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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Medical Visits and Hospitalizations

mvhsp

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Siteasite
clinicidIntegerRecommendedClinic IDaclinic
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitwave
days_baselineIntegerRecommendedDays since baselinelof
vis1IntegerRecommendedHow many times in the past 6 months have you been a patient overnight or longer in a hospital?
vis1aIntegerRecommendedDuring the past 6 months, how many total nights did you stay overnight or longer in a hospital.
vis1bIntegerRecommendedNumber of nights stay in a hospital for emo (collected after baseline)
vis2IntegerRecommendedIn the past 6 months, how many different visits have you made to a hospital emergency room or an urgent care facility?
vis3aIntegerRecommendedIn the past 6 months, how many clinic or office visits did you make to a primary care provider such as a family doctor, general internist, gynecologist, nurse or nurse practitioners?
vis3aaIntegerRecommendedDuring how many of these visits to a primary care provider in the last 6 months did you bring up or discuss personal or emotional problems such as your nerves, mood, alcohol, drugs or mental health?
vis3bIntegerRecommendedIn the past 6 months, how many visits did you make to a medical specialist like a cardiologist, urologist, orthopaedist, neurologist, dermatologist?
vis3cIntegerRecommendedNow Id like to ask about visits to mental health providers. In the past 6 months, how many visits did you make to a Psychiatrist?
vis3dIntegerRecommendedIn the past 6 months, how many visits did you make to a psychologist, social worker, psychotherapist, psychiatric nurse or other counselor or therapist that you havent already told me about?
vis4IntegerRecommendedIn the past 6 months, how many outpatient surgeries or outpatient medical procedures did you have?
vis4b1String55RecommendedMedical Procedure 1
vis4b2String55RecommendedMedical Procedure 2
vis4b3String55RecommendedMedical Procedure 3
vis4b4String55RecommendedMedical Procedure 4
vis4b5String55RecommendedMedical Procedure 5
vis4b6String55RecommendedMedical Procedure 6
vis4b7String55RecommendedMedical Procedure 7
vis4b8String55RecommendedMedical Procedure 8
vis4b9String55RecommendedMedical Procedure 9
vis4b10String55RecommendedMedical Procedure 10
casa8yIntegerRecommendedNumber of visits for outpatient drug or alcohol treatment or services (past 6 months)vis5
vis6aIntegerRecommendedIn the past 6 months, how often did any provider help you practice directly dealing with things that made you afraid such as places, people, memories or feelings in order to become less afraid of them?1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
vis6bIntegerRecommendedHow often did any provider teach you methods of physical relaxation, such as slow breathing?1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
vis6cIntegerRecommendedHow often did any provider help you look at your thoughts more realistically?1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
vis6dIntegerRecommendedHow often did any provider help you to see mistakes in your thinking for example, all or nothing thinking or always fearing the worst will happen?1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
vis6eIntegerRecommendedHow often did any provider help you to understand how your thoughts and feelings are related?1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
vis6gIntegerRecommendedHow often did any provider ask you to do homework between visits? Homework can include activities like writing down your thoughts, feelings, and activities or practicing something you learned during your visit.1::41=Never; 2=Sometimes; 3=Usually; 4=Always;
med1opmedIntegerRecommendedIn the past 6 months did you take ANY prescription medications at least several times a week for at least a month? Please think about prescription medications other than vitamins and antibiotics.0;10=No; 1=Yesmed1
med1aIntegerRecommendedHave you been taking any prescription medications to help with depression, anxiety, or sleep?0;10=No; 1=Yes
med_chgIntegerRecommendedHigh Quality RX0;1High Quality RX (IF (QUARXt2=3) THEN MED_CHANGEt2=1; ELSE IF (1=<QUARXt2<=2) THEN MED_CHANGEt2 =0;)
qucbt1IntegerRecommendedDuring the past 6 months, had 1 or more CBT (direct practice, physical relaxation, help look at thoughts realistically, help to see thinking mistakes, help relating thoughts and feelings, CBT homework) at the level of 2=sometimes or 3=usually or 4=always0;10=No - 0 times; 1=Yes - 1 to 6 times
qucbt2IntegerRecommendedDuring the past 6 months, had 3 or more CBT (direct practice, physical relaxation, help look at thoughts realistically, help to see thinking mistakes, help relating thoughts and feelings, CBT homework) at the level of 2=sometimes or 3=usually or 4=always0;10=No - 0 to 2 times; 1=Yes - 3 to 6 times
qucbt3IntegerRecommendedDuring the past 6 months, had 3 or more CBT (direct practice, physical relaxation, help look at thoughts realistically, help to see thinking mistakes, help relating thoughts and feelings, CBT homework) at the level of 3=usually or 4=always0;10=No - 0 to 2 times; 1=Yes - 3 to 6 times
thospIntegerRecommendedNumber of hospital visists
tnightIntegerRecommendedNumber of nights in the hospital
tenghtIntegerRecommendedNumber of emotional nights in hospital
srfa6gIntegerRecommendedEmergency Room (Medical) number of visits0::200
tpcrvsIntegerRecommendedNumber of Primary care visits
tpcevsIntegerRecommendedNumber of Emotional Primary care visists
tspcvsIntegerRecommendedNumber of medical specialist visists
pmdvisitIntegerRecommendedpsychiatrist number of visitstmhivs
tcnlvsIntegerRecommendedNumber of visist to psychologist
tosurgIntegerRecommendedNumber of outpatient surgery
p61i6IntegerRecommendedSubstance Abuse - Best estimate of number of episodestsubst
ahospIntegerRecommendedany hospital visits0;10=No; 1=Yes
anightIntegerRecommendedany nights in hospital0;10=No; 1=Yes
aenghtIntegerRecommendedany emotional nights in hospital0;10=No; 1=Yes
aervstIntegerRecommendedany emergency room visists0;10=No; 1=Yes
apcrvsIntegerRecommendedany primary care visits0;10=No; 1=Yes
apcevsIntegerRecommendedany emotional primary care visits0;10=No; 1=Yes
aspcvsIntegerRecommendedany medical specialist visists0;10=No; 1=Yes
amhivsIntegerRecommendedany visit to psychiatrist0;10=No; 1=Yes
acnlvsIntegerRecommendedany-visit to psychologist0;10=No; 1=Yes
aosurgIntegerRecommendedany-outpatient surgery0;10=No; 1=Yes
ysuaIntegerRecommendedAbuse. Other drug abuse/dependence. Diagnosis for other substance abuse0 :: 10 = Absent; 1 = Presentasubst
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: mvhsp01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.