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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
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Notes
Data Structures with shared data
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Health Insurance Questionnaire

insur

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
days_baselineIntegerRecommendedDays since baselinedayinsur, hcdays
assbdicString5RecommendedAssessment PointD;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; CD=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)assinsur
relationshipIntegerRecommendedRelationship of respondent to individual
1::84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nannyrelinsur
actbdicIntegerRecommendedActive status0::50=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Activeactinsur
siteString100RecommendedSiteStudy Sitesitenum
sjtypIntegerRecommendedSubject type1;21=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
insur1aIntegerRecommended1st Health insurance coverage this adolescent has TODAY1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur1bIntegerRecommended2nd Health insurance coverage this adolescent has TODAY1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur1cIntegerRecommended3rd Health insurance coverage this adolescent has TODAY1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur1dIntegerRecommended4th Health insurance coverage this adolescent has TODAY1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur3aIntegerRecommended1st Health insurance coverage this adolescent had 2 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur3bIntegerRecommended2nd Health insurance coverage this adolescent had 2 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur3cIntegerRecommended3rd Health insurance coverage this adolescent had 2 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur3dIntegerRecommended4th Health insurance coverage this adolescent had 2 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur4aIntegerRecommended1st Health insurance coverage this adolescent had 3 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur4bIntegerRecommended2nd Health insurance coverage this adolescent had 3 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur4cIntegerRecommended3rd Health insurance coverage this adolescent had 3 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur4dIntegerRecommended4th Health insurance coverage this adolescent had 3 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur5aIntegerRecommended1st Health insurance coverage this adolescent had 4 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur5bIntegerRecommended2nd Health insurance coverage this adolescent had 4 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur5cIntegerRecommended3rd Health insurance coverage this adolescent had 4 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur5dIntegerRecommended4th Health insurance coverage this adolescent had 4 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur6aIntegerRecommended1st Health insurance coverage this adolescent had 5 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur6bIntegerRecommended2nd Health insurance coverage this adolescent had 5 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur6cIntegerRecommended3rd Health insurance coverage this adolescent had 5 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur6dIntegerRecommended4th Health insurance coverage this adolescent had 5 YEARS ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Other
insur7IntegerRecommendedTODAY, my adolescent has the following coverage.1::41=Adolescents physician is selected by the health plan; 2=Adolescents physician must be chosen from a list provided by the health plan; 3=Adolescents physician may be chosen from a list provided by the health plan - if I choose a different physician I must pay more; 4=Health plan does not provide a list - health plan pays the same no matter which provider adolescent sees
insur8IntegerRecommendedTODAY, my adolescents health plan pays the following for prescriptions1::41=None; 2=All costs above a certain amount; 3=Percent of total prescriptions per year; 4=Dollar total for prescriptions per year
insur8gFloatRecommendedIf INSUR8=2, the $____per generic prescription
insur8bdFloatRecommendedIf INSUR8=2, the $____per brand name (if annual deductible, amount: $___).
insur8ppFloatRecommendedIf INSUR8=3, the _____% of the prescription cost
insur8pdFloatRecommendedIf INSUR8=3, the annual deductible, amount: $____.
insur8pyFloatRecommendedIf INSUR8=4, the $____ total for prescriptions per year
insur9IntegerRecommendedTODAY, my adolescents health plan limits the number of visits to a specialty mental health provider (e.g., psychiatrist, psychologist, other therapist, or counselor) to:1::41=No limit; 2=Do not know of a limit; 3=Definite limit or limit of paid visits; 4=Know there is a limit but don�t know what it is
insur9vIntegerRecommendedIf INSUR9=3, the ____ visits
insur9lFloatRecommendedIf INSUR9=3, the $_____ limit that are paid for
insur10IntegerRecommendedIn the past 1 YEAR, did your adolescent see a specialty mental health provider (e.g., psychiatrist, psychologist, other therapist, or counselor)?1;21=No; 2=Yes
insur11IntegerRecommendedDid you pay anything out-of-pocket for the LAST visit to a specialty mental health provider?1;21=No; 2=Yes
insur11pFloatRecommendedIf INSUR11=2, $_____ (this is the amount the insurance does not pay).
