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Neuropsychiatric Inventory

npi

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectcatieid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interview
npia00IntegerRecommendedDoes the subject have beliefs that you know are not true? For example, insisting that people are trying to harm him/her or steal from him/her? Has he/she said that family members are not who they say they are or that the house is not their home?0;1;90 = No Proceed to section B. Hallucinations; 1 = Yes Proceed to subquestions A1-10; 9 = N.A. Not Applicable
npia01IntegerRecommendedDoes subject believe that he/she is in danger- that others are planning to hurt him/her?0;10=No; 1=Yes
npia02IntegerRecommendedDoes subject believe that others are stealing from him/her?0;10=No; 1=Yes
npia03IntegerRecommendedDoes subject believe that his/her spouse is having an affair?0;10=No; 1=Yes
npia04IntegerRecommendedDoes subject believe that unwelcome guests are living in his/her house?0;10=No; 1=Yes
npia05IntegerRecommendedDoes subject believe that his/her spouse or others are not who they claim to be?0;10=No; 1=Yes
npia06IntegerRecommendedDoes subject believe that his/her house is not his/her home?0;10=No; 1=Yes
npia07IntegerRecommendedDoes subject believe that family members plan to abandon him/her?0;10=No; 1=Yes
npia08IntegerRecommendedDoes subject believe that television or magazine figures are actually present in the how? (Does he/she try to talk or interact with them?)0;10=No; 1=Yes
npia09IntegerRecommendedDoes subject believe any other unusual things that I haven't asked about?0;10=No; 1=Yes
npia10aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npia10bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npia10cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npib00IntegerRecommendedDoes the subject have hallucinations such as false visions or voices? Does he/she seem to see, hear or experience things that are not present? By this question we do not mean just mistaken beliefs such as stating that someone who had dies is still alive; rather we are asking if the subject actually has abnormal experiences of sounds or visions.0;1;90 = No proceed to section C. Agitation/Aggr; 1 = Yes proceed to subquestions 1-8; 9 = N.A. Not Applicable
bpib01IntegerRecommendedDoes subject describe hearing voices or act as if he/she hears voices?0;10=No; 1=Yes
npib02IntegerRecommendedDoes subject talk to people who are not there?0;10=No; 1=Yes
npib03IntegerRecommendedDoes subject describe seeing things not seen by others or behave as if he/she is seeing things not seen by others (people, animals, lights, etc.)?0;10=No; 1=Yes
npib04IntegerRecommendedDoes subject report smelling odors not smelled by others?0;10=No; 1=Yes
npib05IntegerRecommendedDoes subject describe feeling things on his/her skin or otherwise appear to be feeling things crawling or touching him/her?0;10=No; 1=Yes
npib06IntegerRecommendedDoes subject describe tastes that are without any known cause?0;10=No; 1=Yes
npib07IntegerRecommendedDoes subject describe any other unusual sensory experiences?0;10=No; 1=Yes
npib08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npib08bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npib08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npic00IntegerRecommendedAgitation/Aggression0;1;90 = No Proceed to section D. Depression/Dys; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable
npic01IntegerRecommendedDoes subject get upset with those trying to care for him/her or resist activities such as bathing or changing clothes?0;10=No; 1=Yes
npic02IntegerRecommendedIs subject stubborn, having to have things his/her way?0;10=No; 1=Yes
npic03IntegerRecommendedIs subject uncooperative, resistive to help from others?0;10=No; 1=Yes
npic04IntegerRecommendedDoes subject have any other behaviors that make him/her hard to handle?0;10=No; 1=Yes
npic05IntegerRecommendedDoes subject shout or curse angrily?0;10=No; 1=Yes
npic06IntegerRecommendedDoes subject slam doors, kick furniture, throw things?0;10=No; 1=Yes
npic07IntegerRecommendedDoes subject attempt to hurt or hit others?0;10=No; 1=Yes
