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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Medication Count Log Summary and Medication Compliance

mcl

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
blankString1RecommendedIndicator for form being returned blank from siteN;YN = Form has data Y = Form is blank
day10IntegerRecommendedDays on dose: 10 mg
day20IntegerRecommendedDays on dose: 20 mg
day30IntegerRecommendedDays on dose: 30 mg
day40IntegerRecommendedDays on dose: 40 mg
day50IntegerRecommendedDays on dose: 50 mg
day60IntegerRecommendedDays on dose: 60 mg
day10rIntegerRecommendedDays on dose: 10 mg-Dose Reduction
day20rIntegerRecommendedDays on dose: 20 mg-Dose Reduction
day30rIntegerRecommendedDays on dose: 30 mg-Dose Reduction
day40rIntegerRecommendedDays on dose: 40 mg-Dose Reduction
day50rIntegerRecommendedDays on dose: 50 mg-Dose Reduction
day60rIntegerRecommendedDays on dose: 60 mg-Dose Reduction
exp10IntegerRecommendedExpected # of pills taken: 10 mg
exp20IntegerRecommendedExpected # of pills taken: 20 mg
exp30IntegerRecommendedExpected # of pills taken: 30 mg
exp40IntegerRecommendedExpected # of pills taken: 40 mg
exp50IntegerRecommendedExpected # of pills taken: 50 mg
exp60IntegerRecommendedExpected # of pills taken: 60 mg
exp10rIntegerRecommendedExpected # of pills taken: 10 mg-Dose Reduction
exp20rIntegerRecommendedExpected # of pills taken: 20 mg-Dose Reduction
exp30rIntegerRecommendedExpected # of pills taken: 30 mg-Dose Reduction
exp40rIntegerRecommendedExpected # of pills taken: 40 mg-Dose Reduction
exp50rIntegerRecommendedExpected # of pills taken: 50 mg-Dose Reduction
exp60rIntegerRecommendedExpected # of pills taken: 60 mg-Dose Reduction
act10IntegerRecommendedActual # of pills taken: 10 mg
act20IntegerRecommendedActual # of pills taken: 20 mg
act30IntegerRecommendedActual # of pills taken: 30 mg
act40IntegerRecommendedActual # of pills taken: 40 mg
act50IntegerRecommendedActual # of pills taken: 50 mg
act60IntegerRecommendedActual # of pills taken: 60 mg
act10rIntegerRecommendedActual # of pills taken: 10 mg-Dose Reduction
act20rIntegerRecommendedActual # of pills taken: 20 mg-Dose Reduction
act30rIntegerRecommendedActual # of pills taken: 30 mg-Dose Reduction
act40rIntegerRecommendedActual # of pills taken: 40 mg-Dose Reduction
act50rIntegerRecommendedActual # of pills taken: 50 mg-Dose Reduction
act60rIntegerRecommendedActual # of pills taken: 60 mg-Dose Reduction
cply10FloatRecommendedDose Compliance (%): 10 mg[Note: Several patients started study drug on the day of drug receipt instead of the next day. If a patient had 1 more actual pill than was expected, their compliance rate was set to 100%]
cply20FloatRecommendedDose Compliance (%): 20 mg
cply30FloatRecommendedDose Compliance (%): 30 mg
cply40FloatRecommendedDose Compliance (%): 40 mg
cply50FloatRecommendedDose Compliance (%): 50 mg
cply60FloatRecommendedDose Compliance (%): 60 mg
cply10rFloatRecommendedDose Compliance (%): 10 mg-Dose Reduction
cply20rFloatRecommendedDose Compliance (%): 20 mg-Dose Reduction
cply30rFloatRecommendedDose Compliance (%): 30 mg-Dose Reduction
cply40rFloatRecommendedDose Compliance (%): 40 mg-Dose Reduction
cply50rFloatRecommendedDose Compliance (%): 50 mg-Dose Reduction
cply60rFloatRecommendedDose Compliance (%): 60 mg-Dose Reduction
cert10String1RecommendedData Certainty Level: 10 mgH;M;LH = High; M = Medium; L = Low
cert20String1RecommendedData Certainty Level: 20 mgH;M;LH = High; M = Medium; L = Low
cert30String1RecommendedData Certainty Level: 30 mgH;M;LH = High; M = Medium; L = Low
cert40String1RecommendedData Certainty Level: 40 mgH;M;LH = High; M = Medium; L = Low
cert50String1RecommendedData Certainty Level: 50 mgH;M;LH = High; M = Medium; L = Low
cert60String1RecommendedData Certainty Level: 60 mgH;M;LH = High; M = Medium; L = Low
cert10rString1RecommendedData Certainty Level: 10 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
cert20rString1RecommendedData Certainty Level: 20 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
cert30rString1RecommendedData Certainty Level: 30 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
cert40rString1RecommendedData Certainty Level: 40 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
cert50rString1RecommendedData Certainty Level: 50 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
cert60rString1RecommendedData Certainty Level: 60 mg-Dose ReductionH;M;LH = High; M = Medium; L = Low
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: mcl01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.