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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Medical Demographics



Medical Demographics

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldvisit_survey_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
strdataptString10RecommendedWhich datapoint is this test to be counted as?Pre;Post;Post-Post
child_residenceString55RecommendedChild lives with1. Both biological mother and father;2. Biological mother only;3. Biological father only;4. Biological mother and stepfather;5. Biological father and stepmother;6. Adoptive parents;7. Foster parents;8. Relatives;9. Other please specify; 10. Refused; Both natural parents; Natural father only; Natural father and stepmother; Natural mother only; Natural mother and stepfather; Adoptive or foster parents; Relatives - please specify; Institution - please specifystrFamilyBackground
liveswithotherString50Recommendedchild lives with other, specifystrLivesWithOther
strrelchild1String50RecommendedRelationship to the child of other person living in the home
strrelchild2String50RecommendedRelationship to the child of other person living in the home
strrelchild3String50RecommendedRelationship to the child of other person living in the home
strrelchild4String50RecommendedRelationship to the child of other person living in the home
strrelchild5String50RecommendedRelationship to the child of other person living in the home
strrelchild6String50RecommendedRelationship to the child of other person living in the home
bio_mother_occupationString100RecommendedBiological Mother OccupationstrMomOccupation
mother_eduString55RecommendedMother's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School; Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training; Some Grade SchoolstrMomEducationLevel
bio_father_occupationString100RecommendedBiological Father OccupationstrFatherOccupation
father_eduString55RecommendedFather's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School;Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training;Some Grade SchoolstrFatherEducationLevel
ques_age1IntegerRecommendedAge -Sibling 1(in months)0 :: 1200strAgeChild1
ques_gender1String50RecommendedGender -Sibling 1
M = Male; F = Female; T =TransgenderstrSexChild1
ques_gradal1String50RecommendedLast grade completed -Sibling 1strGradeLvlChild1
strdiagconcernschild1String50RecommendedFirst sibling diagnoses or Concerns
ques_age2IntegerRecommendedAge -Sibling 2(in months)0 :: 1200strAgeChild2
ques_gender2String50RecommendedGender -Sibling 2
M = Male; F = FemalestrSexChild2
ques_gradal2String50RecommendedLast grade completed -Sibling 2strGradeLvlChild2
strdiagconcernschild2String50RecommendedSecond sibling diagnoses or Concerns
ques_age3IntegerRecommendedAge -Sibling 3(in months)0 :: 1200strAgeChild3
ques_gender3String50RecommendedGender -Sibling 3
M = Male; F = FemalestrSexChild3
ques_gradal3String50RecommendedLast grade completed -Sibling 3strGradeLvlChild3
strdiagconcernschild3String50RecommendedThird sibling diagnoses or Concerns
ques_age4IntegerRecommendedAge -Sibling 4(in months)0 :: 1200strAgeChild4
ques_gender4String50RecommendedGender -Sibling 4
M = Male; F = FemalestrSexChild4
ques_gradal4String50RecommendedLast grade completed -Sibling 4strGradeLvlChild4
strdiagconcernschild4String50RecommendedFourth sibling diagnoses or Concerns
ques_age5IntegerRecommendedAge -Sibling 5(in months)0 :: 1200strAgeChild5
ques_gender5String50RecommendedGender -Sibling 5
M = Male; F = FemalestrSexChild5
ques_gradal5String50RecommendedLast grade completed -Sibling 5strGradeLvlChild5
strdiagconcernschild5String50RecommendedFifth sibling diagnoses or Concerns
ques_age6IntegerRecommendedAge -Sibling 6(in months)0 :: 1200strAgeChild6
ques_gender6String50RecommendedGender -Sibling 6
M = Male; F = FemalestrSexChild6
ques_gradal6String50RecommendedLast grade completed -Sibling 6strGradeLvlChild6
strdiagconcernschild6String50RecommendedSixth sibling diagnoses or Concerns
strconautString5RequiredDoes the child have Autism, PDD, Asperger's?
