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Description
Value Range
Notes
Data Structures with shared data
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Interval Medical History

int_medhist

01

Interval Medical History

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
diag_changesIntegerRecommendedChanges in diagnostic history since last visit?0; 10 = No; 1 = Yes
age_concernIntegerRecommendedAge of first developmental concern (months)0 :: 1200
concern_speechIntegerRecommendedFirst concerns related to diagnosis - Speech delay0; 10 = No; 1 = Yes
concern_repbehIntegerRecommendedFirst concerns related to diagnosis - Repetitive behaviors0; 10 = No; 1 = Yes
concern_socdifIntegerRecommendedFirst concerns related to diagnosis - Social difficulty0; 10 = No; 1 = Yes
concern_motdelIntegerRecommendedFirst concerns related to diagnosis - Motor delay0; 10 = No; 1 = Yes
concern_learndisIntegerRequiredFirst concerns related to diagnosis - Learning disabilities0; 1;9990 = No; 1 = Yes
concern_otherIntegerRecommendedFirst concerns related to diagnosis - Other0; 10 = No; 1 = Yes
aut_diag_newIntegerRequiredAutism related diagnosis by physician or other professional since last visit?0; 1;9990 = No; 1 = Yes
child_aspergersString50RequiredDoes the Child have Asperger's Syndrome?
Yes; No; NK; NS
NK= Not known; NS = Not sure
child_pddnosString50RequiredDoes the Child have PDD-NOS (Pervasive Development Disorder-Not Otherwise Specified)?
Yes; No; NK; NS
NK= Not known; NS = Not sure
cfmh_chd_pddnosIntegerRequiredDoes the child have Autism Spectrum Disorder?1;0;9990 = No; 1 = Yes
child_autismString50RequiredDoes the Child have Autism?
Yes; No; NK; NS
NK= Not known; NS = Not sure
aut_diag_otherIntegerRecommendedAutism-related diagnosis - Other0; 10 = No; 1 = Yes
diag_ageatdiagIntegerRecommendedAge at diagnosis(in months)
0 :: 1200
diag_diagnosismadebyString50RecommendedDiagnosis made byPhysician;Psychologist;Other; NKNK = Not known
devel_changesIntegerRecommendedAny changes in developmental history since last visit?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
walk10IntegerRecommendedWalking 10 steps?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
walk10_ageIntegerRecommendedWalking 10 steps - age0 :: 1200
first_wordsIntegerRecommendedFirst words?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
ad016IntegerRecommendedAge of first single words (months)994 = Milestone not reached; 996 = N/K, but apparently normal; 997 = N/K, but apparently delayed; 998 = N/A; 999 = N/K or not asked
speak3wordIntegerRecommendedSpeaking 3-word sentences?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
age_3wordIntegerRecommendedAge at 3-word sentences (in months)
changes_langIntegerRecommendedChanges in speech/language since last visit?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
changes_langhowIntegerRecommendedChanges in speech/language - how verbal?1 :: 31 = Verbal; 2 = Minimally verbal; 3 = Non-verbal
diag_learndisIntegerRequiredAny new diagnoses of learning disabilities?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
diag_learndis_detString255RecommendedNew diagnoses of learning disabilities - Specify
othmem_devdelayString50RecommendedDevelopmental Delay
Yes;No; NK
NK = Not known
devdelay_detString255RecommendedNew diagnoses of developmental delay - Specify
diag_idIntegerRecommendedNew diagnoses of intellectual disability/mental retardation?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
diag_iddetString255RecommendedNew diagnoses of intellectual disability/mental retardation - Specify
changes_treatIntegerRecommendedAny changes in treatment/intervention history?1; 2; 91 = Yes; 2 = No; 9 = Not applicable
interv_speechIntegerRecommendedTreatment/Intervention - Speech1; 21 = Yes; 2 = No
interv_speech_ageIntegerRecommendedTreatment/Intervention - Speech - Age at start of treatment0 :: 1200
interv_speech_oftenIntegerRecommendedTreatment/Intervention - Speech - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
interv_octherIntegerRecommendedTreatment/Intervention - Occupational Therapy1; 21 = Yes; 2 = No
interv_octher_ageIntegerRecommendedTreatment/Intervention - Occupational Therapy - Age at start of treatment0 :: 1200
