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Description
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Notes
Data Structures with shared data
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MacArthur Competency Assessment

maccomp

01

MacArthur Competency Assessment

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectCATIEID, subjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
visitString50RecommendedVisit nameCharacter description of each type of visit
truncvisIntegerRecommendedTruncated Visit NumberCreated variable: provides a numeric visit number for all visits, including unscheduled and end of phase
phase_ctString20RecommendedCurrent Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase.Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
visdayIntegerRecommendedNumber of days from study baseline to date of visit
protocolString50RecommendedProtocol [Study] name
mat0IntegerRecommendedNot done because patient has a guardian.0;10=No;1=Yes
matu1aIntegerRecommendedUnderstanding-1a. Purpose of project0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat1
matu1bIntegerRecommendedUnderstanding-1b. Duration of study0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat2
matu1cIntegerRecommendedUnderstanding-1c. Daily medication0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat3
matu1dIntegerRecommendedUnderstanding-1d. Monthly interviews0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat4
matu2IntegerRecommendedUnderstanding-2. Research study0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat5
matu3aIntegerRecommendedUnderstanding-3a. Random assignment0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat6
matu3bIntegerRecommendedUnderstanding-3b. Double blind0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat7
matu3cIntegerRecommendedUnderstanding-3c. Medication changes0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat8
matu4aIntegerRecommendedUnderstanding-4a. Societal benefit0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat9
matu4bIntegerRecommendedUnderstanding-4b. Personal benefit0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat10
matu4cIntegerRecommendedUnderstanding-4c.Risk of getting ineffective medicine0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat11
matu4dIntegerRecommendedUnderstanding-4d. Side effects0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat12
matu5IntegerRecommendedUnderstanding-5. Rights to withdraw/receive ordinary care0::22 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible.maccat13
matu6IntegerRecommendedUnderstanding totalMATS1A, MATS2A, MATS3A, maccat_understanding
mata1IntegerRecommendedAppreciation -1. Goal of recruitment is not to optimize subject's care or well-being0::22 =Subject acknowledges that he or she is being recruited for a valid reason unrelated to potential personal benefit from being in the study; 1=Subject acknowledges being recruited for reasons both related to and unrelated to potential personal benefit. OR Subject maintains he or she is being recruited for a reason related only to potential personal benefit, but has a plausible explanation for why this is the case; 0 = Subject maintains he or she is being recruited for a reason related only to potential personal benefit, but does not have a plausible explanation for why this is the case. OR Subject offers response that is unrelated to the question or unintelligiblemaccat14
mata2IntegerRecommendedAppreciation -2. Research methods take precedence over individualized care0::22 = Subject provides response consistent with the idea that the research protocol, not personal needs, will determine the experimental condition to which he/she will be assigned; 1 = Subject is uncertain whether the research protocol or personal needs will determine the experimental condition to which he/she will be assigned. OR Subject believes that personal needs will determine assignment to experimental conditions, but has a plausible explanation for why this might be the case; 0 = Subject believes personal needs will determine assignment to experimental conditions, but does not have a plausible explanation for why this would be the case. OR Subject offers a response that is unrelated to the question or unintelligiblemaccat15
mata3IntegerRecommendedAppreciation -3. Ability to decline or withdraw participation0::22 = Subject acknowledges that failure to participate or later withdrawal will not adversely affect him/her (in particular, in the context of a treatment setting, that subject can continue to receive ordinary care-assuming that this is the case); 1 = Subject is uncertain whether failure to participate or later withdrawal will adversely affect him/her OR Subject believes failure to participate or later withdrawal will adversely affect him/her and has a plausible explanation for why this is the case; 0 = Subject believes failure to participate or later withdrawal will adversely affect him/her and does not have a plausible explanation for why this is the case. OR Subject offers response that is unrelated to the question or unintelligible.maccat16
mata4IntegerRecommendedAppreciation totalMATS1B, MATS2B, MATS3B, maccat_appreciation
matr1IntegerRecommendedReasoning -1. Consequential reasoning0::22 = Subject mentions at least two specific consequences when explaining the choice. The consequences may be related to only one or both alternatives; 1 = Subject mentions only one specific consequence when explaining the choice; 0 = Subject mentions no specific consequences when explaining the choice, even after being asked directly whether there were any more specific reasons why that choice seems best.maccat17
matr2IntegerRecommendedReasoning -2. Comparative reasoning0::22= Subject offers at least one statement that is a comparison of the two options. The statement should include at least one specific difference; 1= Subject makes comparison statement, but does not include a statement of a specific consequence; 0= Subject makes no comparative statementsmaccat18
matr3IntegerRecommendedReasoning -3. Generating consequences0::22 =Subject must give at least two reasonable consequences; 1= Subject gives only one reasonable consequence; 0= Subject gives no reasonable consequences, even with adequate encouragementmaccat19
matr4IntegerRecommendedReasoning -4. Logical consistency of final choice0::22= Subject's final choice (in Expressing a Choice) follows logically from the subject's own reasoning, as explained by the subject in response to the three previous subparts; 1= It is not clear whether the choice follows logically from the subject's own reasoning; 0= Subject's choice clearly does not follow logically from subject's own reasoning.maccat21
matr5IntegerRecommendedReasoning totalMATS1C, MATS2C, MATS3C, maccat_reasoning
matc1IntegerRecommendedChoice-1. Expressing a choice0::22= Subject states a choice; 1 =Subject states more than one choice, seems ambivalent; 0 =Subject does not state a choice.maccat20
matc2IntegerRecommendedChoice totalMATS1D, MATS2D, MATS3D
mats1eIntegerRecommendedIs this the final administration? (visit 1)0;10=No;1=Yes
mats2eIntegerRecommendedIs this the final administration (visit 2)0;10=No;1=Yes
mats3eIntegerRecommendedIs this the final administration? (visit 3)0;10=No;1=Yes
maccattotIntegerRecommendedMacCAT Total Score
study_idIntegerRecommendedStudy ID number46=Acute Phase; 47=Stabilization Phase
weekFloatRecommendedWeek in level/study99=week 10-week 14intid
siteString100RecommendedSiteStudy Site
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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Distribution for DataStructure: maccomp01 and Element:
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