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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Menstrual History

mhu

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, pid, stepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldadate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subject
M;F
M = Male; F = Female
daysrzIntegerRecommendeddays since randomization
visitString50RecommendedVisit nameCharacter description of each type of visito3visit, timept
lperdaysIntegerRecommendedlast period days from randomization
cryeaslyIntegerRecommendedcry easily0;1;-70=No; 1=Yes; -7=Refused
iritangrIntegerRecommendedirritability anger0;1;-70=No; 1=Yes; -7=Refusedirrit
deprsionIntegerRecommendeddepression0;1;-70=No; 1=Yes; -7=Refusedmoodeprs
foodcravIntegerRecommendedfood cravings0;1;-70=No; 1=Yes; -7=Refused
anxtensIntegerRecommendedanxiety tension0;1;-70=No; 1=Yes; -7=Refusedanx
hypersomIntegerRecommendedinsomnia hypersomnia0;1;-70=No; 1=Yes; -7=Refused
bloatingIntegerRecommendedbloating yes no0;1;-70=No; 1=Yes; -7=Refused
abdompanIntegerRecommendedabdominal pain0;1;-70=No; 1=Yes; -7=Refused
brestendIntegerRecommendedbreast tenderness0;1;-70=No; 1=Yes; -7=Refused
lackengyIntegerRecommendedlack of energy0;1;-70=No; 1=Yes; -7=Refused
moodswngIntegerRecommendedmood swings0;1;-70=No; 1=Yes; -7=Refused
overwhelIntegerRecommendedfeeling overwhelmed0;1;-70=No; 1=Yes; -7=Refused
decinterIntegerRecommendedinterest in activities0;1;-70=No; 1=Yes; -7=Refused
othsymptIntegerRecommendedother menstrual symptoms0;1;-70=No; 1=Yes; -7=Refusedothsx
sxworkIntegerRecommendedinterfere with work or school0;1;-70=No; 1=Yes; -7=Refused
daycycleIntegerRecommendednumber of days between cycles
uterusIntegerRecommendedsurgery on uterus0;1;-70=No; 1=Yes; -7=Refused
usurdaysIntegerRecommendeduterus surg days from randomization/consentsurgdays
usingbcIntegerRecommendedcurrently using birth control0;1;-70=No; 1=Yes; -7=Refusedoralpill
txinfertIntegerRecommendedtreatment for infertility0;1;-70=No; 1=Yes; -7=Refused
pregIntegerRecommendedpatient become pregnant0;1;-70=No; 1=Yes; -7=Refusedptpreg
pregnantIntegerRecommendedPatient is currently pregnant0::2;-7; 9990=No; 1=Yes;2=DK;-7= Refused; 999=Legimately skipped
duedaysIntegerRecommendeddue date days from randomization/consent
hadmiscrIntegerRequiredhad recent miscarriage0;1;-7;9990=No; 1=Yes; -7=Refused
mscrdaysIntegerRecommendedmiscarr days from o3 rz
voltermIntegerRecommendedvoluntary termination0;1;-70=No; 1=Yes; -7=Refused
termdaysIntegerRecommendedvol termin days from o3 rz
siteString100RecommendedSiteStudy Sitesite_id, siteid
daysconsIntegerRecommendeddays since consent
usnddoneIntegerRecommendedtype of ultrasound performed1;21=Transvaginally; 2=Transabdominally
rovlenFloatRecommendedright ovary length
rovhtFloatRecommendedright ovary height
rovwidthFloatRecommendedright ovary width
rovcystsIntegerRecommendedcysts in right ovary0;1;-70=No; 1=Yes; -7=Refused
numrovcyIntegerRecommendedmax number right ovary cysts
rovcygt8IntegerRecommendedcysts gt8mm right ovary0;1;-70=No; 1=Yes; -7=Refused
rovcydiaString250Recommendeddiameter r ovary cysts gt8mm
lovlenFloatRecommendedleft ovary length
lovhtFloatRecommendedleft ovary height
lovwidthFloatRecommendedleft ovary width
lovcystsIntegerRecommendedcysts in left ovary0;1;-70=No; 1=Yes; -7=Refused
numlovcyIntegerRecommendedmax number left ovary cysts
lovcygt8IntegerRecommendedcysts gt8mm left ovary0;1;-70=No; 1=Yes; -7=Refused
lovcydiaString250Recommendeddiameter l ovary cysts gt8mm
maxendoFloatRecommendedmaximum endometrium thickness
ge10cystIntegerRecommendedge10 cysts in 1 plane0;1;-70=No; 1=Yes; -7=Refused
consreadIntegerRecommendedconsis centr and local read0;1;-70=No; 1=Yes; -7=Refused
interdifString250Recommendedultrasound interp diff
pcomorphIntegerRecommendedpco morphology
