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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Medical History Form



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectSexSpecificGenAut_medicalhist_src_Subject_ID
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldSexSpecificGenAut_medicalhist_interview_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.SexSpecificGenAut_medicalhist_interview_age, child_age
genderString20RequiredSex of the subjectM;FM = Male; F = FemaleSexSpecificGenAut_medicalhist_gender, child_gender
ethnic_groupString255RecommendedEthnic groupSexSpecificGenAut_dem_ethnicity_subject
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form dataSexSpecificGenAut_medicalhist_comments_misc
height_stdFloatRecommendedHeight - Standard Unit-1 = Not knownSexSpecificGenAut_interview_height
weight_stdFloatRecommendedWeight - Standard Unit-1 = Not knownSexSpecificGenAut_interview_weight
diag_diagnosisString255RequiredDiagnosisAutism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; NoneSexSpecificGenAut_diag_diagnosis
diag_diagnosismadebyString50RequiredDiagnosis made byPhysician;Psychologist;Other; NKNK = Not knownSexSpecificGenAut_diag_madeby
preg_numberofIntegerRecommendedTotal number of pregnancies by biological motherSexSpecificGenAut_preg_numberof
preg_numberofdelivIntegerRecommendedNumber of deliveries by biological motherSexSpecificGenAut_preg_numberofdeliv
preg_numberofmiscarrIntegerRecommendedNumber of miscarriages by biological motherSexSpecificGenAut_preg_numberofmiscarr
preg_numberofabortionsIntegerRecommendedNumber of abortions by biological motherSexSpecificGenAut_preg_numberofabortions
preg_diffconcvString50RequiredWas there difficulty conceiving?Yes; No;999SexSpecificGenAut_preg_diffconcv
preg_diffconcv_noteString255RecommendedNote regarding difficulty conceivingSexSpecificGenAut_preg_diffconcv_note
fertilitydrugs_at_contracepString200Recommendedwere fertility drugs used to help conceive subjectYes; NoSexSpecificGenAut_preg_fertmed
preg_asstrepString255RecommendedWas any other assisted reproduction used? If so, specifySexSpecificGenAut_preg_asstrep
preg_asstrep_noteString255RecommendedNote regarding assisted reproduction usedSexSpecificGenAut_preg_asstrep_note
preg_ivfString50RequiredWas in vitro fertilization attempted to conceive?Yes; No;999SexSpecificGenAut_preg_IVF
preg_surrogateString50RequiredWas surrogacy attempted to conceive?Yes; No;999SexSpecificGenAut_preg_surrogate
preg_compString50RequiredWere there complications during pregnancy?Yes; No;999SexSpecificGenAut_preg_comp
preg_comp_noteString300RecommendedNote regarding complications during pregnancySexSpecificGenAut_preg_comp_note
preg_nauseaString50RequiredDid mother experience nausea during pregnancy?Yes; No;999SexSpecificGenAut_preg_nausea
preg_anemiaString50RequiredDid mother experience anemia during pregnancy?Yes; No;999SexSpecificGenAut_preg_anemia
Yes;No;Don't Know; -999
preg_eclampsiaString50RequiredDid mother experience eclampsia during pregnancy?Yes; No;999SexSpecificGenAut_preg_eclampsia
quesmoth_probhighbpString50RecommendedHypertension (High blood pressure)
Yes;No;Don't Know
preg_hyperglycemiaString50RequiredDid mother have hyperglycemia during pregnancy?Yes; No;999SexSpecificGenAut_preg_hyperglycemia
preg_bleedingString50RequiredDid mother experience excessive bleeding during pregnancy?Yes; No;999SexSpecificGenAut_preg_bleeding
preg_infectionString50RequiredDid infection occur during pregnancy?Yes; No;999SexSpecificGenAut_preg_infection
preg_infection_noteString255RecommendedNote regarding infection during pregnancySexSpecificGenAut_preg_infection_note
preg_feverString50RequiredDid fever occur during pregnancy?Yes; No;999SexSpecificGenAut_preg_fever
preg_bleeding_ftString50RecommendedDid bleeding after the first trimester occur during pregnancy?Yes; NoSexSpecificGenAut_preg_bleeding_ft
illness_pregnancyString200Recommendeddid the mother experience any illnesses during pregnancyYes; NoSexSpecificGenAut_preg_illness
preg_stiString50RequiredDid a sexually transmitted infection occur during pregnancy?Yes; No;999SexSpecificGenAut_preg_STI
preg_abntshString50RequiredWas there abnormal TSH level during pregnancy?Yes; No;999SexSpecificGenAut_preg_abnTSH
preg_traumaString50RecommendedDid mother experience trauma during pregnancy?
