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Description
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Data Structures with shared data
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Medication Adherance Form

maf

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectbid, id, newid, subject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldadate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
maf_add_pillsIntegerRecommendedAdditional pills dispensed
maf_commentsString250RecommendedComment field
maf_compFloatRecommended% Compliance
maf_data_sourceIntegerRecommendedSelects where info came from1;21=Pill count; 2=Participant report
maf_end_dateDateRecommendeddate of last dose taken
maf_last_visit_dispIntegerRecommendedPills dispensed at last visit
maf_new_pill_countIntegerRecommendedNew interval pill count
maf_parcomp_reportFloatRecommended% Compliance
maf_partaken_reportIntegerRecommendedPills taken per participant report
maf_perdayIntegerRecommendedPills Prescribed /day
maf_pilltakenIntegerRecommendedPills taken
maf_returnedIntegerRecommendedPills remaining
maf_returned_reportIntegerRecommendedPills remaining
maf_start_dateDateRecommendeddate first dose taken
maf_start_date_reportDateRecommendeddate first dose taken
maf_total_newIntegerRecommendedTotal pills for next interval
maf_total_new_pills_reportIntegerRecommendedTotal pills for next interval
maf2_adherenceFloatRecommendedcalculates blue adherence percentage
maf2_adherence1FloatRecommendedcalculates green adherence percentage
maf2_bluecap_dose_newFloatRecommendedDosage blue caps prescribed for new interval
maf2_bluecaps_additional_dispeIntegerRecommendedAdditional blue caps dispensed today
maf2_bluecaps_next_totalIntegerRecommendedTotal blue caps for next interval
maf2_bluecaps_remainIntegerRecommendedblue caps dispensed + remaining at last visit
maf2_bluecaps_returnedIntegerRecommended# of bluecaps returned
maf2_bluecaps_rx_perdayFloatRecommendedblue caps prescribed per day
maf2_bluecaps_takenIntegerRecommended# of bluecaps taken
maf2_data_sourceIntegerRecommendeddata source - pill ct1;21=Pill count; 2=Participant report
maf2_dispensed_dateDateRecommendedDispensed Date
maf2_end_dateDateRecommendedend date - defaults to today
maf2_greencap_dose_newFloatRecommendedDosage green caps prescribed for new interval
maf2_greencaps_additional_dispIntegerRecommendedAdditional green caps dispensed today
maf2_greencaps_next_totalIntegerRecommendedTotal green caps for next interval
maf2_greencaps_remainIntegerRecommendedgreen caps dispensed + remaining at last visit
maf2_greencaps_returnedIntegerRecommended# of green caps returned
maf2_greencaps_rx_perdayFloatRecommendedgreen caps prescribed per day
maf2_greencaps_takenIntegerRecommended# of green caps taken
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datamaf2_memo
maf2_xcrssovrIntegerRecommendedcrossover variable0::21=Yes; 2=Healthy control; 0=No
subject_descriptionString4,000RecommendedSubject related information (e.g the affection, phenotype, disease information, etc.).
siteString100RecommendedSiteStudy Site
visitString50RecommendedVisit nameCharacter description of each type of visittimept
fseqnoIntegerRecommendedSequence Number0::999The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
daysrzIntegerRecommendeddays since randomizationsaaa0b
version_formString100RecommendedForm usedvers
saaa1IntegerRecommendedDid the patient bring pill bottles to this visit? (Y/N)0;10=No; 1=Yes
medication_nameString255RecommendedName of medicationma2a, saaa2
saaa3FloatRecommendedWhat dose of medication did the doctor tell you to take each day?ma2b
saaa4IntegerRecommendedSince your last appointment, on how many days did you NOT TAKE this medication?0::100; 999999=Legitimately skippedma4, smfa5
saaa5IntegerRecommendedSince your last appointment, how many days did you TAKE MORE THAN OR LESS THAN the prescribed dose of this medication?0::100; 999999=Legitimately skippedma5, smfa6
saaa6IntegerRecommendedIs this Visit 7-11? (Y/N)0;10=No; 1=Yes
saaa7IntegerRecommendedDid the patient bring pill bottles to this visit? (Y/N)0;1;9990=No; 1=Yes; 999=Legitimately skipped
saaa8aIntegerRecommendedNumber of lower dose pills dispensed0::200;-999999=Legitimately skipped
saaa8bIntegerRecommendedNumber of lower dose pills remaining0::200;-999999=Legitimately skipped