certcodeIntegerRecommendedstepbd certification code
age18t45IntegerRecommendedcurrent age 18 to 450;1;-70=No; 1=Yes; -7=Refused
onreqmedIntegerRecommendedtaking req med ge 6mo0;1;-70=No; 1=Yes; -7=Refused
nobadmedIntegerRecommendednot taking specific other meds0;1;-70=No; 1=Yes; -7=Refused
nohormIntegerRecommendednot taking hormonal meds0;1;-70=No; 1=Yes; -7=Refused
stophormIntegerRecommendednot stopped hormonal meds(2mo)0;1;-70=No; 1=Yes; -7=Refused
nobcshotIntegerRecommendedno depoprovera norplant 12mo0;1;-70=No; 1=Yes; -7=Refused
pregnsIntegerRecommendedpatient not preg or unsure0;1;-70=No; 1=Yes; -7=Refused
nobir6moIntegerRecommendedno birth in past 6mo0;1;-70=No; 1=Yes; -7=Refused
premmenoIntegerRecommendedno premature menopause0;1;-70=No; 1=Yes; -7=Refused
hysterecIntegerRecommendedhysterectomy0;1;-7; 888; 9990=No; 1=Yes; -7=Refused; 888=N/A; 999=missing data
bothovarIntegerRecommendedboth ovaries removed0;1;-70=No; 1=Yes; -7=Refused
anervcIntegerRecommendedanorexia nervosa current0;1;-7; -90=No; 1=Yes; -7=Refused; -9 =unknown
ptconIntegerRecommendedPatient consented
0;1
0=No; 1=Yesconsent
consdayIntegerRecommendedconsent day
pcoseligIntegerRecommendedeligible for pcos study0;1;-70=No; 1=Yes; -7=Refused
pregnanIntegerRecommendedpregnancy test0::5;-7;90=Negative; 1=Positive; 2=Test not conducted; -7=Refused; 9=NA;3=Not pregnant (per pregnancy test); 4=Not pregnant (has not reached menarche); 5=Pregnancy suspected, but not confirmed
usndcnstIntegerRecommendedultrasound consent signed0;1;-70=No; 1=Yes; -7=Refused
usndtypeIntegerRecommendedtype of ultrasound consented1;21=Transvaginally; 2=Transabdominally
mencycleIntegerRecommendedtype of menstrual cycle1::31=Regular; 2=Irregular; 3=Not occurred for 3 months
medication1_nameString100RecommendedName first medication that the participant has taken999= Legitimately skipped;med1
medcur1String50Recommendedcurrent medication 1medsp1
medication1_dosageString50RecommendedFirst medication dosagemdose1
medication1_frequencyString50RecommendedFirst medication frequencymedfreq1
medication2_nameString100RecommendedName second medication that the participant has taken999= Legitimately skipped;med2
medcur2String50Recommendedcurrent medication 2medsp2
medication2_dosageString50RecommendedSecond medication dosagemdose2
medication2_frequencyString50RecommendedSecond medication frequencymedfreq2
medication3_nameString150RecommendedName third medication that the participant has taken999= Legitimately skipped;med3
medcur3String50Recommendedcurrent medication 3medsp3
medication3_dosageString50RecommendedThird medication dosagemdose3
medication3_frequencyString50RecommendedThird medication frequencymedfreq3
medication4_nameString100RecommendedName fourth medication that the participant has taken999= Legitimately skipped;med4
medcur4String50Recommendedcurrent medication 4medsp4
medication4_dosageString50RecommendedFourth medication dosagemdose4
medication4_frequencyString50RecommendedFourth medication frequencymedfreq4
medication5_nameString100RecommendedName fifth medication that the participant has takenmed5
medsp5String50Recommendedother current treatment5
medication5_dosageString50RecommendedFifth medication dosagemdose5
medication5_frequencyString50RecommendedFifth medication frequencymedfreq5
medication6_nameString100RecommendedName sixth medication that the participant has takenmed6
medsp6String50Recommendedother current treatment6
medication6_dosageString50RecommendedSixth medication dosagemdose6
medication6_frequencyString50RecommendedSixth medication frequencymedfreq6
medication7_nameString100RecommendedName seventh medication that the participant has takenmed7
medsp7String50Recommendedother current treatment7
medication7_dosageString50RecommendedSeventh medication dosagemdose7
medication7_frequencyString50RecommendedSeventh medication frequencymedfreq7