npic08IntegerRecommendedDoes subject have any other aggressive or agitated behaviors?0;10=No; 1=Yes
npic09aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npic09bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npic09cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npid00IntegerRecommendedDepression/Dysphoria0;1;90 = No Proceed to section E. Anxiety; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable
npid01IntegerRecommendedDoes subject have periods of tearfulness or sobbing that seem to indicate sadness?0;10=No; 1=Yes
npid02IntegerRecommendedDoes subject say or act as if he/she is sad or in low spirits?0;10=No; 1=Yes
npid03IntegerRecommendedDoes subject put him/herself down or say that he/she feels like a failure?0;10=No; 1=Yes
npid04IntegerRecommendedDoes subject say that he/she is a bad person or deserves to be punished?0;10=No; 1=Yes
npid05IntegerRecommendedDoes subject seem very discouraged or say that he/she has no future?0;10=No; 1=Yes
npid06IntegerRecommendedDoes subject say he/she is a burden to the family or that the family would be better off without him/her?0;10=No; 1=Yes
npid07IntegerRecommendedDoes subject express a wish for death or talk about killing him/herself?0;10=No; 1=Yes
npid08IntegerRecommendedDoes subject show any other signs of depression or sadness?0;10=No; 1=Yes
npid09aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npid09bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npid09cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npie00IntegerRecommendedAnxiety0;1;90 = No Proceed to section F. Elation/Euphor; 1 = Yes Proceed to subquestions E1-8; 9 = N.A. Not Applicable
npie01IntegerRecommendedDoes subject say that he/she is worried about planned events?0;10=No; 1=Yes
npie02IntegerRecommendedDoes subject have periods of feeling shaky, unable to relax, or feeling excessively tense?0;10=No; 1=Yes
npie03IntegerRecommendedDoes subject have periods of (or complain of) shortness of breath, gasping, or sighing for no apparent reason other than nervousness?0;10=No; 1=Yes
npie04IntegerRecommendedDoes subject complain of butterflies in his/her stomach, or of racing or pounding of the heart in association with nervousness?0;10=No; 1=Yes
npie05IntegerRecommendedDoes subject avoid certain places or situations that make him/her more nervous such as riding in the car, meting with friends, or being in crowds?0;10=No; 1=Yes
npie06IntegerRecommendedDoes subject become nervous or upset when seperated from you (or his/her caregiver)? [Does he/she cling to you to keep from being seperated?]0;10=No; 1=Yes
npie07IntegerRecommendedDoes subject show any other signs of anxiety?0;10=No; 1=Yes
npie08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npie8bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npie08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npif00IntegerRecommendedElation/Euphoria0;1;90 = No Proceed to section F. Elation/Euphor; 1 = Yes Proceed to subquestions E1-8; 9 = N.A. Not Applicable
npif01IntegerRecommendedDoes subject appear to feel too good or to be too happy, different from his/her usual self?0;10=No; 1=Yes
npif02IntegerRecommendedDoes subject find humor and laugh at things that others do not find funny?0;10=No; 1=Yes
npif03IntegerRecommendedDoes subject seem to have a childish sense of humor with a tendency to giggle or laugh inappropriately (such as when something unfortunate happens to others)?0;10=No; 1=Yes
npif04IntegerRecommendedDoes subject tell jokes or make remarks that have little humor for others but seem funny to him/her?0;10=No; 1=Yes
npif05IntegerRecommendedDoes he/she play childish pranks such as pinching or playing keep away for the fun of it?0;10=No; 1=Yes
npif06IntegerRecommendedDoes subject talk big or claim to have more abilities or wealth than is true?0;10=No; 1=Yes
npif07IntegerRecommendedDoes subject show any other signs of signs of feeling too good or being too happy?0;10=No; 1=Yes
npif08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npif08bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npif08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npig00IntegerRecommendedApathy/Indifference0;1;90 = No Proceed to section H. Disinhibition; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not Applicable