saaa8cIntegerRecommendedNumber of lower dose pills taken0::200;-999999=Legitimately skipped
saaa8dIntegerRecommendedNumber of higher dose pills dispensed0::200;-999999=Legitimately skipped
saaa8eIntegerRecommendedNumber of higher dose pills remaining0::200;-999999=Legitimately skipped
saaa8fIntegerRecommendedNumber of higher dose pills taken0::200;-999999=Legitimately skipped
saaa9aIntegerRecommendedNumber of lower dose pills prescribed to achieve daily dose0::10;-999999=Legitimately skipped
saaa9bIntegerRecommendedNumber of days since last study visit0::100;-999999=Legitimately skipped
saaa9cIntegerRecommendedNumber of lower dose pills patient should have taken.0::200;-999999=Legitimately skipped
saaa9dIntegerRecommendedNumber of higher dose pills prescribed to achieve daily dose0::10;-999999=Legitimately skipped
saaa9eIntegerRecommendedNumber of days since last study visit0::100;-999999=Legitimately skipped
saaa9fIntegerRecommendedNumber of higher dose pills patient should have taken.0::200;-999999=Legitimately skipped
saaa10cIntegerRecommendedPercentage of lower dose pills taken0::100;-999999=Legitimately skipped
saaa10fIntegerRecommendedPercentage of higher dose pills taken0::100;-999999=Legitimately skipped
saaa11IntegerRecommendedBased on the patient's report, the pill count, and any other available information, please indicate the patient's adherence to the medication:1::11; 9991=Always/ almost always: took medication as prescribed 81-100% of the time; 2=Usually/ most of the time: took medication as prescribed 61-80% of the time; 3=About half the time: took medication as prescribed 41-60% of the time; 4=Sometimes: took medication as prescribed 21-40% of the time; 5=Never/ almost never: took medication as prescribed 0-20% of the time; 999=Legitimately skipped; 6 = Non-compliant; Has not taken any prescribed medications, OR abuses all; 7 = Poor compliance; Only occasionally takes medicines as prescribed or when feels anxious but then stops OR takes non-prescribed doses; 8 = Limited compliance; Takes all medications as prescribed only about ½ of the time, the rest of the time not taking at all or in highly inappropriate ways; 9 = Partial compliance; Takes all medicines as prescribed only about 2/3 of the time, the other times not taking for various reasons; 10 = Adequate compliance; Takes all medicines as prescribed but may forget to take medications up to one day per week or no more that 15% to 20% of weekly doses; 11 = Excellent compliance. Takes all medicines as prescribed (forgets occasional doses)smfa7
saaa11aIntegerRecommendedIf Never/almost never, did the patient take ANY study medication since last visit?0;1;9990=No; 1=Yes; 999=Legitimately skippedsmfa7a
modv7_11FloatRecommendedMode of SAAA3 Dose V7 To V110::900
nmod7_11IntegerRecommendedNumber of observations for Mode V7 To V110::5
modv3_6IntegerRecommendedMode Of SAAA3 Dose V3 To V60::900
nmod3_6IntegerRecommendedNumber of observations for Mode V3 To V60::5
saaa10aIntegerRecommendedNumber of lower dose pills taken0::200;-999999=Legitimately skipped
saaa10bIntegerRecommendedNumber of lower dose pills patient should have taken.0::200;-999999=Legitimately skipped
saaa10dIntegerRecommendedNumber of higher dose pills taken0::200;-999999=Legitimately skipped
saaa10eIntegerRecommendedNumber of days since last study visit0::200;-999999=Legitimately skipped
studyString100RecommendedStudy
weekFloatRecommendedWeek in level/study99=week 10-week 14
med_sequenceIntegerRecommendedMed Sequence numbermed_num
current_presIntegerRecommendedAre you currently taking any prescription medications0;10 = NO (END OF FORM);1 = YESma1
cmunitIntegerRecommendedUnits
1::29; 99
1 = micrograms (mkg); 2 = milligrams (mg); 3 = grams (g); 4 = tablet(s); 5 = capsule(s); 6 = gtt; 7 = meq; 8 = international units (IU); 9 = units (U); 10=Percent (%); 11=Compount/more than one medicine combind; 12=Grains (gr); 13=mg/kg; 99 = Other (specify); 14 = ml; 15 = mg/mL; 16 = mcg/mL; 17 = tbls; 18 = 3tts; 19 = cc; 20 = ss; 21 = puff; 22 = spray/squirt; 23 = suppository; 24 = teaspoon; 25 = uL; 26 = unknown; 27 = oz;28=millicurie; 29=microcuriema2c
cmunitoString50RecommendedUnit other specifyma2c_sp
npillFloatRecommendedHow many pills do you take each dayma3