medication8_nameString100RecommendedName eighth medication that the participant has takenmed8
medsp8String50Recommendedother current treatment8
medication8_dosageString50RecommendedEighth medication dosagemdose8
medication8_frequencyString50RecommendedEighth medication frequencymedfreq8
medication9_nameString100RecommendedName ninth medication that the participant has takenmed9
medsp9String50Recommendedother current treatment9
medication9_dosageString50RecommendedNinth medication dosagemdose9
medication9_frequencyString50RecommendedNinth medication frequencymedfreq9
medchangIntegerRecommendedany med changes since screen0;1;-70=No; 1=Yes; -7=Refused
chgmed1String50Recommendedmedication 1 stopped or started
q52_17_s52String255RecommendedOther 1: Specifydrug, othsp
chng1IntegerRecommendedmed1 change type0;10=Stopped; 1=Started
chnglen1IntegerRecommendedmed1 change num months
chgmed2String50Recommendedmedication 2 stopped or started
q52_17_s55String255RecommendedOther 2: Specifyothsp2
chng2IntegerRecommendedmed2 change type0;10=Stopped; 1=Started
chnglen2IntegerRecommendedmed2 change num months
chgmed3String50Recommendedmedication 3 stopped or started
q52_17_s58String255RecommendedOther 3: Specifyothsp3
chng3IntegerRecommendedmed3 change type0;10=Stopped; 1=Started
chnglen3IntegerRecommendedmed3 change num months
bipdiagIntegerRecommendedage diagnosed bipolar
firstmanIntegerRecommendedage at first manic episode
firstdepIntegerRecommendedage at first depressive episod
depaeverIntegerRecommendedever taken depakote0;1;-70=No; 1=Yes; -7=Refused
depaageIntegerRecommendedage started taking depakote
depatimeIntegerRecommendednum months using depakote
depa12moIntegerRecommendedtaken depakote in past 12month0;1;-70=No; 1=Yes; -7=Refused
depastopIntegerRecommendednum months ago stop depakote
litheverIntegerRecommendedever taken lithium0;1;-70=No; 1=Yes; -7=Refused
lithageIntegerRecommendedage started taking lithium
lithtimeIntegerRecommendednum months taking lithium
lith12moIntegerRecommendedtaken lithium in past 12months0;1;-70=No; 1=Yes; -7=Refused
lithstopIntegerRecommendednum months ago stopped lithium
depalithIntegerRecommendeddepakote lithium simultaneous0;1;-70=No; 1=Yes; -7=Refused
dltimeIntegerRecommendednum months depa lith simultan
clozarilIntegerRecommendedclozaril clozapine0;1;-70=No; 1=Yes; -7=Refused
cloztimeIntegerRecommendedclozril clozapine num months
geodonIntegerRecommendedgeodon ziprasidone0;1;-70=No; 1=Yes; -7=Refused
geodtimeIntegerRecommendedgeodon ziprasideon num months
haldolIntegerRecommendedhaldol haloperidol0;1;-70=No; 1=Yes; -7=Refused
haldtimeIntegerRecommendedhaldol haloperidol num months
loxitaneIntegerRecommendedloxitane loxipine0;1;-70=No; 1=Yes; -7=Refused
loxitimeIntegerRecommendedloxitane loxipine num months
mobanIntegerRecommendedmoban molindone0;1;-70=No; 1=Yes; -7=Refused
mobntimeIntegerRecommendedmoban molidone num months
navaneIntegerRecommendednavane thiothixene0;1;-70=No; 1=Yes; -7=Refused
navntimeIntegerRecommendednavane thiothixene num months
zyprexaIntegerRecommendedzyprexa olanzapine0;1;-70=No; 1=Yes; -7=Refused
zyprtimeIntegerRecommendedzyprexa olanzapine num months
prolixinIntegerRecommendedprolixin fluphenazine0;1;-70=No; 1=Yes; -7=Refused
proltimeIntegerRecommendedprolixin fluphenazine num mnth
risperdlIntegerRecommendedrisperdal risperidone0;1;-70=No; 1=Yes; -7=Refused
risptimeIntegerRecommendedrisperdal risperidone num mnth
serentilIntegerRecommendedserentil mesoridazine0;1;-70=No; 1=Yes; -7=Refused
serntimeIntegerRecommendedserentil mesoridazine num mnth
seroquelIntegerRecommendedseroquel quetiapine0;1;-70=No; 1=Yes; -7=Refused
serotimeIntegerRecommendedseroquel quetiapine num months
stelzineIntegerRecommendedstelazine trifluoperazine0;1;-70=No; 1=Yes; -7=Refused
steltimeIntegerRecommendedstelazine trifluoperazine
