Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Level Exit Form

le

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
levelString10RecommendedTreatment level
weekFloatRecommendedWeek in level/study99=week 10-week 14
days_baselineIntegerRecommendedDays since baselinedate
crcidString40RecommendedCRC ID/ROA ID
updateIntegerRecommendedUpdated form0;11=Updated
mdswch1IntegerRecommendedLeaving lev1 med switch0;10=Not checked; 1=Checked
mdaug1IntegerRecommendedLeaving lev1 med augment0;10=Not checked; 1=Checked
ctswch1IntegerRecommendedLeaving lev1 switch to CT0;10=Not checked; 1=Checked
ctaug1IntegerRecommendedLeaving lev1 augment with CT0;10=Not checked; 1=Checked
mdsch2ctIntegerRecommendedLeaving lev2 with CT med switch0;10=Not checked; 1=Checked
mdswch2IntegerRecommendedLeaving lev2 no CT med switch0;10=Not checked; 1=Checked
mdaug2IntegerRecommendedLeaving lev2 no CT med augment0;10=Not checked; 1=Checked
mdswch2aIntegerRecommendedLeaving lev2A med switch0;10=Not checked; 1=Checked
mdaug2aIntegerRecommendedLeaving lev2A med augment0;10=Not checked; 1=Checked
mdswch3IntegerRecommendedLeaving lev3 med switch0;10=Not checked; 1=Checked
lestatusIntegerRecommendedPatient status1::41=Exiting treatment level into next level; 2=Exiting treatment level into follow up; 3=Exiting treatment level into study exit; 4=Exiting follow up before 12 months
l1seIntegerRecommendedFrom lev1 to lev2 - Side Effect0;10=Not checked; 1=Checked
l1efccyIntegerRecommendedFrom lev1 to lev2 - Efficacy0;10=Not checked; 1=Checked
l1otherIntegerRecommendedFrom lev1 to lev2 - Other0;10=Not checked; 1=Checked
l2seIntegerRecommendedFrom lev2 w/o CT to lev3 - Side effect0;10=Not checked; 1=Checked
l2efccyIntegerRecommendedFrom lev2 w/o CT to lev3 - Efficacy0;10=Not checked; 1=Checked
l2otherIntegerRecommendedFrom lev2 w/o CT to lev3 - Other0;10=Not checked; 1=Checked
l2ctseIntegerRecommendedFrom lev2 w/ CT to lev2A - Side effect0;10=Not checked; 1=Checked
l2ctefccyIntegerRecommendedFrom lev2 w/ CT to lev2A - Efficacy0;10=Not checked; 1=Checked
l2ctotherIntegerRecommendedFrom lev2 w/ CT to lev2A - Other0;10=Not checked; 1=Checked
l2aseIntegerRecommendedFrom lev2A to lev3 - Side effect0;10=Not checked; 1=Checked
l2aefccyIntegerRecommendedFrom lev2A to lev3 - Efficacy0;10=Not checked; 1=Checked
l2aotherIntegerRecommendedFrom lev2A to lev3 - Other0;10=Not checked; 1=Checked
l3seIntegerRecommendedFrom lev3 to lev4 - Side effect0;10=Not checked; 1=Checked
l3efccyIntegerRecommendedFrom lev3 to lev4 - Efficacy0;10=Not checked; 1=Checked
l3otherIntegerRecommendedFrom lev3 to lev4 - Other0;10=Not checked; 1=Checked
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: le01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.