Yes; No;999
strotherfamdiagString255RecommendedAny other Family members diagnosed on EITHER side? Please specify
treatment_nameString200Recommendedtreatment namestrTxReceivedAut
child_seizureString50RequiredHas she/he ever been to a doctor for any of these things…Epilepsy or Seizures /Epilepsia o convulsiones
Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.strConSeizures
strseizuresinfancyString5RequiredSeizures, convulsions, epilepsy: Infancy only?Yes; No;999
rev_headfebseizString50RecommendedFebrile Seizures
Yes; No; NK; NS
NK= Not known; NS = Not surestrSeizuresFebrile
strseizurestreatString5RecommendedSeizures, convulsions, epilepsy: Treated and resolved?Yes; No
strseizuresongoingString5RequiredSeizures, convulsions, epilepsy: Ongoing issue?Yes; No;999
strtxreceivedseizuresString255RecommendedWhat treatment was/is received?
child_cerpalsyString50RequiredDoes (did) the Child have Cerebral Palsy?
Yes; No; NK; NS
NK= Not known; NS = Not surestrConCPalsy
strcpalsyadditionalString50RecommendedAdditional Information
strtxreceivedcpalsyString255RecommendedWhat treatment was/is received?
child_cancerString50RecommendedDoes the Child have Cancer?
child_cancer_cmtString255RecommendedSpecify Child's Cancer typestrCancerAdditional
strtxreceivedcancerString255RecommendedWhat treatment was/is received?
strconmuscularweakString5RecommendedDoes the child have Muscular Weakness?
Yes; No
strmuscularweakadditionalString50RecommendedAdditional Information
strtxreceivedmuscularweakString255RecommendedWhat treatment was/is received?
strconmotordelayString5RecommendedDoes the child have motor delays or slow motor development?
Yes; No
strmotordelayadditionalString50RecommendedAdditional Information
strtxreceivedmotordelayString255RecommendedWhat treatment was/is received?
chi_defIntegerRecommendedplease indicate if your child has any deformity
0; 1
0 = No; 1 = YesstrConDeformities
strdeformitiesadditionalString50RecommendedAdditional Information
strtxreceiveddeformitiesString255RecommendedWhat treatment was/is received?
rev_eyeimpairString50RecommendedVisual impairments
NK = Not knownstrConSevVisImp
strsevvisimpadditionalString10RecommendedAdditional InformationBorn with;Acquired
strtxreceivedsevvisimpString255RecommendedWhat treatment was/is received?
hear_lossString10RequiredDeafness or significant hearing loss
NK = Not knownstrConHearLoss
strhearlossadditionalString10RecommendedAdditional InformationBorn with;Acquired
strtxreceivedhearlossString255RecommendedWhat treatment was/is received?
child_speechdelayString50RecommendedDoes (did) the Child have a Speech/Language Delay?
Yes; No; NK; NS
NK= Not known; NS = Not surestrConSpeechProb
strspeechprobadditionalString50RecommendedAdditional Information
strtxreceivedspeechprobString255RecommendedWhat treatment was/is received?
strconsigcogdelayString5RecommendedDoes the child have significant cognitive delays?
Yes; No
strsigcogdelayadditionalString50RecommendedAdditional Information
strtxreceivedsigcogdelayString255RecommendedWhat treatment was/is received?
strconbraindamageString5RecommendedDoes the child have brain damage?
Yes; No
strbraindamageadditionalString10RecommendedAdditional InformationBorn with;Acquired
strtxreceivedbraindamageString255RecommendedWhat treatment was/is received?
ques_devdelayaString50RecommendedHad or has a developmental delay -Child with Autism/Study Participant
NA = Not answeredstrConDevDelay
strdevdelayadditionalString50RecommendedAdditional Information
strtxreceiveddevdelayString255RecommendedWhat treatment was/is received?
child_learndisString50RequiredDoes (did) the Child have a Learning Disability?