thorazinIntegerRecommendedthorazine chlorpromazine0;1;-70=No; 1=Yes; -7=Refused
thortimeIntegerRecommendedthorazine chlorprom num mnths
trilafonIntegerRecommendedtrilafon perphenazine0;1;-70=No; 1=Yes; -7=Refused
triltimeIntegerRecommendedtrilafon perphanazine num mnth
stopmd3IntegerRecommendedstopped meds past 3mo0;1;-70=No; 1=Yes; -7=Refused
specstopString250Recommendedspecify meds stopped past3mo
skipmilkIntegerRecommendedskipped period milk leakage0;1;-70=No; 1=Yes; -7=Refused
numperdIntegerRecommendednumber periods past 12months
age1stmpIntegerRecommendedfirst menstrual period999= NA
weight_stdFloatRecommendedWeight - Standard Unit-1 = Not knownweight
height_stdFloatRecommendedHeight - Standard Unit-1 = Not knownheight
termpregIntegerRecommendednumber pregnancies to term
breastfdIntegerRecommendedcurrently breast feeding0;1;-7; 9990=No; 1=Yes;-7= Refused; 999=Legimately skipped
birthmnsIntegerRecommendedgave birth num months ago
cycle22IntegerRecommendedcycle shorter than 22days0;1;-70=No; 1=Yes; -7=Refused
bleed10IntegerRecommendedcontinuous bleed spot 10days0;1;-70=No; 1=Yes; -7=Refused
pcosIntegerRecommendeddiagnosed pcos0;1;-7; -9; -80=No; 1=Yes; -7=Refused; -9=unknown; -8=NA
pcosageIntegerRecommendedage pcos diagnosed
depakoteIntegerRecommendeddepakote depakene0;1;-70=No; 1=Yes; -7=Refused
depstageIntegerRecommendedage stopped depakote
depasttmIntegerRecommendednum mon depa stop dt irreg per
lamictalIntegerRecommendedlamotrigine lamictal0;1;-70=No; 1=Yes; -7=Refused
lamstageIntegerRecommendedage stopped lamictal
lamitimeIntegerRecommendednum months taking lamictal
lithobidIntegerRecommendedlithium lithobid0;1;-70=No; 1=Yes; -7=Refused
litstageIntegerRecommendedage stopped lithium
lithsttmIntegerRecommendednum mon lith stop dt irreg per
gbpentinIntegerRecommendedgabapentin neurontin0;1;-70=No; 1=Yes; -7=Refused
gabstageIntegerRecommendedage stopped gabapentin
gbpntimeIntegerRecommendednum months taking gabapentin
tegretolIntegerRecommendedtegretol carbamazepine0;1;-70=No; 1=Yes; -7=Refused
tegstageIntegerRecommendedage stopped tegretol
tegrtimeIntegerRecommendednum months taking tegretol
topimaxIntegerRecommendedtopimax topiramate0;1;-70=No; 1=Yes; -7=Refused
topstageIntegerRecommendedage stopped topamax
topitimeIntegerRecommendednum months taking topimax
bcpeverIntegerRecommendedever taken birth control pills0;1;-70=No; 1=Yes; -7=Refused
bcpageIntegerRecommendedage started birth control pill
bcptimeIntegerRecommendednum months taking birth ctrl
bcp12moIntegerRecommendedtaken birth ctrl pills past12m0;1;-70=No; 1=Yes; -7=Refused
bcpstopIntegerRecommendednum months ago stopped bc pill
bcpdepIntegerRecommendedever simultaneous bcp depakote0;1;-70=No; 1=Yes; -7=Refused
bcdeptimIntegerRecommendednum months simult bcp depa
bcplithIntegerRecommendedever simultaneous bcp lithium0;1;-70=No; 1=Yes; -7=Refused
bclithtmIntegerRecommendednum monts simult bcp lithium
allthreeIntegerRecommendedsimultan bcp lithium depakote0;1;-70=No; 1=Yes; -7=Refused
all3timeIntegerRecommendednum months bcp lith depa
bctoregIntegerRecommendedever used bcp regulate periods0;1;-70=No; 1=Yes; -7=Refused
bcdeprIntegerRecommendedbcp make your more depressed0;1;-70=No; 1=Yes; -7=Refused
bcdepageIntegerRecommendedage bcp made more depressed
bcmanicIntegerRecommendedbcp ever caused manic episode0;1;-70=No; 1=Yes; -7=Refused
bcmanageIntegerRecommendedage bcp caused manic episode
lt10everIntegerRecommendedever lt10 periods per yr0;1;-70=No; 1=Yes; -7=Refused
lt10ageIntegerRecommendedfirst age lt10 periods per yr
lt10timeIntegerRecommendednum years lt10 periods per yr
lt10ptyrIntegerRecommendedlt10 periods in past year0;1;-70=No; 1=Yes; -7=Refused
agell10IntegerRecommendedage last had lt10 periods yr
lt7everIntegerRecommendedever lt7 periods per yr0;1;-70=No; 1=Yes; -7=Refused
lt7ageIntegerRecommendedfirst age lt7 periods per yr
