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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Medications Form

medform

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldInterviewYear
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
respondentString20RequiredRespondent
Mother;Father;Both; Child; Other; Parent
respondent_other_specifyString50RecommendedRespondent: Other (specify)
childmedsIntegerRecommendedIs your child currently taking any medications?0;1;-99;88;770= No ; 1= Yes ; -99= N/A ; 88= Missing ; 77= Refusedcurrent_meds_status
neurolepticsIntegerRecommendedTaking neuroleptics?0::1; 9990=no, 1=yes, 999=missing
neuroleptic_nameString50RecommendedNeuroleptic name?
neuroleptic_doseString25RecommendedNeuroleptic dose?
ssriIntegerRecommendedPatient is currently taking SSRI0;1;-7; 9990=No; 1=Yes; -7=Refused; 999=missingssris
ssri_nameString50RecommendedSSRI name?
ssri_doseString25RecommendedSSRI dose?
antidepressants_otherIntegerRecommendedTaking antidepressants other than SSRIs?0::1; 9990=no, 1=yes, 999=missing
antidepr_other_nameString50RecommendedName of antidepressants other than SSRIs?
antidepr_other_doseString25RecommendedDose of antidepressants other than SSRIs?
stimulantsIntegerRecommendedStimulants1;0;99;-9991= Yes ; 0= No ; 99= D/K ; -999= Missing
stimulant_nameString50RecommendedStimulant name?
mdeidose_stimString50RecommendedDose stimulant medicationstimulant_dose
alpha_2_agonistsIntegerRecommendedAlpha-2 agonists1;0;99;-9991= Yes ; 0= No ; 99= D/K ; -999= Missingalpha_agonists
alpha_agonist_nameString50RecommendedAlpha agonists name?
mdeidose_alphaString50RecommendedDose alpha medicationalpha_agonist_dose
takmdstaIntegerRecommendedmost currently take mood stabilizers0;1;-7; 9990=No; 1=Yes; -7=Refused; 999=missingmood_stabilizers
mood_stabilizer_nameString50RecommendedMood stabilizers name?
mdeidose_moodString50RecommendedDose mood medicationmood_stabilizer_dose
benzodiazepinesIntegerRecommendedTaking benzodiazepines?0::1; 9990=no, 1=yes, 999=missing
benzo_nameString50RecommendedBenzodiazepines name?
benzo_doseString25RecommendedBenzodiazepines dose?
other_medsIntegerRecommendedTaking other psychiatric medicines?0::1; 9990=no, 1=yes, 999=missing
other_med_nameString50RecommendedOther psychiatric medicines name?
other_med_doseString25RecommendedOther psychiatric medicines dose?
lithium_respIntegerRecommendedLithium responder0;10=No; 1=Yes
antidepress_nameString100RecommendedAntidepressants
antipsychotics_nameString100RecommendedAntipsychotics
hypnotic_agentsString100RecommendedHypnotic agents
treatment_responseIntegerRecommendedTreatment response1::41 = no effect; 2 =partial response; 3 =complete response; 4 = inadequate trial/ poor med tolerance/ unknown
visitString50RecommendedVisit nameCharacter description of each type of visit
siteString100RecommendedSiteStudy Site
mood_stabilizer_trtrspString100RecommendedTreatment response mood stabilizer0;10=No; 1=Yes
benzo_trtrspString100RecommendedTreatment response Benzodiazepines
antidepress_trtrspString100RecommendedTreatment response antidepressant
antipsychotics_trtrspString100RecommendedTreatment response antipsychotics
hypnotic_agents_trtrspString100RecommendedTreatment response hypnotic agents
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: medform01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.