Yes; No; NK; NS
NK= Not known; NS = Not surestrConLearnDis
strlearndisadditionalString50RecommendedAdditional Information
strtxreceivedlearndisString255RecommendedWhat treatment was/is received?
condition_emotionString5RecommendedEmotional Disturbance or Serious Behavioral Difficulities
Yes; No
stremobehaprobadditionalString50RecommendedAdditional Information
strtxreceivedemobehaprobString255RecommendedWhat treatment was/is received?
attentiondisorderIntegerRecommendedDoes (did) the subject have Attention Deficit Disorder +/- Hyperactivity?
0 = No/False; 1 = Yes/True; 2 = UnknownstrConADD
straddadditionalString50RecommendedAdditional Information
strtxreceivedaddString255RecommendedWhat treatment was/is received?
child_otherpsychdisString50RecommendedDoes (did) the Child have a Psychiatric Disorder?
child_otherpsychdis_cmtString255RecommendedSpecify Child's Psychiatric DisorderstrPsycDisAdditional
strtxreceivedpsycdisString255RecommendedWhat treatment was/is received?
touretString10RequiredTourette Syndrome
Yes; No; NK; NS
NK= Not known; NS = Not surestrConTourette
strtouretteadditionalString50RecommendedAdditional Information
strtxreceivedtouretteString255RecommendedWhat treatment was/is received?
strconneurofibString5RequiredDoes the child have Neurofibromatosis?
strneurofibadditionalString50RecommendedAdditional Information
strtxreceivedneurofibString255RecommendedWhat treatment was/is received?
child_tubersclString50RequiredDoes (did) the Child have Tuberous Sclerosis?Yes; No; NK; NSNK= Not known; NS = Not surestrConTScler
strtscleradditionalString50RecommendedAdditional Information
strtxreceivedtsclerString255RecommendedWhat treatment was/is received?
cfmh_chd_fragilexIntegerRequiredDoes (did) the Child have Fragile X?
0 = No; 1 = YesstrConFragX
strfragxadditionalString50RecommendedAdditional Information
strtxreceivedfragxString255RecommendedWhat treatment was/is received?
NK = Not knownstrConDiabetes
rev_endodiabetestypeString50RequiredDiabetes: TypeI;II;999strDiabetesAdditional
strtxreceiveddiabetesString255RecommendedWhat treatment was/is received?
strconimmuneprobString5RecommendedDoes the child have immune system problems?
Yes; No
strimmuneprobadditionalString50RecommendedAdditional Information
strtxreceivedimmuneprobString255RecommendedWhat treatment was/is received?
child_thyroiddisString50RequiredDoes the Child have Thyroid Disease?
strthyroidadditionalString50RecommendedAdditional Information
strtxreceivedthyroidString255RecommendedWhat treatment was/is received?
strconkidneyString5RecommendedDoes the child/patient have kidney disease?
Yes; No
strkidneyadditionalString50RecommendedAdditional Information
strtxreceivedkidneyString255RecommendedWhat treatment was/is received?
strconheartdisString5RequiredDoes the child/patient have heart disease?
Yes; No;999;Ref
Ref=refused; 999=NA/NK/missing
strheartdisadditionalString50RecommendedAdditional Information - specify
strtxreceivedheartdisString255RecommendedWhat treatment was/is received?
strconallergiesString5RecommendedDoes the subject have allergies?
Yes; No
strallergiesadditionalString50RecommendedAdditional Information - specify
strtxreceivedallergiesString255RecommendedWhat treatment was/is received?
strconotherString5RecommendedOther condition?
