69IntegerRecommendedHand Movements: Rubbing objects0; 10 = unchecked box; 1 = checked boxhandmovements_rubbingobjects
ihf_70IntegerRecommendedHand Movements: Scratching0; 10 = unchecked box; 1 = checked boxhandmovements_scratching
ihf_71IntegerRecommendedHand Movements: Squeezing (hands, body)0; 10 = unchecked box; 1 = checked boxhandmovements_squeezinghandsbody
ihf_72IntegerRecommendedHand Movements: Tapping/hitting (hands, surfaces)0; 10 = unchecked box; 1 = checked boxhandmovements_tappinghittinghand
ihf_73IntegerRecommendedHand Use Skill: Feed themself0; 10 = unchecked box; 1 = checked boxhanduseskill_feedthemself
ihf_74IntegerRecommendedHand Use Skill: Hits switches0; 10 = unchecked box; 1 = checked boxhanduseskill_hitsswitches
ihf_75IntegerRecommendedHand Use Skill: Hold a cup/bottle to drink0; 10 = unchecked box; 1 = checked boxhanduseskill_holdacupbottletodri
ihf_76IntegerRecommendedHand Use Skill: Modified pincer grasp (thumb/multiple fingers)0; 10 = unchecked box; 1 = checked boxhanduseskill_modifiedpincergrasp
ihf_77IntegerRecommendedHand Use Skill: Other0; 10 = unchecked box; 1 = checked boxhanduseskill_other
ihf_78IntegerRecommendedHand Use Skill: Pick up objects and hold them0; 10 = unchecked box; 1 = checked boxhanduseskill_pickupobjectsandhol
ihf_79IntegerRecommendedHand Use Skill: Pick up objects briefly0; 10 = unchecked box; 1 = checked boxhanduseskill_pickupobjectsbriefl
ihf_80IntegerRecommendedHand Use Skill: Pincer grasp (thumb/finger)0; 10 = unchecked box; 1 = checked boxhanduseskill_pincergraspthumbfin
ihf_81IntegerRecommendedHand Use Skill: Point or gesture with their hand0; 10 = unchecked box; 1 = checked boxhanduseskill_pointorgesturewith1
ihf_82IntegerRecommendedHand Use Skill: Point or gesture with their finger0; 10 = unchecked box; 1 = checked boxhanduseskill_pointorgesturewith2
ihf_83IntegerRecommendedHand Use Skill: Use utensils0; 10 = unchecked box; 1 = checked boxhanduseskill_useutensils
ihf_84IntegerRecommendedMy child has communicated happiness with facial expression1::41=By smiling normally and appropriately; 2=By smiling most of time; 3=By smiling some of time; 4=Neverhappyfacialexpression
ihf_85IntegerRecommendedHippotherapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthhippotherapy
ihf_86IntegerRecommendedHits Switches1;21=alone; 2=hand-over-hand onlyhitsswitches
ihf_87IntegerRecommendedHold a cupbottle to drink1;21=alone; 2=hand-over-hand onlyholdcupbottletodrink
ihf_88IntegerRecommendedMy child has demonstrated rapid or deep breathing while awake hyperventilation1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverhyperventilation
ihf_89IntegerRecommendedNumber of individuals in household dependent of this incomeindividualsinhousehold
ihf_90IntegerRecommendedIntermittentTherapy: Hippotherapy0; 10 = unchecked box; 1 = checked boxintermittenttherapy_hippotherapy
ihf_91IntegerRecommendedIntermittentTherapy: Other0; 10 = unchecked box; 1 = checked boxintermittenttherapy_other
ihf_92IntegerRecommendedIntermittentTherapy: Swimming Therapy0; 10 = unchecked box; 1 = checked boxintermittenttherapy_swimmingther
ihf_93IntegerRecommendedMy child has been irritable whiny or thrown tantrums1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverirritablechild
ihf_94IntegerRecommendedSince the last visit or in last year what is the primary place your child has lived1::31=Home; 2=Group Home; 3=Institutionlastplacelived
ihf_95IntegerRecommendedLives With Child: Adoptive Father0; 10 = unchecked box; 1 = checked boxliveswithchild_adoptivefather
ihf_96IntegerRecommendedLives With Child: Adoptive Mother0; 10 = unchecked box; 1 = checked boxliveswithchild_adoptivemother
ihf_97IntegerRecommendedLives With Child: Biological Father0; 10 = unchecked box; 1 = checked boxliveswithchild_biologicalfather
ihf_98IntegerRecommendedLives With Child: Biological Mother0; 10 = unchecked box; 1 = checked boxliveswithchild_biologicalmother
ihf_99IntegerRecommendedLives With Child: Extended family0; 10 = unchecked box; 1 = checked boxliveswithchild_extendedfamily
ihf_100IntegerRecommendedLives With Child: Siblings0; 10 = unchecked box; 1 = checked boxliveswithchild_siblings
ihf_101IntegerRecommendedLives With Child: Step Father0; 10 = unchecked box; 1 = checked boxliveswithchild_stepfather
ihf_102IntegerRecommendedLives With Child: Step Mother0; 10 = unchecked box; 1 = checked boxliveswithchild_stepmother
ihf_103IntegerRecommendedMy childs activity is low for her/his age1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverlowactivityforage
ihf_104IntegerRecommendedConsidering normal understanding for a typical individual my childs age my childs ability to understand and make choices has been1::41=Normal; 2=Mildly impaired; 3=Moderately impaired; 4=Severely impairedmakechoices
ihf_105IntegerRecommendedIn the past 6 months has your child been medicated for being sad miserable or uncomfortable0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedforsaddays
ihf_106IntegerRecommendedIn the past 6 months has your child been medicated for being aggressive or abusive to others0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforaggression
ihf_107IntegerRecommendedIn the past 6 months has your child been medicated for being anxious or nervous0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforbeinganxious
ihf_108IntegerRecommendedIn the past 6 months has your child been medicated for constipation0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforconstipation
ihf_109IntegerRecommendedIn the past 6 months has your child been medicated for diarrhea0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsfordiarrhea
ihf_110IntegerRecommendedIn the past 6 months has your child been medicated for drooling0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsfordrooling
ihf_111IntegerRecommendedIn the past 6 months has your child been medicated for gastroesophageal reflux0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforgasreflux
ihf_112IntegerRecommendedIn the past 6 months has your child been medicated for being irritable0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforirritability
ihf_113IntegerRecommendedIn the past 6 months has your child been medicated for having a low level of activity0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforlowactivity
ihf_114IntegerRecommendedIn the past 6 months has your child been medicated for being excessively active0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforoveractive
ihf_115IntegerRecommendedIn the past 6 months has your child been medicated for slow movements0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforslowmovements
ihf_116IntegerRecommendedIn the past 6 months has your child been medicated for stiffness0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsforstiffness
ihf_117IntegerRecommendedIn the past 6 months has your child been medicated for tremoring or trembling0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmedsfortrembling
ihf_118IntegerRecommendedIn the past 6 months has your child been treated for rapid changes in mood0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledmoodchangetremnt
ihf_119IntegerRecommendedSingle most severeproblematic self abusive behaviors0::111=SlappingFace; 2=Biting/chewing self; 3=Banging head; 4=Pulling hair; 5=Picking self;6= Rubbing or pinching self; 7=Touching genital area; 0=None; 8=Other;9= Hitting/slapping other parts of head;10= Hitting/slapping other body parts; 11=Scratching/digging selfmostseverebehavior
ihf_120IntegerRecommendedSingle Most Severe hand movement0::191=Hand wringing/washing; 2=Clapping; 3=Tapping/hitting (hands, surfaces); 4=Squeezing (hands, body); 5=Flicking (fingers, lips, etc.); 6=Posturing hands or arms; 7=Posturing feet or legs; 8=Hand mouthing; 9=Pulling hair; 10=Finger rubbing; 11=Knitting fingers;12= Hair twirling; 13=Picking (clothes, body, arms, etc.); 14=Flapping next to body; 15=Flapping in front of body; 16=Scratching; 17=Chewing/licking; 18=Flipping (pages);19= Rubbing objects; 0=Nonemostseverehandmovement
ihf_121IntegerRecommendedMother Employment status1::71=Employed; 2=Homemaker; 3=Student; 4=Retired; 5=Disabled; 6=Unemployed; 7=Unknownmotheremploymentstatus
ihf_122IntegerRecommendedMother Highest education1::81=No high school diploma or GED; 2=High school diploma or GED; 3=Some college, no bachelor's degree; 4=Bachelor's degree; 5=Advanced degree; 6=Unknown; 7=Declined; 8=Not applicablemotherhighesteducation
ihf_123IntegerRecommendedMother Occupation1::171=Never employed; 2=Management; 3=Business and Financial Operation; 4=Computer and Mathematical; 5=Architectural and Engineering; 6=Life, Physical and Social Science; Community and Social Service; 7=Legal; 8=Education, Training and Library; 9=Arts, Design, Entertainment, Sports, and Media; 10=Healthcare Practioners and Technical; 11=Healthcare Support; 12=Protective Service; 13=Food Preparation and Service Related; 14=Building and Grounds Cleaning and Maintenance;15= Personal Care and Service; 16=Sales and Related Occupations; 17=Officemotheroccupation