lt7timeIntegerRecommendednum years lt7 periods per yr
lt7ptyrIntegerRecommendedlt7 periods in past year0;1;-70=No; 1=Yes; -7=Refused
agellt7IntegerRecommendedage last had lt7 periods yr
depa10IntegerRecommendeddepakote use when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
dep10preIntegerRecommendedlt10 periods pre depakote0;1;-70=No; 1=Yes; -7=Refused
dep10monIntegerRecommendednum mon depakote before lt10
lam10IntegerRecommendedlamotrigine while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lam10preIntegerRecommendedlt10 periods pre lamotrigine0;1;-70=No; 1=Yes; -7=Refused
lam10monIntegerRecommendednum mon lamotrigine pre lt10
lith10IntegerRecommendedlithium use while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lth10preIntegerRecommendedpre lithium use lt 10 periods0;1;-70=No; 1=Yes; -7=Refused
lth10monIntegerRecommendednum mon lith before lt10 per
gab10IntegerRecommendedgabapentin use when lt10 perio0;1;-70=No; 1=Yes; -7=Refused
gab10preIntegerRecommendedgabapen use pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
gab10monIntegerRecommendednum mon gabap use pre lt10 per
teg10IntegerRecommendedtegretol while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
teg10preIntegerRecommendedtegretol pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
teg10monIntegerRecommendednum months tegretol pre lt10
topa10IntegerRecommendedtopamax while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
top10preIntegerRecommendedtopamax pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
top10monIntegerRecommendednum mon topimax pre lt10
clozlt10IntegerRecommendedclozaril when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
clozpreIntegerRecommendedlt10 periods pre clozaril0;1;-70=No; 1=Yes; -7=Refused
geodlt10IntegerRecommendedgeodon when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
geodpreIntegerRecommendedlt10 periods pre geodon0;1;-70=No; 1=Yes; -7=Refused
haldlt10IntegerRecommendedhaldol when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
haldpreIntegerRecommendedlt10 periods pre haldol0;1;-70=No; 1=Yes; -7=Refused
loxilt10IntegerRecommendedloxitane when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
loxipreIntegerRecommendedlt10 periods pre loxitane0;1;-70=No; 1=Yes; -7=Refused
mobalt10IntegerRecommendedmoban when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
mobanpreIntegerRecommendedlt10 periods pre moban0;1;-70=No; 1=Yes; -7=Refused
navalt10IntegerRecommendednavane when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
navapreIntegerRecommendedlt10 periods pre navane0;1;-70=No; 1=Yes; -7=Refused
olanlt10IntegerRecommendedolanzapine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
olanpreIntegerRecommendedlt10 periods pre olanzapine0;1;-70=No; 1=Yes; -7=Refused
prollt10IntegerRecommendedprolixin when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
prolpreIntegerRecommendedlt10 periods pre prolixin0;1;-70=No; 1=Yes; -7=Refused
risplt10IntegerRecommendedrisperdal when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
risppreIntegerRecommendedlt10 periods pre risperdal0;1;-70=No; 1=Yes; -7=Refused
serelt10IntegerRecommendedserentil when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
serepreIntegerRecommendedlt10 periods pre serentil0;1;-70=No; 1=Yes; -7=Refused
serolt10IntegerRecommendedseroquel when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
seropreIntegerRecommendedlt10 periods pre seroquel0;1;-70=No; 1=Yes; -7=Refused
stellt10IntegerRecommendedstelazine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
stelpreIntegerRecommendedlt10 periods pre stelazine0;1;-70=No; 1=Yes; -7=Refused
thorlt10IntegerRecommendedthorazine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
thorpreIntegerRecommendedlt10 periods pre thorazine0;1;-70=No; 1=Yes; -7=Refused
trillt10IntegerRecommendedtrilafon when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