interv_octher_oftenIntegerRecommendedTreatment/Intervention - Occupational Therapy - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
interv_phystherIntegerRecommendedTreatment/Intervention - Physical Therapy1; 21 = Yes; 2 = No
interv_physther_ageIntegerRecommendedTreatment/Intervention - Physical Therapy - Age at start of treatment0 :: 1200
interv_physther_oftenIntegerRecommendedTreatment/Intervention - Physical Therapy - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
interv_earlyintIntegerRecommendedTreatment/Intervention - Early Intervention1; 21 = Yes; 2 = No
interv_earlyint_ageIntegerRecommendedTreatment/Intervention - Early Intervention - Age at start of treatment0 :: 1200
interv_earlyint_oftenIntegerRecommendedTreatment/Intervention - Early Intervention - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
interv_abaIntegerRecommendedTreatment/Intervention - Applied Behavioral Analysis1; 21 = Yes; 2 = No
interv_aba_ageIntegerRecommendedTreatment/Intervention - Applied Behavioral Analysis - Age at start of treatment0 :: 1200
interv_aba_oftenIntegerRecommendedTreatment/Intervention - Applied Behavioral Analysis - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
interv_otherIntegerRecommendedTreatment/Intervention - Other Options1; 21 = Yes; 2 = No
interv_other_ageIntegerRecommendedTreatment/Intervention - Other Options - Age at start of treatment0 :: 1200
interv_other_oftenIntegerRecommendedTreatment/Intervention - Other Options - How Often1; 2; 3; 4; 91 = Daily; 2 = Once weekly; 3 = Multiple times/week; 4 = Monthly; 9 = Unknown
changes_anyIntegerRecommendedAny changes in the history of any medical problems/conditions in the following body systems or in status of genetic testing since last study visit?1; 2; 91 = Yes; 2 = No; 9 = Unknown
rev_headmeningitisString50RecommendedMeningitisYes; No; NK; NSNK= Not known; NS = Not sure
rev_headmeningitisorgString255RecommendedMeningitis: Organism
rev_headencephalitisString50RecommendedEncephalitis
Yes; No; NK; NS
NK= Not known; NS = Not sure
rev_headencephalitisorgString255RecommendedEncephalitis: Organism
rev_headfebseizString50RecommendedFebrile Seizures
Yes; No; NK; NS
NK= Not known; NS = Not sure
febseiz_eegIntegerRecommendedHead/Brain - Febrile Seizures - EEG done?1; 2; 91 = Yes; 2 = No; 9 = Unknown
febseiz_eeg_resIntegerRecommendedHead/Brain - Febrile Seizures - EEG results1; 21 = Normal; 2 = Abnormal
nonfebseizIntegerRecommendedHead/Brain - Non-Febrile Seizures1; 2; 91 = Yes; 2 = No; 9 = Unknown
nonfebseiz_eegIntegerRecommendedHead/Brain - Non-Febrile Seizures - EEG done?1; 2; 91 = Yes; 2 = No; 9 = Unknown
nonfebseiz_eeg_resIntegerRecommendedHead/Brain - Non-Febrile Seizures - EEG results1; 21 = Normal; 2 = Abnormal
fhxcpString5RequiredCerebral Palsy
Yes;No; NK
NK = Not known
hist_traumaString10RecommendedHistory of head trauma
Yes; No; NK; NS
NK= Not known; NS = Not sure
rev_headimagestudyString50RecommendedImaging Studies
Yes;No;NK
NK = Not known
rev_headimagestudytypeString50RecommendedImaging Studies: TypeUS;CT;MR;PET;EEG; MR; any combinations of these types
rev_headimagestudyresultString255RecommendedImaging Studies: ResultsNormal; Abnormal
brain_mriIntegerRecommendedHead/Brain - Brain MRI performed?1; 2; 91 = Yes; 2 = No; 9 = Unknown
brain_mri_corttubIntegerRecommendedHead/Brain - Brain MRI - Cortical tuber0; 10 = No; 1 = Yes
brain_mri_subnodIntegerRecommendedHead/Brain - Brain MRI - Subependymal Nodule0; 10 = No; 1 = Yes
brain_mri_astrocIntegerRecommendedHead/Brain - Brain MRI - Subependymal giant cell - Astrocytoma0; 10 = No; 1 = Yes
vis_blindString10RecommendedSignificant visual loss or congenital blindnessYes; No; NKNK = Not known
eyes_tscIntegerRecommendedEyes - TSC-related findings1; 2; 91 = Yes; 2 = No; 9 = Unknown
eyes_tsc_detString255RecommendedEyes - TSC-related findings - Specify
rev_eartestString50RecommendedHearing Testing:
Yes;No;NK
NK = Not known
rev_eartestresultString50RecommendedHearing Testing: ResultNormal;Abnormal;Unknown
hear_lossString10RequiredDeafness or significant hearing loss
Yes;No;NK
NK = Not known
othmem_hearingcorString50RecommendedHearing corrected?