ihf_124IntegerRecommendedMusic Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthmusictherapy
ihf_125IntegerRecommendedSelect all repetitive hand movements observed in the past 6 months None0; 10 = unchecked box; 1 = checked boxnohandmovements
ihf_126IntegerRecommendedHand use over past 6 months None0; 10 = unchecked box; 1 = checked boxnohanduse
ihf_127IntegerRecommendedType and frequency of intermittent therapy for the past year None0; 10 = unchecked box; 1 = checked boxnointermittenttherapy
ihf_128IntegerRecommendedType and frequency of routine therapy for the past year None0; 10 = unchecked box; 1 = checked boxnoroutinetherapy
ihf_129IntegerRecommendedSelect all selfabusive behaviors observed for the last 6 months None0; 10 = unchecked box; 1 = checked boxnoselfabusivebehaviors
ihf_130IntegerRecommendedIndicate below number of words in total current vocabulary1::61=1 word; 2=2 words; 3=3-5 words; 4=6-10 words; 5=11-20 words; 6=>20 wordsnumofwords
ihf_131IntegerRecommendedOccupational Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthoccupationaltherapy
ihf_132IntegerRecommendedOther Behavioral Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothbehavioraltherapy
ihf_133IntegerRecommendedOther Intermittent Therapy Frequency1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothintermittenttherfreq1_1
ihf_134String50RecommendedOther Intermittent Therapy Specifyothintermittenttherapyspeci1_1
ihf_135IntegerRecommendedOther Routine Therapy Frequency1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothroutinetherfreq1_1
ihf_136IntegerRecommendedOther Routine Therapy Frequency1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothroutinetherfreq2_1
ihf_137IntegerRecommendedOther Routine Therapy Frequency1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothroutinetherfreq3_1
ihf_138IntegerRecommendedOther Routine Therapy Frequency1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthothroutinetherfreq4_1
ihf_139String50RecommendedOther Routine Therapy Specifyothroutinetherapyspecify1_1
ihf_140String50RecommendedOther Routine Therapy Specifyothroutinetherapyspecify2_1
ihf_141String50RecommendedOther Routine Therapy Specifyothroutinetherapyspecify3_1
ihf_142String50RecommendedOther Routine Therapy Specifyothroutinetherapyspecify4_1
ihf_143String50RecommendedOther selfabusive behaviorothselfabusivebehavior
ihf_144String50RecommendedIf you answered any of the other options please select ONE feature from the list below that MOST influenced your answer in the question above about your childs overall function in the past 6 months Otherotheroverallfunctionreason
ihf_145String100RecommendedOther scoliosis treatmentotherscoliosistrtmnt
ihf_146IntegerRecommendedOther Skill How Performed1;21=alone; 2=hand-over-hand onlyotherskillperformed1_1
ihf_147IntegerRecommendedOther Skill How Performed1;21=alone; 2=hand-over-hand onlyotherskillperformed2_1
ihf_148String100RecommendedOther Skillotherskillspecify1_1
ihf_149String100RecommendedOther Skillotherskillspecify2_1
ihf_150IntegerRecommendedMy child has been overactive for herhis age1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neveroveractiveforage
ihf_151IntegerRecommendedMy childs overall communication eye gaze spoken language sounds pointing gestures has been1::41=Normal; 2=Mildly impaired; 3=Moderately impaired; 4=Severely impairedoverallcommunication
ihf_152IntegerRecommendedIf you answered any of the other options please select ONE feature from the list below that MOST influenced your answer in the question above about your childs overall function in the past 6 months1::111=Effective communication; 2=Hand stereotypies; 3=Air swallowing; 4=Gastro-esophageal reflux; 5=Aggressiveness towards others; 6=Screaming episodes; 7=Self-abusive behavior; 8=Effective chewing and swallowing; 9=Constipation; 10=Vision; 11=Involuntary movementsoverallfunctionreason
ihf_153IntegerRecommendedOverall my child has repetitive hand movements1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neveroverallhandmovements
ihf_154IntegerRecommendedHow has your childs overall health been in the past 6 months1::51=Very poor; 2=Poor; 3=Fair; 4=Good; 5=Very goodoverallhealth