trilpreIntegerRecommendedlt10 periods pre trilafon0;1;-70=No; 1=Yes; -7=Refused
lt10acneIntegerRecommendedacne problem when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10hairIntegerRecommendedexcessive hair when lt10 perio0;1;-70=No; 1=Yes; -7=Refused
lt10baldIntegerRecommendedbalding when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10exerIntegerRecommendedexcess exer when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10wghtFloatRecommendedweight when lt10 periods
lt10hghtFloatRecommendedheight when lt10 periods
lt10wtlsIntegerRecommendedweight loss when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10wtamFloatRecommendedweight lost when lt10 periods
lt10pregIntegerRecommendedlt10 periods dt preg postp bfd0;1;-70=No; 1=Yes; -7=Refused
hypothyIntegerRecommendedhypothyroidism underactive thy
0;1;-7; 9; -999
0=No; 1=Yes; -7=Refused;9=Not evaluated; -999= Don't know/Missing Data
hypoageIntegerRecommendedage diagnosed hypothyroidism
hyperthyIntegerRecommendedhyperthyroidism overactive thy
0;1;-7; 9; -999
0=No; 1=Yes; -7=Refused; 9=Not evaluated; -999= Don't know/Missing Data
hyperageIntegerRecommendedage diagnosed hyperthyroidism
prolactIntegerRecommendedprolactinoma pituitary tumor0;1;-70=No; 1=Yes; -7=Refused
prolageIntegerRecommendedage diagnosed prolactinoma
conghyprIntegerRecommendedcongenital adrenal hyperplasia0;1;-70=No; 1=Yes; -7=Refused
cngahageIntegerRecommendedage dx congen adrenal hyperpla
ovarcancIntegerRecommendedovarian cancer0;1;-70=No; 1=Yes; -7=Refused
cancageIntegerRecommendedage dx ovarian cancer
chemoradIntegerRecommendedchemo or radiation stop period0;1;-70=No; 1=Yes; -7=Refused
chemoageIntegerRecommendedage chemo rad stopped periods
anornervIntegerRecommendedanorexia nervosa0;1;-70=No; 1=Yes; -7=Refused
anorxageIntegerRecommendedage dx anorexia nervosa
bulinervIntegerRecommendedbulimia nervosa0;1;-70=No; 1=Yes; -7=Refusedbulimia
bulimageIntegerRecommendedage dx bulimia nervosa
lovremIntegerRecommendedsurgical removal left ovary0;1;-70=No; 1=Yes; -7=Refused
lovrmageIntegerRecommendedage left ovary removed
rovremIntegerRecommendedsurgical removal right ovary0;1;-70=No; 1=Yes; -7=Refused
rovrmageIntegerRecommendedage right ovary removed
diabetesIntegerRequiredDiabetes, or problems with blood sugar levels, if so are you insulin dependant1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care now
diabageIntegerRecommendedage dx diabetes
othrlossIntegerRecommendedloss menst period other0;1;-70=No; 1=Yes; -7=Refused
othlsageIntegerRecommendedage other cause lost period
tryconc1IntegerRecommendedunable conceive gt 1year0;1;-70=No; 1=Yes; -7=Refused
dayflushIntegerRecommendedhot flushes past month0;1;-70=No; 1=Yes; -7=Refused
numdayflIntegerRecommendednum days per week hot flushes
ntflushIntegerRecommendednight hot flushes past month0;1;-70=No; 1=Yes; -7=Refused
numntflIntegerRecommendednum days per week night flush
bodyhairIntegerRecommendedexcessive body hair0;1;-70=No; 1=Yes; -7=Refused
hairageIntegerRecommendedage first excess hair growth
hairremvIntegerRecommendedremove excess hair0;1;-70=No; 1=Yes; -7=Refused
numhrrmvIntegerRecommendednum times year remove hair
ultsndevIntegerRecommendedever had ultrasound of ovaries0;1;-70=No; 1=Yes; -7=Refused
pcovarIntegerRecommendedultrasnd showed polycystic ov0;1;-70=No; 1=Yes; -7=Refusedpolyovar
agecystsIntegerRecommendedage first ultrasnd showed cyst
seizdiagIntegerRecommendedeeg dx seizure disorder epilep0;1;-70=No; 1=Yes; -7=Refusedseizure
seizmonIntegerRecommendedhad seizures past 3months0;1;-70=No; 1=Yes; -7=Refused
famirrpdIntegerRecommendedfam mem irregular periods0;1;-70=No; 1=Yes; -7=Refused
famxhairIntegerRecommendedfam mem excess hair growth0;1;-70=No; 1=Yes; -7=Refused
fampcosIntegerRecommendedfam mem pcos0;1;-70=No; 1=Yes; -7=Refused