med_ad1IntegerRecommendedDid not take as prescribed because: I do not need to take this medication0;10=No; 1=Yesma6a
med_ad2IntegerRecommendedDid not take as prescribed because: The medication was not providing me with relief of my symptoms0;10=No; 1=Yesma6b
med_ad3IntegerRecommendedDid not take as prescribed because: Symptoms improved so I didn't think I needed to keep taking the medication0;10=No; 1=Yesma6c
med_ad4IntegerRecommendedDid not take as prescribed because: The medication causes side effects that are bothersome0;10=No; 1=Yesma6d
med_ad5IntegerRecommendedDid not take as prescribed because: Starting a family and don't want to take a medication that might affect pregnancy0;10=No; 1=Yesma6e
med_ad6IntegerRecommendedDid not take as prescribed because: I forgot to take all of the doses of the medication0;10=No; 1=Yesma6f
med_ad7IntegerRecommendedDid not take as prescribed because: I fell asleep early and didn't have a chance to take my medication0;10=No; 1=Yesma6g
med_ad8IntegerRecommendedDid not take as prescribed because: Left the house in the morning and forgot to take the days medication with me0;10=No; 1=Yesma6h
med_ad9IntegerRecommendedDid not take as prescribed because: Stayed over at a friend's house or went on vacation and forgot to bring my medication with me0;10=No; 1=Yesma6i
med_ad10IntegerRecommendedDid not take as prescribed because: I could not afford to pay for my medication0;10=No; 1=Yesma6j
med_ad11IntegerRecommendedDid not take as prescribed because: I was not able to get my refills from the pharmacy on time0;10=No; 1=Yesma6k
med_ad12IntegerRecommendedDid not take as prescribed because: I lost my prescription0;10=No; 1=Yesma6l
med_ad13IntegerRecommendedDid not take as prescribed because: I didn't take the medication as prescribed for some other reason0;10=No; 1=Yesma6m
summa6IntegerRecommendedNumber of reasons for non-adherence total1::9
med_classString50RecommendedMedication class for the prescription
days_baselineIntegerRecommendedDays since baselinemadays
non_adherenceIntegerRecommendedWhether fully or partially non adherent days>50;10=No; 1=Yes
smfa1String2RecommendedWhat type of visit is todays participant contact?S;US=Protocol-scheduled clinic visit; U= Unscheduled clinic visit
smfa2IntegerRecommendedIs a medication bottle being returned from the last medication dispensing?0;10=No; 1=Yes
npillretIntegerRecommendedNumber of pills returned999=Legitimately skippedsmfa3
smfa4IntegerRecommendedWas medication dispensed at the previous visit?0;10=No; 1=Yes
smfa8IntegerRecommendedIs medication being dispensed today?0;10=No; 1=Yes
sad6a1FloatRecommendedMedication 1: Total daily dosage prescribed today (expected dose for MOST days between now and next study visit)0::2000;-999-999=Legitimately skippedsmfa9
smfa10IntegerRecommendedHow many medication bottles do you need to dispense today?999=Legitimately skipped
smfa11IntegerRecommendedAre you ready for the medication bottle numbers for dispensing?0;1; 9990=No; 1=Yes; 999=Legitimately skipped
smfa12aIntegerRecommendedMedication Bottle Numbers999=Legitimately skipped
smfa12bIntegerRecommendedMedication Bottle Numbers999=Legitimately skipped
demo_med_reg_xIntegerRecommendedHow many medications does the child take regularly?psyadh1
m_skfgIntegerRecommendedMasked study medication skipped:Forgot to take0;10=No;1=Yespsyadh2
m_sksdIntegerRecommendedMasked study medication skipped:Symptom decrease0;10=No;1=Yespsyadh4
m_sksiIntegerRecommendedMasked study medication skipped:Symptom increase0;10=No;1=Yespsyadh5
priv1aIntegerRecommendedWhich of the following types of health insurance coverage do you have? Private Insurance0;1; 30 = No; 1 = Yes; 3= DKpsyadh9a
privatebIntegerRecommendedPrivate Insurance: Through spouse or family members employment0;10 = No; 1 = Yespsyadh9b
privatedIntegerRecommendedPrivate Insurance: Paid by someone not in family0;10 = No; 1 = Yespsyadh9c
privinsIntegerRecommendedhas private insurance0;1;-70= no; 1= yes; -7=Refusedpsyadh9d
publicaIntegerRecommendedPublic Insurance: Medicare0;1;-7; 30 = No; 1 = Yes; -7 = Refused; 3=DKpsyadh9e
chartreview016c_3IntegerRecommendedWhat type of insurance does the patient have? Medicaid0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;psyadh9f