Yes; No; 99; -999
-999=missing; 99=DKSexSpecificGenAut_preg_trauma
preg_preexist_condString50RecommendedWere there any pre-existing chronic maternal conditions during pregnancy?Yes; NoSexSpecificGenAut_preg_preexisting_condition
preg_preexist_cond_noteString255RecommendedNote regarding pre-existing maternal conditions during pregnancySexSpecificGenAut_preg_preexisting_condition_note
presmed_alcoholString50RecommendedIn this pregnancy, did the birth mother do any of the following activities - Drink alcohol
SexSpecificGenAut_preg_alcohol, alcohol
preg_alcohol_noteString255RecommendedNote regarding alcohol used during pregnancySexSpecificGenAut_preg_alcohol_note
presmed_smokeString50RequiredIn this pregnancy, did the birth mother do any of the following activities - Smoke cigarettes or other tobacco products
SexSpecificGenAut_preg_tobacco, smoke
preg_tobacco_noteString255RecommendedNote regarding tobacco used during pregnancySexSpecificGenAut_preg_tobacco_note
presmed_drugsString50RecommendedIn this pregnancy, did the birth mother do any of the following activities - Use recreational drugs (e.g. marijuana, cocaine, etc)
preg_drugs_noteString255RecommendedNote regarding street or "recreational" drugs used during pregnancySexSpecificGenAut_preg_drugs_note
preg_chemoradString50RequiredWas there exposure to chemicals or radiation during pregnancy?Yes; No;999SexSpecificGenAut_preg_chemorad
preg_vit_supp_medsString50RequiredWere there any vitamins, supplements or medications used during pregnancy?Yes; No;999SexSpecificGenAut_preg_vit_supp_meds
preg_vit_supp_meds_noteString255RecommendedNote regarding vitamins, supplements or medications used during pregnancySexSpecificGenAut_preg_vit_supp_meds_note
preg_age_momIntegerRecommendedAge of mother at the time of birthIn years; 999=UnknownSexSpecificGenAut_preg_age_mom
preg_age_dadIntegerRecommendedAge of father at the time of birthIn years; 999=UnknownSexSpecificGenAut_preg_age_dad
preg_studiesString255RequiredWhich studies were performed during pregnancy: none, prenatal screen, ultrasound, amniocentesis, CVSNone; Prenatal screen; Ultrasound; Amniocentesis; CVS;999SexSpecificGenAut_preg_studies
preg_studies_noteString255RecommendedNote regarding studies performed during pregnancySexSpecificGenAut_preg_studies_note
preg_delivery_locationString50RecommendedPlace of birth: Hospital, Home, or otherHospital; Home; OtherSexSpecificGenAut_preg_delivery_location
preg_delivery_location_noteString255RecommendedNote regarding place of birthSexSpecificGenAut_preg_delivery_location_note
info_gestString50RecommendedNo. Weeks Gestation (G.A.)SexSpecificGenAut_preg_gestation_weeks
preg_gestation_termString50RecommendedPeriod of GestationPre-term; Term; Post-termSexSpecificGenAut_preg_gestation_term
preg_mode_delivString225RequiredWhat was the mode of delivery?999=DK/NASexSpecificGenAut_preg_mode_deliv
birth_weight_lbsFloatRecommendedBirth weight poundsSexSpecificGenAut_neo_birthwt, birth_weight
ldnb_lgthinFloatRecommendedWhat was the babys length at birth(inches)-1 = Not knownSexSpecificGenAut_neo_birthlen
ldnb_headcircumcmFloatRecommendedWhat was the babys head circumference at birth (cm)
info_apgar1String50RecommendedApgars 1 min.SexSpecificGenAut_neo_APGAR_1min
info_apgar5String50RecommendedApgars 5 min.SexSpecificGenAut_neo_APGAR_5min
neo_cyanosisString50RequiredDid cyanosis occur after delivery?Yes; No;999SexSpecificGenAut_neo_cyanosis
neo_apneaString50RequiredDid apnea occur after delivery?Yes; No;999SexSpecificGenAut_neo_apnea
neo_respString50RequiredDid a respiratory complication occur after delivery?Yes; No;999SexSpecificGenAut_neo_resp
neo_cardiacString50RequiredDid a cardiac complication occur after delivery?Yes; No;999SexSpecificGenAut_neo_cardiac
neo_jaundiceString50RequiredDid jaundice occur after delivery?Yes; No;999SexSpecificGenAut_neo_jaundice
neo_seizureString50RequiredDid seizures occur after delivery?Yes; No;999SexSpecificGenAut_neo_seizure
neo_infectionString50RequiredDid infections occur after delivery?Yes; No;999SexSpecificGenAut_neo_infection