faminferIntegerRecommendedfam mem infertility0;1;-70=No; 1=Yes; -7=Refused
famprempIntegerRecommendedfam mem premature menopause0;1;-70=No; 1=Yes; -7=Refused
famdiabIntegerRecommendedfam mem diabetes0;1;-70=No; 1=Yes; -7=Refused
famseizIntegerRecommendedfam mem seizure disorder0;1;-70=No; 1=Yes; -7=Refused
took4wksIntegerRecommendedtook stopped med 4weeks0;1;-70=No; 1=Yes; -7=Refused
estrogenIntegerRecommendedhormone replacement therapy0;1;-70=No; 1=Yes; -7=Refused
depoprovIntegerRecommendeddepo provera shots0;1;-70=No; 1=Yes; -7=Refused
norplantIntegerRecommendednorplant0;1;-70=No; 1=Yes; -7=Refused
clomidIntegerRecommendedclomid or infertility meds0;1;-70=No; 1=Yes; -7=Refused
testostIntegerRecommendedtestosterone0;1;-70=No; 1=Yes; -7=Refused
prednisIntegerRecommendedprednisone or steroid pills0;1;-70=No; 1=Yes; -7=Refused
stoppillIntegerRecommendedstopped birth conrol pill 2mo0;1;-70=No; 1=Yes; -7=Refused
stopestrIntegerRecommendedstopped estrogen past 2mo0;1;-70=No; 1=Yes; -7=Refused
stopclomIntegerRecommendedstopped clomid past 2mo0;1;-70=No; 1=Yes; -7=Refused
stoptestIntegerRecommendedstopped testosterone past 2mo0;1;-70=No; 1=Yes; -7=Refused
stoppredIntegerRecommendedstopped prednisone past 2mo0;1;-70=No; 1=Yes; -7=Refused
dprov12mIntegerRecommendeddepo provera shot in past 12mo0;1;-70=No; 1=Yes; -7=Refused
norpl12mIntegerRecommendednorplant implant past 12mo0;1;-70=No; 1=Yes; -7=Refused
birth6moIntegerRecommendedgiven birth in past 6mo0;1;-70=No; 1=Yes; -7=Refused
birnummoIntegerRecommendednum months ago gave birth
pmenopsIntegerRecommendedpremature menopause0;1;-70=No; 1=Yes; -7=Refused
hystageIntegerRecommendedage at hysterectomy888=N/A; 999=missing data
bthovageIntegerRecommendedage when both ovaries removed
irregcycIntegerRecommendedirregular periods in past 3mo0;1;-70=No; 1=Yes; -7=Refused
cycle35IntegerRecommendedcycle gt 35days in past 3mo0;1;-70=No; 1=Yes; -7=Refused
miss3moIntegerRecommendedmissed menst period in past 3m0;1;-70=No; 1=Yes; -7=Refused
stopdepaIntegerRecommendedstopped depakote past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoplamiIntegerRecommendedstopped lamicatal past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoplithIntegerRecommendedstopped lithium past 3mo0;1;-70=No; 1=Yes; -7=Refused
stopneurIntegerRecommendedstopped neurontin past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoptegrIntegerRecommendedstopped tegretol past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoptopiIntegerRecommendedstopped topimax past 3mo0;1;-70=No; 1=Yes; -7=Refused
numpregIntegerRecommendednumber of pregnancies
numchildIntegerRecommendednumber of children
miss2moIntegerRecommendedmissed your menstrual period0;1;-70=No; 1=Yes; -7=Refused
missdurFloatRecommendedduration miss menstrual period
missageIntegerRecommendedmenstrual period missed age
mpstartIntegerRecommendedrecent mens days from consent
length10IntegerRecommendedcurrent cycle 10 days0;1;-70=No; 1=Yes; -7=Refused
mpsxIntegerRecommendedsymptoms around period0;1;-70=No; 1=Yes; -7=Refused
diffconcIntegerRecommendeddifficulties concentrating0;1;-70=No; 1=Yes; -7=Refused
sxpregIntegerRecommendedsevere mood symptoms0;1;-70=No; 1=Yes; -7=Refused
sxppartIntegerRecommendedsevere mood symptom postpartum0;1;-70=No; 1=Yes; -7=Refused
sxpillIntegerRecommendedsevere mood symptoms on birth control0;1;-70=No; 1=Yes; -7=Refused
endomsisIntegerRecommendedendometriosis0;1;-7; 888;9990=No; 1=Yes; -7=Refused; 888=N/A; 999=missing data
txacneIntegerRecommendedtreatment for acne0;1;-70=No; 1=Yes; -7=Refused
breastcaIntegerRecommendedbreast cancer0;1;-70=No; 1=Yes; -7=Refused
abpapIntegerRecommendedmultiple abnormal pap smear s0;1;-70=No; 1=Yes; -7=Refused
fibuterIntegerRecommendedfibroid uterus0;1;-70=No; 1=Yes; -7=Refused
fibcystIntegerRecommendedfibroid cystic breast disease0;1;-70=No; 1=Yes; -7=Refused
