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Non Communicating Children's Pain Checklist - Revised

nccpc_r

01

Non Communicating Children's Pain Checklist - Revised

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
vocal_1IntegerRecommendedMoanin, whining, whimpering (fairly soft)0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
vocal_2IntegerRecommendedCrying (moderately loud)0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
vocal_3IntegerRecommendedScreaming/yelling (very loud)0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
vocal_4IntegerRecommendedA specific sound or word for pain0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
social_5IntegerRecommendedNot cooperating, cranky, irritable, unhappy0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
social_6IntegerRecommendedLess interactions with others, withrawn0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
social_7IntegerRecommendedSeeking comfort or physical closeness0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
social_8IntegerRecommendedNeing difficult to distract, not able to satisfy or pacify0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
facial_9IntegerRecommendedA furrowed brow0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
facial_10IntegerRecommendedA cahnge in eyes, including: squinching of eyes, eyes opened wide, eyes frowning0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
facial_11IntegerRecommendedTurning down of mouth, not smiling0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
facial_12IntegerRecommendedLips puckering up, tight, pouting, or quivering0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
facial_13IntegerRecommendedClenching or grinding teeth, chewing or thrusting tongue out0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
activity_14IntegerRecommendedNot moving, less active, quiet0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
activity_15IntegerRecommendedJumping around, agitated, fidgety0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_16IntegerRecommendedFloppy0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_17IntegerRecommendedStiff, spastic, tense, rigid0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_18IntegerRecommendedGesturing to or touching part of the body that hurts0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_19IntegerRecommendedProtecting, favoring or guarding part of body that hurts0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_20IntegerRecommendedFlinching or moving the body part away, being sensitive to touch0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
bodylimbs_21IntegerRecommendedMoving the body in a specific way to show pain0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_22IntegerRecommendedShivering0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_23IntegerRecommendedChange in color, pallor0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_24IntegerRecommendedSweating, perspiring0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_25IntegerRecommendedTears0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_26IntegerRecommendedSharp intake of breath, gasping0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
physiolog_27IntegerRecommendedBreath holding0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
eatsleep_28IntegerRecommendedEating less, not interested in food0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
eatsleep_29IntegerRecommendedIncrease in sleep0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
eatsleep_30IntegerRecommendedDecrease in sleep0::40=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
vocal_scoreIntegerRequiredVocal category score0::12
social_scoreIntegerRequiredSocial category score0::12
facial_scoreIntegerRequiredFacial category score0::15
activity_scoreIntegerRequiredActivity category score0::6
bodylimbs_scoreIntegerRequiredBody and Limbs category score0::18
physiolog_scoreIntegerRequiredPhysiological category score0::18
eatsleep_scoreIntegerRequiredEating/Sleeping category score0::9
summary_totalIntegerRequiredSummary total score0::90
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: nccpc_r01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.