Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

My Personal Health Records

myphr

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectrecord_id
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
mh_1DateRecommendedDate of onset for Acquired Immunodeficiency Syndrome (AIDS) or HIV Positive
mh_2DateRecommendedDate of onset for ArthritisMM/DD/YYYY
mh_3DateRecommendedDate of onset for AsthmaMM/DD/YYYY
mh_4DateRecommendedDate of onset for BronchitisMM/DD/YYYY
mh_5DateRecommendedDate of onset for CancerMM/DD/YYYY
mh_6DateRecommendedDate of onset for ChlamydiaMM/DD/YYYY
mh_7DateRecommendedDate of onset for DiabetesMM/DD/YYYY
mh_8DateRecommendedDate of onset for DizzinessMM/DD/YYYY
mh_9DateRecommendedDate of onset for EmphyemaMM/DD/YYYY
mh_10DateRecommendedDate of onset for EpilepsyMM/DD/YYYY
mh_11DateRecommendedDate of onset for Eye ProblemMM/DD/YYYY
mh_12DateRecommendedDate of onset for FaintingMM/DD/YYYY
mh_13DateRecommendedDate of onset for Frequent or Severe HeadachesMM/DD/YYYY
mh_14DateRecommendedDate of onset for GlaucomaMM/DD/YYYY
mh_15DateRecommendedDate of onset for GonorrheaMM/DD/YYYY
mh_16DateRecommendedDate of onset for Hearing ImpairmentMM/DD/YYYY
mh_17DateRecommendedDate of onset for HemodialysisMM/DD/YYYY
mh_18DateRecommendedDate of onset for HerpesMM/DD/YYYY
mh_19DateRecommendedDate of onset for High Blood CholesterolMM/DD/YYYY
mh_20DateRecommendedDate of onset for High Blood PressureMM/DD/YYYY
mh_21DateRecommendedDate of onset for HypoglycemiaMM/DD/YYYY
mh_22DateRecommendedDate of onset for JaundiceMM/DD/YYYY
mh_23DateRecommendedDate of onset for Kidney DiseaseMM/DD/YYYY
mh_24DateRecommendedDate of onset for Low Blood PressureMM/DD/YYYY
mh_25DateRecommendedDate of onset for Mental RetardationMM/DD/YYYY
mh_26DateRecommendedDate of onset for Chest or Pressure in ChestMM/DD/YYYY
mh_27DateRecommendedDate of onset for PalpitationsMM/DD/YYYY
mh_28DateRecommendedDate of onset for Periods of UnconsciousnessMM/DD/YYYY
mh_29DateRecommendedDate of onset for Rheumatic FeverMM/DD/YYYY
mh_30DateRecommendedDate of onset for RheumatismMM/DD/YYYY
mh_31DateRecommendedDate of onset for SeizuresMM/DD/YYYY
mh_32DateRecommendedDate of onset for Shortness of BreathMM/DD/YYYY
mh_33DateRecommendedDate of onset for Stomach Liver or intestinal problemsMM/DD/YYYY
mh_34DateRecommendedDate of onset for SyphilisMM/DD/YYYY
mh_35DateRecommendedDate of onset for TuberculosisMM/DD/YYYY
mh_36DateRecommendedDate of onset for TumorMM/DD/YYYY
mh_37DateRecommendedDate of onset for Thyroid ProblemsMM/DD/YYYY
mh_38DateRecommendedDate of onset for Urinary Tract InfectionMM/DD/YYYY
mh_39DateRecommendedDate of onset for otherMM/DD/YYYY
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: myphr01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.