neo_strokeString50RequiredDid a stroke occur after delivery?Yes; No;999SexSpecificGenAut_neo_stroke
neo_neuroString50RequiredDid neurologic complications occur after delivery?Yes; No;999SexSpecificGenAut_neo_neuro
nb_feeddifficultString50RecommendedDid the baby have any difficulty with feeding (breast or bottle
No;Yes;Don't Know
child_congenitaldefString50RecommendedDoes the Child have a Congenital Defect (Cleft palate, cleft lip, other)?
Yes; No; NK; NS
NK= Not known; NS = Not sureSexSpecificGenAut_neo_congendef
child_congenitaldef_cmtString255RecommendedSpecify Child's Congenital Defect typeSexSpecificGenAut_neo_congendef_note
neo_sp_assistance_medsString50RequiredFollowing delivery, was special assistance or medication used?Yes; No;999
neo_sp_assistance_meds_noteString255RecommendedNote regarding special assistance of medication used following delivery?
dev_rolloverString255RecommendedAchievement status of developmental milestone of rolling overReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_rollover
dev_sitString255RecommendedAchievement status of developmental milestone of sittingReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_sit
dev_crawlString255RecommendedAchievement status of developmental milestone of crawlingReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_crawl
dev_walkString255RecommendedAchievement status of developmental milestone of walkingReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_walk
dev_runString255RecommendedAchievement status of developmental milestone of runningReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_run
dev_ridetrikeString255RecommendedAchievement status of developmental milestone of riding tricycleReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_ridetrike
dev_reachtoyString255RecommendedAchievement status of developmental milestone of reaching for toyReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_reachtoy
dev_scribbleString255RecommendedAchievement status of developmental milestone of scribblingReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_scribble
dev_feedselfString255RecommendedAchievement status of developmental milestone of feeding self with handsReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_feedself
dev_drawshapeString255RecommendedAchievement status of developmental milestone of drawing a shapeReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_drawshape
dev_simpleinstructionString255RecommendedAchievement status of developmental milestone of responding to simple instructionReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_simpleinstruction
dev_putonshoeString255RecommendedAchievement status of developmental milestone of putting on a shoeReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_putonshoe
dev_standString255RecommendedAchievement status of developmental milestone of pulling to standReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_stand
dev_hopskipString255RecommendedAchievement status of developmental milestone of hopping or skippingReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_hopskip
dev_firstwordString255RecommendedAchievement status of developmental milestone of saying first wordReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_firstword
dev_twowordsString255RecommendedAchievement status of developmental milestone of saying two words togetherReached on time; Delayed; Not reached; Reached and then lostSexSpecificGenAut_dev_twowords
dev_fsiqIntegerRecommendedFull Scale IQSexSpecificGenAut_dev_fsiq
therapy_physicalString50RecommendedHas the subject received physical therapy?
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not applySexSpecificGenAut_therapy_physical
therapy_occupationalString50RecommendedHas the subject received occupational therapy?
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not applySexSpecificGenAut_therapy_occupational
therapy_speechandlanguageString50RecommendedHas the subject received speech and language therapy?