insur12IntegerRecommendedIn the past 1 YEAR, did your adolescent see a regular doctor (e.g., family doctor or pediatrician) for Attention Deficit Hyperactivity Disorder (ADD, ADHD, hyperactivity, attention difficulties, etc.)?1;21=No; 2=Yes
insur13IntegerRecommendedDid you pay anything out-of-pocket for the LAST visit to a regular doctor for ADHD?1;21=No; 2=Yes
insur13pFloatRecommendedIf INSUR13=2, $_____ (this is the amount the insurance does not pay).
insur2aaIntegerRecommended1st Health insurance coverage this adolescent had 1 YEAR ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Otherinsur2a
insur2baIntegerRecommended2nd Health insurance coverage this adolescent had 1 YEAR ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Otherinsur2b
insur2caIntegerRecommended3rd Health insurance coverage this adolescent had 1 YEAR ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Otherinsur2c
insur2daIntegerRecommended4th Health insurance coverage this adolescent had 1 YEAR ago1::71=No insurance; 2=Employer coverage; 3=Individual coverage; 4=Medicaid/Medi-Cal; 5=State plan; 6=Canadian Medicare; 7=Otherinsur2d
chartreview016bIntegerRecommendedDoes the Patient have insurance?0;1;9; -888; -9990=No; 1=Yes; 9=Not documented; -888=Not Applicable; -999=Missing;hc_1
chartreview016c_1IntegerRecommendedWhat type of insurance does the patient have? Private Health Insurance0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_7
chartreview016c_10IntegerRecommendedWhat type of insurance does the patient have? Medicare0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_3
chartreview016c_2IntegerRecommendedWhat type of insurance does the patient have? Medi-Gap0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_6
chartreview016c_3IntegerRecommendedWhat type of insurance does the patient have? Medicaid0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_9
chartreview016c_4IntegerRecommendedWhat type of insurance does the patient have? SCHIP (CHIP/Childrens Health Insurance Program)0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_10
chartreview016c_5IntegerRecommendedWhat type of insurance does the patient have? Military Health Care (Tricare/VA/CHAMP-VA)0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_11
chartreview016c_7IntegerRecommendedWhat type of insurance does the patient have? State-sponsored health plan0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;hc_12
hc_2IntegerRecommendedSo, you are uninsured, is that correct0;10=No; 1=Yes
hc_4IntegerRecommendedAre you enrolled in Part B of Medicare which provides coverage for doctor and clinic visits laboratories and other nonhospital services0;10=No; 1=Yes
hc_5IntegerRecommendedAre you enrolled in Part D of Medicare which provides coverage for prescription medications0;10=No; 1=Yes
hc_8IntegerRecommendedDoes this plan pay for some part of your prescription medications?0;10=No; 1=Yes
hc_13IntegerRecommendedDoes this plan pay for some part of your prescription medications0;10=No; 1=Yes
hc_14IntegerRecommendedDo you receive medications or get help in paying for medications from any other programs0;10=No; 1=Yes
hc_15IntegerRecommendedYou get free or subsidized health care services directly from any other program0;10=No; 1=Yes
hc_16IntegerRecommendedDoes this program also provide prescription medications0;10=No; 1=Yes
hc_17IntegerRecommendedIn the past have you ever had health insurance0;10=No; 1=Yes
hc_18IntegerRecommendedWhen did you become uninsured?1::51 = Within the past six months;2 = Within the past year3 = Within the past 2 years;4 = Within the past 5 years;5 = More than 5 years ago
visitString50RecommendedVisit nameCharacter description of each type of visittimept
hc_7aIntegerRecommendedAre you covered by any private health insurance plan (excluding Medigap plans) such as health insurance that you obtain through an employer or through COBRA or through a family member or buy personally0::40=No; 1=Yes, employer; 2=Yes, Cobra or bought personally; 3=Yes, through a family member; 4=Yes, some other private source
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: insur01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.