npig01IntegerRecommendedDoes subject seem less spontaneous and less active than usual?0;10=No; 1=Yes
npig02IntegerRecommendedIs subject less likely to initiate a conversation?0;10=No; 1=Yes
npig03IntegerRecommendedIs subject less affectionate or lacking in emotions when compared to his/her usual self?0;10=No; 1=Yes
npig04IntegerRecommendedDoes subject contribute less to houshold chores?0;10=No; 1=Yes
npig05IntegerRecommendedDoes subject seem less interested in the activities and plans of others?0;10=No; 1=Yes
npig06IntegerRecommendedHas subject lost interest in friends and family members?0;10=No; 1=Yes
npig07IntegerRecommendedIs subject less enthusiastic about his/her usual interists?0;10=No; 1=Yes
npig08IntegerRecommendedDoes subject show any other signs that he/she doesn't care about doing new things?0;10=No; 1=Yes
npig09aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npig09bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npig09cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npih00IntegerRecommendedDisinhibition0;1;90 = No Proceed to section I. Irritability/L; 1 = Yes Proceed to subquestions 1-8; 9 = N.A. Not Applicable
npih01IntegerRecommendedDoes subject act impulsively without appearing to consider the consequences?0;10=No; 1=Yes
npih02IntegerRecommendedDoes subject talk to total strangers as if he/she knew them?0;10=No; 1=Yes
npih03IntegerRecommendedDoes subject say things to people that are insensitive or hurt feelings?0;10=No; 1=Yes
npih04IntegerRecommendedDoes subject say crude things or make sexual remarks that they would not usually have said?0;10=No; 1=Yes
npih05IntegerRecommendedDoes subject talk openly about very personal or private matters not usually discussed in public?0;10=No; 1=Yes
npih06IntegerRecommendedDoes subject take liberties or touch or hug others in a way that is out of character for him/her?0;10=No; 1=Yes
npih07IntegerRecommendedDoes subject show any other signs of loss of control of his/her impulses?0;10=No; 1=Yes
npih08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npih08bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npih08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npii00IntegerRecommendedIrritability/Lability0;1;90 = No Proceed to section J. Aberrant Motor; 1 = Yes Proceed to subquestions I1-8; 9 = N.A. Not applicable
npii01IntegerRecommendedDoes subject have a bad temper, flying off the handle easily over little things?0;10=No; 1=Yes
npii02IntegerRecommendedDoes subject rapidly change moods from one to another, being fine one minute and angry the next?0;10=No; 1=Yes
npii03IntegerRecommendedDoes subject have sudden flashes of anger?0;10=No; 1=Yes
npii04IntegerRecommendedIs subject impatient, having trouble coping with delays or waiting for planned activities?0;10=No; 1=Yes
npii05IntegerRecommendedIs subject cranky and irritable?0;10=No; 1=Yes
npii06IntegerRecommendedIs subject argumentative and difficult to get along with?0;10=No; 1=Yes
npii07IntegerRecommendedDoes subject show any other signs of irritability?0;10=No; 1=Yes
npii08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npii08bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npii08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npij00IntegerRecommendedAberrant Motor Behavior0;1;90 = No Proceed to section K. Sleep; 1 = Yes Proceed to subquestions 1-8; 9 = N.A. Not applicable
npij01IntegerRecommendedDoes subject pace around the house without apparent purpose?0;10=No; 1=Yes
npij02IntegerRecommendedDoes subject rummage around opening and unpacking drawers or closets?0;10=No; 1=Yes
npij03IntegerRecommendedDoes subject repeatedly put on and take off clothing?0;10=No; 1=Yes
npij04IntegerRecommendedDoes subject have repetitive activities or bad habits that he/she performs over and over?0;10=No; 1=Yes
npij05IntegerRecommendedDoes subject engage in repetitive activities such as handling buttons, picking, wrapping string, etc?0;10=No; 1=Yes
npij06IntegerRecommendedDoes subject fidget excessively, seem unable to sit still, or bounce his/her feet or tap his/her fingers a lot?0;10=No; 1=Yes
npij07IntegerRecommendedDoes subject do any other activities over and over?0;10=No; 1=Yes