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not applySexSpecificGenAut_therapy_speechandlanguage
therapy_visionString50RecommendedHas the subject received vision therapy?Yes; NoSexSpecificGenAut_therapy_vision
therapy_psychString50RecommendedHas the subject received psychological therapy?Yes; NoSexSpecificGenAut_therapy_psych
therapy_spec_edString50RecommendedIs the subject enrolled in any special educational classes or learning environments?Yes; NoSexSpecificGenAut_therapy_spec_ed
neuro_scoliosisString50RecommendedDoes subject have scoliosis?Yes; NoSexSpecificGenAut_neuro_scoliosis
neuro_spasticity_hyperString50RecommendedDoes subject have spasticity/hypertonia?Yes; NoSexSpecificGenAut_neuro_spasticity_hyper
neuro_hypotoniaString50RecommendedDoes subject have hypotonia?Yes; NoSexSpecificGenAut_neuro_hypotonia
neuro_insensitivepainString50RecommendedDoes subject have insensitivity to pain?Yes; NoSexSpecificGenAut_neuro_insensitivepain
neuro_tempdysregString50RecommendedDoes subject have temperature dysregulation?Yes; NoSexSpecificGenAut_neuro_tempdysreg
neuro_headachesString50RecommendedDoes subject have headaches?Yes; NoSexSpecificGenAut_neuro_headaches
neuro_ticsString50RecommendedDoes subject have tics?Yes; NoSexSpecificGenAut_neuro_tics
neuro_tremorString50RecommendedDoes subject have tremors?Yes; NoSexSpecificGenAut_neuro_tremor
neuro_dizzyString50RecommendedDoes subject have dizziness?Yes; NoSexSpecificGenAut_neuro_dizzy
neuro_numbString50RecommendedDoes subject have numbness?Yes; NoSexSpecificGenAut_neuro_numb
neuro_involmovString50RecommendedDoes subject have involuntary movements?Yes; NoSexSpecificGenAut_neuro_involmov
neuro_noteString255RecommendedNotes regarding neurologic issuesSexSpecificGenAut_neuro_note
gastro_refluxString50RequiredDoes subject have gastroesophageal reflux?Yes; No;999SexSpecificGenAut_gastro_reflux
gastro_diarrheaString50RecommendedDoes subject have diarrhea problems?
Yes; No; NK; NS
NK= Not known; NS = Not sureSexSpecificGenAut_gastro_diarrhea
gastro_constipationString50RecommendedDoes subject have issue of constipation?
Yes; No; NK; NS
NK= Not known; NS = Not sureSexSpecificGenAut_gastro_constipation
gastro_spec_dietString50RequiredDoes subject have a special diet?Yes; No; NKNK = Not knownSexSpecificGenAut_gastro_spec_diet
gastro_otherString50RecommendedDoes subject have any other gastrointestinal issues?
Yes; No
gastro_noteString255RecommendedNote regarding gastrointestinal issues?SexSpecificGenAut_gastro_note
medhx_sleep_probString50RecommendedDoes subject have sleep problems?
Yes; No
medhx_sleep_prob_noteString255RecommendedNote regarding sleep problemsSexSpecificGenAut_medhx_sleep_prob_note
medhx_behavior_probString50RecommendedDoes subject have behavioral problem other then ASD?Yes; NoSexSpecificGenAut_medhx_behavior_prob
medhx_behavior_prob_noteString255RecommendedNote regarding behavioral issueSexSpecificGenAut_medhx_behavior_prob_note
child_seizureString50RequiredHas she/he ever been to a doctor for any of these things…Epilepsy or Seizures /Epilepsia o convulsiones
Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.SexSpecificGenAut_seizure_history
seizure_ageIntegerRecommendedAge of first seizure in yearsIn yearsSexSpecificGenAut_seizure_age
seizure_frequencyString255RecommendedHow often do the seizures happen (per day or per month)?SexSpecificGenAut_seizure_frequency
seizure_time_of_dayString50RecommendedWhat time of day do the seizures usually occur?AM; PM; During sleepSexSpecificGenAut_seizure_time_of_day
seizure_medString500RecommendedList of current medications for seizures including dosage and side effectsSexSpecificGenAut_seizure_med
rev_headeegresultString255RecommendedEEG: ResultsSexSpecificGenAut_seizure_EEG_results
famhx_parents_relatedString50RecommendedAre the biologic mother and father related?Yes; NoSexSpecificGenAut_famhx_parents_related
famhx_autismString500RecommendedIndicate which relatives have autism or autism spectrum disorder.SexSpecificGenAut_famhx_Autism
famhx_aspergersString500RecommendedIndicate which relatives have Asperger's syndrome.SexSpecificGenAut_famhx_Aspergers
famhx_pddString500RecommendedIndicate which relatives have pervasive developmental disorder.SexSpecificGenAut_famhx_PDD
famhx_ocdString500RecommendedIndicate which relatives have obsessive compulsive disorder.SexSpecificGenAut_famhx_OCD
famhx_adhdString500RecommendedIndicate which relatives have attention deficit/hyperactivity disorder.SexSpecificGenAut_famhx_ADHD