chartreview016c_8IntegerRecommendedWhat type of insurance does the patient have? Other government program0;1; -888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;psyadh9g
insuranceString50Recommendedchild's primary health insurance providerpsyadh9g_spec
psyadh3IntegerRecommendedAre you ever careless in taking your medications?0;10 = No; 1 = Yes
psyadh6IntegerRecommendedWhen was the last time you missed or skipped any of your medications?0::40 = Never skip medications; 1 = Within the past week; 2 = 1-2 weeks ago; 3 = 3-4 weeks ago; 4 = More than a month ago
psyadh7aIntegerRecommendedWhat is the main reason that you don't take your medications?0::220 = Afraid of addiction ; 1 = Bad taste;2 = Changes in daily routine (e.g. vacation, holiday, non-work day);3 = Don't like the pill (color, form);4 = Don't need them;5 = Don't want to be on medication;6 = Feel better;7 = Feel depressed or overwhelmed taking medications;8 = Feel sick with medication;9 = Were busy with other things;10 = Frequent dosing;11 = Prescription changed by physician;12 = Side effects;13 = Too expensive;14 = Too many pills to take;15 = Unable to refill;16 = Were away from home;17 = Forgot;18 = To let someone know (e.g. family member, significant other) that I was upset with them;19 = I was confused about when/how much/what to take;20 = Reminds me that I'm ill/that I'm not normal;21 = Hard to swallow/discomfort when trying to swallow them;22 = Never skips medication
psyadh8aIntegerRecommendedHow do you usually remember to take your medications - Calendar/diary0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8bIntegerRecommendedHow do you usually remember to take your medications - Pill box0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8cIntegerRecommendedHow do you usually remember to take your medications - Alarm0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8dIntegerRecommendedHow do you usually remember to take your medications - Friend/family member0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8eIntegerRecommendedHow do you usually remember to take your medications - Memory only0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8fIntegerRecommendedHow do you usually remember to take your medications - Pain or other sysptoms0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8gIntegerRecommendedHow do you usually remember to take your medications - Other0;1; 990 = No; 1 = Yes; 99 = Missing
psyadh8g_specString25RecommendedOther memory aid for medication, specify
cyb_q06IntegerRecommendedReliability0::30=Excellent 1=Good 2=Fair 3=Poor
sof_4IntegerRecommendedAppointment compliance1::101=Patient does not keep appointments without prompting; 2=Patient is frequently late or misses appointments; 3=Patient is occasionally late for appointments; 4=Patient is prompt and on time for appointments;– 5 = Non-compliant, Fails to keep any contacts with therapist/doctor or follow up on any plans. Patient’s overall pattern is to not seek treatment at all relevant to his/her needs; 6 = Poor compliance, Only occasionally comes to the scheduled appointments or may call doctor with specific problems but usually does not maintain contact. Patient may deny need for treatment except during crisis periods and discontinue treatment as soon as crisis is over; 7 = Limited compliance, Limited compliance Frequently cancels or misses scheduled appointments about1/2 to 2/3 of the time and may have long periods of time when s/he is not engaged in treatment; 8 = Partial compliance, Cancels or misses scheduled appointments about 1 of 3x but usually seeks treatment at appropriate times. 9 = Adequate compliance, Adequate compliance Attends most scheduled appointments and is engaged in recommended length and type of treatment but occasionally appointments. for minor reasons such as “feeling too tired”; 10 = Excellent compliance, consistently attends all scheduled appointments for recommended therapy
cyb_be_reliIntegerRecommendedReliability of Information0; 1; 2; 30 = Excellent; 1 = Good; 2 = Fair; 3 = Poor
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
bsimoFloatRecommendedMonths from Time 0 to assessmentmonfol
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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Distribution for DataStructure: maf01 and Element:
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