cycle10IntegerRecommendedcycle lengths predictable0;1;-70=No; 1=Yes; -7=Refused
dayflowIntegerRecommendedperiod usually flow
mensflowIntegerRecommendedtotal amount of menstrual f low1::4;-71=Light; 2=Moderate; 3=Moderately heavy; 4=Heavy; -7=Refused
painmpIntegerRecommendedhow much pain with periods0::30=No pain; 1=Mild cramps; 2=Moderate cramps; 3=Severe cramps; -7=Refused
daysmpIntegerRecommendedusual number of days pain
ovarcystIntegerRecommendedovarian cyst0;1;-70=No; 1=Yes; -7=Refused
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentfmct0
fmc1IntegerRecommendedHistory of menstruation0::20 = No; 1 = Yes; 2=NA - subject is Male
mpt0FloatRecommendedWeeks from Time 0 (randomization) to date of last menstrual period
fmc3IntegerRecommendedIf history of menstruation, consistency of menstrual cycles over the last 3 months0;10 = Irregular menstrual cycle; 1 = Regular menstrual cycle
fmc4aIntegerRecommendedIf history of menstruation, days between start of each menstrual period (regular cycle)[Caution: Beware of extreme outliers]
fmc4bIntegerRecommendedIf history of menstruation, lower number of days between start of each menstrual period (irregular)[Caution: Beware of extreme outliers]
fmc4cIntegerRecommendedIf history of menstruation, upper number of days between start of each menstrual period (irregular)[Caution: Beware of extreme outliers]
fmc5IntegerRecommendedIf history of menstruation, did you "miss" your last menstrual period?0;10 = No; 1 = Yesfmc5a
fmc6IntegerRecommendedIf history of menstruation, is teenager currently pregnant?0::40 = Not Pregnant; 1 = Pregnancy suspected, but not confirmed; 2 = Pregnancy confirmed; 3=Not pregnant(per pregnancy test); 4=Not pregnant(has not reached menarche)  
visdayIntegerRecommendedNumber of days from study baseline to date of visitdayfmc
fmc2_dIntegerRecommendedDays Since Last Menstrual Period
fmc4b1IntegerRecommendedStart point of range in days if irregular cycle
fmc4b2IntegerRecommendedEnd point of range in days if irregular cycle
fmc5bIntegerRecommendedIf last menstrual period missed: how many days late are you?
pregtestIntegerRecommendedPregnancy test done?0;10 = No;1 = Yes
fmc7IntegerRecommendedIf sexually active, what form of contraception is being used?1::61 = Hormonal;2 = Spermicide;3 = Barrier;4 = Barrier & Spermicide;5=Not Applicable/Not Active; 6=Hormonal and Barrier
regmenseIntegerRecommendedRegular menstrual periods0;1; 9990=No;1=Yes; 999=NA
premenstIntegerRecommendedMedical history and physical development - If female: Current premenstrual?0::20=N/A (male); 1=no; 2=yes
menarcheString50RecommendedMenarche cycle
version_formString100RecommendedForm used
surg_surgtype1String255RecommendedTYPE OF SURGERY 1surgery
inter_othercondString50RecommendedCLIENTS MEDICAL STATUS: Otherother
pu_menstrcdIntegerRecommendedMenstrual status code0::141= Regular cycle (periods occur regularly); 2= Irregular cycles and/or bleeding (eg periods occur irregularly, spotting, heavy or prolonged bleeding); 3= Menopause; 4= Surgery (hysterectomy); 5= Hormone imbalance (weight loss, anorexia, strenuous physical activity, stress, decreased body fat); 6= Pharmacologic suppression...(eg depo; 7= Pregnancy (includes three months post; 8= Other reason for Amenorrhea (specify by notation); 9= Unknown; 0 = Not applicable, patient is male; 10 = Not applicable; child/adolescent has not started menstration; 11 = Amenorrheic due to bilateral oophorectomy (ovaries surgically removed); 12 = Amenorrheic due to other surgical procedure -- specify surgery; 13 = 0 to 6 weeks post partum; 14 = More than 6 weeks to 8 months post partummenstat
bsimoFloatRecommendedMonths from Time 0 to assessmentmonfol
days_baselineIntegerRecommendedDays since baseline
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: mhu01 and Element:
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