famhx_anxietyString500RecommendedIndicate which relatives have anxiety disorderSexSpecificGenAut_famhx_anxiety
famhx_bipolarString500RecommendedIndicate which relatives have bipolar disorder.SexSpecificGenAut_famhx_bipolar
famhx_depressionString500RecommendedIndicate which relatives have depression and/or have made suicide attempts.SexSpecificGenAut_famhx_depression
famhx_personalityString500RecommendedIndicate which relatives have a personality disorder.SexSpecificGenAut_famhx_personality
famhx_schizophreniaString500RecommendedIndicate which relatives have schizophrenia.SexSpecificGenAut_famhx_schizophrenia
famhx_ldString500RecommendedIndicate which relatives have a learning disability.SexSpecificGenAut_famhx_LD
famhx_readingString500RecommendedIndicate which relatives have a reading difficulty.SexSpecificGenAut_famhx_reading
famhx_speechString500RecommendedIndicate which relatives have a speech problem or speech delay.SexSpecificGenAut_famhx_speech
famhx_selfinjureString500RecommendedIndicate which relatives have self injuring behavior.SexSpecificGenAut_famhx_tuberous_seizureselfinjure
famhx_seizure_epilepsyString500RecommendedIndicate which relatives have a seizure disorder or epilepsy.SexSpecificGenAut_famhx_tuberous_seizure_epilepsy
famhx_mrString500RecommendedIndicate which relatives have mental retardation.SexSpecificGenAut_famhx_MR
famhx_obesityString500RecommendedIndicate which relatives have obesity.SexSpecificGenAut_famhx_obesity
famhx_giString500RecommendedIndicate which relatives hava a gastrointestinal disorder.SexSpecificGenAut_famhx_GI
famhx_allergy_asthmaString500RecommendedIndicate which relatives have allergy and/or asthma.SexSpecificGenAut_famhx_allergy_asthma
famhx_autoimmuneString500RecommendedIndicate which relatives have an autoimmune disease.SexSpecificGenAut_famhx_autoimmune
famhx_endocrineString500RecommendedIndicate which relatives have an endocrine or hormonal disorder.SexSpecificGenAut_famhx_endocrine
famhx_rettsString500RecommendedIndicate which relatives have Rett's syndrome.SexSpecificGenAut_famhx_Retts
famhx_fragilexString500RecommendedIndicate which relatives have Fragile X syndrome.SexSpecificGenAut_famhx_fragileX
famhx_nfString500RecommendedIndicate which relatives have neurofibromatosis.SexSpecificGenAut_famhx_tuberous_NF
famhx_tuberous_schlerorisString500RecommendedIndicate which relatives have tuberous schlerosis.SexSpecificGenAut_famhx_tuberous_schlerosis
famhx_birthdefectString500RecommendedIndicate which relatives have a birth defect.SexSpecificGenAut_famhx_birthdefect
famhx_otherString500RecommendedIndicate which relatives have another inheritable conditionSexSpecificGenAut_famhx_other
dem_marital_motherString255RecommendedWhat is the marital status of subject's biological mother?Married/ Domestic partners; Single; Divorced; WidowedSexSpecificGenAut_dem_marital_mother
dem_marital_fatherString255RecommendedWhat is the marital status of subject's biological father?Married/ Domestic partners; Single; Divorced; WidowedSexSpecificGenAut_dem_marital_father
bio_mother_occupationString100RecommendedBiological Mother OccupationSexSpecificGenAut_dem_occupation_mother
bio_father_occupationString100RecommendedBiological Father OccupationSexSpecificGenAut_dem_occupation_father
bio_mother_ethnicityString50RecommendedBiological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
bio_father_ethnicityString50RecommendedBiological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
bio_mother_educationString75RecommendedBiological Mother Highest level of education
Less than High School;High School Degree;GED;Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify ; 99 ; 77; -999
bio_father_educationString75RecommendedBiological Father Highest level of education
Less than High School;High School Degree;GED;Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify ; 99 ; 77; -999
99= D/K ; 77= N/A; 999= MissingSexSpecificGenAut_dem_education_father
Mother;Father;Both; Child; Other; Parent
relationship, resp_rel
childgenString2RecommendedChild genderM;FM=Male; F= Femaleresp_gender
child_raceString55RecommendedChild's Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
family_bio_parent_rep_coi_ethnString30RecommendedFamily Biographical History Form (0:0 to 4:5 y:m) Question IC2 Parent Report of Child of Interest (COI) ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino;Not Hispanic or Latino;No Answer
stay_withString100RecommendedWho does child stay with at home?