ihf_155IntegerRecommendedMy child has been able to pay attention watch a movie listen to a story or discussion1::61=For a short time (5-14 minutes); 2=Briefly (1-4 minutes); 3=Very briefly (less than 1 minute); 4=Never; 5=For a long time (greater than 30 minutes); 6=For a moderate amount of time (15-30 minutes)payattention
ihf_156IntegerRecommendedPhysical Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthphysicaltherapy
ihf_157IntegerRecommendedPick up objects and hold them1;21=alone; 2=hand-over-hand onlypickupobjectsandhold
ihf_158IntegerRecommendedPick up objects briefly1;21=alone; 2=hand-over-hand onlypickupobjectsbriefly
ihf_159IntegerRecommendedPincer grasp thumbfinger1;21=alone; 2=hand-over-hand onlypincergraspthumbfinger
ihf_160IntegerRecommendedModified pincer grasp thumbmultiple fingers1;21=alone; 2=hand-over-hand onlypincergraspthumbmultiplefinger
ihf_161IntegerRecommendedMy child has puffed air or blown raspberries1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverpuffedair
ihf_162IntegerRecommendedMy child has had rapid mood changes1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverrapidmoodchanges
ihf_163IntegerRecommendedRoutine Therapy: Applied Behavioral (ABA)0; 10 = unchecked box; 1 = checked boxroutinetherapy_appliedbehavioral
ihf_164IntegerRecommendedRoutine Therapy: Augmentative Communication0; 10 = unchecked box; 1 = checked boxroutinetherapy_augmentativecomm1
ihf_165IntegerRecommendedRoutine Therapy: Augmentative Communication for the visually impaired0; 10 = unchecked box; 1 = checked boxroutinetherapy_augmentativecomm2
ihf_166IntegerRecommendedRoutine Therapy: Music Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_musictherapy
ihf_167IntegerRecommendedRoutine Therapy: Occupational Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_occupationalthera
ihf_168IntegerRecommendedRoutine Therapy: Other0; 10 = unchecked box; 1 = checked boxroutinetherapy_other
ihf_169IntegerRecommendedRoutine Therapy: Other Behavioral Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_otherbehavioralth
ihf_170IntegerRecommendedRoutine Therapy: Physical Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_physicaltherapy
ihf_171IntegerRecommendedRoutine Therapy: Speech Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_speechtherapy
ihf_172IntegerRecommendedRoutine Therapy: Vision Therapy0; 10 = unchecked box; 1 = checked boxroutinetherapy_visiontherapy
ihf_173IntegerRecommendedMy child has had days when shehe is sad miserable and uncomfortable1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neversaddays
ihf_174IntegerRecommendedMy child has communicated sadness with facial expression1::41=By frowning or crying normally and appropriately; 2=By frowning or crying most of time; 3=By frowning or crying some of time; 4=Neversadfacialexpression
neck_scoliosisString50RecommendedIs there scoliosis (curvature of the spine)?Yes;No;NKNK = Not knownscoliosis
ihf_176IntegerRecommendedScoliosis Treatmnt: Bracing (DMO or TSLO)0; 10 = unchecked box; 1 = checked boxscoliosistremnt_bracingdmoortslo
ihf_177IntegerRecommendedScoliosis Treatmnt: No treatment0; 10 = unchecked box; 1 = checked boxscoliosistremnt_notreatment
ihf_178IntegerRecommendedScoliosis Treatmnt: Other0; 10 = unchecked box; 1 = checked boxscoliosistremnt_other
ihf_179IntegerRecommendedScoliosis Treatmnt: Physical therapy0; 10 = unchecked box; 1 = checked boxscoliosistremnt_physicaltherapy
ihf_180IntegerRecommendedScoliosis Treatmnt: Serial casting0; 10 = unchecked box; 1 = checked boxscoliosistremnt_serialcasting
ihf_181IntegerRecommendedScoliosis Treatmnt: Surgery0; 10 = unchecked box; 1 = checked boxscoliosistremnt_surgery
ihf_182IntegerRecommendedMy child has had episodes of screaming1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverscreamingepisodes
ihf_183IntegerRecommendedIn the past 6 months has your child been medicated for screaming episodes0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledscreamingepisodesmeds
ihf_184IntegerRecommendedIf yes when have these screaming episodes occurred1::31=Daytime only; 2=Nighttime only; 3=Both daytime and nighttimescreamingepisodestime
ihf_185IntegerRecommendedIn the past 6 months has your child been medicated for self abusive behaviors0::20=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlledselfabusivebehaviormeds
ihf_186IntegerRecommendedMy child has demonstrated some self abusive behaviors slapping biting head banging1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverselfabusivebehaviors
ihf_187IntegerRecommendedSelf Abusive Behaviors:0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_