Yes; No
strotheradditionalString50RecommendedAdditional Information - specify
strtxreceivedotherString255RecommendedWhat treatment was/is received?
info_gestString50RecommendedNo. Weeks Gestation (G.A.)intGestAge
strnicuString3RecommendedDid the child spend any time in the NICU?Yes; No; NANA=Not Applicable
strnicureasondurString255RecommendedIf yes, please specify the reason for and the duration of the NICU stay.
hospitalizationsString200Recommendedhas the subject had any hospitalisationsstrHospital
dtmstarthosp1DateRecommendedDate 1st hospitalization began
dtmendhosp1DateRecommendedDate 1st hospitalization ended
strdurhosp1String255RecommendedIf dates not given, duration of 1st hospitalization
strreasonhosp1String50RecommendedReason for 1st hospitalization.
stroutcomehosp1String50RecommendedOutcome of 1st hospitalization.
dtmstarthosp2DateRecommendedDate 2nd hospitalization began
dtmendhosp2DateRecommendedDate 2nd hospitalization ended
strdurhosp2String255RecommendedIf dates not given, duration of 2nd hospitalization
strreasonhosp2String50RecommendedReason for 2nd hospitalization.
stroutcomehosp2String50RecommendedOutcome of 2nd hospitalization.
dtmstarthosp3DateRecommendedDate 3rd hospitalization began
dtmendhosp3DateRecommendedDate 3rd hospitalization ended
strdurhosp3String255RecommendedIf dates not given, duration of 3rd hospitalization
strreasonhosp3String50RecommendedReason for 3rd hospitalization.
stroutcomehosp3String50RecommendedOutcome of 3rd hospitalization.
dtmstarthosp4DateRecommendedDate 4th hospitalization began
dtmendhosp4DateRecommendedDate 4th hospitalization ended
strdurhosp4String255RecommendedIf dates not given, duration of 4th hospitalization
strreasonhosp4String50RecommendedReason for 4th hospitalization.
stroutcomehosp4String50RecommendedOutcome of 4th hospitalization.
strillness1DateRecommendedDate of 1st illnessdtmIllness1
strage1String50RecommendedChild's age at 1st illnessintAge1
strtx1String250RecommendedTreatment received
strillness2DateRecommendedDate of 2nd illnessdtmIllness2
strage2String50RecommendedChild's age at 2nd illnessintAge2
strtx2String50RecommendedTreatment received
strillness3DateRecommendedDate of 3rd illnessdtmIllness3
strage3String50RecommendedChild's age at 3rd illnessintAge3
strtx3String50RecommendedTreatment received
strillness4DateRecommendedDate of 4th illnessdtmIllness4
strage4String50RecommendedChild's age at 4th illnessintAge4
strtx4String50RecommendedTreatment received
medication1_nameString100RecommendedName first medication that the participant has taken999= Legitimately skipped;strMed1
strmedstart1DateRecommendedWhat was the start date?dtmMedStart1
strmedend1DateRecommendedWhat was the end date?dtmMedEnd1
strreason1String50RecommendedReason for prescription 1
strwork1String50RecommendedDid it work?
medication2_nameString200RecommendedName second medication that the participant has taken999= Legitimately skipped;strMed2
strmedstart2DateRecommendedWhat was the start date?dtmMedStart2
strmedend2DateRecommendedWhat was the end date?dtmMedEnd2
strreason2String50RecommendedReason for prescription 2
strwork2String50RecommendedDid it work?
medication3_nameString150RecommendedName third medication that the participant has taken999= Legitimately skipped;strMed3
strmedstart3DateRecommendedWhat was the start date?dtmMedStart3
strmedend3DateRecommendedWhat was the end date?dtmMedEnd3
strreason3String50RecommendedReason for prescription 3
strwork3String50RecommendedDid it work?
medication4_nameString100RecommendedName fourth medication that the participant has taken999= Legitimately skipped;strMed4
strmedstart4DateRecommendedWhat was the start date?dtmMedStart4
strmedend4DateRecommendedWhat was the end date?dtmMedEnd4
strreason4String255RecommendedReason for prescription 4
strwork4String50RecommendedDid it work?