father_raceString55RecommendedFather's race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
father_ethnicityString30RecommendedFather ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)
Hispanic or Latino;Not Hispanic or Latino;Not Provided
mother_raceString55RecommendedMother's race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
mother_ethnicityString30RecommendedMother ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)
Hispanic or Latino;Not Hispanic or Latino;Not Provided
dem_47_complIntegerRecommendedWere there any birth complications with this child?0;1 1=Yes; 0=Nobirth_complications
demo_preg_medsIntegerRecommendedDid the biological mother use prescription medications during pregnancy?0;1;31=Yes; 0=No; 3=Don't Knowmedications
fatherocupString100RecommendedFather' occupation
momoccucString100Recommendedmother's current occupation
com_childcareString10RecommendedWhat type of childcare does your child attend? Check all that apply1= In home with other family member ;2= In home with babysitter ;3= At a home-based daycare ;4= At Headstart ;5= At a private nursery school / preschool ;6= At a school district preschool; 7 = Day Care Center; 8 = Home Day Care; 9 = Nanny or Au-Pairdaycare_type
fsprelsIntegerRecommendedWhich category best describes your current relationship status?1::91= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Otherresp_relstatus
annincomeIntegerRecommendedWhat is the gross (before taxes) annual income including child support and any other financial aid household?0= $4999 or less ; 1= $5000-$9999 ; 2= $1000-$14999 ; 3= $15000-$19000 ; 4= $20000-$24999 ; 5= $25000-29999 ; 6= $30000-$39999 ; 7= $40000-$49999 ; 8= $50000-$59999 ; 9= $60000-$69999 ; 10=0 $70000-$79999; 11=1 $80000-$89000 ; 12=2 $90000 or more ; -99= N/A; 77= Refused ; 88= Missingresp_income_other
resp_rel_biologicalIntegerRecommendedIs your child Biological1::41 = biologcal, 2 = adopted, 3 = foster, 4 = other
lstcString10RecommendedLanguage(s) spoken to child (select all that apply)1 = English; 2 = Spanish; 3 = Otherlanguage
born_within_3weeksIntegerRecommendedWas your child born within 3 weeks of his or her due date?0::10 = No; 1 = Yes
resp_duedateDateRecommendedWhat is/was your child's due dateIn the format of Month/Day/Year. The childs due date is defined as the predicted date of birth given to the parents by a doctor.
major_miles_stonesString200RecommendedPlease specify at what age your child was first able to do the following: Sit Unsupported; Crawl; Pull up to standing; stand momentarily; show stepping movements; walk independentlyAges in months
schooling_motherIntegerRecommendedNumber of years of formal schooling/education Mother8::18; 208 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
schooling_fatherIntegerRecommendedNumber of years of formal schooling/education Father8::18; 208 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
visitationIntegerRecommendedDoes your child have visitation with both parents?
1 = yes; 0 = no; 3 = N/A
marital_status_changeIntegerRecommendedHas your marital status changed since your last visit?
1 = yes; 0 = no; 3 = N/Amarital_status
daycare_ynIntegerRecommendedDoes your child attend daycare or some type of child care?0::10 = No; 1 = Yesdaycare
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: medhist_ucsf01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.