npij08aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npij08bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npij08cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npik00IntegerRecommendedSleep0;1;90 = No Proceed to section L. Appetite and e; 1 = Yes Proceed to subquesions 1-9; 9 = N.A. Not applicable
npik01IntegerRecommendedDoes subject have difficulty falling asleep?0;10=No; 1=Yes
npik02IntegerRecommendedDoes subject get up during the night (do not count if the patient gets up once or twice per night only to go to the bathroom and falls nack asleep immediately)0;10=No; 1=Yes
npik03IntegerRecommendedDoes subject wander, pace, or get involved in inappropriate activities at night?0;10=No; 1=Yes
npik04IntegerRecommendedDoes subject awaken you during the night?0;10=No; 1=Yes
npik05IntegerRecommendedDoes subject awaken at night, dress, and plan to go out thinking that it is morning and time to start the day?0;10=No; 1=Yes
npik06IntegerRecommendedDoes subject awaken too early in the morning (earlier than was his/her habit)?0;10=No; 1=Yes
npik07IntegerRecommendedDoes subject sleep excessively during the day?0;10=No; 1=Yes
npik08IntegerRecommendedDoes subject have any other night-time behaviors that bother you that we haven't talked about?0;10=No; 1=Yes
npik09aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npik09bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npik09cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npil00IntegerRecommendedAppetite and eating disorders0;1;90 = No; 1 = Yes Proceed to subquestions 1-9; 9 = N.A. Not applicable
npil01IntegerRecommendedHas he/she had a loss of appetite?0;10=No; 1=Yes
npil02IntegerRecommendedHas he/she had an increase in appetite?0;10=No; 1=Yes
npil03IntegerRecommendedHas he/she had a loss of weight?0;10=No; 1=Yes
npil04IntegerRecommendedHas he/she gained weight?0;10=No; 1=Yes
npil05IntegerRecommendedHas he/she had a change in eating behavior such as putting too much food in his/her mouth at once?0;10=No; 1=Yes
npil06IntegerRecommendedHas he/she had a change in the kind of food he/she likes such as eating too many sweets or other specific types of food?0;10=No; 1=Yes
npil07IntegerRecommendedHas he/she developed eating behaviors such as eating exactly the same types of food each day or eating the food in exactly the same order?0;10=No; 1=Yes
npil08IntegerRecommendedHave there been any other changes in appetite or eating that I haven't asked about?0;10=No; 1=Yes
npil09aIntegerRecommendedFrequency Ratings1;2;3;41 = Occasionally; 2 = Often; 3 = Frequently; 4 = Very Frequently
npil09bIntegerRecommendedSeverity Ratings1;2;31 = Mild; 2 = Moderate; 3 = Marked
npil09cIntegerRecommendedCaregiver Distress0;1;2;3;4;50 = Not at all; 1 = Minimally; 2 = Mildly; 3 = Moderately; 4 = Severely; 5 = Very Severely or extremely
npi_tsIntegerRecommendedNPI Total ScoreCalculated by adding the frequency x severity scores of the first 10 domains (A. Delusions � J. Aberrant Motor Behavior) together. Domains K. Night-time Behavior and L. Appetite/Eating Change are not included in the total score. Note if symptoms of a particular domain are absent, the frequency x severity score for that domain would be 0.
care_tsIntegerRecommendedCaregiver Distress Total ScoreCalculated by adding together the scores of the individual NPI caregiver distress questions together for the first 10 domains. Note if symptoms of a particular domain are absent, the caregiver distress score for that domain would be 0.
visitString50RecommendedVisit nameCharacter description of each type of visit
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
phase_ctString20RecommendedCurrent Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase.Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1phase
last1IntegerRecommendedFlag Last Phase 1/1A Visit1=Yes for all records meeting this criteria
base1IntegerRecommendedFlag Baseline Phase 1/1A Visit1=Yes for all records meeting this criteria
base_tsFloatRecommendedBaseline Total ScoreScare at Phase 1 baselline
c_tsFloatRecommendedChanged from Baseline ADAS Total ScoreChange from Phase 1 baseline
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: npi01 and Element:
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