ihf_188IntegerRecommendedSelf Abusive Behaviors: Banging head0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_banginghead
ihf_189IntegerRecommendedSelf Abusive Behaviors: Biting/chewing self0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_bitingchewi
ihf_190IntegerRecommendedSelf Abusive Behaviors: Hitting/slapping other parts of head0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_hittingsla1
ihf_191IntegerRecommendedSelf Abusive Behaviors: Hitting/slapping other body parts0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_hittingsla2
ihf_192IntegerRecommendedSelf Abusive Behaviors: None0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_none
ihf_193IntegerRecommendedSelf Abusive Behaviors: Other0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_other
ihf_194IntegerRecommendedSelf Abusive Behaviors: Picking self0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_pickingself
ihf_195IntegerRecommendedSelf Abusive Behaviors: Pulling hair0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_pullinghair
ihf_196IntegerRecommendedSelf Abusive Behaviors: Rubbing or pinching self0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_rubbingorpi
ihf_197IntegerRecommendedSelf Abusive Behaviors: Scratching/digging self0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_scratchingd
ihf_198IntegerRecommendedSelf Abusive Behaviors: SlappingFace0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_slappingfac
ihf_199IntegerRecommendedSelf Abusive Behaviors: Touching genital area0; 10 = unchecked box; 1 = checked boxselfabusivebehaviors_touchinggen
ihf_200IntegerRecommendedSit without some help1::31=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Brieflysitwithsomehelp
ihf_201IntegerRecommendedSit without help1::31=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Brieflysitwithouthelp
ihf_202IntegerRecommendedMy child has had unusually slow movements due to rigidity or stiffness1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverslowmovements
ihf_203IntegerRecommendedDoes anyone in house smoke0;11=Yes; 0=Nosmokinginhouse
ihf_204String50RecommendedSecond Biggest Problem Other specifyspecify2ndbiggestproblem
ihf_205String50RecommendedThird Biggest Problem Other specifyspecify3rdbiggestproblem
ihf_206String50RecommendedBiggest Problem Other specifyspecifybiggestproblem
ihf_207IntegerRecommendedSpeech Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthspeechtherapy
ihf_208IntegerRecommendedMy child has communicated with spoken language or sounds choose single best description1::91=Normally, pretty much the way any child would; 2=With complete sentences that are linked together; 3=With isolated sentences; 4=With phrases; 5=With single words; 6=Echoes words; 7=With sounds that have meaning; 8=Babble sounds; 9=None, except crying or screamingspokenlanguagesounds
ihf_209IntegerRecommendedStand with some help1::31=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Brieflystandwithsomehelp
ihf_210IntegerRecommendedStand without help1::31=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Brieflystandwithouthelp
ihf_211IntegerRecommendedMy child has had very stiff arms andor legs1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverstiffarmslegs
ihf_212IntegerRecommendedMy child has stopped breathing or held hisher breath while awake1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverstoppedbreathingwhileawake
ihf_213IntegerRecommendedMy child has swallowed air developed a large airfilled abdomen had excessive gas or had air escape from gtube1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverswallowedair
ihf_214IntegerRecommendedSwimming Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthswimmingtherapy
ihf_215IntegerRecommendedMy child has had symptoms of constipation1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neversympofconstipation
ihf_216IntegerRecommendedMy child has had symptoms of diarrhea1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neversympofdiarrhea
ihf_217IntegerRecommendedMy child has had symptoms of gastroesophageal reflux sour breath pain after meal spit upvomiting1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neversympofgasreflux
ihf_218IntegerRecommendedMy child has demonstrated teeth grinding when awake1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Neverteethgrinding
ihf_219IntegerRecommendedTherapy Location: At a private therapy company0; 10 = unchecked box; 1 = checked boxtherapylocation_ataprivatetherap