Yes;No
rev_earrecuotitisString50RequiredRecurrent Otitis Media
Yes; No; NK; NS
NK= Not known; NS = Not sure
rev_earrecuotitisyearIntegerRecommendedRecurrent Otitis Media: #Year
rev_earpetubeString50RecommendedPE Tubes
Yes;No;NK
NK = Not known
rev_mouthcleftlipString50RecommendedIs there a cleft lip and/or cleft palate?
Yes;No;NK
NK = Not known
rev_mouthcleftpalateString50RecommendedCleft Palate
Yes;No;NK
NK = Not known
neonat_teethIntegerRecommendedTeeth - Neonatal teeth1; 2; 91 = Yes; 2 = No; 9 = Unknown
rev_teethdentalabString50RecommendedDental abnormalities
Yes;No;NK
NK = Not known
rev_neckspinalabString50RecommendedSpinal abnormalities
Yes;No;NK
NK = Not known
rev_skineczemaString50RecommendedEczema
Yes;No;NK
NK = Not known
skin_tsc1IntegerRecommendedSkin - TSC skin manifestations1; 2; 91 = Yes; 2 = No; 9 = Unknown
skin_tsc2IntegerRecommendedSkin - TSC skin manifestations - Hypopigmented macules0; 10 = No; 1 = Yes
skin_tsc3IntegerRecommendedSkin - TSC skin manifestations - Shagreen patch0; 10 = No; 1 = Yes
skin_tsc4IntegerRecommendedSkin - TSC skin manifestations - Facial angiofibromas0; 10 = No; 1 = Yes
skin_tsc5IntegerRecommendedSkin - TSC skin manifestations - Forehead plaque0; 10 = No; 1 = Yes
skin_tsc_otherIntegerRecommendedSkin - TSC skin manifestations - Other0; 10 = No; 1 = Yes
rev_skinabcessesString50RequiredSkin Infections/Abcesses
Yes;No;NK
NK = Not known
rev_skinbirthmarkString50RecommendedBirthmarks (e.g., cafe-au-lait spots, white spots)
Yes;No;NK
NK = Not known
rev_pulbreathabString50RecommendedAbnormal Breathing
Yes;No;NK
NK = Not known
rev_pulasthmaString50RequiredAsthma
Yes;No;NK
NK = Not known
rev_pullungmalfuncString50RecommendedLung Malformations
Yes;No;NK;NA
NK = Not known
rev_pulaspirationString50RecommendedAspiration
Yes;No;NK
NK = Not known
cardio_tscIntegerRequiredCardiovascular - TSC-related cardiac lesions1; 2; 91 = Yes; 2 = No; 9 = Unknown
cardio_tsc_detIntegerRecommendedCardiovascular - TSC-related cardiac lesions - Specify1; 21 = Single rhabdomyomas; 2 = Multiple rhabdomyomas
rev_cardiocyanosisString50RecommendedCyanosis
Yes;No;NK
NK = Not known
rev_rythmString10RecommendedAbnormal rhythm or heart rateYes;No;NKNK = Not known
rev_gastrodysphagiaString50RecommendedDysphagia
Yes;No;NK
NK = Not known
rev_gastrorefluxString50RequiredReflux
Yes; No; NK; NS
NK= Not known; NS = Not sure
rev_gastrootherString50RecommendedOther feeding difficulties
Yes;No;NK
NK = Not known
renal_angiomIntegerRecommendedRenal - Renal angiomyolipoma1; 2; 91 = Yes; 2 = No; 9 = Unknown
renal_cystIntegerRecommendedRenal - Renal cyst1; 2; 91 = Yes; 2 = No; 9 = Unknown
rev_endoprecociousString50RecommendedPrecocious Puberty
Yes;No;NK
NK = Not known
rev_endohypothyroidismString50RequiredHypothyroidism
Yes;No;NK
NK = Not known
rev_endohyperthyroidismString50RequiredHyperthyroidism
Yes;No;NK
NK = Not known
rev_endoobesityString50RecommendedObesity