medication5_nameString100RecommendedName fifth medication that the participant has takenstrMed5
strmedstart5DateRecommendedWhat was the start date?dtmMedStart5
strmedend5DateRecommendedWhat was the end date?dtmMedEnd5
strreason5String255RecommendedReason for prescription 5
strwork5String50RecommendedDid it work?
medication6_nameString100RecommendedName sixth medication that the participant has takenstrMed6
strmedstart6DateRecommendedWhat was the start date?
strmedend6DateRecommendedWhat was the end date?
strreason6String50RecommendedReason for prescription 6
strwork6String50RecommendedDid it work?
medication7_nameString100RecommendedName seventh medication that the participant has takenstrMed7
strmedstart7DateRecommendedWhat was the start date?
strmedend7DateRecommendedWhat was the end date?
strreason7String50RecommendedReason for prescription 7
strwork7String50RecommendedDid it work?
medication8_nameString100RecommendedName eighth medication that the participant has takenstrMed8
strmedstart8DateRecommendedWhat was the start date?
strmedend8DateRecommendedWhat was the end date?
strreason8String50RecommendedReason for prescription 8
strwork8String50RecommendedDid it work?
strviolenceString3RecommendedHas the child ever been exposed to violence, abuse, or neglect?Yes; No
strviolencedescString50RecommendedIf yes, please describe.
strbeginconcernString50RecommendedWhen did you first begin to have concerns about the child?
fsymcString4,000RecommendedFIRST SYMPTOMS TO AROUSE PARENTAL CONCERNstrThingsNoticed
diag_ageatdiagIntegerRecommendedAge at diagnosis(in months)
0 :: 1200
asd_detailsString200RecommendedDetails of ASD diagnosisstrDiag
strdiagchangedString3RecommendedHas this diagnosis changed since it was orginally given?Yes; NostrDiagChanged
current_diagnosisString255RecommendedPresent Classification/DiagnosisstrCurDiag
milestone_age_mo_smileIntegerRecommendedAge in which the participant accomplished the following milestone in months: smiledstrAgeSmiled
milestone_age_mo_walkaloneIntegerRecommendedAge in which the participant accomplished the following milestone in months: walked alonestrAgeWalkedAlone
stragerodetriIntegerRecommendedAge at which the child accomplished riding a tricycle.(0=not yet accomplished) in monthsstrAgeRodeTri
earlydev_bowelIntegerRecommendedAcquisition of bowel control (in months)0 :: 900;993;994;995;996;997;998;999993 = Achieved bowel control for a period of 12 months but has relapsed and now regularly soils; 994 = Never achieved continence; 995 = Still not reached, i.e., continent for period of less than 12 months; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not askedstrAgeBowelDay
stragetiedshoeIntegerRecommendedAge at which the child accomplished tying shoelaces.(0=not yet accomplished) in monthsstrAgeTiedShoe
stragealphaString50RecommendedAge at which the child accomplished saying the alphabet in order.(0=not yet accomplished)strAgeAlpha
stragesatwosupIntegerRecommendedAge at which the child accomplished sitting without support. (0=not yet accomplished) in monthsstrAgeSatWOSup
stragespoke1stIntegerRecommendedAge at which the child accomplished speaking 1st words. (0=not yet accomplished) in monthsstrAgeSpoke1st
earlydev_drydzIntegerRecommendedAcquisition of bladder control: Daytime (in months)0 :: 600;993;994;995;996;997;998;999993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not askedstrAgeBladderDay
earlydev_drynzIntegerRecommendedAcquisition of bladder control: Night (in months)0 :: 600;993;994;995;996;997;998;999993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached, i.e., continent for period of less than 12 months; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not askedstrAgeBladderNight
toilet_train_nightIntegerRecommended9. Acquisition of bladder control: nighttime0 :: 120;993;994;995;996;997;998;999993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not askedstrBowelNight
stragecolorsIntegerRecommendedAge at which the child accomplished naming colors. (0=not yet accomplished) in months
stragereadString50RecommendedAge at which the child accomplished beginning to read. (0=not yet accomplished) in months
milestone_age_mo_crawlIntegerRecommendedAge in which the participant accomplished the following milestone in months: crawledstrAgeCrawled
stragesentenceIntegerRecommendedAge at which the child spoke a sentence. (0=not yet accomplished) in months
stragebuttonIntegerRecommendedAge at which the child accomplished buttoning clothing. (0=not yet accomplished) in months
stragecircleIntegerRecommendedAge at which the child drew a circle. (0=not yet accomplished) in months
stragetrainwheelIntegerRecommendedAge at which the child rode a bicycle without training wheels. (0=not yet accomplished) in months
medhx_sleep_probString50RecommendedDoes subject have sleep problems?