ihf_220IntegerRecommendedTherapy Location: At home by parents0; 10 = unchecked box; 1 = checked boxtherapylocation_athomebyparents
ihf_221IntegerRecommendedTherapy Location: At home by trained therapist0; 10 = unchecked box; 1 = checked boxtherapylocation_athomebytrainedt
ihf_222IntegerRecommendedTherapy Location: At school in classroom or modified physical education0; 10 = unchecked box; 1 = checked boxtherapylocation_atschoolinclassr
ihf_223IntegerRecommendedTherapy Location: At school in separate therapy area0; 10 = unchecked box; 1 = checked boxtherapylocation_atschoolinsepara
ihf_224IntegerRecommendedTherapy Location: Not applicable0; 10 = unchecked box; 1 = checked boxtherapylocation_notapplicable
ihf_225IntegerRecommendedMy child has demonstrated the following level of toilet training1::61=F.16.a. Purposeful bowel and bladder, can hold urine and stool with no accidents; 2=F.16.b. Can hold urine and stool with no accidents during the day; 3=F.16.c. Can hold either urine or stool during the day; 4=F.16.d. Set times when they are taken to the toilet for both urine and stool, but may have an accident; 5=F.16.e. Set times when they are taken to the toilet for both urine or stool, but may have an accident; 6=F.16.f. Not toilet trained; uses diapers alwaystoilettraining
ihf_226IntegerRecommendedHas your child had an increased tolerance for pain1::51=H.2.a. Normal or immediate response to pain; 2=H.2.b. Delayed response to minor pain; 3=H.2.c. No response to minor pain, or delayed response to moderate pain; 4=H.2.d. No response to moderate pain, delayed response to major pain; 5=H.2.e. No response to any type of paintoleranceforpain
ihf_227IntegerRecommendedMy child has had tremoringtrembling of handfoothead does not include repetitive hand movements1::51=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Nevertremblinghandfoot
ihf_228IntegerRecommendedI have been able to understand my childs communication with spoken language or sounds1::51=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Neverunderstandspokenlangsounds
ihf_229IntegerRecommendedMy childs mood and undesirable behaviors have been1::51=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worseundesirablebehaviors
ihf_230IntegerRecommendedUse utensils1;21=alone; 2=hand-over-hand onlyuseutensils
ihf_231IntegerRecommendedHow often has your child used a wheelchairstroller1::51=Never or almost never; 2=Less than half the time; 3=About half the time; 4=More than half the time; 5=All the timeusewheelchairstroller
ihf_232IntegerRecommendedVision Therapy1::41=more than once a week; 2=every other week; 3=once a week; 4=once a monthvisiontherapy
ihf_233IntegerRecommendedIf your child can walk alone or with support how far have they been able to walk1::41=About 100 yards or more;2= At least 30 feet; 3=Across a room; 4=Takes a few stepswalkingdistance
ihf_234IntegerRecommendedIf your child can walk alone or with support what has been their typical speed1::31=Fast; 2=Average; 3=Slowwalkingspeed
ihf_235IntegerRecommendedWays Of Communicating: Eye gaze with assistive device0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_eyegazewitha
ihf_236IntegerRecommendedWays Of Communicating: Eye gaze without a device0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_eyegazewitho
ihf_237IntegerRecommendedWays Of Communicating: Gesture with hand/signs0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_gesturewithh
ihf_238IntegerRecommendedWays Of Communicating: No communication without spoken language or sounds0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_nocommunicat
ihf_239IntegerRecommendedWays Of Communicating: Point or gesture with one finger0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_pointorgestu
ihf_240IntegerRecommendedWays Of Communicating: Turns toward object desired0; 10 = unchecked box; 1 = checked boxwaysofcommunicating_turnstowardo
ihf_241IntegerRecommendedSecond Biggest Problem1::191=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-abu2ndbiggestproblem
ihf_242IntegerRecommendedThird Biggest Problem1::191=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-abu3rdbiggestproblem
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
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  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
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Distribution for DataStructure: ihf01 and Element:
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