Yes;No;NK
NK = Not known
rev_endodiabetesString50RequiredDiabetes
Yes;No;NK
NK = Not known
rev_endodiabetestypeString50RequiredDiabetes: TypeI;II;999
rev_endohypoglycemiaString50RecommendedHypoglycemia
Yes;No;NK
NK = Not known
rev_hemanemiaString50RecommendedAnemia
Yes;No;NK
NK = Not known
rev_hembleeddisorderString50RecommendedBleeding disorder
Yes;No;NK
NK = Not known
rev_immunorecurinfectionString50RequiredRecurrent Infections((>2 pneum or sinus infect/yr, >8 OM /yr, absesses))
Yes;No;NK
NK = Not known
rev_immunoigdeficiencyString50RecommendedIg Deficiency
Yes;No;NK
NK = Not known
rev_immunocellimmunedefString50RecommendedCell Mediated Immune Def.
Yes;No;NK
NK = Not known
rev_immunoenvallergyString50RequiredEnvironmental Allergies
Yes;No;NK
NK = Not known
rev_immunomedallergyString50RequiredMedication Allergies
Yes;No;NK;NA
NK = Not known; NA=Not Applicable
rev_immunomedallergy_detString255RecommendedImmunologic - Medication allergies - Specify
immuninfluenzaIntegerRequiredImmunologic - Influenza vaccine1; 2; 91 = Yes; 2 = No; 9 = Unknown
rev_immunoimmunizationString50RecommendedImmunizations
Up to date;Behind;None;NK
NK = Not known
immundtapIntegerRecommendedImmunologic - Immunizations up to date - Dtap0; 10 = No; 1 = Yes
rev_immunoimmunizipvString255RecommendedImmunizations: IPV
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizhibString255RecommendedImmunizations: HIB
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizmmrString255RecommendedImmunizations: MMR
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizhepaString255RecommendedImmunizations: HepA
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizhepbString255RecommendedImmunizations: HepB
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizvariString255RecommendedImmunizations: Varicella
Up to date;Behind;None;NK
NK = Not known
rev_immunoimmunizprevString255RecommendedImmunizations: Prevnar
Up to date;Behind;None;NK
NK = Not known
other_tsc1IntegerRecommendedOther TSC-Related Conditions - Bone cysts1; 2; 91 = Yes; 2 = No; 9 = Unknown
other_tsc2IntegerRecommendedOther TSC-Related Conditions - Non-renal hamartoma1; 2; 91 = Yes; 2 = No; 9 = Unknown
other_tsc3IntegerRecommendedOther TSC-Related Conditions - Other?1; 2; 91 = Yes; 2 = No; 9 = Unknown
other_tsc4String255RecommendedOther TSC-Related Conditions - Other - Specify
gentest_tscIntegerRecommendedGenetics - Genetic testing results known?1 :: 31 = Yes; 2 = No; 3 = Never tested
gentest_tsc_resIntegerRecommendedGenetics - Genetic testing results1 :: 51 = TSC1, known disease causing; 2 = TSC1, uncertain significance; 3 = TSC2, known disease causing; 4 = TSC2, uncertain significance; 5 = No mutations identified
gentest_tsc_detString255RecommendedGenetics - Detailed Genetic Test Results
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: int_medhist01 and Element:
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