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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Medication Side Effects



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectnewid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
mse1IntegerRecommendedFeeling dizzy or faint0;1;-7;-9 0 =no; 1 = yes; -9 = don't know; -7 = refusedSE1A
eyvsnIntegerRecommendedEye/Ear: Blurred vision0;10=No; 1=YesSE1B
wk_dry_mouthIntegerRecommended19. Dry mouth0;1No = 0; Yes = 1;SE1C
spmc_suck05IntegerRecommendedPoor saliva control/drooling0 = No; 1 = YesSE1D
gnseaIntegerRecommendedGI: Nausea/vomiting0;10=No; 1=YesSE1E
gcnstIntegerRecommendedGI: Constipation0;10=No; 1=YesSE1F
npil02IntegerRecommendedHas he/she had an increase in appetite?0;10=No; 1=YesSE1G
adsq12_uIntegerRecommendedPresence of Symptom: Weight gain (Non-imputed Version)0;10= No; 1= YesSE1H
adsq10_uIntegerRecommendedPresence of Symptom: Weight loss (Non-imputed Version)0;10= No; 1= YesSE1I
md3fIntegerRecommendedPhysically restless0;10=No; 1=YesSE1J
aaq_5hIntegerRecommendedShaking0;10=No; 1=YesSE1K
mse12IntegerRecommendedFeeling stiff or rigid0;10 = No;1 = YesSE1L
dsmleIntegerRecommendedFatigue or loss of energy0;10=Not checked; 1=CheckedSE1M
mse14IntegerRecommendedFeeling drowsy during the day0;10 = No;1 = YesSE1N
slmchIntegerRecommendedSleep: Sleeping too much0;10=No; 1=YesSE1O
sldifIntegerRecommendedSleep: Difficulty sleeping0;10=No; 1=YesSE1P
sxlsIntegerRecommendedSexual: Loss of sexual desire0;10=No; 1=YesSE1Q
mse18IntegerRecommendedOther problems with sex0;10 = No;1 = YesSE1R
mse19IntegerRecommendedProblems with your breasts such as swelling or discharge0;10 = No;1 = YesSE1S
mse20IntegerRecommendedAny problems with your period0;10 = No;1 = YesSE1T
mse21IntegerRecommendedImpaired sexual performance0;10 = No;1 = YesSE1U
mse_totalIntegerRecommendedMedication Side Effects total score0::16sum_SE
days_baselineIntegerRecommendedDays since baselinesedays
visitString50RecommendedVisit nameCharacter description of each type of visittimept
siteString100RecommendedSiteStudy Site
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: mse01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.