Yes; No
strsleepagestartIntegerRecommendedAge when issues began. In months
strsleepageendIntegerRecommendedAge when issues ended. In months
medhx_sleep_prob_noteString255RecommendedNote regarding sleep problemsstrSleepDesc
streatprobString5RecommendedDoes your child have issues with eating?
Yes; No
streatagestartIntegerRecommendedAge when issues began. In months
streatageendIntegerRecommendedAge when issues ended.In months
streatdescString255RecommendedDescribe issues eating.
strtoiletprobString5RecommendedDoes your child have issues with toilet training?
Yes; No
strtoiletagestartIntegerRecommendedAge when issues began. In months
strtoiletageendIntegerRecommendedAge when issues ended.In months
strtoiletdescString255RecommendedDescribe issues toilet training.
strspec1String50RecommendedProvider Speciality
strspec2String50RecommendedProvider Speciality
strspec3String50RecommendedProvider Speciality
strspec4String50RecommendedProvider Speciality
strspec5String50RecommendedProvider Speciality
strspec6String50RecommendedProvider Speciality
strschooltype1String50RecommendedSchool Type
stryears1String50RecommendedYears Attended
strgrades1String50RecommendedWhich Grades?
strservices1String50RecommendedServices Provided
strschooltype2String50RecommendedSchool Type
stryears2String50RecommendedYears Attended
strgrades2String50RecommendedWhich Grades?
strservices2String50RecommendedServices Provided
strschooltype3String50RecommendedSchool Type
stryears3String50RecommendedYears Attended
strgrades3String50RecommendedWhich Grades?
strservices3String50RecommendedServices Provided
strschooltype4String50RecommendedSchool Type
stryears4String50RecommendedYears Attended
strgrades4String50RecommendedWhich Grades?
strservices4String50RecommendedServices Provided
strschooltype5String50RecommendedSchool Type
stryears5String50RecommendedYears Attended
strgrades5String50RecommendedWhich Grades?
strservices5String50RecommendedServices Provided
strschooltype6String50RecommendedSchool Type
stryears6String50RecommendedYears Attended
strgrades6String50RecommendedWhich Grades?
strservices6String50RecommendedServices Provided
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datastrNotes
sample_takenString50RecommendedWas a sample taken at this interview/during this project timeYes;No
sample_descriptionString3,500RecommendedSample description: tissue type, i.e. blood, saliva, brain etc.whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line; unknown; semen; frontal cortex; parietal cortex; basal ganglia; Placenta; hair; occipital visual cortex; cerebellum; spleen
biorepository_nameString100RecommendedBiorepository where sample is stored
patient_id_biorepositoryString100RecommendedBiorepository Patient ID
raceString30RecommendedRace of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
efamnoString25RecommendedStudy family ID as assigned by Genetic Contributions of Negative Valence Systems to Internalizing Pathways study staff
clcontactidString20RecommendedStudy family ID as assigned by Mid Atlantic Twin Registry staff
pair_numberIntegerRecommendedTwin pair birth order
relationIntegerRecommendedTwin individual birth order
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: meddem01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.